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Urethral Cancer
Hi Everyone, Has anybody else ever had urethral cancer? I had been going to my doctor for about two years complaining of blood in my urine and pain. He said it was my prostate and treated it as such. The symptoms got worse and after many months of medications he sent me to a urologist. The urologist was not happy when he…
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solid mass in my gluteus maximus
I am 34 years old, and hospital just accidentaly found a mass in my gluteus maximus. I am sooo scared, and I hear this is very rare... Anyone else hear of this?
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Uterine Carcino Sarcoma
Hi All, About 2 months ago, I began to get stabbing pains when "evacuating". I found myself bracing every time I had to go. My husband could hear me trying to breath through it. In the beginning, it would happen every now and then. It was exactly the type of pain I had endured when I had endometriosis. That took 3…
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Any survivors of Cholangiocarcinoma?
My uncle was diagnosed with Cholangiocarcinoma, and has been cured, but experiences pain constantly. He is very despondent, and beleieves he has only 4 years left to live. He desires to talk to anybody that has had Cholangiocarcinoma; just to see what to expect. If you have survived Cholangiocarcinoma, please email me at:…
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Angiosarcoma
Hello Everyone. My Name is Paul and I am trying to get some info for my Dad. He was diagnosed last month with angiosarcoma. He has a mass removed from his nose and forhead and they have found spots on his lungs during a PET scan they then did a lung biopsy and determined it is cancer but they are unsure what type. Our…
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Lymphomatoid Granulomatosis
Hi, I am asking for anyone who has a loved one with Lymphomatoid Granulomatosis of the Central Nervous System (my sister has it from the brain and the spinal cord.) My sister is British living in Australia with her young family and is 39 years old. She has in the last 12 weeks been diagnosed with the condition and is…
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Pancreatic Cancer - a life changing event
hi all; First of all, pardon my humor, it is my defense mechanism. I have to laugh and I try to find the humor in everything, including this....situation. Now on with it........ I am on an adventure. I was diagnosed at the end of July 2014 with Stage 4 Pancreatic cancer. Needless to say I was not expecting this. I even…
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lg. cell, Sm. cell gastrointestinal nueroendocrine carcinoma
My questions is, I have been in remission for 13 months today from gallbladder cancer and large cell and small cell gastrointestinal nueoendocrine carcinoma! I went to my family doctor yesterday and found out I have a UTI. The doctor told me there was bilirubin found in my urine. The doctor I seen said she did not know if…
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Retroperitoneal Squamous cell carcinoma of undetermined origin
My 45yo wife was recently diagnosed with the above described cancer. Surgery was performed last week and the retroperitoneal mass as well as all retroperitoneal lymph nodes were removed. All showed SCC. My wife had a hysterectomy 20 years earlier. There are no signs of cancer in her colonoscopy, or gynocological exam. We…
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squamous cell carcinoma of the kidney
My family member has recently been diagnosed with squamous cell carcinoma of the kidney. His kidney was removed after a long standing history of kidney stones, and since, a large tumor grew in its place and has also been removed. He will be receiving chemotherapy. Does anyone know any other option for treatment ?
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Inravascular B Cell Lymphoma
My mom was very recently diagnosed with Intravascular B Cell Lymphoma. She has started her Chemo treatment with R-CHOP. She has responed well to the first round. Does anyone know much about this rare type of Lymphoma?
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Primary Central Nervous System Lymphoma
My son is 10 years old and he has Primary CNS Lymphoma he was diagnosed in April of 2010. I would love to talk to anyone who's child has the same type. There is very little info availible on children that were in perfect health prior to getting sick. He has finished his protocal and we are getting ready to do our second…
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Mucoepidermal Cancer of the Salivary gland
Not sure which board to post this on so I'm trying a couple. My mother was diagnosed with low grade stage 2 mucoepidermal cancer of her left salivary gland about 1 1/2 years ago. She underwent surgery and radiation therapy. She was just diagnosed with the same type of cancer on the same side but it is just behind her last…
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Inflammaroty Myofibroblastic Tumor (super rare lung cancer)
Hi All. Im new on this site, and im a 19 year old survuivor of just over a year! (yay!!) I was diagnosed with a rare form of lung cancer. It is called an Inflammatory Myofibroblastic Tumor. I was diagnosed February of 2014, and as of then, I was only the 25th resported case in the entire world. Crazy right? It was such a…
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Extrapulmonary small cell carcinoma localized in lymph nodes
Hi, I'm new here and hope to find friends and opportunities for mutual support. I'm a youthful 60 and intend to outlive my mom, who made it to a youthful 98! I was diagnosed in Sept. 2014 with Extrapulmonary small cell carcinoma localized in my left axillary (armpit) lymph nodes. The only study I could find…
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Cyst on pancreas
my doctor just informed me that I have a cyst on my pancreas and schedule an edoscopy. 7mos ago I had my left kidney removed ( open radical nephrectomy/ an a rib ). T3aPnx grade 3 . also a nodule on my left lung they are watching . I'm scared and now all I can think about, is this cyst cancer too. How do people do without…
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Carcinosarcoma - MMMT
Hello, I'm new to this network. My mom was just diagnosed with carcinosarcoma of the fallopian tube (rarest of the rare). I would REALLY appreciate input from any other incredible survivors related to MMMT, its treatment, successful alternative therapies and hope.
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Lymphomatoid Granulomatosis
My husband has been battling Grade II Lymphomatoid Granulomatosis for a long time now. Has been on Alpha Interferon for 7 months, and found out recently he will be on it at least another 13 months. Anyone out there have this disease, or have handled interferon?
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My mom has appendix cancer...don't know what to do
Hi guys, im super new to this website. Around this time last year I got a call from my dad, and he sounded very worried and told me he had some "bad news". I was like "oh shoot, i must have overdrawn my credit card" or something like that. "Your mom has cancer...it's serious". Turns out she had stage 4 appendix cancer.…
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Spermatic Cord Sarcoma
I was diagnosed two weeks ago with Spematic Cord Sarcoma. Went in for hernia repair surgery and came out with one testicle removed along with a tumor. I am told that this is extremely RARE and studies are few and far between. Anyone with any knowledge on this cancer? All help will be gratefully appreciated! Thanks......Ron
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High Grade PNET
Hi all, My Dad was diagnosed this past February. His PNET is in the tail of his pancreas with innumerable mets to the liver. His first oncologist said he was grade 2 with some signs of grade 3. He immediately started on Cap/Tem. Just before he started the second round (3 days ago) he got a second opinion at a University of…
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neuroendocrine tumour in the nasopharynx
Hi All, I am new here and I am looking for information and people with the same thing I have. I come from the UK and can find very little info about the type of cancer I have on the sites over here. Was told to have a look at the american ones, and this ones gives lots of good information. So far I have been told that I…
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pnet found in brother
Hello, my name is lauren. I have a brother whom is 25 years old. After being sick in the hospital for two weeks with what we thought was spinal meningitis. We found out it was worse. after mris, ct scans, and a spinal tap the doctors found lesions on his spine and neck. Of coarse in order to diagnose him they wanted to do…
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myelofibrosis
I am a physician. Consequently, the literature on the subject of myeloproliferative diseases is known to me and understood. Unfortunately, in the prime of my medical practice, I was afflicted with both ulcerative colitis and a myeloproliferative disorder. Originally, because of an annual physical and a CBC which showed an…
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mental cell lymphoma
Hello My dad has been diagnosed with mental cell lymphoma cancer. His chemotherapy as prescribed by doctor is over and now he has to undergo autologous transplant. I am from India now I want to know if there is any other possible option that I can choose for his treatment or if anybody out there know any doctor from whom I…
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Elevated liver enzymes with carcinoid
I haven't posted in a long while. My husband was diagnosed with carcinoid cancer 2 years ago. He had 3 chemoembolizations to the liver last year. He just had a repeat CT scan and it shows that the majority of the tumors inside the liver have shrunk. The tumors outside the liver have decreased in size or remain the same.…
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tongue cancer?
hi everyone, I am 16 years old, i smoke weed 2-3 times a week, i did those pouches that are like chew tobacco that you put by your gums and a month ago i did a pouch before i went to sleep and woke up with haorse throat and my throat burned like crazy. It was like this for another week and i stuck out my tongue and noticed…
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Are they missing pancreatic cancer???
Hello. I know you all have your own worries and I've struggle with whether to post this or not while reading through your stories. But I'm not getting any help and after 3 months and frankly, I'm at my wits end. In november of 14 I started to get really bad upper left abdominal pain, just below (not behind) the rib cage…
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Collecting plastic bottle caps
My family has been saving plastic bottle caps, a woman at church was collecting them and she said they have enough. Does anyone else know anything about this. If so please let me know. I live in Shelby North Carolina. If it is for cancer treatments I am a 4 year cancer survivor and would send then where they are needed.…
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Private Message Spam
Hello everyone, Thank you to those who've alerted us to the spamming from earlier today, and we sincerely apologize for the inconvenience. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this. If you received a message, please do not respond or…