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Was diagnosed GBM
I was diagnosed in August 24, 2004 with GBM on frontal left side. The tumor was the size of ping pong ball and the cist that was covering the tumor was the size of large lemon. The biopsy was sent John Hopkins hospital and diagnosed ether with GBM or ependymoma the surgery said both grade 3 or 4 aggressive was malignant.…
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Question about a friend....
Hi, my name is Kris. I joined the site when my husband Jason was diagnosed with Stage 4 colon cancer in January. I have found so much support here & so many answers to the many questions I've had, so I'm hoping now to get an answer to a question that has to do with a good friend of mine. She is a breast cancer survivor,…
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Hello from Greece!
Hello everyone! I'm Dimitris from Greece, i'm 50 years old and i would like to share my own experience with all of you here. Last may i've been diagnosed with a brain tumor, specifically with Glioblastoma IV according to the histological tests. In a week's time i travelled to Hannover, Germany to the International…
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Avastin for Oligodendroglioma Stage 3
Hi is there anyone out there who has used Avastin to treat Oligodendroglioma...my brother in law is in stage 3 ...my brother in laws cancer has spread to the Spine....he is 29 years....the doctor has given him 1-2 months..although they have ruled out the possibility of him getting better yesterday he was smiling and even…
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Gamma Knife
Has anyone on this site had gamma knife? What were the side effects, if any?
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Primary CNS LBC Non -Hodgkins Lymphoma
Hi, I am 73 and was diagnoised with non-hodgkins lymphoma in my brain in Jan of 2010. I saw a post about primary cns lynphoma and was wondering if the posts would also be aplicable to me? I have been on high dose MTX anf Rituxan since I was diagnosed. At first it was every 6 weeks and my tumors shrunk. After about 9 months…
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Oligodendraglioma
HI, I have an Oligodendraglioma grade 2 on my left temporal lobe. I have been told that they will never been able to operate and also for the moment they wont use any treatment as the doctors want to use the wait and see treatment. Has anyone been through the same thing?
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Astrocytoma Grade III Survivor Here To Help
Hello all. I have helped the ACS for several years now and I am looking to help people specifically with brain cancer. I will be a 5 year survivor in March of 2012. I believe this is my calling to help people who are going through such a difficult thing. Anything at all I can do to help please let me know whether it be to…
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Anaplastic Astrocytoma Grade 3 - 15yr Survivor
Any other long term survivors on here?
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newly diagnosed, surgery coming soon
Hello, I was recently diagnosed with a brain tumor. The docs think it is a grade 2 glioma. I will be having surgery on July 11th, a craniotomy with resection. It sounds like it will be an awake procedure. Yikes! I'm also having some things happen that I am not sure are from the tumor. I know the seizure I had originally…
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Questions regarding GBM IV (Glioblastoma Multiforme Stage IV)
Hello everyone, I'm currently 21 days into Radiation and chemo. Just had a few questions, wondering if anyone would be kind enough as to answer/give their opinion on: 1. Budwig Diet * Diet focusing around flaxseed oil and cottage cheese. Read a lot of great stuff about the Budwig Protocol....have been taking the magical…
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fundraising for brain cancer
Thinking about all of us who have lost someone to brain cancer. Thinking about Cindy, Edna and Connie. I keep hearing about the breast cancer run. So I was wondering what is out there for brain cancer? I googled it. There is a run in Washingto DC May 5 2013. Just thinking about it... I am struggling everyday with the lose…
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planned CSN outage
CSN will be down for a couple of hours this morning beginning at 3:00 AM Eastern Time for planned maintenance. We apologize for any inconvenience. Best to all, greta aka Your CSN staff
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planned CSN outage
CSN will be down for a couple of hours this morning beginning at 3:00 AM Eastern Time for planned maintenance. We apologize for any inconvenience. Best to all, greta aka Your CSN staff
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BRAIN TUMOR & BABIES
HELLO, MY NAME IS MATTHEW, AND HAVE BEEN BATTLEING THIS BRAIN TUMOR FOR 14 YEARS NOW OR SO. I'VE HAD 3 BRAIN SURGERIES, AND HAVE DONE AND AM CURRENTLY UNDERGOING MY 3RD YEAR OF CHEMO, OH AND HAVE DONE A COUPLE MONTHS OF RADITION SPASHED IN THERE A COUPLE TIMES. I AM 32 NOW, AMD AM BOUT TO GET MARRIED TO MY BEST FRIEND.…
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Was diagnosed GBM
I was diagnosed in August 24, 2004 with GBM on frontal left side. The tumor was the size of ping pong ball and the cist that was covering the tumor was the size of large lemon. The biopsy was sent John Hopkins hospital and diagnosed ether with GBM or ependymoma the surgery said both grade 3 or 4 aggressive was malignant.…
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Metastatic hemangio-pericytoma brain tumors
My 40 year old son had brain surgery in June, 2011. He had three hemangio-pericytoma tumors. They removed two and he had 35 radiation treatments to the third. In April, 2012 he started having pain and thought it was his appendix........turns out the tumors had moved into the liver/stomach area. He is now taking chemo. Has…
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GBA IV
Hi everyone I am bedside myself atm and dont know where to go for help my dad was diganosed with GBA IV today he is only 54, iy has benn removed and he starts treatment soon but they said it will grow back and he has roughly 18mths I refuse to give up and believe that I want to help him what can I do? any alternative…
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"It is better not to Shrink then to Survive" My personal thoughts & experiences with my Inoperable
I originally posted this in a seperate topic under a thread, but I thought posting it as a seperate topic my be helpful to more people, SO here she goes... I am a 29 year old, single mother, RN from Alabama & was "officially" diagnosed with a Low-grade Glioma on my brainstem on February 27, 2013. However we have gone back…
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Is Radiation And Chemo Worth It? (Glioblastoma Multiforme IV)
I was diagnosed with Glioblastoma Multiforme Grade IV on April 30, 2013. They did surgery and removed as much as they possibly could without damaging vital tissues as the roots were spreading deep within the brain. The next suggested path is radiation and chemo for 6 weeks. After doing quite a bit of research, I'm second…
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large grade ii astrocytoma best treatments
Hello everyone, I've spent a lot of time reading this forum but I still haven't found a straight answer to a very difficult question. Does anyone know the difference of time frame between a Pterional Carniotomy and just treating the tumor with radiation or chemo or both? I guess what i need to know is will it be simialar…
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Malignant brain tumors vs hematomas
I seem to have a very rare case of brain masses that my neurosurgeon, neurologists & oncologists can't seem to figure out. They have never seen a case like mine before. So I'm hoping that someone reading this will know of a similar case. I will try to summarize as much as possible, while not leaving out the important…
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Treatments for low grade oligodendroglioma
Ten years ago I was diagnosed with a low grade glioma measuring 6.5 x 4.5 x 4 cm. Symptoms similar to a stroke following a grand mal seizure. I was 47 at the time in what appeared to be excellent health without any risk factors for stroke. That's why a neurosurgeon was brought in who made the diagnosis. In general age over…
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What is the Anaplastic astrocytoma(gemistocytic) Survival rate after surgury?
Age-59 Sex-Male HISTOPATHOLOGICAL STUDY AFTER BRAIN TUMOUR Specimen : Frontal SOL Clinical Note : High Grade glioma Gross : Multiple soft tissue bits,5 ml in volume Histopathological study : Section show a diffusely infiltrating astrocytoma composed of gemistocytic & fibrillary astrocytes. Moderate nuclear…
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Anaplastic astrocytoma
Hello everyone my name is Jessica and my 30yearold brother was just diagnosed with AA grade 3 they removed the ENTIRE 8oz tumor from his right frontal lobe on December 26th 2012 and today even thought the MRI results show no sign of a tumor they still want him to do radiation and chemotherapy. tHis all happened so fast and…
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Brain Tumors No Diagnosis
On April 8 We received a call that an MRI showed multiple areas of "lymphoma like" tumors on my husbands brain. We were admitted thru the er at a very reputable area hospital. April 10 my husband went under for a brain biopsy by one of the best neurosugeons in Atlanta. He came out and confirmed that it was lymphoma based…
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Neurologist suspects a low grade oligodendroglioma, yet says too small to biopsy?
Hi all. I am a 45 year old woman who was sent to a neurologist for, of all things, ear pain. The neurologist suspected MS due to some abnormalities with my neuro exam. He also thought the ear pain was related. To make a long story short, he ordered an MRI of my brain which showed a 5mm lesion. He told me that to him, this…
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Avastin is being discussed in
Hello, Just picked up the spring issue of Cancer Today- available at most clinics free. Article of Avastin, about this drug being a roller coaster- ups and downs.
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stage IV GBM
my husband was diagnosed in april 2011 with GBM IV and since then had 2 operations, 8 plus seizures without waking in between, he has done radiatio, and the cyber knife, along with temadal, and his mri from dec 28th showed its growing fast and its large, so here we are in the hospital, they are giving him 12mg of decadron…
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anyone else been in the same situation?
Hi All. first time on here so let me introduce my self. I am Ross 65 and my wife Christine is 62 & we live in Sydney Australia. I am Christine's carer. I feel I have to tell the whole story here so here goes and bear with me please. Three years ago this month Chris was doing the morning breakfast dishes and felt funny in…