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Having PCa Has not Made me an Expert on this topic
Having had stage iv PCa- Devinci surgery, radiation and hormone shots- Eligard- has not made me an expert. What advice I share is only observations from my own experience. I picked up a few medical terms along the way, but really, from my lone prospective I know very little. I do know I did not feel comfortable with the…
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CWRU School of Medicine discovery
This research facility is saying they have discovered a gene Chk1 that when turn on stops, and kills cancer cells. Interesting read. Hopefully a cure is coming for metastic cancer. Mike
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Funny things that happen
I have read horror story after horror story and this topic is in no way trying to minimize the pain and suffering cancer imposes. But there where some funny things that happened or I did. (I blame the drugs) As I was walking by the nurses station while on my many trips up and down the hallway, I stopped and looked in. They…
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Vietnam Veterans eligible for disability for prostate cancer
My husband is a Vietnam Vet and likely exposed to Agent Orange. He has just been approved for 100% VA disability and is getting a nice monthly check because his prostate cancer (at age 54) is likely due to his exposure to Agent Orange in Vietnam. All Vietnam Veterans should check with their local or state veterans affairs…
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Is second opinion recommended with Gleason score of 10?
I learned last week Tuesday I had an aggresive cancer in my prostate. It started with my PSA = 12.30 on a routine bloodwork test for my insurance wellness program (new to me this year). Biopsy of 10 samples taken, 5 from each side; my doc tells me left side gleason scores are 7's and right side are 10's. He highly…
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Dads PSA 43, worried about his wellbeing. Need help!
Hi Guys I'm very worried that my dad might have prostate cancer. His latest blood tests revealed a PSA of 43, his 3 previous tests revealed a PSA of 3,3.2 and 3.6. The specialist told him to have a biopsy when the PSA was 3.6 which he did...they took 10 samples but couldn't find anything. During this past few weeks he has…
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needing support as my husband's caregiver
I am a 61 year old American Living in the Netherlands for the last 13 1/2 years, a NEW wife of a nearly 77 year old man (HS) battling his prostate cancer for 12 years, 3+ with me. I met him too soon after a mostly miserable 24 year 2nd marriage/divorce and knew after a 6 month friendship that he was my soulmate. If there…
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When is the time for a Medical Oncologist?
Back from my 5th PSA since IMRT in 2010. Have had 3 straight increases which is probably recurrance. Uro said i could wait for another 6 months for the next PSA or talk to a M/O if i wanted to. Not my regular Uro who is on sick leave so not sure what to make of him. Very young and i feel not much experience. Tried to…
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IMRT Treatment
Hi everyone. Unfortunately, I am a new member here. I am 64 and was diagnosed as Stage 1 in March. My PSA was 4.1, Gleason was 6 (3+3), and I had no symptoms. I chose IMRT (Varian machine) because I couldn't be close to my granddaughter for three months if I had the seeds. Can anyone fill me in as to side effects during…
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Back ache and metastasis
I have developed really bad back ache in the center of my lower back. It seems much more severe and localised than my usual back problems which I have had for a long time Is there any way my Pca could have spread to my back in such a short time. My last PSA was 0.8 up 0.06 from 3 months ago and it is one year since I…
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Please Help Me!
My husband has stage IV prostate cancer with bone mets. He was diagnosed last year on New Years Day, He was on Bicaultimide and Lupron Injections when the spread affected his stomache lymphnodes causing his PSA to rise to 14. They said his cancer was being aggressive and they started him on Zytiga with Prednizone it has…
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Husband's PSA 7.8, Gleason 9 - 2nd opinion?
My husband was just diagnosed with Prostate Cancer with a PSA level of 7.8 and a Gleason score of 9. We are waiting on results from the bone scan and CT on abdomen and pelvic area last week. 12 tissue samples were taken and 10 were positive. Tumor is very aggressive per our doctor. My husband is 62 years old with high…
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Is second opinion recommended with Gleason score of 10?
I learned last week Tuesday I had an aggresive cancer in my prostate. It started with my PSA = 12.30 on a routine bloodwork test for my insurance wellness program (new to me this year). Biopsy of 10 samples taken, 5 from each side; my doc tells me left side gleason scores are 7's and right side are 10's. He highly…
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Looking for Referral for Urologist in Portland, OR for 2nd Opinion
I want to get a 2nd opinion on my lab results. Is it best to stay with the same Dr and have him request the slides be sent to a different lab or find a new Dr and have him send the slides? Thanks, Jim
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Radiation myositis
Have been experiencing reallymhard core pain and sharp shooting pain, night sweats so bad I bring a towel to bed. Thought I was getting the feeling back from biopsy. Found out today I have a rare case of radiation myositis. My Onc said "man you are really unlucky". Can not get much better than this. Good thing was I…
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My dilemma about a 2nd Opinion and a Request for Referrals to a Great Urologist in Portland Oregon
Here is my deliema....I want a 2nd opinion regarding my lab results and from agreat Urologist in Portland Oregon. after looking at my test results...however...since I have been diagnosed with Gleason 7 3+4 no matter what the 2nd opinion has to say am I not just stalling and/or putting off the inevitable which is Robotic…
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Harmone treatments following Cyber Knife...Good or Bad
I am 71 and had Cyber Knife treatment (5 Treatments) 3 months ago...my Urologist wants to continue to give me a harmone shot every three months totally four after the last one. One was given to me a month prior to Cyber Knife; I have read several negative comments about this Urologist's commitment to giving me these shots;…
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total incontinence
57 y.o.; 5 1/2 months post daVinci prostatectomy. Anatomical problem during surgery. Protate removed in sections. Total loss of nerves on left side of prostate. Loss of approx 40 percent of nerves on right side of gland. Remain totally incontinent from day after catheter was removed. Must change Depends 4 times per day…
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First PSA after Robotic Prostate SURGERY
Hi, My Father was dignosed with Prostate cancer Gleanson Score 7 with pernuial Invasion stage T3a.Father was operated on 26th Dec 2012 with Prostate weight around 70g.Doctors told me clearly in starting since cancer has spread near bladder we have to give radiation.My father had his First PSA after one month of operation…
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Failed DaVinci RP What Next?
I am currently recovering from my DaVinci RP attempt. Had surgery on 12-20-12. I have updated some info here that was asked about and some that was left out. 2012-12-28 Stats. Age 57 PSA 2.6 2-11 annual physical PSA 6.23 2-1-12 annual physical 90 day followup to determine if biopsy warranted PSA 5.4 5-1-12 Biopsy 1 of 12…
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COLOPLAST VIRTUE SLING / Continuous pain and suffering 1 1/2 years later.
Approximately 1 ½ years ago, I was implanted with a Coloplast Virtue male sling without my consent. I had consented to a simple, well-established “U” shaped mesh sling such as the AdVance sling by American Medical System. After several weeks of tremendous suffering, following my implant surgery, I was horrified to learn I…
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Family History
Family History is important. My father had PCa when he was in his late 70s and had his prostate removed. We have no medical information on his cancer except he was placed on hormone shots for some time after his surgery. I was DX with PCa almost 4 yrs ago. PSA under 10 but gleason was a 5 + 4, stage with with bladder neck…
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Trying to decide on treatment options
53 years old. Last year has PSAs of 4, 4.1, 5.75. Biopsy in November. 3 of 12 cores, both sides, 3 of 6 locations (apparently they took 2 cores of each). 15 % of each positive core. Each 3+3=6. Started with urologist, who is a robotic surgeon. He brought up seed therapy first, but you could tell he thinks surgery is the…
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Metastatic Prostate cancer (Gleason 7, PSA 72)
Hello, I am writing onbehalf of a family member, who has been recently diagnosed with Metastatic Prostate Cancer. He has undergone Bilateral Subcapsular Orchidectomy surgery on recently by a Doctor who is (CMS, FRCS (Edinburgh), D. Urol (London)) in Ahmedabad, India. Post the surgery family doctor who is (M.S., M.CH, Onco…
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long term side effects from treatments
http://m.usatoday.com/article/news/1878261
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What supplement/vitamins lower PSA number
Doctor called with the biopsy results and no cancer was found so of course I feel great about that. There were a few ASAP cells but he said we will just do another PSA in 3 months and keep a check on that. If I can find a vitamin or what ever to help in lowering the PSA then maybe I can keep from having to do another…
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Not joining PC club yet
Doctor called and say no cancer was found in the biopsy. Yea, thank God. He did say they found a couple of ASAP cells which, according to the internet, could be or could not be cancer. I'm going with the not be. He said there are different ideas of dealing with an ASAP cell and his way is just to stay on top of this by…
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Rising PSA
Dear all, I'm 61 yo man and 4 years ago my prostate was removed with nerve sparing Da Vinci surgery (PSA=5.01). While my biopsy Gleason was 6, it was upgraded to 7 (3+4) after histology, and the outcome was PT2c (cancer inside the gland), and no further treatment necessary. However, at subsequent follow-up, my PSA…
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incontinence
in reading the boards my incontinence is at night - 1 pad in daytime and least when active 6mo post op. gone to vesicare 6 hours before bed. i have to set the alarm and get up several times a night or i wet the bed through briefs, curtail drinking at night. cant take ambien anymore either - seems to be the opposite of most…
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Will be having biopsy Next Tuesday
My PSA was/is 5.9, but worst then that, he felt a knot on the side of the prostate. So I guess I'm at least a stage 2 because he felt the knot, even though he said it was small. I'm already searching the internet to get an uppper hand on what to expect and ask. A radiotherapy clinic in Georgia (ProstRcision) popped up. In…