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Please help: My aunt has cancer
My aunt has cancer, and I don't know what to do or expect. This has been so devastating. She is my best friend, my favorite person in the world. She went to get checked because of lower back pain, mostly on the right side, and heavy periods/spotting in between periods back in December. It had been going on longer than…
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Planned Outage on 10/9
There will be a planned CSN outage on 10/9/15 from 5am-8am EST while the site undergoes some maintenance. We apologize for the inconvenience. Rowan CSN Support Team
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New Research Vulvar Cancers posted April 2015
I located this fascinating article that was published on April 2015. It describes all Vulva cancer types. This is really helpful for new and old members. The article was on Researchgate.com and reseach article is called: Vulvar Cancer for Dermatologist. What I learned is that my metastasized mucinous adenocarcinoma is a…
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Fun beadgirl-hope you are feeling well
the boards have been quiet. Thinking of you and hoping you are enjoying your family and the warm weather. Hugs to you and to all the ladies dealing with gyn cancer. Be well.
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Recurrence question
How does a gyn/onc determine a recurrence of cancer that is showing a spot lighting up on the pelvic wall? Do you have to have surgery for them to bx the area that is lighting up on the scan? Or is it assumed that if it's lighting up on a PET scan that it is definately cancer? Then can they just do radiation to treat the…
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Vulvar Cancer Survivors
I would really like to hear from any of you that have survived your vulvar cancer, and the treatments. Please post an update on yourself on this web site, so others, including myself can followup on you. I have noticed, there are several people who posted their stories on the personal web pages, but no followup. As a two…
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lymphedema suggestions
HEllo all, it's been a while for me to post. My 30 year old daughter with stage 3b cervical cancer decided to take a break from the latest chemotherapy because she ended up in the hospital for at least a week with each dose. She had a lymph node that had grown slightly. During the break she started eating a vegan diet and…
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What would you do?
Hi! I was diagnosed with stage 2 cervical cancer (2.5cm tumor) April 29th of this year. I underwent 25 external and 4 internal treatments with 5 sessions of chemo. I finished the internal July 22nd and went for the recheck at the gyno oncolo on the 29th. He did the physical exam and said that the tumor was gone. Now, the…
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rash
Good morning. This may be a long shot but my daughter has had a rash pop up over the course of a day on her arms and legs. She has not changed any medication, has not changed any hygene products either over the last couple of months. She has not eaten anything different. I don't know what this could be but I figure it is…
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HDR Brachytherapy
I am scheduled to start HDR Brachytherapy on Sept. 2, 2014. My doctor has explained the precedure before the treatment begans. My radiation oncologist says it doesn't take very long. I went on a web site that said each treatment time will be about 3-4 hours because they have to get everything ready. My gyno oncologist will…
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Glassy Cell Andeno... Mothers? Survivors? Any Tips?
I am a 35 year old mother of 3 ( 5 yrs, 19 mo & 5 mo). I have been diagnosed with a rare form of Cervical Cancer called Glassy Cell. Overall I am doing OK.....having radical hysterectomy and lymph nodes taken in the next few weeks. I am looking for other Glassy Cell survivors. I am looking for advice on how to explain my…
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Cervical Cancer: Bleeding
Can anyone who has cervical cancer please tell me how soon after treatment the bleeding will stop? The radialogical oncologist told us that the radiation treatments should stop the bleeding. My aunt is getting radiation and chemo, and she is also taking Lovenox shots (which thins the blood to avoid clots). we have had to…
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36 and infertile due to cervical cancer
I'm a 36 and was diagnosed with cervical cancer in April 2012. It was diagnosed after a conization operation and within one week I was back in the hospital for a Radical hysterectomy. I have not had the 'fear' of cancer, as it all went so quick. I didn't have much time to process or worry about cancer because as soon as I…
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SBO again
Spent Memorial weekend in the hospital. Another small bowel obstruction. I tried to handle it at home by going on a liquid diet but the pain got too intense and I started vomiting and couldn't stop. By that point it was 1 am and I was too sick to drive myself to the hospital so had to call an ambulance. They did an…
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Cervical Cancer - it is not about blame and shame
Ladies, I wanted to share this with you. I am blessed to know both Karen and Tranette. Women with HPV-related cancers say that education is the answer. By Karen Bate When Tranette Ledford’s doctor said the dreaded words, “You have cervical cancer,” the writer from San Antonio, Texas, was understandably shocked and scared.…
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cervical cancer post treatment
hi! I was wondering if anyone has developed adhesions to the cervix after external and internal radiation? If so how do they treat it?
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3 Years cancer free
I am so grateful I have made it 3 years since my BIG cancer surgery today, and still NED!! It almost seems like a bad dream (nightmare, really), except I have things to remind me it wasn't, ex. colostomy bag, sacrial fractures and pain etc. You all know how the new normal feels). But I am here. I have seen my daughter get…
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When to stop treatment
just wondering if anyone has had to make decision as to whether or not continue with treatment? I understand everyone has their own way of looking at their life and I don't expect anyone to give me my own personal answer to this but perhaps I can glean from others thought process. i am just so tired all the time and I'm…
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brachytherapy and sex
Chapter one. Feel free to read my more complete history. I had a complete hysterectomy in February '05. I had three internal high dose radiation treatments in April as follow-up. Although I found the radiation treatments intrusive and uncomfortable, they were not actually painful, and I seemed to have very few lasting side…
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NED and I are still friends!
Cant beleive that I actually made it 6 months without getting a scan. I was having a hard time waiting three months between them. Good news! Still NED! HAHAHAHAHAHAHAHAHAHAH! I am laughing and crying at the same time. Crazy the things this disease will do to you. I am now 3 years and 4 months post diagnosis of cervical…
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Lymphedema Is Getting Some Recognition
Hi Everyone, Actor Kathy Bates has been speaking publicly about the lymphedema she recently acquired in both arms from a double mastectomy after a breast cancer diagnosis. It's sad that she too must suffer from this, but encouraging to me that we have such a fantastic advocate for lymphedema awareness and research. Kathy…
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Private Message Spam
Hello everyone, Thank you to those who've alerted us to the spamming from earlier today, and we sincerely apologize for the inconvenience. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this. If you received a message, please do not respond or…
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Nutrition
Hello everyone! I am now doing better. I finished treatment (iMRT) a week before Christmas. I lost a lot of weight because of my stomach problems but I have managed to regain a few kilos do far. My back still hurts and my doctor has suggested massage therapy which I am starting on Monday. I have also started vitamin C and…
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vulvar cancer
help
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Stage 3cervical cancer
i have just completed all planned cancer treatments ,which included external radiation,chemo,and lastly internal radiation.IAm still in the dark asto where I am regarding the cancer,whether it is gone and I am in remission or that the WAR continues.Needless to say I am terrified.....my husband and I have been raising…
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Discussion Board and Chat Spam
Hello everyone, Thank you to those who've alerted us to the spamming from earlier today and we sincerely apologize for the inconvenience. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of discussion board and chat spamming. If you…
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Merry Christmas
I hope everyone had a merry Christmas & wishing you all a very happy & healthy new year! Babe
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Hello
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Don't know if I belong here (cervix issues)
Hi, I feel strange posting on here without a diagnosis, but I think I'm losing my mind during this wait. About 4-6 weeks ago, I had a scary, severe, midcycle hemorrhage. It smelt absolutely vile (sorry for TMI). It was nothing like my periods, and I was extremely sick at the time. Since then, I get a watery discharge (not…
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Cancer returned after Pelvic Exenteration
Hi everyone! I haven't been on the board since August when I had my surgery (PPE) for recurring Vulvar Cancer. Fortunately I was told that it didn't get into my Lymph Nodes and my margins were clear. LONG recovery but I am getting stronger everyday! Yesterday I found 3 small lumps and when I went to my last Dr. appointment…