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Inravascular B Cell Lymphoma
My mom was very recently diagnosed with Intravascular B Cell Lymphoma. She has started her Chemo treatment with R-CHOP. She has responed well to the first round. Does anyone know much about this rare type of Lymphoma?
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Primary Central Nervous System Lymphoma
My son is 10 years old and he has Primary CNS Lymphoma he was diagnosed in April of 2010. I would love to talk to anyone who's child has the same type. There is very little info availible on children that were in perfect health prior to getting sick. He has finished his protocal and we are getting ready to do our second…
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Mucoepidermal Cancer of the Salivary gland
Not sure which board to post this on so I'm trying a couple. My mother was diagnosed with low grade stage 2 mucoepidermal cancer of her left salivary gland about 1 1/2 years ago. She underwent surgery and radiation therapy. She was just diagnosed with the same type of cancer on the same side but it is just behind her last…
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Inflammaroty Myofibroblastic Tumor (super rare lung cancer)
Hi All. Im new on this site, and im a 19 year old survuivor of just over a year! (yay!!) I was diagnosed with a rare form of lung cancer. It is called an Inflammatory Myofibroblastic Tumor. I was diagnosed February of 2014, and as of then, I was only the 25th resported case in the entire world. Crazy right? It was such a…
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Extrapulmonary small cell carcinoma localized in lymph nodes
Hi, I'm new here and hope to find friends and opportunities for mutual support. I'm a youthful 60 and intend to outlive my mom, who made it to a youthful 98! I was diagnosed in Sept. 2014 with Extrapulmonary small cell carcinoma localized in my left axillary (armpit) lymph nodes. The only study I could find…
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Cyst on pancreas
my doctor just informed me that I have a cyst on my pancreas and schedule an edoscopy. 7mos ago I had my left kidney removed ( open radical nephrectomy/ an a rib ). T3aPnx grade 3 . also a nodule on my left lung they are watching . I'm scared and now all I can think about, is this cyst cancer too. How do people do without…
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Carcinosarcoma - MMMT
Hello, I'm new to this network. My mom was just diagnosed with carcinosarcoma of the fallopian tube (rarest of the rare). I would REALLY appreciate input from any other incredible survivors related to MMMT, its treatment, successful alternative therapies and hope.
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Lymphomatoid Granulomatosis
My husband has been battling Grade II Lymphomatoid Granulomatosis for a long time now. Has been on Alpha Interferon for 7 months, and found out recently he will be on it at least another 13 months. Anyone out there have this disease, or have handled interferon?
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My mom has appendix cancer...don't know what to do
Hi guys, im super new to this website. Around this time last year I got a call from my dad, and he sounded very worried and told me he had some "bad news". I was like "oh shoot, i must have overdrawn my credit card" or something like that. "Your mom has cancer...it's serious". Turns out she had stage 4 appendix cancer.…
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Spermatic Cord Sarcoma
I was diagnosed two weeks ago with Spematic Cord Sarcoma. Went in for hernia repair surgery and came out with one testicle removed along with a tumor. I am told that this is extremely RARE and studies are few and far between. Anyone with any knowledge on this cancer? All help will be gratefully appreciated! Thanks......Ron
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High Grade PNET
Hi all, My Dad was diagnosed this past February. His PNET is in the tail of his pancreas with innumerable mets to the liver. His first oncologist said he was grade 2 with some signs of grade 3. He immediately started on Cap/Tem. Just before he started the second round (3 days ago) he got a second opinion at a University of…
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neuroendocrine tumour in the nasopharynx
Hi All, I am new here and I am looking for information and people with the same thing I have. I come from the UK and can find very little info about the type of cancer I have on the sites over here. Was told to have a look at the american ones, and this ones gives lots of good information. So far I have been told that I…
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pnet found in brother
Hello, my name is lauren. I have a brother whom is 25 years old. After being sick in the hospital for two weeks with what we thought was spinal meningitis. We found out it was worse. after mris, ct scans, and a spinal tap the doctors found lesions on his spine and neck. Of coarse in order to diagnose him they wanted to do…
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myelofibrosis
I am a physician. Consequently, the literature on the subject of myeloproliferative diseases is known to me and understood. Unfortunately, in the prime of my medical practice, I was afflicted with both ulcerative colitis and a myeloproliferative disorder. Originally, because of an annual physical and a CBC which showed an…
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mental cell lymphoma
Hello My dad has been diagnosed with mental cell lymphoma cancer. His chemotherapy as prescribed by doctor is over and now he has to undergo autologous transplant. I am from India now I want to know if there is any other possible option that I can choose for his treatment or if anybody out there know any doctor from whom I…
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Elevated liver enzymes with carcinoid
I haven't posted in a long while. My husband was diagnosed with carcinoid cancer 2 years ago. He had 3 chemoembolizations to the liver last year. He just had a repeat CT scan and it shows that the majority of the tumors inside the liver have shrunk. The tumors outside the liver have decreased in size or remain the same.…
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tongue cancer?
hi everyone, I am 16 years old, i smoke weed 2-3 times a week, i did those pouches that are like chew tobacco that you put by your gums and a month ago i did a pouch before i went to sleep and woke up with haorse throat and my throat burned like crazy. It was like this for another week and i stuck out my tongue and noticed…
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Are they missing pancreatic cancer???
Hello. I know you all have your own worries and I've struggle with whether to post this or not while reading through your stories. But I'm not getting any help and after 3 months and frankly, I'm at my wits end. In november of 14 I started to get really bad upper left abdominal pain, just below (not behind) the rib cage…
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Collecting plastic bottle caps
My family has been saving plastic bottle caps, a woman at church was collecting them and she said they have enough. Does anyone else know anything about this. If so please let me know. I live in Shelby North Carolina. If it is for cancer treatments I am a 4 year cancer survivor and would send then where they are needed.…
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Private Message Spam
Hello everyone, Thank you to those who've alerted us to the spamming from earlier today, and we sincerely apologize for the inconvenience. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this. If you received a message, please do not respond or…
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Looking for anyone with MEN2B, or just MEN
I'm 19, and have been a survivor of medullary carcinoma of the thyroid, ie thyroid cancer, for 6 years. i really want to find someone with my disorder. Are you out there? I have Multiple Endocrine Neoplasia type 2B.
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re-occurrence
My 46 yr. old son had a finger amputation due to digital pappillary adenocarcinoma 2 yrs ago. Today he showed me a nodule on his same hand as previous nodule was. Has anyone else experienced re-occurence of digital nodules? He will make appt for biopsy ASAP.
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Cancer in lungs
Well I had a needle biopsy earler this week to a lung nodule to confirm that it was MPNST sarcoma mets to my lung. My doctor told me the news Friday that it was positive for MPNST mets and that it was at stage 4. Now they want to do a biopsy to my lymp nodes in my throat because they showed hot spots in the PET scan also.…
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unknown primary, scc secondary in the axillary
Heya, finished radium 8 weeks ago after full lymph node removal from the armpit. Still no primary detected. Lymphoma is now present but the pain through my arm seems like arthritis in the bones and joints including my hand. My physio said its not pain from lymphoma and pointed me towards arthritis instead. The onset of the…
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Discussion Board and Chat Spam
Hello everyone, Thank you to those who've alerted us to the spamming from earlier today and we sincerely apologize for the inconvenience. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of discussion board and chat spamming. If you…
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Does anyone suffer from severe pain years after the Whipple?
Hi, I am from Taiwan,Asia. One of my female friends has been suffering from severe abnominal pain after the Whipple. She had the surgery four years ago, and the pain continues and is worsening. She has consulted many doctors and there has been no improvement. Does anyone have the same experience? It will be highly…
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carcinoid tumour on appendix
Hi we are in complete shock my 22yr old son had appendicitis in january and surgeon removed his appendix he was called back to see surgeon and was told that they had found a carcinoid tumour on his appendix 22mm (I think)he was told that they had got it all and nothing else needed done. he was having some aches and pains…
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Galbladder Cancer - 3 year survivor
Happy Anniversary to my Mom!!! 3 years and counting!!!!! Lots of chemo - lots of breaks - lots of ups and downs - lots of tears, frustrations and difficulties. But lot of laughs, smiles and good quality "living". Sooooooo grateful for the support of this board and the people we've met along the way. Vent, rant, scream -…
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Whipple surgery, finding the best doctor
I need to find a surgeon with a lot of experience in the Whipple surgical proceedure. How does one go about finding someone who does many (e.g. 100/yr) per year? How does one get seen by them in a timely fashion? Thank you!
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Ampullary Cancer (Ampulla of Vater)
Hello everyone. My mother (56) was diagnosed with Ampullary Cancer, and she has undergone Whipple procedure (pancreatoduodenectomy) 2 months ago, and is getting ready to start with chemo and radio treatment. From the beginning, none of this made any sense: - she's non-smoker (though our father was a smoker, but they…