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Some tips from CSN
Welcome to the CSN! Below are some tips to help you get started following and posting on the boards. You can follow your preferred discussion board to get notifications of new topics and comments. To follow a board, navigate to your preferred board and then select the bell at the top, followed by your notification…
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Confused after MRI
I know I am in the early stages of possible PCA diagnosis as my biopsy is scheduled on 4/23. But I am really blindsided by this. I am 52 years old. I have absolutely no symptoms other then noticing some possible ED over the past year. My doctor ordered PSA test in on 2/20 and it came back as 14.97 and another test was…
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ADT Side Effects & Different ADT Drugs
My brother-in-law has recurrent prostate cancer (he was originally diagnosed with stage 4a) and his oncologist wants him back on ADT drug he took for 2 years. Thing is the side effects were horrendous. From what I've read (NCI, ACS, etc.), side effects can vary some between the various ADT drugs. His oncologist said they…
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Advice for Pt3b N1
Hello all, I am so grateful to have found a community during this time. This is all very new and scary for us. My dad had a radical prostatectomy, and we are scheduled to have a radiation appointment in a week. He has pt3b (cancer in one seminal vesicle) and in one of the ten lymph nodes. His PSA levels are good as of now,…
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Starting PT pre Prostate Surgery - not what I expected
My Dr suggested that I do some pre-surgery PT to help shorten the incontinence period after surgery, and then continue with therapy aftwwards. Going into PT I thought I was going to get tips on how to do Kegel excersises properly. But instead the focus was on strengenthing the Pelvic Floor. The therapist first checked my…
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PSA after surgery interesting
From John Hopkins Study Explores AccuPSA Test During one study, Dr. Partin and his colleagues examined blood samples from 31 patients whose PSA level had been undetectable for at least five years after radical prostatectomy. All these patients had PSA levels less than 0.1 ng/ml after surgery. However, one third of them…
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biochemical recurrence
I just joined and was wondering Is there already a discussion of this? My husband had stage 4 prostate cancer but radiation and Hormone T has resulted in a five year remission with undetectable PSA. In the last six months PSA is up several times and is going for PSMA-Pet in three weeks and I'm wondering what all this…
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Decision Process re: radiation Type
Having just received a diagnosis of prostate cancer, my urologist indicated that radiation is his recommended approach and I'm scheduled to meet with radiation oncologist shortly. I'm stage 2, with evidence of Cribriform pattern 4 so active surveillance is not an option. Recognizing that everyone is different and…
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sky high psa
New diagnosis of PC. 72yo and worried. Had Biopsy 4 areas 3+3, 2 areas 3+4 but psa >30. Not much info on patients with psa > 30. difficult to stage with that number. PET scan scheduled Really nervous . Any thoughts?
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Radiation therapy
Now have PC and plan to take radiation therapy, but have heard of incontinense with radiation when I thought it was more of an issue with removal. Anyone have experience or comments
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Surgery vs Radiation: another question
I am 67, Gleason 7, unfavorable, and PSA 4.2. Both surgeon and oncologist say I am on the borderline age-wise and that either treatment would give good results. I am more concerned about long-term continence than longevity. I am changing my mind ten times a day. Any input appreciated.
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How long to worry about clots and strictures
If I have surgery, how long are blood clots and possible contractures a thing to look out for? Do people still have to pass daily thin catheters through to keep things open for a period of time? I'm wondering if it is advisable to travel overseas within three months of surgery, if all goes well. I know it depends on how…
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Advanced Cancer and waiting...
I've been watching my score go up this year (surgery early 2010 and salvage late 2015). My PSA is now .310 up from a .207 in March and .210 in July...I continue with a good and mostly plant base diet, which I believe has helped me over the years (outcome could have been aggressive but it hasn’t to date). Some days I hate…
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After surgery diet
Everyone knows my story five weeks out of salvage surgery waiting anxiously for the first PSA test and hoping i will be NED. i’ve always been a doubting Thomas, but them saying i had cribform and the pathology report saying cribiform not seen , yes it all looked good except the perinual invasion part ..so that being said i…
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scientific American Article
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Just had MRI
Hello everyone, just had MRI because my PSA was 14. I have 3 lesions: 1.6 × 0.8 x 1.4 cm lesion left anterior transition zone at the mid gland (ROI #1). PI-RADS 5: Very high (clinically significant cancer is highly likely to be present) 1.9 x 0.9 x 2.5 cm lesion right posterolateral peripheral zone at the gland base and…
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PSA velocity, what am I looking at here?
PSA last year was 2.0, and this past December was 5.78. The urologist ordered a 4k test: score 59, 10% free PSA, and my PSA was almost 12. That is a vast PSA increase in just 3 months. Going to Johns Hopkins now. MRI on 4/12 and biopsy to follow. I did have an abdominal/ pelvis CT done for possible diverticulitis a month…
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What to expect with no treatment
Hi all. I have a biopsy coming up but, unlike most, I'm not interested in finding out what kind of treatment I may qualify for (frankly, they all sound absolutely terrible) but, rather, how much time I have left. All my friends have already passed on so it's pretty much just me alone at this point so no real desire to put…
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Tumor Size Question
My MRI results from last October (below) mention lesion in right mid gland with a measurement of 1.9 x 1.0 x .09 cm. I'm assuming this is the size of my tumor? Is this a length / width / and height measurement of the tumor? If so, is that considered a smaller or larger tumor? Can anyone help me understand this better?…
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Delay times between MRI and Biopsy?
67 y/o male, PSA 6.7ng/ml, recently discovered on blood test. I'm getting healthcare thru VA, who also outsources to local hospital because they have the latest and greatest in MRI/Biopsy abilities. I just had my MRI on 4/21/24 which indicated 19mm lesion and a smaller area of abnormality as well. A targeted biopsy was…
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Horseback riding
I have been trail riding for over 25 years. are there any other riders out there who can tell me if I will be able to ride again?
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Biopsy is done. 26 cores extracted. All benign. What is the next step?
I posted earlier with my data below: "I am 68. I live in Southern California. I have Medicare and medigap insurance. In early 2022, my PSA was 3.9. By November 2023 it went up to 5.3. My PCP gave me referral for a urologist who asked me to do a 3 Tesla MRI, and a urine test. My MRI shows my prostate size: 47cc PSA density:…
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Focal Cryo Therapy for initial treatment
After months of indecision, I just sent a note to my doctor at Fox Chase to ask him to schedule me for focal cryotherapy procedure. So far, it seems for primary treatments of Pca, focal treatments are typically only applicable to some men who qualify with in-gland non metastasized low to intermediate grade cancer. The…
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off Orgovyx
I took my last Orgovyx pill last Saturday the 20th. As of last night the 25th I am already feeling a little regaining of energy and some strength. I did 60 pushups in a row and 2 weeks ago barely did 30. I have not been doing them daily just as a test. Also, only 12 hot flashes since yesterday morning. It appears once you…
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Help with mri report
Hi, I was diagnosed in January with Gleason 3+3 (no MRI prior to biopsy). PSA was 4.5 last week. I had an MRI today and just received the results below. Multiple prostate lesions as above. PI-Rads v2.1 score: Pirads 5 - Very high (clinically significant cancer is highly likely to be present) Narrative MRI of prostate with…
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4 weeks post RALP and total incontinence during the day
Ok, so I know we are lucky, my husband is back to light golfing (not using the driver until this week) active, and feels great except for the constant incontinence during the daytime hours. Unless he is lying down sleeping or lying on the couch he is leaking continuously all day going through maybe 10 pads. Is this…
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A newer phase in my Systemic treatment now with metastasis in bone
To all in this forum and particularly the old members that have help me along the years in understanding facts on PCa issues based to their experiences, or suggestions to my case. It has been 18 months since I dropped a post in the forum (July 2022). I felt that I have failed those that were used in receiving my prompt…
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Catheter removal
so anyway, I went to my general practitioner to have the catheter removed. He pulled out all the saline in the balloon, and then literally grabbed it and yanked it out. I have to admit it really hurt about the last inch at the tip of my penis and now it has been two weeks and the tip of my penis inside still hurts about an…
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EBRT after prostate removal
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Searching for Treatment Feedback / Supplements
Hello I am age 51 (in great shape aside from this) recently diagnosed PCA and biopsy showed combination of 3+4 and 4+3 Gleason so definitely intermediate risk. PET scan on 4/19/24 showed cancer is on left side of prostate only has not spread. No symptons aside from PSA level 4.3 and get up pee 1 or twice at night. I am…
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wondering about finasteride
Hi all! I'm new to the board as I have been recently diagnosed with a gleason score of 3+3=6. I feel very blessed that it is such a low grade, and at this point have decided on active surveillance. My doctor also put me on Finasteride. I didn't think much of it at the time, but after doing some research, I'm questioning if…