met.melanoma internal organs

penlop
penlop Member Posts: 3
edited March 2014 in Skin Cancer #1
Hi, I'm 33, and I just recently was diagnosed with metastatic melanoma that is in my bile duct/pancreas area. I had a whipple surgery which was rough, and I'm recovering. My oncologist doesn't offer much hope, and I haven't even had a PET scan yet! I don't know yet if it has spread anywhere else yet. I still have hope that something can be done??? Am I crazy? I have a 4 year old son and can't stand the thought of not seeing him grow up. Is there anyone out there that can offer advice, hope or email me? Thanks, Penny at jpniles@mhtc.net

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  • Unknown
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  • betsymv
    betsymv Member Posts: 3
    #3
    Hi Penny....
    I did a clinical trial at the National Institute of Health three years ago and so far so good...I too had metastic melonoma internally, including the liver and adrenal. I cannot say enough about their care. It is worth the phone call. Check them out at nih.gov I hope this helps. Betsy
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