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5 years along with latest CT.
Hi everyone: March 17 was 5 years since they took a biopsy that stated I have Squamous Cell Anal Cancer. So I survived the 5 years and hoping for many more. Last CT scan on Friday, March 13 showed a new pleural based nodule on the lower lobe of the left lung. Will be seeing the pulmonologist next Friday and Oncologist on…
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Cancer newbie--stage IIIA/B
Hey everyone, I've been reading some of your posts for a couple weeks now and had gleaned quite a bit of hope until just recently when my PET scan showed that I have a positive lymph node in my pelvis. Up until that time, I was actually looking forward to getting through the chemo/radiation treatments and getting on with…
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Diarreah....
I have had diarreah, mucus discharge, bleeding and surprises that soiled my pants. NOTHING seemed to help. My cousin suggested (strongly) that I try a low carb diet. Almost Atkins. I rolled my eyes, then decided to give it a try! It works!!! (At least for me). I was worried about constipation and I haven't had any problems…
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mom's home!
Hi all! After 7 days in the hospital my mom is finally home! She still has severe pain when urinating but is not screaming anymore (thank god) now is the waiting game 6 weeks of torture! She is still weak but says she sees small improvements day by day! My question was what is the most common way, or norm round of tests to…
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3 days on 3 days off - can't think of a better title!
Hi all, Just a couple of questions. My mum is 4 months, well just over, post treatment. She said to me she has like 3 days (for example) of pain-free BMs and then another 3 days of slightly or sometimes, not slightly, painful BMs. So basically, she's without pain some days and with pain the other days and this alternates…
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Loose ends being tied.
Today is my 1 year diagnosis day, though I was ill for months before while brushing it off. What a roller coaster day that was. MEDIPORT - Gone! I insisted that I have an anesthesiologist for the removal and what a huge difference! No pain, diaphoresis, or vaso-vagal effects at all. I still have steri-strips on and the…
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good news post colonoscopy
Hi to everyone. Just got home from colonoscopy. Just some rectal irritation. Yeah! Will visit my medical oncologist on Monday to figure out why I am chilled and why the Vitamin d levels keep dropping. Got to get to the bottom of all this. I know we all just want to feel better. Thanks to all of you for your encourgament.…
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post radiation side effects
Hi Eveyone. I am 1 1/2 yrs. out post radiation/chemo treatments. I have had compression fractures in my lower back and fractures in my pelvis post radiation treatments. Told I have severe osteoporosis now. I am 57 ys. old and am 5'10; not a typical candidate for this type of osteoporosis. I am having some severe hip joint…
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Is there a cure for HPV?
Just wondering. Sure would like to get rid of it. I had no idea I had HPV until the cancer showed up. I am aware that HPV can cause other cancers other than anal or rectal cancers. If there isn't a cure, then I need to find a way to so what I can to avoid anymore. I heard that a vegetarin diet is one of the best ways to…
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Low Vitamin D levels and low platelet levels
I am 2 years post treatment and today I had my CT scan to see if I am still cancer free. However, I'm concerned. Prior to my treatment I had blood tests done and my Vitamin D is low so now I'm on meds for that. Also my platelets are low and my Mean Platelet Volume is high. The doctor wants to see the CT scan results before…
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Brother recently diagnosed; journey begins with proton radiation therapy & chemo
greetings, my brother is 64 years old, HIV survivor for over 30 years and very lucky to have minimal complications over the years from having HIV. T cell counts over 500 and viral load non-existant, as of Dec 2014, even tho he was having some 'hemmoroid' problems. Anal abscesses prevented delays in diagnosis for anal scc…
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STAGE 3A RECTAL DEPOSITS AFTER RADATION
aNY SURVIVORS OUT THERE bEEN TOLD THEY HAD RECTAL CANCER deposits after radiation, in theiir pathology report from APR? My oncologsit said I only had two lymph nodes T3N2M0 and not to worry! Surgeron is saying have poor prognosis due to some malignancy cells after radiation.
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Good news Bad news
The good news is I had my second set of scans this past week and met with the oncologist and all good all clear, I am to be scanned again in 6 months. The bad news is I lost a very good friend this week to the evil of cancer. She went to a local hospital in February to have her gall bladder removed (routine so we thought)…
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Xeloda--red spots on skin?
I have been taking Xeloda and I have a number of little red blotchy spots in differnt places: arms back of hand, legs, one ankle,etc. They do not hurt or itch . I had a dermatology consult and the Dr thought it was probably from Xeloda , as did my onc. The Xeloda is also making my freckles big and ugly and I think there or…
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advice
Hi all, My mon is in her last week do radiation, she is done on monday. She is extremely uncomfortable and burned. Her dr offered her a break but she is done on Monday. Her question is would it be worth it. Her pain is almost unbearable but after today she only has 3 more treatments
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My Presentation at the International Anal Neoplasia Society conference
As I had previously posted, I was asked by Justine Almada of the HPV and Anal Cancer Foundation to give a presentation about my cancer journey to the attendees of the International Anal Neoplasia Society conference in Atlanta. And as I promised, I am posting my presentation for everyone to read. It was such a great…
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Today is a GOOD day
I just want to share with you all that today is my 2 year mark (the day I finished treatment in 2013 for T2 or 3, N0, M0). I had MANY appointments in January (some how they all ended up in Jan. instead of March).....pelvic & abdominal MRI, blood work, high resolution anoscopy, oncologist & radiologist check-ups and all…
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International Anal Neoplasia Society Conference
Before I get to the main topic of this post, I wanted to update my status. I saw my colorectal doctor this morning for my 6-month follow-up, including DRE and anoscope, and in her words, “I can’t tell you were even radiated”--trust me, I was!! That is the first time in 6 ½ years she’s ever said that, so I was very happy!…
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Hoping for Breast Cancer - Really!
I was diagnosed with anal cancer in August 2014 and sent for the usual scans which showed another large tumor on my hip. The biopsy of the hip bone came back as breast cancer! Many scans, ultrasounds mri’s later, no primary breast cancer could be found. I went through the usual 5-FU, mytomycin and radiation treatment with…
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Question about reoccurrence (again!)
Hey guys, We were doing really well, but unfortunately my mum knows some idiots who, incidentally, weren't there when we needed them, but now she's NED they are all there with theit "good messages". Anyway, one of them mentioned to my mum yesterday about somebody with bowel cancer and somebody with breast cancer who both…
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feeling a bit chilled but no fever
Hi everyone. Just wondering if anyone has ever felt a sense of infection,slight chills, no fever. I am 1 1/2 yrs post treatment. colonoscopy tomorrow. Please feel free to tell me any feelings you might have experienced. I am so afraid. We will see..thanks to all of you...Donna
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From a guy who is anything but a crybaby
For the last week or so I have been very emotional. I am grieving lots of things about my life and having cancer. I am wondering if this is a typical part of this journey.
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update on mom
Hi all!, My mom is in her 5th week of radiation and started second round of chemo today 96 hr pump. Shes been ok for the most part, very sore from radiation. She tolerated the first round of chemo ok, her biggest issue was mouth sores, she did have some.nausea but nothing severe she did need a transfusion along the way…
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Scopes
Hi All, Hope you're doing well and filling your days with great moments. To the newly diagnosed, or those currently undergoing treatment, it does get better! I promise your burns will eventually heal! I'm going in for one of my 3 month exams and have asked the (new to me) Dr if he will do a scope. They seem to not know…
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Sandy, How are you?
Sandy, your recent absence has been quite noticeable. I hope all is well with you. Please let us hear from you. Hugs-- Martha
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Cancer recurrence after a colostomy???
Does anyone know if Cancer recurrence after coloctomy surgery is it even possible to happen? I had the surgery in 2013 and am feeling similiar symptoms now when I first brought this to the attention of my doctors! Thank you
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CT Scan Results
I had my follow-up CT scan yesterday as a follow-up to the questionable area on my liver on previous scans done last summer. Here are the results. 1) No definite CT evidence of recurrent or metastatic disease. 2) Stable 3 mm hypodensity within the right lobe of the liver which is too small to characterize but statistically…
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Is it AnalFissure
Hi Everyone I just joined this forum I have been having a lingering chronic Anal fissure for the past 8 months now..started with awaful pain and slight blood (sometimes) during bowel movements I have done a flexible sigmoidoscopy the Dr insists its a chronic fissure and nothing cancarous but the pain has continued I Just…
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NCI trial
Does anyone have any information or experience with the trial study at the National Cancer Institute in Maryland 13-C-0032? I have stage 4 cancer that mets to the liver and lungs. I am concerned about travel and housing costs and if someone has any suggestions. Thanks
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Not Diagnosed But Preparing
I had a colonoscopy and endoscopy a couple of days ago and the results showed a circumferenial rectal mass from 5cm to 15cm from the anal verge and doctor's are concerned about maligancy. However, biopsy results have not come back yet so at the moment I'm just preparing myself. I'm not a pessimist but my wife passed away…