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Astrocytoma gr 3 discovered in a 6 years old girl
Hello everybody, My name is Joe and I'm writting this in search of a...miracol, a cure or something. My niece wich lives in Romania was discovered with this astrocytoma 3 degree in december 2012. This month she start the treatement called Protocol SIOP LGG 2004 for 81 weeks!!! The substances used are carboplatine,…
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Zimbabwean Male with GBM 4 seeking contact with others in same situ
Hi my name is Colin Bristow and I live in Zimbabwe. In June 2012 I was diagnosed with a stage four GBM. The tumour was on the right side. I had the neuro surgery, have completed chemo and radiotherapy. I am now on cycle five of taking oral chemo. I am also taking cortisone. Despite the cortisone I am experiencing vision…
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GBM IV - alternative therapies
I'm on here looking for a little direction........December 1st, my 78 yr old (and very healthy) grandma was diagnosed with GMB IV. Because of the location of the tumor, left frontal lobe, they were unable to remove any of the tumor. She has decided against radiation/chemo, and our family supports her decision. She was on…
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Metastasis - Oligodendroglioma Cancer spread to Spine
Anyone out there who has dealt with Oligodendroglioma spreading to the spine..is there any treatment that is offered...I have a 28 year old brother in law whose cancer spread from brain to spine...i heard t his is a very rare case and i am unable to find any treatment options....he is a grade 3....please help. Thanks
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Sarah's MRI
Hello friends: It is with a broken heart that I let you all know that the cancer has come back. First, her speech was slurred, then early this morning, I observed her face drooping. I knew we have to go. They did the MRI this morning instead of Tuesday. The scan showed a new tumor on the right side and possibly two smaller…
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GBM STAGE IV
i was searching the net about the GBM STAGE IV for any treatment options. Has anyone can suggest me anything? My dad has a brain. Tumor gbm STAGE 4 . tumor is affect to left side and presssured to brain's speech center. 3,5x2 cm die size and its unoperable for surgery.My dad is 57 yo And we dont want to lost him. also…
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cancer care givers?
hi, have any of u been a cancer caregiver well wondering if any of u had to take care of someone at home? what mean is my husbands wishes are to die peacfully at home he want life support just meds to make him confy at home. now respect his wishes but was told this is a lot to take on for the care giver, in ur opinions…
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Sarah and Edna?
Hello, Edna. I've been watching here on csn and on caringbridges and I haven't seen a post from you since the 5th. Sometimes I miss things....I'm hoping that you are back home in Alaska and that things are improving for Sarah and for you and your family. If you have a moment, could you send a little post and let us know…
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Astrocytoma please help ?
Hi I wonder if anyone can help me? I had my second operation 3 weeks ago on the 21st August. My first one was in 2009. I was in the Walton for 2 weeks and eventually I was allowed to come out as my mother was passing away from cancer. My brain has water in my head still and I am on a lot if medications and had problems…
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The angels came, Kim is at peace
The angels came for Kim -- just four hours after I posted on Wednesday. It was so incredibly painful to watch my beautiful daughter as her body shut down. Not even a week ago, she was doing okay. I can't believe that she is gone. She was my best friend; I am lost without her; I don't know what to do.
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Joint pains + Dexamethasone (steroids)
Since I started my radiation therapy my radio oncologist have been prescribing me with dexamethasone now I noticed that everytime im on a high dose for the first few days im experiencing joint pains on my foot and the site where the pain is getting inflamed. Has anyone experienced this too?
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life with oligodendroglioma
anyone out there with oligo?
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Waiting for the angels to come
We are waiting for the angels to come take my daughter to a better place. My beautiful 29-year-old daughter was brought to hospice yesterday. The monster in her head is winning. She fought so bravely, never willing to believe for a moment that it would come to this. She endured surgery, egg harvesting, 9 months of Temador,…
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4 time survivor 2 with rare braid disease
I'm on my second medicchemo of chemo but my fourth round with cancer I'm only 24. I want to think I have hop that some man can love me despite the fact I've survivor four time. Should I be hopeless and think there is no love for a woman like me
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Planned CSN Outage
CSN will be down from 9 pm Eastern Time Friday (tomorrow) until 9 am Eastern Time Friday getting a badly needed software upgrade. You will notice a few formatting changes and enhancements. Most importantly, site functionality should improve significantly. Regards, Greta aka Your CSN staff
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GBM IV - Hope
If you have Glioblastoma Multiform IV Listen to this; http://www.bbc.co.uk/iplayer/episode/b013xsm1/Treating_Tumours_Old_Drug_New_Tricks/ It will give you hope. The drug Anafranil (Clomipramine) kills the cancer cells in a different way. Annie x
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momsworld?
I was wondering if anyone has heard anything from momsworld. I miss posts on here occasionally, and I'm afraid that she may have posted and I may have missed it. I think about momsworld and her daughter a lot, and I'm hoping and praying that they are both doing okay. Momsworld, sending prayers for peace, comfort, and…
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GBM metastasizes to Spine (drop metastasis) anyone experience with it?
Hi, My husband has a GBM that is currently stable however his symptoms were getting worse very quickly all of a sudden and he started having problems with his leg. Yesterday he had an MRI on his spine and today we found out that he has a tumor in his spinal fluid and cancer cells on his spine. I know this is rare but does…
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Personality changes with gbm???
Hey it's Kayla again! I'm down to the point where there is no more protection and just wanting help.... Not only help but even someone with a similar situation.. My father was diagnosed with gbm stage four and was told it was inoperable .. Skip forward til now (7months later) and our last MRI was an enormous blessing…
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oligoastrocytoma
My daughter was diagnosed two years ago and underwent surgery, radiation and chemo. She is doing well. I would like to hear from others with similar tumors.
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GBM -- 20 Months and Counting! Clean MRI
I just had my most recent MRI, looks good. I was diagnosed in March of 2011 and feeling great, so I just wanted to share some hope, I have a LOT!!,!
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Inoperable astrocytoma
My daughter in law was diagnosed with an inoperable astrocytoma in Sept. 2010. The neurologist said the tumor was mid brain, and was huge. The only symptoms she had were seizures, she would have petit mals frequently and her memory was affected, and the only physical sign was tremor in her right hand. The tumor is wrapped…
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My Dear Friend Leslie
Dear Leslie- Today is Thanksgiving day and I just got off the phone with ****. I am so heartbroken to hear where you are since we spoke last. Leslie, you are the most generous, kind and loving person I know. As I told ****, I was so hoping the doctors were wrong. Even through my tears, as I type, all I can think of is all…
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AA3
I work as a caregiver to a woman who is confined to the bed with a really bad back among other things, and her husband Ted was diagnosed with AA3 just two days ago. Ted doesn't want to know what is to come other than his treatment plan...he's afraid if he is told that he will go blind that he will be "blind"…
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My 5 Year Old Daughter & her Grade III Bilateral Thalamic Tumour.........help?,
Hi My 5 year old daughter diagnosed in June this year with a Grade III Glioma Bilateral Thalamic Tumour - it is deemed inoperable due to its location and the prognosis is life expectancy of 1-2 years with treatment. She completed her course of radiotherapy and initial course of chemotherapy in September and first…
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Am I over reacting
My husband has stage IV Oligodendroglioma, He has been into nesting for months. Making sure everything is up to date. Make sure I know where everything is located. It's all been a good thing. But beside with his mood swings lately he has taken up buying things totaly un-needed. But many of the things were for me so.... I…
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Brain surgery - dexamethasone side effects
Hello! I had brain surgery 11 days ago....I thank God that I am alive! I am 54 years old. I do not drink, smoke, take drugs....I am a runner and have exercised on a constant basis. My surgeon told my family that it would take at least 10-14 days for me to talk and think correctly again. The day after surgery I was talking…
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21 years after surgery of Astrocytoma Grade 2
Dear all, My mother had a surgery when she was 39 years old in 1991. She is brave, strong and never gives up. The type of the tumor was Grade II. After surgery she had chemotherapy. Also she took pills for a few years but she returned to job after chemotherapy. I left home for school in 2003. Up to that time she was OK and…
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Cindy, thinking of you!
Hi Cindy, I was just thinking about you and praying you are okay. Take care of yourself. I would love to see post from you once in a while if you are up to it. If t wish there was something I could say to make your pain go away. You are such a wonderful mom and caring person. God bless!
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Oli-Grade 3- with 1p19 Deletions
Hello, Just wanted everyone to know, I am still cancer free, doctors called me boring at the last MRI. Informed that they want to follow me for another year, but do not expect any recurrance. YES - my family is joyfully celebrating the great news. I had the best doctors at all three facilities- Roger Maris, John Hopkins…