-
Can't believe it was highlighted!
Those of us treated at MD Anderson receive newsletters, etc. I just received the latest Network newsletter. To my astonishment, a profile of an anal cancer patient was hightlighted! I was so surprised and appreciative. Ebba Dunn is a organist at Trintity Episcopal Church in Alabama. She traveled to MD Anderson and was…
-
Feel like I am in another world
So I now have found my doctors and I have like 6 appointments in the next week between pet scan, ct can, getting a port, blood work, oh my goodness I don't have time to think. Maybe that's a good thing. A lot of good info has been given and Martha a big thank you to you. I have stage one anal cancer so far I have have…
-
Test Results
Thank you all so much for your prayers and concern, it is soooo comforting to have this safe place to turn when we need. Well I had my PET, CT, and Chest x-Ray for a one year since diagnosed ??? checkup. Most of the results were good. The anal area showed no evidence of recurrent/metastatic disease, with some activity most…
-
R1and r2 cream did any one use this during treatment?
Trying to find what might help during radiation. My doctor said this might help. Does anyone have any thoughts or comments on creams to soothe the skin.
-
Will i lose my hair
I have already purchased a wig and hats because i was told it most likely would. my hair is long and when i brush it more hairs seems to be coming out but nothing that is noticable. it doesn't matter to me whether i lose it or not. i just want to get well. i guess i am a little surprise my hair is still there. everyone…
-
Looking for positive mental energy
I don't post too often but still follow everyone a lot. Yesterday was one year since I began the usual treatment of chemo/radiation. I was Stage3 with a large tumor. I had a colostomy ( still do ) I did not handle the chemo well and became very weak and malnurished so was hospitalized then nursing home for 3months on TPN (…
-
locating a colorectal surgeon
How would I go about locating a colorectal surgeon in Tupelo, MS?
-
What the dr said
Well, I went in to test and make sure the h pylori was gone and got them to check my situation out while I was there. She did a DRE and said there were no hemorrhoids, no mass or abnormalities and no leisons. She did said I had a skin tag/anal fissure and gave me an ointment to use for 2-3 weeks. Then I go back to be…
-
Finally Updating on Surgery
First I want to say thanks for all the prayers....its so appriciated. The surgery went well, all the cancer is gone. Yes I know it can come back anytime but for now its gone. It was a kind of a rough time in the hospital. My nurses were awesome but was just in so much pain. Then trying to adjust to the stoma & all that…
-
Words I never wanted to hear dancing to time in the back of my mind.
I remember the day I wrote that line 37 years ago. The reason I wrote, is that my parents at that time had to make a major decision about my future. The choice was back surgery, traction or both. They told my parents if it was not done that I would not be walking at 40. My parents chose no,reason being already had had leg…
-
PJS62.........
I believe your surgery was yesterday.... I am sending prayers and good wishes your way.....
-
Feel like on a major rollercoaster
Has been a bit since I last posted. Seems like the last couple months I have been stuck on a rollercoaster. See a doc.... do a biopsy or test..wait a week get results, you have anal cancer insitu....see another doc...have another test or biopsy...wait a week get results, yep insitu.... tumor board to review case...wait a…
-
Stiffness/aching
In the last few weeks, I have noticed that I am extremely stiff, esp. in my legs and hips. It's like I have no flexibility anymore. Almost like my bones "ache" for want of a better description. Anyone else experience this? If it's not one thing, it's another! I'm about 3 months past tx.
-
Has anyone had this side effect
Hi, I am 15 months cancer free so far but still dealing with side effects. I went to the dentist to have my teeth checked and before chemo and radiation my teeth were near perfect, now I have severe receding gum lines and 4 cavities. He tells me this was caused by the chemo and radiation. Has anyone else experienced this?…
-
live in small town looking for best care
i have been diag. with anal cancer and have been told i need chemo and radiation. the only problem is that i live in a remote small town and i want to find a doctor who is familiar with anal cancer and has treated this before. when i call doctors i get we don't have the numbers of patients we have treated for this or if…
-
UTIs
I have been having frequent UTIs since treatment ended. Anyone else having this problem?
-
A rose by any other name?
All this time I was under the impression that I have "ANAL cancer" plain and simple....but my clinical reports from MDA read "squamash cell carcinoma of the rectum" being staged and treated as Anal cancer. Upon surfing the Internet I discover that this is very real but VERY rare! Anyone else heard of it? Well, whatever…
-
PJS62.........
I believe your surgery was yesterday.... I am sending prayers and good wishes your way.....
-
I had a DRE today six weeks after treatment ended
I had a DRE today six weeks after treatment ended and the doctor said that everything looks great! He said there is still some scar tissue from the original surgery to remove the hemroid in October but that there is no sign of cancer! He wants me to come back every three months and then eventually move to six months and…
-
My husband just diagnosed
Hi there - my husband (39) has just been diagnosed with Stage 2 anal cancer (squamous cell carcinoma, HPV mediated). Luckily it hasn't spread. He will start 6 weeks of treatment on Thur, and have a Picc line inserted tomorrow. I've been reading a lot about this horribly decease this past week - which ironically was the…
-
started Chemo today no Mitomycen
Finally started chemo :rad tomorrow problem is Dr said there is a shortage of mitomycen none avaliabe He said i was good since mine is early stage 1. He told me to call my congressman, the company is not making much money on mito so they are not making it..I asked if they want to kill us! I would like to know if there…
-
Lori - how did it go?
Hi Lori I've been thinking of you, wasn't your appointment today at MDA? Hugs, Liz
-
Falling
Back on my doctor rounds trying to figure out this loss of balance thing,, EKG, MRI head and neck. Cardiologist, neurologist, heart monitoring and of course more blood tests. Did a simple walking test, like the walk the line test for driving under the influence. The outcome was shocking, I was barely able to perform the…
-
New to the Board
Hi everyone, I am new to this board and am looking for information about anal cancer treatments. My 55 year old mother has been diagnosed with anal cancer. She was actually diangosed first via a swollen inguinal lymph node which was biopsied and removed. The doctors prescribed the "watch and wait" course of treatment, and…
-
Anal vs. Colorectal
Could someone explain the diffeence between Anal and Colorectal Cancers. Bud
-
Radiation Proctitis
I had chronic radiation proctitis for at least 6 months during the winter of 2010-2011 but it cleared up after treatment and it finally went away by summertime. I 'thought' my doctor told me that once it went away it would not come back, but I am having increasing symptoms that it is returning. Can it come back? I have an…
-
Ouch! More new pains!
I have read where people have hip pain after radiation, but how about lower back? Started yesterday and continues today....getting up is really uncomfortable. Anyone else have this? Tylenol didn't seem to work and even stronger meds don't really seem to help much either..
-
Conclusion: weakness
For many months now I have been suffering with balance issues. I have suffered many moderate/light injuries in recent months. My gp had initially dxed weakness, but sent me for head ct, which was clear, and to a neurologist, who said no not weakness but no dx. Took many tests to no avail. Finally in past months has really…
-
Hospital
Just getting ready to start treatment.Probably next week,,Have been told most end up in hospital for low counts and dehydration.Are there ways to prevent this?
-
Recovery Time for gettng tumor removed
Hi all, I am getting the tumor taken out from my perianal area next week. She could not do a biopsy because of where it is located so she thinks it is best to take it out. What is the recovery time for something like this? Will I be hurting from where she cuts down there? Any advice would be greatly appreciated. Thanks!