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High Grade PNET
Hi all, My Dad was diagnosed this past February. His PNET is in the tail of his pancreas with innumerable mets to the liver. His first oncologist said he was grade 2 with some signs of grade 3. He immediately started on Cap/Tem. Just before he started the second round (3 days ago) he got a second opinion at a University of…
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neuroendocrine tumour in the nasopharynx
Hi All, I am new here and I am looking for information and people with the same thing I have. I come from the UK and can find very little info about the type of cancer I have on the sites over here. Was told to have a look at the american ones, and this ones gives lots of good information. So far I have been told that I…
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pnet found in brother
Hello, my name is lauren. I have a brother whom is 25 years old. After being sick in the hospital for two weeks with what we thought was spinal meningitis. We found out it was worse. after mris, ct scans, and a spinal tap the doctors found lesions on his spine and neck. Of coarse in order to diagnose him they wanted to do…
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myelofibrosis
I am a physician. Consequently, the literature on the subject of myeloproliferative diseases is known to me and understood. Unfortunately, in the prime of my medical practice, I was afflicted with both ulcerative colitis and a myeloproliferative disorder. Originally, because of an annual physical and a CBC which showed an…
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mental cell lymphoma
Hello My dad has been diagnosed with mental cell lymphoma cancer. His chemotherapy as prescribed by doctor is over and now he has to undergo autologous transplant. I am from India now I want to know if there is any other possible option that I can choose for his treatment or if anybody out there know any doctor from whom I…
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Elevated liver enzymes with carcinoid
I haven't posted in a long while. My husband was diagnosed with carcinoid cancer 2 years ago. He had 3 chemoembolizations to the liver last year. He just had a repeat CT scan and it shows that the majority of the tumors inside the liver have shrunk. The tumors outside the liver have decreased in size or remain the same.…
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tongue cancer?
hi everyone, I am 16 years old, i smoke weed 2-3 times a week, i did those pouches that are like chew tobacco that you put by your gums and a month ago i did a pouch before i went to sleep and woke up with haorse throat and my throat burned like crazy. It was like this for another week and i stuck out my tongue and noticed…
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Are they missing pancreatic cancer???
Hello. I know you all have your own worries and I've struggle with whether to post this or not while reading through your stories. But I'm not getting any help and after 3 months and frankly, I'm at my wits end. In november of 14 I started to get really bad upper left abdominal pain, just below (not behind) the rib cage…
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Collecting plastic bottle caps
My family has been saving plastic bottle caps, a woman at church was collecting them and she said they have enough. Does anyone else know anything about this. If so please let me know. I live in Shelby North Carolina. If it is for cancer treatments I am a 4 year cancer survivor and would send then where they are needed.…
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Private Message Spam
Hello everyone, Thank you to those who've alerted us to the spamming from earlier today, and we sincerely apologize for the inconvenience. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this. If you received a message, please do not respond or…
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Looking for anyone with MEN2B, or just MEN
I'm 19, and have been a survivor of medullary carcinoma of the thyroid, ie thyroid cancer, for 6 years. i really want to find someone with my disorder. Are you out there? I have Multiple Endocrine Neoplasia type 2B.
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re-occurrence
My 46 yr. old son had a finger amputation due to digital pappillary adenocarcinoma 2 yrs ago. Today he showed me a nodule on his same hand as previous nodule was. Has anyone else experienced re-occurence of digital nodules? He will make appt for biopsy ASAP.
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Cancer in lungs
Well I had a needle biopsy earler this week to a lung nodule to confirm that it was MPNST sarcoma mets to my lung. My doctor told me the news Friday that it was positive for MPNST mets and that it was at stage 4. Now they want to do a biopsy to my lymp nodes in my throat because they showed hot spots in the PET scan also.…
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unknown primary, scc secondary in the axillary
Heya, finished radium 8 weeks ago after full lymph node removal from the armpit. Still no primary detected. Lymphoma is now present but the pain through my arm seems like arthritis in the bones and joints including my hand. My physio said its not pain from lymphoma and pointed me towards arthritis instead. The onset of the…
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Discussion Board and Chat Spam
Hello everyone, Thank you to those who've alerted us to the spamming from earlier today and we sincerely apologize for the inconvenience. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of discussion board and chat spamming. If you…
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Does anyone suffer from severe pain years after the Whipple?
Hi, I am from Taiwan,Asia. One of my female friends has been suffering from severe abnominal pain after the Whipple. She had the surgery four years ago, and the pain continues and is worsening. She has consulted many doctors and there has been no improvement. Does anyone have the same experience? It will be highly…
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carcinoid tumour on appendix
Hi we are in complete shock my 22yr old son had appendicitis in january and surgeon removed his appendix he was called back to see surgeon and was told that they had found a carcinoid tumour on his appendix 22mm (I think)he was told that they had got it all and nothing else needed done. he was having some aches and pains…
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Galbladder Cancer - 3 year survivor
Happy Anniversary to my Mom!!! 3 years and counting!!!!! Lots of chemo - lots of breaks - lots of ups and downs - lots of tears, frustrations and difficulties. But lot of laughs, smiles and good quality "living". Sooooooo grateful for the support of this board and the people we've met along the way. Vent, rant, scream -…
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Whipple surgery, finding the best doctor
I need to find a surgeon with a lot of experience in the Whipple surgical proceedure. How does one go about finding someone who does many (e.g. 100/yr) per year? How does one get seen by them in a timely fashion? Thank you!
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Ampullary Cancer (Ampulla of Vater)
Hello everyone. My mother (56) was diagnosed with Ampullary Cancer, and she has undergone Whipple procedure (pancreatoduodenectomy) 2 months ago, and is getting ready to start with chemo and radio treatment. From the beginning, none of this made any sense: - she's non-smoker (though our father was a smoker, but they…
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angiosarcoma
My brother 27 years old has angiosarcoma. Anyone out there have experience with this cancer?
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Appendaceal Cancer
I have a very rare form of cancer of the appendix and I am looking for others who may have had it. Or others who have had a rare cancer and would like to just chat and share stories of our lives. I'm new in cancer survivorship and I'm finding it very hard. I live in Alaska and there are few supports where I live. That is…
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Adult Rhabdomyosarcoma
I have recently been diagnosed with Rhabdomyosarcoma in my sinus. I am a 29 year old, and am waiting for confirmation from the Sarcoma folks at Memorial Sloan-Kettering Cancer Center. Of course I am scared and confused, but at least early signs seem to indicate that while at stage 4, my other symptoms/location of the tumor…
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Pancreatic cancer
I am suffering from stage 4 pancreatic cancer with cancer spread to liver and intestine. Whipple surgery was ruled out. However FOLFIRINOX chemo has brought down my chemo marker down from 18000 to 140. I am felling lot better. I know survival rate is 1% in a year. However I would like to know if anybody has survived beyond…
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Poorly Differentiated Neuroendocrine cancer with Well to Moderately Differentiated Adenocarcinoma -
Hello everyone - this is my first post here. My mom has poorly differentiated (high grade) neuroendocrine cancer with (we think) a mid-ileum gastrointestinal primary and adenocarcinoma (lung; well and moderately differentiated) all with a KRAS mutation. The cancer is metastatic - currently in the lung, brain, and a some in…
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Private Message Spam
Hello everyone, Thank you to those who've alerted us to the PM spamming from earlier today. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of private message spamming. If you received a message from rita44556 prompting you for money,…
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Caricinoid Tumor
I am a 29 year old female who was diagnosed with a caricnoid tumor in my small intestine. I underwent surgery in 5/01 to remove a portion of my intestine and 9 lymph nodes. Thankfully, it had only spread to one lymph node and the margins were all clear. Because of this early detection I did not have to undergo any other…
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ocular melanoma
Almost3 years ago I was diagnosed with ocular melanoma. I was good about 2 yrs straight for going to my check ups but the last year I haven't gone and am having some simular symptoms again. Does anyone know where I can find information on statistics after being diagnosed ex. Chances of it spreading and what to look for?
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Leiomyosarcoma
I am a survivor of lieomysarcoma which is a 1 in 4 million probability. I saw a posting of someone who shares this cancer and would like to talk more. Ironically, there was another lady in my small town that is surviving this same cancer. Is this coincedence, is the diagnosis occurring more frequently, is this type of…
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Adnexal Carcinoma
My cousin was diagnosed with Adnexal Carcinoma about two or three years ago. It started with a bump on his left foot that he had for five years. It was misdiagnosed for gout. He finally could not walk on it any more and went to the e.r. where the doctor knew something was wrong. He sent off for a biopsy and that is when we…