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Anal Cancer

? For Martha and others - Long term side effects of 5FU and Mitomycin
A question for some of you who have been on the board awhile, I'm wondering what to keep an eye out for long term and seem to remember having a conversation regarding kidney or liver problems with no symptoms. Any info will be appreciated. Just want to make sure that my follow up care is all it should be. Thanks to…
Getting My Port Out Next Week!
Can't wait! This thing has been bothering me ever since it went in back in November. My doctor said that since I had a good DRE and that I understand that it might have to be put back in if the cancer comes back, I can have it out. Next Friday! Yay! How are all of you doing? I lost 30 pounds during my treatment and from…
Diarrhea
So three months after treatments ended I still get diarrhea every once in a while. Lately its been a bit more frequent. Its not the kind like I had during treatment where I had accidents and couldn't make it to the bathroom but it's the kind where my stomach makes all kinds of noises and then I am stuck on the john for 20…
Scared to death to have sex
I'm able to use the medium dilator daily, but still scared to have sex. My husband has been very patient and proud he is medically a large (me not so much). I'm not sure if I'll ever be ready. Have been out of treatment since the end of August. Anyone else have this issue? Is it just in my head?
Rds711
Hi How are u? Ru stil in treatment? I was worried for u when I read about the bladder Spasms. Love to hear how u r doing
Rough week
This week has been tough, I lay in bed most of the day. It takes a few hours to get myself together to go to rad. Treatment. I am trying to keep positive, I just am having a hard time on the meds one time I need imodium and the next time a stool softener. It's hard to keep up with this body. I see the doctor today so maybe…
Anyone ever get an itchy dark patch on your leg months after treatment ended?
The dark burned areas around my pelvic area are pretty much back to normal now. My pubic hair that disappeared during treatment is starting to grow back (sorry if that is TMI) but I have this itchy patch thats dark on my leg near my pelvic area and I dont remember seeing it before. Its very itchy and I dont understand why…
Pjs62
How r u
Surprising numbers
Today I met with my colorectal surgeon for my 3 month exam. During our conversation he held up four fingers and said that in the past two weeks he diagnosed four new cases of anal cancer...all in women. Pretty scary, huh? All are early stage. I remember how I felt when I found out and will be keeping these patients in my…
NED despite symptoms
yea, just got back from MDA and NED. even tho I have bleeding after BM every week, i have bumps and inflammed areas around my anus. i still have pain after sitting or fast walking .. I am 3 years post tx in 4 months .. so this might help others that still have problems and are scared that it is coming back. i had a CT with…
Ok back in the game
Count back up went to radiation today gave in and got some pain meds, I gotta do this, it's hard not to get depressed. I do feel a little stronger mentally. Praying for everyone out there who is scared just like me, love ya.
It's been a year...
It's been a year since I received the anal cancer (squamous cell carcinoma) diagnosis. What a difference a year makes! I'm 9 months post treatment. Saw my colorectal dr today and had an exam (first exam was under anesthesia) so this was the first one I had at the dr. office. It was uncomfortable. Came home and took a…
urinary leakage
i am 3 1/2 years post radiation/chemo for stage 2. about two months ago i started having a slight urine discharge after urination. it is relatively minor-just a few drops, but enough that i notice wetness.. i am a male. does anyone else have a problem like this? the discharge started a week or so after my examination so i…
sleeping at stop signs
I seem to be having a fatigue setback. I just called my internist (should I have called the Oncologist?) I just can't seem to drive anywhere without feeling like I have to take a nap at the stoplight. I can sleep up to 18 hours a day like I did during treatment. My last tx was August 15th. Lyrica has the side affect of…
Numbers low radiation no go for now
Went to drs today had to get antibiotics,fluids and was told by my rad dr until numers come up no radiation. I guess my body told themi needed a break,this concerns me did anyone else have to take breaks like this? Randy I hope your treatments are going in schedule got you in my prayers. Any feedback on all this wii be…
anemia
Hi, I posted last week that I was falling asleep at stop signs. Turns out my white blood cell count was at 2600. The doc said normal was 4300 - 8000 so that was pretty low. He didn't say necessarily to d o anything about it. On the internet I read where taking long walks and eating Yogurt are good so I've been doing that…
Finished second week
I think I would be ok if the mouth sores would go away, I am ready to eat more than grits and mashed potatoes. I must not complain because god has been good and faithful. I know I have a ways to go but feeling like I can actually do this. I was getting a little depressed but I actually feel it was the effects of the chemo.…
Anyone due for scans?
I'm going to MDA this weekend, scans on Monday. At the 30 month mark, you would think I would calm down a little but no...scanxiety has set in. Anyone else going for scans in the next week or so? If so, I want to wish you well and keep you close in my thoughts and prayers. Hoping to post good news next week! Hugs to all,…
Good Report
Got a good report from chemo doctor today. I did not have any scans just physical exam. He said he does not need to see me for one year since my colorectal surgeon is seeing me every six months. I see my colorectal surgeon May 1. I am 3 years 2 months post treatment.
Finished my treatment!
I completed my treatment today! 28 days of radiation and 10 days of chemo. I counted my medical appointments and in the past 66 days I've been to 71 appointments! And if you take off weekends and holidays, the average is 1.5 every week day. Wow! I am quite exhausted with oozing burns, nausea and mouth sores so I don't…
Swelling
Hi all! I just had a quick question about radiation side effects. My mom is entering her fourth week of treatment and has been doing really well so far. The one complaint she has is about swelling. The area around the anal canal is severely swollen and it is making having a bowel movement quite difficult. Her radiologist…
First week done
I have finished the first week of treatment and so far feeling fairly well. Was told by oncologist to expect mouth sores this next week and that my counts were likely to drop. The radiation folks say will start to feel the brunt of the radition end of next week or week after. I have had no issues with appetite yet, been…
Talk to me about radiation
I have had 3 sessions of my radiation, I am so scared each time I get on the scanner. I ask questions and say when will I feel this and they just don't give real good answers. They say everyone is different , just need someone to tell me what to look forward too. I'm scared knowing I have 20 treatments of large area then…
2 year anniversary!
Hi All! I first joined this group about 3 1/2 years ago when a wonderful woman named Joanne started a board for us anal buddies!! I haven't been on now for awhile...unfortunately have been on the breast cancer boards as I was diagnosed with yet a 3rd primary cancer last year. But I wanted to say that I celebrated my 2nd…
Finally some results...
So I met again with my doctors to discuss my test results. Again the PET showed NED in the Anal area tho lots of scar tissue that may or may not be improved with time and surgery. We have decided to leave my colostomy in place for now since he believes I at this time do not have enough musscle control to be continent. I…
when does fatigue go away.
I have not been here in a while, finished my treatments 4 weeks ago but still feel so weak and tired. When can I expect to start getting more energy. Also wanted to mention Chemo Oncologist referred me to a Gyne Onc for what she called a checkup Gyne onc wanted to try a pap smear, (I thought it was too soon) but she…
New and Need Support!
Hi everyone. I'm a divorced 56 year old heterosexual woman and had this irritating condition between my buttocks for about three years before it was diagnosed by my OBGYN. I've been diagnosed with high-level squamous cell carcinoma in situ of the perianal region. I've had two biopsies, a colonoscopy and am scheduled this…
Got the port
It hurts and I don't like it but I just got it yesterday so I know it will feel better soon. Just needed to sound off, I am scared and keep thinking someone is going to rescue me, I guess I just need to be strong, I am a wimp by nature.
Can't believe it was highlighted!
Those of us treated at MD Anderson receive newsletters, etc. I just received the latest Network newsletter. To my astonishment, a profile of an anal cancer patient was hightlighted! I was so surprised and appreciative. Ebba Dunn is a organist at Trintity Episcopal Church in Alabama. She traveled to MD Anderson and was…
Feel like I am in another world
So I now have found my doctors and I have like 6 appointments in the next week between pet scan, ct can, getting a port, blood work, oh my goodness I don't have time to think. Maybe that's a good thing. A lot of good info has been given and Martha a big thank you to you. I have stage one anal cancer so far I have have…

Anal Cancer

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