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Unknown email
Some one emailed me, and I wasn;t aware I would receive emails. I'm new to this site. I hope the person who emailed me about sending me a book will see this message and contact me again. Thanks ever so much
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Lupron
Despite representations to the contrary, the effects of Lupron (4 months)are permanent -- impotence, weakness, shrinkage of testicles and penis, etc. Expect partial recovery at best from these side effects. Avoid Lupron if at all possible. More info to anyone interested.
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Pelvic Bone/Bladder Involvement
Hello, My Dad is dealing with advanced prostate ca, which has invaded his pelvic bone and bladder. He has had one procedure to remove growth in bladder, and surgeon says he needs another ( last one was 2 months ago!). Also, his pelvic bone, is causing such pain. Dr has suggested time-released opiate medication. My Dad is…
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Spam
Is anyone else being bombarded with spam advertising Viagra, other virility supplements and penis enlargement drugs? Perhaps it's just a coincidence but ever since I had my RP and joined this Discussion Group I have been receiving tons of the afore mentioned advertisements. Anyone else see a similar coincidence? Thanks,…
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which treatment?
I'm 62, just diagnosed, but very low-level so far. Gleason 6, T2a, otherwise healthy and active. I'm torn between watching and waiting, or seed implants. I'd appreciate any word of experience, anybody who's had the seeds for some years, what you've undergone, level of satisfaction? also, has anybody my age decided on…
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Prostate Cancer
I have been diagnosed with stage T1C prostate cancer with a Gleason score of 3+3. The cancer was in less the 5% of the biopsy. The Bone scan was negative. I am getting conflicting information as to what treatment to undergo. The surgeon recommends surgery, the radiation oncologist says radiation. The Bracheyherapy doctors…
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surel nerve graft
I am 46 and I was diagnosed in Aug. 9, 2002 with a 15.9 my gleason was a 7 at pre op and an 8 post op it was just breaking through the gland when i had the RP. so far my p.s.a. has remained 0.01 yea!. I went to the University of MIchigan hospital at the time of my surgery they harvested a nerve from from my ankle and…
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Erection difficulties post surgery
It has been 14 months since I had my prostate removed, my last 4 PSA tests have all come back 0.00 and of course that is excellent news. My problem, however, is since my surgery my sex drive has gone into overdrive but I can do absolutely nothing about it as I find it impossible to get even the slightest erection even…
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2 weeks and waiting
My husband is 51 and diagnosed on 2-17-03. Surgery is scheduled for rad pros on 4-9. All his pre testing (bone scan, ct, pelvic, chest) have all been excellent. No evidence of any spreading. After reading several pages I wanted to thank you for enlightening me in several areas! But I would also like for some to explain the…
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Squeamous cell tumor betw.anus and prostate radiated 2 yrs ago/living with side effects
Although my cancer was not specifically prostate, I'm told by docs that the radiation and chemo I received was same as for prostate cancer. I now live with the side effects which can sometimes be debilitating: 1) Wear partial guard pad in case of fecal accidents 2)off and on sexual performance 3) no more pubic hair, no…
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Disability
My husband has just finished his 6th week of radiation treatments and has 2 more weeks to go -He goes every morning before going to work. He has to have a total of 40 treatments. (8 weeks).He comes home at noon and has lunch and falls asleep in the chair and at night he is so fatigued and tired out he goes right to sleep.…
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How long to recover from radiation treatment
My husband underwent prostectomy last May, lupron shots started in June and every 4 months thereafter. Radiation Started Dec 2 and finished January 21. Has made excellent recovery from initial problems -diaharra (sp) incontentince etc. However, he is continung with problems sleeping,(restless legs). Was given Ambien but it…
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Lupron Info, Please
Hello, My Dad is facing decions about further treatment. He has had a protectomy (7 mos. ago), radiation (8 weeks ago) and his PSA has been rising.It is 4.1 now, and said to be quite agressive cancer. Lupron or castration are options that are being recommended at this time. He is seeking information about these options,…
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Lupron Injection Pain
Yesterday I received my first 4-month injection of Lupron while awaiting my May 14th scheduled brachytherapy, but I immediately experienced a lot of pain at the injection site. The urologist said this is due to the volume of fluid he injected. Has anyone else experienced this and how long did it last?
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Do not crurise on Celebrity Cruise
I was finished with Radiaion beam therapy for Prostate cancer and planed a cruise to celebrate. After the ship set sail, I was declined service at Celebrity and rudely left to leave the Ships spa. I did not receive an apology for this poor service. I had letters from my US doctor and even the ship's docotor which provided…
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Radiation
Hi, my husband is 60 years old and had complete radical prostrate cancer surgery Oct./2002. The Doctor said his cancer was 85% in the prostrate. Since the surgery he has had two PSA tests done. The first came back at .8 and now the one he got back yesterday was .18. It has doubled in 3 months. The Doctor was surprised of…
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New drug
I heard of a new drug from my doctor.It is called Glivec.Anybody out there who knows more about secundary treatment of prostate cancer?
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Confused and newly diagnosed
I have been diagnossed with prostrate cancer-Gleason 8 - three out of sixteen positive in biopsy. Had bone scan everything is fine there. Doctor wants to operate. Nobody seesm to be in much of a rush. Is this OK. Does the fact he wants to operate lead him to believe it is contained? He did say he was going to check by lymp…
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Message to Bum
Gloria....email me at mboneal1@earthlink.net I would love to talk with you! Hope to hear from you soon! Mary
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PSA following radiation seed implants
I would like to hear about PSA blood levels following seed implants. My husband dropped from 5.7 to 1.89-is that pretty normal? He was a little disappointed that it had not dropped further by now.
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Father in law finished surgery but cancer was not contained...
My father in law just had his prostate removed. Prior to the surgery, he had a gleason score of 6 and a PSA of 6.2. The surgery was nerve sparing. After the surgery, the Gleason Score was raised to 8 and the tumor grade was 3. The margins were not clean. His bone scan and cat scan showed that the cancer had not spread. The…
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Castration
My brother is 58 years old. He has been diagnosed with inoperable prostrate cancer. The doctor has told him that he couldn`t afford the hormone treatment, so he wants to castrate him The doctor however hasn`t offered much hope with that either. My brother has the idea that he has a couple of years left.Now he knows the…
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Recent surgery
Hello everyone. My name is Jim. Today is my first complete day home after having the surgery done to remove my prostate. If anyone would like to hear how it went in my case please send a message to duganjssp@adelphia.net or duganjssp@yahoo.com. If anyone thinks I should share my experience on the board I would be glad to…
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cancer and meaning of life
Hello, I am a graduate student in psychology at Ohio State University and I would very much appreciate your help. I am studying how a cancer diagnosis leads people to re-evaluate meaning in their lives. Ive developed a brief, web-based survey of cancer in meaning in life. If you have had cancer, please take a few minutes…
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Radiation Seed Implants-
My husband still has burning with urination and difficulty with urination after 6 months and can not seem to get any relief! Anyone else have this trouble?
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A fairly new treatment
My father has been diagnosed with prostate cancer. There is some metastasis so surgery was not an option. He is 79 and currently on hormone therapy. The doctor has suggested a relatively new drug, Zamoda (not sure of spelling), which is infused monthly. Does anyone have any experience with this drug regarding outcomes,…
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Coachtom
hi, thank you so much for responding to my concerns about my husbands prostrate surgery and the PSA levels. I guess I worded it wrong as the Doctor said that the prostrate itself was 85% full of cancer. But yet now there is still cancer cells floating somewhere. He will have a consultation on the l7th of march to see about…
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PSA and beyond surgery
My friend is 57, his original PSA was 2.9 gleason was 8. Had surgery and first PSA after surgery was .3 Three months later the PSA is now .7 Doctor has said he would like to take quarterly until October, which will be one year after surgery. He said that sometimes cancer cells go from the perimeter and cells are present.…
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recent prostate cancer survivor
I just had surgery last week to have my cancerous prostate gland removed. The Dr. said the cancer was contained to the prostate gland and had not spread. My only thought/worries now are about bladder control(wearing a pad/adult diaper) and impotency. I still have the cathetar and staples in, but will be removed in about 3…
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Help eliminate cancer
I am looking for people in the Los Angeles area interested in supporting ACS in a Relay for Life event. I am a recent survivor looking for others to join me in the fight. email me at CelebrateLife@sbcglobal.net