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My mom
So we had our first onc apt yesterday to plan out the chemo and go over histopath.. So the justo path revealed all serous tumor however on the original biopsy they saw sarcoma cells, so they are calling it a carcinosarcoma although the histopath from surgery revealed all serous. They want to do 6 rounds of iphos + taxol.…
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CT Results
After the rise in my CA125, so very little, and the ground glass haze on my lung, we did a chest CT. Spoke with docs RN today and she told me the ground glass is still there, with NO change....yahoo! Do find a "few" PULMONARY NODULES" very small in size. The radiologist report shows notes -- "appears to be scarring or…
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Looking for others who may be survivors of leiomyoscarcoma of the uterus.
Hi... I was diagnosed with leiomyoscarcoma of the uterus in Sept of 2010. I had a complete hysterectomy, then 28 treatments of radiation to the pelvis. I know it's aggressive and that the statistics for survival is not good. Looking for others in the same situations.
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Will I ever get my energy level back?
I am 7 weeks post-op Hysterectomy and find it difficult just to do everyday things around the house, especially on cloudy days. I had some of this low energy pre-op because of migraines, but it has gotten worse. I am eating healthy, and try to get some exercise. Coffee seems to help sometimes. I also have lost strength in…
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Brain Mets for my mom. Help
Hi all. I hope each and every one of you are doing great. Me? Not so much. My mom was diagnosed with stage 3C uterine UPSC about a year ago. She has undergone a radical hysterectomy as well as aggressive chemo and radiation. All was okay and she seemed to be doing great until today. She went to the emergency room because…
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gyn/onc and what to do...help please
Hi everyone, this is my first post to CSN In April 2010, at 39, i had a hysterectomy done by my gyn, not a gyn/onc. The endometrial tumor was rather large at 10x5 cm, and was a grade 2, with a nuclear cell of 2-3. I not only had no lymph nodes taken but also had no "experienced eyes". The gyn/onc i was referred to, i…
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Taxol and Carboplatin
Has anyone else had a rash all over their body and numbness in hands after 1st treatment? The rash didn't itch very much like you would expect from an allergic reaction and resolved after 3 days on steroids and numbness is just in the fingertips now. Treatment team did not think I should have numbness after just one…
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para-aortic lymph node on ct question?
I was just looking back at my last ct scan, and see that the radiologist noted scattered para-aortic or it might have been peri-aortic lymph nodes. Would that note suggest anything, there is no size given, just saids scattered? Thanks for any insight!!
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Uterus Cancer
I went to a fertility doctor to see why I was not getting pregnant. It turned out that I had fibroids in my uterus that didn't provide enough space for a baby to grow. I had two surgeries last year and the first biopsy came back with pre cancer cells which were treated with a hormone steroid. Second surgery showed no sign…
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Observation continues
My CA 125 went from 672 to 718. So that was a smaller increase in 7 weeks. I also had a CAT scan which showed an incease in lymph nodes in the chest area and abdominal area, but the doctor was pleased the largest one was around 1 inch. He said the slow increase in the CA 125 was indicative of the increase in the size of…
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Neuropathy that seems to be worsening 18 months after last Chemo treatment
Hey GuYs, Have any of you experiencme worsening of neuropathy ? Now, 18 months after last chemo Gemzar after roundsofcarbo taxol and Carbo Doxil, my toe tingling numbishmess seems to be creeping up my legs to my calfs now. My doc just kinda shrugged. As if Stage IvB grade3 Clear and Undifferentiated Cell Adenocarcinoma…
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CA 125continues to rise
In the last 10 weeks my CA 125 went from 554 to 672. I was going to be happy if it was less than 700, so I was very happy. As before I have no symtoms and feel good. I have joint pains from the Aromasin, but I can deal with that. i also continue my daily blood thinner shots. My onocologist in Florida said he would not do a…
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DOXCIL
Is anyone taking doxcil treatments? I had carbo and taxol after they found my cancer. Started those treatments in January 2012 and finished in May 2012. Everything was good until February 2013 and now have cancer in the abdomen area. Started on doxcil and have experienced mouth sores and hand and foot syndrome. Now after…
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Mom diagnosed with stage 4b- anyone else??
I guess I'm just wanting to hear experience from others. My mom was diagnosed on Valentine's Day with stage 4b, grade 1 uterine cancer (her surgeon said he was shocked to see it graded 1 since it had spread so far)- they told me it was in her uterus and omentum. When we had the CT, it was also found in her lungs and lymph…
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codes
Would anyone know the medical code numbers for the BRCA 1 and BRCA 2 genetic testing and if Medicare will pay for the tests? Thanks, Debra
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MMMT Recurrence
My 77 yr old mother felt a mass in her abdomen in 2011 and was told after gyn exams by gyn and gyn onc that it was likely cancer. After surgery in June 2011, dx was MMMT. Taxol/carbo was started in Aug 2011, but had to be changed to doxci/carbo due to poor tolerance/ bad rxn to taxol after the 1st round. Mama had a total…
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stent question
My mother had surgery for USPC 2 weeks ago (clear PET scan; after surgery doc said stage 1, then said, "Well, technically stage 2 since pathologist saw microscopic cells in cervix"...all else was "clear"...nothing in lymph, abdomen, omentum, and so on). She is preparing for sandwich therapy, and the home health nurse…
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FANTASTIC ARTICLE - PLZ SHARE WITH YOUR FRIENDS
News Release: A Call to Action on Behalf of Women with Below the Belt Cancer We know women’s lives are saved when we look at cancer through a pink lens. How many more could be saved if we included all the colors representing cancers unique to women? Each year, some 90,000 women are diagnosed with “below the belt” cancers;…
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Bladder issues after "pelvic floor surgery"
I've cancelled 2 appointments with the urogynecologist because I just don't want to go there! So I'm coming here instead to learn what, if any, bladder issues you have had following what my pcp refers to as "pelvic floor surgery". Here's mine: I have stress and sometimes urge incontinence, up many times during the night to…
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Anything positive come from your cancer (other than the pathology report, haha)?
I consider myself a cynic at heart, and tend to see the poop that's fertilizing the rose garden rather than the blooms. But one thing that surprised me is how much good came out of my diagnosis/treatment. I don't want to appear flip, or to be insensitive to those having a rough go of things, but I wonder if it will help if…
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How times have changed....just had to post!
CONGRATULATIONS TO ALL BORN IN 1930's, 1940's, 50's, 60's, 70's and Early 80's !!! First, you survived being born to mothers who smoked and/or drank while they carried us. They took aspirin, ate blue cheese dressing, tuna from a tin, and didn't get tested for diabetes. Then after that trauma, your baby cots were covered…
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naturopath specializing in oncology
Post the completion of my chemo and internal radiation therapy i had an appointment with my naturopath with extended oncology training. I thought i would share the information she provided along with the testing she has done and treatment we are starting little background - diagnosed 11/2012 with Uterine Cancer. 12/12/12…
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Does it get easier to go for your doctor appts?
Ladies, I am hoping you, and anyone from any board can chime in, does going to the doctor ever get easier? I am only in about 6 months of the monitoring now and get very anxious when I have to go see the surgeon for my follow ups. I am not talking about the physical exam, I am talking about the unknown. My next visit is…
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favorite ways to make water taste good
Hello all, I'm doing platinum based chemo treatment again and am wanting to drink more water, but have had trouble with the taste. Usually I love just plain water but it seems to get more "chemo" taste just straight. I've been trying some different experiments this week and thought I'd share. been using organic fruit and…
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Second opinions
Hello fellow warriors! I am new to this support community, and have just passed my one year "anniversary" of diagnosis! It is good to know you are all out there! I was diagnosed with endometrial cancer, stage 3C, and have done the surgery, chemo (carbo and taxol) followed by radiation (external beam and brachytherapy.) I…
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Another birthday
I am 67 today and happy to see it. 15 months ago I wondered if I'd see 70. Now with the help of NED, my medical team, and all of you, I am counting on it and hope for many more after that.
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new discussion board
A new discussion board is available to report and discuss technical problems. Please give it a try. It is the last discussion board listed on the page with all the boards, please bookmark it for future use. The URL is http://csn.cancer.org/forum/200. Best, Greta aka Your CSN staff
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Very encouraging!
Very encouraging! Keep your fingers crossed ladies! This could very well be a breakthrough http://www.nypost.com/p/news/national/testing_starts_creates_homegrown_4jSHWpWFBEkczPTFque7VM Stanford researchers are on track to begin human trials of a potentially potent new weapon against cancer, and would-be participants are…
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Now what!?!?
2013-07-09 This post qualifies as 'now what'! PET/CT colorful around ureterer, possibly Ca encroaching. Some docs said yes! others said fibroids from scar tissue from radiation, as was previously reported to help 'with one hand' and 'cause Prblems later on', my story exactly. now rad scar tissue seems to be blocking,from…
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Friend with Uterine cancer. VERY CONCERNED!!
Hi Ladies, I'm coming over from the OVCA board with a question regarding a close friend. My friend had surgery a few months ago for stage 3 uterine cancer. She underwent 25 radiation treatments. She completed those about a month ago. About ten days ago she developed a high fever (103). A medical doctor put her on…