Gliomatosis Cerebri

jameshaan

I am a 31 year old male and was diagnosed with Grade III gliomatosis cerebri in Oct 2013 and miraculously doing fine now with minimal symptoms.  I did 6 weeks of radiation and temodar followed by 12 months of "maintenace" temodar.  I'm off of all treatments and getting bi-monthly scans that show a stable, not growing tumor. 

 

I'd like to connect with other patients or families of patients.  God bless

 

Jim

Patricia_Franse

Gliomatosis Cerebri

Hi Jim,

 

I was diagnosed with GMC 4 weeks ago and desperatly looking for fellow patients as I do not know what to expect.

Hope you are still out there!

 

Regards,

 

P.

Fayard

Hello Jim,
Ho are you doing?

Hello Jim,

Ho are you doing?

Fayard

Patricia_Franse said:

Gliomatosis Cerebri

Hi Jim,

 

I was diagnosed with GMC 4 weeks ago and desperatly looking for fellow patients as I do not know what to expect.

Hope you are still out there!

 

Regards,

 

P.

Hello,
I have a friend who

Hello,

I have a friend who has just been diagnosed with this beast.

I am from the Uterine Cancer board, survivor thank to my dear GOD!

I am doing some research online and came accross this. I though you may want to read it http://www.virtualtrials.com/

I am sorry you have to go through this.

gmacc1956

GMC

Jim, my daughter is on a similar path as you.  She is finishing up her maintenace temodar. Would like know what to expect after that. Any information would be appreciated. Thanks for your time.

bighead

maintenance temodar

Is the maintenance temodar the 5/23 treatment?