Update

gypsy509

Hi all,
I came to this board back in June after I was diagnosed with anal cancer and had my treatment plan in place.I was not in the mood to go on the computer much lately so I have just caught up on all the posts here.I just wanted to share my journey these past eitht weeks or so. I started treatment on June 8th with 30 treatments of rad and weekly infusions of 5fu and cisplatin. I sailed thru thr first 6 weeks with very little discomfort and the docs were so surprised that I was doing so well and commented that to me which made me feel good. I was thinking only a few more weeks and I will be done yea!!
Well during week seven I had three more rad and two more chomo infusions to go. I completed the rad but had to stop the chemo. My blood levels took a nose dive and I developed a uti and fever of 101. I was admitted to the hospital where I stayed for five days. I had two bags of blood, daily doses of magnesium and potassium and iv antibiotics. My veins did not coopoerate and the had to start a new iv daily. The finally put a midline in and that was much better. My blood levels came back to near normal and I was released after five days. when I cam home I was very weak and my blood pressure was very low. Every time I stood up I almost passed out. That was a week and a half ago and I am getting stronger and feeling better every day so I think the worst is over.
they also gave me the patch for pain but I am not using it but do take the darveset when needed. It still hurts when I pee but bowel movements are getting easier every day.
I also get this anoying feeling in my legs at night when going to sleep and have to get up and walk around for awhile. I think it might be resteless leg syndrome and I have never expeienced this before. Has anyone else had this? I am wondering if it is because I sit around most of the day resting and not moving around much.
I am scheduled for a pet scan the beginnong of September and a visit to the surgeons office for a dre in September as well as seeing thr rad dr. Not sure what hapens next but I hope and pray that this is over and I pray nightly for all on this board as well that we can beat this cancer and go on with our lives.

mp327

Good to see you back!
I'm glad to hear you have completed your treatments, but sorry you had to take a detour and spend a few days in the hospital. So happy to hear you are now feeling better and starting to see improvements. I wish you the very best with your upcoming PET scan and follow-up visits with your docs. Please let us know how everything goes--I'm sure you'll get good news! Take care.

Chris3

Leg issues
About halfway into my treatment, I began experiencing leg pains. To me they were like the growing pains I experienced as a kid. Now that I am a couple of months post-treatment, it is getting better. I participated in a cancer rehab/physical therapy program, and the excerise seemed to improve the leg issues.

Best wishes to you on your upcoming PET Scan in September.

Chris

z

gypsy
Hi Gypsy,

I am glad your through your tx and I am sorry that you had to be in the hospital. I know that must have been scary, and thank goodness they moniter our blood every week while in tx and thereafter. But I am glad your home and improving daily. I have the restless leg syndrome, but I had it before, I wasn't dx, but I imagine thats what it is. Theres no pain, I just have an urge to move my legs, and it doesn't last very long. I guess I should research restless leg syndrome to see what causes it. I will have you in my prayers for a clean pet scan in September. I wish you continued healing. Lori

z810840b

hi gypsey--I experienced the same symptoms with the restless leg thing..but it eventually went away.I am now two years NED and am feeling good.I still have some burnng when urinating..so I drink lots of water..I t definitely helps.alyse