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how to survive the mental game
Hi there. My name is Brian and I have stageIV metastatic mealnoma. Looking for friends in the same boat. Dont feel bad, but the mind game is totally draining. I wanna quit my job and run away,...not from the experience of living, but from the toxic medicines and death. I have the hardest time turning my body over to the…
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Need support
Im a 25 year old single mom whom last year was diagnosed with stage 2 melanoma on my calf. The tumor was removed in December and luckily they said it hadnt spread to the lymph nodes. I always loved the outdoors, beach, pool, anything that I could feel the warmth of the sun. I also used tanning bed's in the winter to keep a…
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Questions ?
Hi everyone. I am not a melanoma patient but my best friend just had melanoma removed from her ankle. She lives in Nashville and called last night to tell me about her surgery. They removed the melanoma, which the doctor said started on a scar she had gotten from waxing her legs. Anyway, they checked her lymph nodes in her…
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advice on interferon?
Thinking about joining a trial that will consist of only the first month of high dose interferon therapy. If anyone has any experience with this I would like to hear from you. Wondering what to expect. Some say it is horrible and others say its tolerable. I understand that everyone is different, but would like to hear some…
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Dizziness???
Hi everyone... Quick question... Has anyone any experience with dizziness associated with melanoma?? My primary care physician suspects nothing but maybe an acid reflux problem, so I was prescribed Protonix, but that was 3 weeks ago and the dizziness just gets more constant. Don't know what to do here, as he seems bothered…
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Tagamet rules!
the old ulcer drug makes the body attack cancers including melanoma. would give it with frankincense oil, also very effective.
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skin cancer and now blood inside nose
Three years ago I was told I had stage 3 bladder cancer. It was declared a stage 3 with the highest level with this pathologist was a stage 3. I could not have surgery due to other medical problems. A year later, I had a slice taken off my nose on the left side, which turned out to be cancer. I didn't worry about it since…
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New Melanoma
I have had basal cell cancer, colon cancer, I am still getting radiation for breast cancer & now I have melanoma in situ. Just had surgery to remove it. What is the best screening technique? I read something about digital screening. Also, my husband just got basal cell skin cancer. Does anyone know about High Dose…
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stage 3 after first surgery
hello, i am new to this board and i really need to hear some facts. My cousin was diagnosed with melanoma in november, and just had her first surgery on Jan. 5. Her tumor was more than 4mm thick and was ulcerated. Her biopsy showed that her cancer spread to her lymph nodes and she is schedualed for a second surgery to…
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met.melanoma internal organs
Hi, I'm 33, and I just recently was diagnosed with metastatic melanoma that is in my bile duct/pancreas area. I had a whipple surgery which was rough, and I'm recovering. My oncologist doesn't offer much hope, and I haven't even had a PET scan yet! I don't know yet if it has spread anywhere else yet. I still have hope that…
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metastatic melanoma
My husband has stage 4 metstatic melanoma. I would love to talk to anyone who also has the same. He is on an organic diet with many supplement. It seems to be helping. He takes DTIC chemo every 3 weeks. So far so good!
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vaginal melanoma
My prognosis was 4 to 19 months. I was expected to make it only 6, but I have been here fighting for 14 months now. I cannot find any survivors with this kind of melanoma. I lost two grandmothers to melanoma and I fear for my 3 kids. I would like to hear from anyone with vaginal melanoma. I feel alone, yet realize that…
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Melanoma kills
Im a 16 year old girl and my mother has stage 4 Melanoma. She just turned 40. Shes very young and dying very painfully and slowly. I hate seeing her like this and I dont want to lose her. Theres so many things I want to do with her but I am unable to. She has to stay in a bed at all times for the fact that she cant move…
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I'm also new to Melenoma
I had a spot on my lower left that everyone kept asking about, but i would shrug it off and say that it was nothing. Boy, was I wrong!!! I went to see my Dr. on May 19, 2009 and right away he sent me to a surgeon. I saw that Dr. on May 21, 2009 and went in to surgery May 22, 2009. Talk about a shock!!!!! I had an a large…
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Experimental treatments for inoperable Stage IV
My sister in law has been diagnosed with melanoma. She has a tumor in her lungs that they can't take out, and has been told she has 4 mos left. We are trying to get her in to any of the experimental studies/trials, but so far noone thinks she is a good candidate becuase her tumor keeps growing and they can't remove it. I'd…
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Another Coming Out Story...
I have read so many of the postings here and almost feel a bit guilty writing since my melanoma isn’t as far spread nor as devastating as so many others. My melanoma was staring me right in the face for quite awhile. It was on my forehead, just above my eyes, so every morning it was “Hmm I should have that checked…
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New to the board - with questions...
First of all, I don't know if I have selected the correct chat board catagory to go to, so if anyone thinks that a different catagory would be better, please direct me accordingly. My mother has recently had surgery to remove cancer. It was melanoma. Her doctor was considered an oncologist/gynecologist because the cancer…
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Malignant melanomia stage IV
What do you do when you have found your loved one is diagnosed with this type of cancer. We are going to Moffitt in Tampa on tuesday. We are scared to death what they are going to tell us. Every thing we have read has been bad. Has anyone out there been to Moffitt? My boyfriend has it on his back 3.6mm, an just tonight I…
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Newly diagnosed
I was just diagnosed this week with a stage 4 melanoma! I think I am in denial or shock. It seems so strange--because I don't feel sick or anything! My family doctor removed the "thing" and thendid another surgery yesterday to remove the "margins". Now I am going to see an oncologist. My family doctor questions the stage 4…
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Malignant Melanoma
I'd like to communicate with folks that have had: wide & local surgery; Adjuvant Interferon - 1 month 5Xwk high dose IV, followed by 11 month 3X wk injection. I'm a "Clark Level IIBT4a"
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How I got here..
Last December I was diagnosed with a 1 mm melanoma on my upper right back, just where you can't scratch. In early December it was removed via a wide excision and a sentinel node biopsy was performed on the bunch in the right armpit. The results of the sentinel node biospy were negative. So I believe I'm stage 1. From the…
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Newbie!
Hi, my name is Lissa and last Friday I was diagnosed with malignant melanoma. I'm in a tailspin! I went to a dermatologist last Tuesday because of this "thing" on my chin. He shaved it off, Friday I got a call from his nurse telling me I had this disease. I had an appointment Monday with my surgeon. He is doing surgery…
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The Importance of Stem Cell
Faith In Stem Cells By Connie Mack In the next few weeks, President Bush faces a very difficult decision: whether to continue federal funding for human embryonic stem-cell research. As a cancer survivor, a former senator and a pro-life Republican, I hope that he decides to let this research move forward with continued…
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Clinical trial vs. interferon
My fiance and I are having a terrible time making the decision of what treatment he should choose. Just a bit of background information, we're both 28 years old, got engaged at the end of October, bought and moved into our first home on New Years Eve, then found out he had cancer two weeks later. 8 years ago (age 18) he…
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Anal Cancer
I'm new at this so bare with me, please. I was diagnosed with Anal Cancer (stage II) on June 3rd, 2009 at the age of 35. I've been married for two years with a one year old son. I've gone through chemo and 28 treatments of radiation. I finished my treatments and now playing the waiting game. The big question still lingers…
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Everyone with or without cancer get a body scan
To everyone, Please do you and your family a favor and get a body scan. It's painless, takes about an hour at a Dermatologist and can literally save your life. Do not let it reach the melanoma stage which can be deadly, without a fight. A simple mole biopsy can be the difference between life and death.
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Syringoid Eccrine Carsioma (need any possible information)
Hi, My mother was just diagnosed with syringoid eccrine carsioma, which as I understand is a dermatalogic cancer. There is very little information available on this cancer. Has anyone had any experience with: - Surgery (Mohs versus regular surgery) - Therapies - Physicians (do you go to a general oncologist or a…
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Recommendations on Oncologists that treat DFSP in the North Jersey Area - Please help!
Hi. My sister is looking for an oncologist to treat DFSP that has returned for the 2nd time and seems to spread to her internal organs. Please send me any recommendations in the Jersey area. Many thanks.
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Recurrant Melanoma
My husband was in remission since Christmas 2003 from Stage 4 melanoma. We have recently found out that the cancer has returned. The mets are in his brain with a thickening of the brain lining. He is 44 yrs old and a fighter. We never thought we would be dealing with this again. Knowing it is in his brain is very scarey.…
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Cough In Melanoma Patients
I am trying to find Melanoma Patients that are experiencing a dry deep cough. Hospice says my husbands lungs are clear and do not feel this is pneumonia. Another lump was found over a week ago that sits in the chest between caller and shoulder bones. My husband has been stage 4 for over 3 years now. 9 tumors removed total.…