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First week done
I have finished the first week of treatment and so far feeling fairly well. Was told by oncologist to expect mouth sores this next week and that my counts were likely to drop. The radiation folks say will start to feel the brunt of the radition end of next week or week after. I have had no issues with appetite yet, been…
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Talk to me about radiation
I have had 3 sessions of my radiation, I am so scared each time I get on the scanner. I ask questions and say when will I feel this and they just don't give real good answers. They say everyone is different , just need someone to tell me what to look forward too. I'm scared knowing I have 20 treatments of large area then…
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2 year anniversary!
Hi All! I first joined this group about 3 1/2 years ago when a wonderful woman named Joanne started a board for us anal buddies!! I haven't been on now for awhile...unfortunately have been on the breast cancer boards as I was diagnosed with yet a 3rd primary cancer last year. But I wanted to say that I celebrated my 2nd…
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Finally some results...
So I met again with my doctors to discuss my test results. Again the PET showed NED in the Anal area tho lots of scar tissue that may or may not be improved with time and surgery. We have decided to leave my colostomy in place for now since he believes I at this time do not have enough musscle control to be continent. I…
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when does fatigue go away.
I have not been here in a while, finished my treatments 4 weeks ago but still feel so weak and tired. When can I expect to start getting more energy. Also wanted to mention Chemo Oncologist referred me to a Gyne Onc for what she called a checkup Gyne onc wanted to try a pap smear, (I thought it was too soon) but she…
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New and Need Support!
Hi everyone. I'm a divorced 56 year old heterosexual woman and had this irritating condition between my buttocks for about three years before it was diagnosed by my OBGYN. I've been diagnosed with high-level squamous cell carcinoma in situ of the perianal region. I've had two biopsies, a colonoscopy and am scheduled this…
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Got the port
It hurts and I don't like it but I just got it yesterday so I know it will feel better soon. Just needed to sound off, I am scared and keep thinking someone is going to rescue me, I guess I just need to be strong, I am a wimp by nature.
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Can't believe it was highlighted!
Those of us treated at MD Anderson receive newsletters, etc. I just received the latest Network newsletter. To my astonishment, a profile of an anal cancer patient was hightlighted! I was so surprised and appreciative. Ebba Dunn is a organist at Trintity Episcopal Church in Alabama. She traveled to MD Anderson and was…
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Feel like I am in another world
So I now have found my doctors and I have like 6 appointments in the next week between pet scan, ct can, getting a port, blood work, oh my goodness I don't have time to think. Maybe that's a good thing. A lot of good info has been given and Martha a big thank you to you. I have stage one anal cancer so far I have have…
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Test Results
Thank you all so much for your prayers and concern, it is soooo comforting to have this safe place to turn when we need. Well I had my PET, CT, and Chest x-Ray for a one year since diagnosed ??? checkup. Most of the results were good. The anal area showed no evidence of recurrent/metastatic disease, with some activity most…
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R1and r2 cream did any one use this during treatment?
Trying to find what might help during radiation. My doctor said this might help. Does anyone have any thoughts or comments on creams to soothe the skin.
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Will i lose my hair
I have already purchased a wig and hats because i was told it most likely would. my hair is long and when i brush it more hairs seems to be coming out but nothing that is noticable. it doesn't matter to me whether i lose it or not. i just want to get well. i guess i am a little surprise my hair is still there. everyone…
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Looking for positive mental energy
I don't post too often but still follow everyone a lot. Yesterday was one year since I began the usual treatment of chemo/radiation. I was Stage3 with a large tumor. I had a colostomy ( still do ) I did not handle the chemo well and became very weak and malnurished so was hospitalized then nursing home for 3months on TPN (…
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locating a colorectal surgeon
How would I go about locating a colorectal surgeon in Tupelo, MS?
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What the dr said
Well, I went in to test and make sure the h pylori was gone and got them to check my situation out while I was there. She did a DRE and said there were no hemorrhoids, no mass or abnormalities and no leisons. She did said I had a skin tag/anal fissure and gave me an ointment to use for 2-3 weeks. Then I go back to be…
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Finally Updating on Surgery
First I want to say thanks for all the prayers....its so appriciated. The surgery went well, all the cancer is gone. Yes I know it can come back anytime but for now its gone. It was a kind of a rough time in the hospital. My nurses were awesome but was just in so much pain. Then trying to adjust to the stoma & all that…
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Words I never wanted to hear dancing to time in the back of my mind.
I remember the day I wrote that line 37 years ago. The reason I wrote, is that my parents at that time had to make a major decision about my future. The choice was back surgery, traction or both. They told my parents if it was not done that I would not be walking at 40. My parents chose no,reason being already had had leg…
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PJS62.........
I believe your surgery was yesterday.... I am sending prayers and good wishes your way.....
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Feel like on a major rollercoaster
Has been a bit since I last posted. Seems like the last couple months I have been stuck on a rollercoaster. See a doc.... do a biopsy or test..wait a week get results, you have anal cancer insitu....see another doc...have another test or biopsy...wait a week get results, yep insitu.... tumor board to review case...wait a…
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Stiffness/aching
In the last few weeks, I have noticed that I am extremely stiff, esp. in my legs and hips. It's like I have no flexibility anymore. Almost like my bones "ache" for want of a better description. Anyone else experience this? If it's not one thing, it's another! I'm about 3 months past tx.
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Has anyone had this side effect
Hi, I am 15 months cancer free so far but still dealing with side effects. I went to the dentist to have my teeth checked and before chemo and radiation my teeth were near perfect, now I have severe receding gum lines and 4 cavities. He tells me this was caused by the chemo and radiation. Has anyone else experienced this?…
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live in small town looking for best care
i have been diag. with anal cancer and have been told i need chemo and radiation. the only problem is that i live in a remote small town and i want to find a doctor who is familiar with anal cancer and has treated this before. when i call doctors i get we don't have the numbers of patients we have treated for this or if…
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UTIs
I have been having frequent UTIs since treatment ended. Anyone else having this problem?
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A rose by any other name?
All this time I was under the impression that I have "ANAL cancer" plain and simple....but my clinical reports from MDA read "squamash cell carcinoma of the rectum" being staged and treated as Anal cancer. Upon surfing the Internet I discover that this is very real but VERY rare! Anyone else heard of it? Well, whatever…
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PJS62.........
I believe your surgery was yesterday.... I am sending prayers and good wishes your way.....
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I had a DRE today six weeks after treatment ended
I had a DRE today six weeks after treatment ended and the doctor said that everything looks great! He said there is still some scar tissue from the original surgery to remove the hemroid in October but that there is no sign of cancer! He wants me to come back every three months and then eventually move to six months and…
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My husband just diagnosed
Hi there - my husband (39) has just been diagnosed with Stage 2 anal cancer (squamous cell carcinoma, HPV mediated). Luckily it hasn't spread. He will start 6 weeks of treatment on Thur, and have a Picc line inserted tomorrow. I've been reading a lot about this horribly decease this past week - which ironically was the…
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started Chemo today no Mitomycen
Finally started chemo :rad tomorrow problem is Dr said there is a shortage of mitomycen none avaliabe He said i was good since mine is early stage 1. He told me to call my congressman, the company is not making much money on mito so they are not making it..I asked if they want to kill us! I would like to know if there…
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Lori - how did it go?
Hi Lori I've been thinking of you, wasn't your appointment today at MDA? Hugs, Liz
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Falling
Back on my doctor rounds trying to figure out this loss of balance thing,, EKG, MRI head and neck. Cardiologist, neurologist, heart monitoring and of course more blood tests. Did a simple walking test, like the walk the line test for driving under the influence. The outcome was shocking, I was barely able to perform the…