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Nausea after treatment
My daughter just completed a 15 month treatment protocol for medulloblastoma. She was diagnosed at age 13, had surgery to remove the tumor, had 6 weeks of proton radiation, and her major chemo drugs were cytoxin, cisplatin, and vincristine. All through treatment she had very severe nausea and vomiting. She just stopped…
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Twin born with ‘orange-sized’ tumour
A baby girl has been born in Sheffield with a huge tumour which accounted for a sixth of her body weight. The orange-sized growth was so large it was crushing Isabel Roberts’ throat leaving her unable to breathe naturally. Doctors needed to rapidly fit a tube to help her breathing before she stopped getting oxygen from her…
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Secondary brain cancer I need information from real people
My wife is 48 years old. She was diagnosed with triple negative breast cancer November 2011. She went through two rounds of chemo, surgery with a reconstruction, more chemo and then radiation. In July of 2012, she was halfway through radiation and she was diagnosed with as secondary cancer, carcinomitous meningitis. It has…
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MIL 13 years fighting stage IV glioblastoma. Is this the end?!
13 years ago my mother in law was diagnosed with stage 4 glioblastoma - gave the woman 3 months to live. Apparently she was the 10% That lived longer then expected. What a gift! She was able to see me and my husband marry... The births of my two boys and sow into our lives more than ever! We are blessed! HOWEVER - (this is…
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Help please - GBM getting close to 11 months
Hi everyone, I have been on and off this site. My husband was diagnosed with GBM in March 2012. We have had our fair amount of ups and downs, MRIs showing improvement and then spread. We live in Massachusetts and I brought my husband to Brigham and Women's, as well as Dana Farber - having seen one of the most knowledgeable…
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Inoperable Glioblastoma Multiforme
My dad was just recently diagnosed with Glioblastoma Multiforme. The doctors have told us that it is inoperable but we are looking to get a second opinion. His tumor is located partly in the right frontal lobe and the right parietal lobe. I am his only daughter at age 23, and my brothers are 25, 17, and 13. This has been…
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Our beautiful Sarah
Friends and fellow warriors of brain cancer- I have dreaded this post and this day. Our beautiful Sarah has gone to heaven. She joined the good Lord on Thursday the 17th at 2:32 p.m. She suffered greatly in the end. I could not post and tell you of her suffering. I could hardly breath. Even now I can hardly breath or…
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When to stop driving?
My wife is having problems with her balance, speech and some other issues which have made me concerned enough for her driving that I now 'volunteer' to drive her when she needs/wants to go somewhere. It's a difficult subject, because while asking her if I can drive her, I might as well be saying "you're not well enough to…
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Astrocytoma gr 3 discovered in a 6 years old girl
Hello everybody, My name is Joe and I'm writting this in search of a...miracol, a cure or something. My niece wich lives in Romania was discovered with this astrocytoma 3 degree in december 2012. This month she start the treatement called Protocol SIOP LGG 2004 for 81 weeks!!! The substances used are carboplatine,…
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Zimbabwean Male with GBM 4 seeking contact with others in same situ
Hi my name is Colin Bristow and I live in Zimbabwe. In June 2012 I was diagnosed with a stage four GBM. The tumour was on the right side. I had the neuro surgery, have completed chemo and radiotherapy. I am now on cycle five of taking oral chemo. I am also taking cortisone. Despite the cortisone I am experiencing vision…
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GBM IV - alternative therapies
I'm on here looking for a little direction........December 1st, my 78 yr old (and very healthy) grandma was diagnosed with GMB IV. Because of the location of the tumor, left frontal lobe, they were unable to remove any of the tumor. She has decided against radiation/chemo, and our family supports her decision. She was on…
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Metastasis - Oligodendroglioma Cancer spread to Spine
Anyone out there who has dealt with Oligodendroglioma spreading to the spine..is there any treatment that is offered...I have a 28 year old brother in law whose cancer spread from brain to spine...i heard t his is a very rare case and i am unable to find any treatment options....he is a grade 3....please help. Thanks
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Sarah's MRI
Hello friends: It is with a broken heart that I let you all know that the cancer has come back. First, her speech was slurred, then early this morning, I observed her face drooping. I knew we have to go. They did the MRI this morning instead of Tuesday. The scan showed a new tumor on the right side and possibly two smaller…
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GBM STAGE IV
i was searching the net about the GBM STAGE IV for any treatment options. Has anyone can suggest me anything? My dad has a brain. Tumor gbm STAGE 4 . tumor is affect to left side and presssured to brain's speech center. 3,5x2 cm die size and its unoperable for surgery.My dad is 57 yo And we dont want to lost him. also…
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cancer care givers?
hi, have any of u been a cancer caregiver well wondering if any of u had to take care of someone at home? what mean is my husbands wishes are to die peacfully at home he want life support just meds to make him confy at home. now respect his wishes but was told this is a lot to take on for the care giver, in ur opinions…
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Sarah and Edna?
Hello, Edna. I've been watching here on csn and on caringbridges and I haven't seen a post from you since the 5th. Sometimes I miss things....I'm hoping that you are back home in Alaska and that things are improving for Sarah and for you and your family. If you have a moment, could you send a little post and let us know…
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Astrocytoma please help ?
Hi I wonder if anyone can help me? I had my second operation 3 weeks ago on the 21st August. My first one was in 2009. I was in the Walton for 2 weeks and eventually I was allowed to come out as my mother was passing away from cancer. My brain has water in my head still and I am on a lot if medications and had problems…
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The angels came, Kim is at peace
The angels came for Kim -- just four hours after I posted on Wednesday. It was so incredibly painful to watch my beautiful daughter as her body shut down. Not even a week ago, she was doing okay. I can't believe that she is gone. She was my best friend; I am lost without her; I don't know what to do.
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Joint pains + Dexamethasone (steroids)
Since I started my radiation therapy my radio oncologist have been prescribing me with dexamethasone now I noticed that everytime im on a high dose for the first few days im experiencing joint pains on my foot and the site where the pain is getting inflamed. Has anyone experienced this too?
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life with oligodendroglioma
anyone out there with oligo?
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Waiting for the angels to come
We are waiting for the angels to come take my daughter to a better place. My beautiful 29-year-old daughter was brought to hospice yesterday. The monster in her head is winning. She fought so bravely, never willing to believe for a moment that it would come to this. She endured surgery, egg harvesting, 9 months of Temador,…
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4 time survivor 2 with rare braid disease
I'm on my second medicchemo of chemo but my fourth round with cancer I'm only 24. I want to think I have hop that some man can love me despite the fact I've survivor four time. Should I be hopeless and think there is no love for a woman like me
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Planned CSN Outage
CSN will be down from 9 pm Eastern Time Friday (tomorrow) until 9 am Eastern Time Friday getting a badly needed software upgrade. You will notice a few formatting changes and enhancements. Most importantly, site functionality should improve significantly. Regards, Greta aka Your CSN staff
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GBM IV - Hope
If you have Glioblastoma Multiform IV Listen to this; http://www.bbc.co.uk/iplayer/episode/b013xsm1/Treating_Tumours_Old_Drug_New_Tricks/ It will give you hope. The drug Anafranil (Clomipramine) kills the cancer cells in a different way. Annie x
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momsworld?
I was wondering if anyone has heard anything from momsworld. I miss posts on here occasionally, and I'm afraid that she may have posted and I may have missed it. I think about momsworld and her daughter a lot, and I'm hoping and praying that they are both doing okay. Momsworld, sending prayers for peace, comfort, and…
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GBM metastasizes to Spine (drop metastasis) anyone experience with it?
Hi, My husband has a GBM that is currently stable however his symptoms were getting worse very quickly all of a sudden and he started having problems with his leg. Yesterday he had an MRI on his spine and today we found out that he has a tumor in his spinal fluid and cancer cells on his spine. I know this is rare but does…
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Personality changes with gbm???
Hey it's Kayla again! I'm down to the point where there is no more protection and just wanting help.... Not only help but even someone with a similar situation.. My father was diagnosed with gbm stage four and was told it was inoperable .. Skip forward til now (7months later) and our last MRI was an enormous blessing…
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oligoastrocytoma
My daughter was diagnosed two years ago and underwent surgery, radiation and chemo. She is doing well. I would like to hear from others with similar tumors.
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GBM -- 20 Months and Counting! Clean MRI
I just had my most recent MRI, looks good. I was diagnosed in March of 2011 and feeling great, so I just wanted to share some hope, I have a LOT!!,!
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Inoperable astrocytoma
My daughter in law was diagnosed with an inoperable astrocytoma in Sept. 2010. The neurologist said the tumor was mid brain, and was huge. The only symptoms she had were seizures, she would have petit mals frequently and her memory was affected, and the only physical sign was tremor in her right hand. The tumor is wrapped…