Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Prostate Cancer

results not good
Well yesterday the Urologist Dr.Ritchie, called us at home at 5:07pm, which was after hours. So I knew this was not good. He insisted to see or talk to Brian about the results this week or possibly the next day. But definatly before we saw our GP, Dr.Grobler. I told him Brian was not home from work till after 6pm. At which…
post surgery pain
I had open radical prostatectomy surgery about 4 months ago and most of my recovery is going as the doctors described. I have been having pain in my left leg- from my upper thigh to my knee- since the day after surgery. Can't walk fast or climb stairs without stopping to shake the leg pain out. A friend had the same…
just diagnosed please help
Hi, my father just got diagnosed. He had a PSA of 5.46 and after a 12 core biopsy 5 out of the 12 were cancerous. 3 of the cores were 3+4 gleason 7, 1 was 4+3 gleason 7 and 1 was 5+4 gleason 9. Bone scan was negative with just some degenerative stuff. CT showed 2.8 x 2.6 cm mass in right adrenal gland, bilateral nodules I…
Aborted Robotic Surgery
After 2 months of anxious waiting, my prostatectomy surgery via the Davinci Robot was scheduled for yesterday at Penn Presbyterian Hospital in Philadelphia with Dr. David Lee at the controls. I entered the operating room at 12 Noon and was told the surgery would take approximately 3 hours. I was awoken at 2:36 with the bad…
Need Info
I was recently diagnosis with Prostate cancer, (just a week ago). I have my first appt Nov 3rd and will get all the details then. I currently live in Florida, but work out of state, so I opted to be given my results over the phone. So far it hasn’t impacted me emotionally, I just want to get it taken care of ASAP and get…
rising psa while on lupron and casodex treatment
Hi, I had a radical prostatectomy in oct of 06. the pathology report indicated a gleason score of of 8 with invasion of both seminal vesicles and involvement of the bladder neck margin. I started lupron shots in dec 06 and radiation treatments in jan 07. the rad treatments ended in march of 07 and the lupron shots ended in…
Rising PSA after EBR
I am a 67 year old male. Had a radical prostectomy in 2005. Gleason score 4+3=7, Stage T2b. Had external beam radiation in 2007 due to rising PSA. Now PSA is again rising, 0.35, 0.48, 0.55 ng/ml. My doctor recommends some form of Hormone Therapy. I would appreciate information on what my options are. Is there some sort of…
Proactively Protecting
Good morning, day or evening all!!! I write this discussion topic as a first time poster/blogger/etc. I'm not sure where to start. I am cancer free. At the age of 29 I am blessed to say that. My passion though lies within this horrific disease. I am a school counselor by trade, but that is not my life calling. I have been…
robotics
I have not had a lot of time to research but am leaning towards robotic with Tewari. I have to drop my insurance and go with medicare but feel it's worth it to get top doc at top hospital. Any bad experiences with the procedure, doc or hospital?? I have a consult with the man on Nov. 4th.
New Diagnosis
I received news of prostate cancer Oct. 13. I am 54 and had a PSA of about 3 and Gleason of 3+3. My first question for the urologist is "How do I know the cancer hasn't already spread? He said that after 40 years experience no further testing would he recommend, it's a waste of money. I'm not super comfortable with that…
PSA JUMPS
I HAD A RADICAL IN 05 TOLD ALL WAS GOOD AFTER 3 MONTHS PSA 0.04 STOOD LIKE THAT UNTIL MACH O7 PSA WENT TO 3.56.GIVEN BONE AND CAT SCANS ALL CLEAR WAS GIVEN COSADEX AND LUPRON.PSA WENT TO .34 IN DEC OF 07 UNTIL MACH OCH OF 08 HAD 39 RADIAION TREATMENTS WHEN DONE WITH RAD IATION WHILE ON DRUGS PSA WENT TO 0.07.SO WEWAITED 3…
artifical spincter vs bladder removal ???
please help. what to expect, how has it helped? what side effects? if any.is it the right decision vs bladder removal,even though it may only last 3 to 5 years' how do you get through the ups and downs of what to do? I keep arguing with myself to keep or remove and the pros and cons of both procedures,and you, I, just…
Six year followup to RPS
Just a follow-up note. Had RPS in January 2003 at age 72 following a 6-month jump in PSA from 2.5 to 3.6 and biopsy showing Gleason of 7 (4+3). Capsule contained, but one nerve bundle was removed. Today, almost six years later, urologist/surgeon said PSA remains at <.01. Using three Depends pads per day. Dr. says AMS…
good dr. on long island
Just been told the bad news. PSA 3.3, Gleason 7, 3 positive hits out of 12 on biopsy (4+3, 3+4, 3+4). Seeing my urologist 10/24 for his options and opinions. Cat scans (pelvic and abdominal) and bone scan ok. leaning towards robotic laproscopy if I can find a GOOD Dr. in my insurance plan. I am in Nassau county on long…
advanced metastatic disease - what am I missing?
Hi All, My fiance has metastatic prostate cancer that is all throughout his hips, spine, and spots on his brain too. He was diagnosed with this condition on New Year's Eve. We are now under the care of a medical oncologist at Dana Farber Cancer Institute. His treatment is Casodex and Lupron. He now plays a bit by my rules.…
Enlarged prostate
My dads prostate is enlarged. He has very difficult to control his urine movement and frequecy is quite often- more than normal. Prostate is enlarged and measures 5.5 x3.7 x 4.2 cms (volume 46cc). There is evidence of hupertrophy of central zone,identing and displacing the bladder base. Prostatic calcifications are noted.…
PSA of 5700
My husband was diagnosed with prostate cancer the end of May. Initial count was 5700 (not a typo). He only went to the doctors because he had back pain for several weeks and the doctor did the PSA and a few other tests. The prostate cancer is in his bones. On his first visit to the urologist the doctor immediately started…
PSA After RP
I know the definition of a recurrence of prosate cancer using a rising PSA(biochemical failure) after RP is the subject of much debate but what have your urologists etc used as a definition of recurrence folowing a radical prostatectomy?
penile implant
I am ready to use the device and I do not know how to use it. I can't see my Dr for 3 weeks. Anybody have one?
pain and more tests
I thought my homorne therapy (Lupron) and the addition of lupromide would work. Apparently not. I have to have another total body bone scan 10-23, to see what spread is doing. Also the hormone (Lupron) therapy isn't working all that well. Doc put me back on flutamide but I I still could not lose the bladder catheter that…
I was healthy and felt good but I got Prostate Cancer
I was healthy and felt good but I got Prostate Cancer After my wife got cancer about 6 years ago, I was told by my Urologist that I have prostate cancer. He gave me numerous literature to investigate and understand the options and risks. My friends got me some prostate cancer survivors and they all gave distressing news as…
wow all new to me
Well a few months ago my husband went for his yearly physical and to his surprise the dr did a DRE and a PSA. Well at that time we a week later found out his PSA was 4.09 so the Dr said he wanted to do another PSA because sometimes a DRE can raise the PSA. So he had another blood test and his PSA was 4.53. So the Dr…
Survivor - Robotic Laproscopic
Just a short message for now. I did keep a journal, or should I say I do keep as it is unfinished at this point. I was diagnosed in Novemeber 2007 with Prostate Gleason score 3+3 and a PSA of 6.4. Immediate impact ? why me why me why me. I could not work for 2 days. But then I said " okay , time to beat this crap". My main…
Surgeon - Input/Experiences?
Input & recommendations are appreciated. We have read all the great reviews about Dr. Tewari at Cornell. We have spoke with them and while we are willing to travel, we are unsure of the insurance coverage - it may be a factor. We are also VERY interested in people's experience with Dr. Patel, who also claims to have done…
Cialis/Viagra post RP as "lifesyle" drug - who's advocating to change this
Many of us taking Cialis/Viagra/Levitra after radical prostatectomy have been prescribed these drugs as part of the therapy necessary to restore sexual function after surgery. The course of treatment calls for 10mg (half a pill) every other day - that works out to 15 pills per month. Yet most prescription insurance plans…
September is Prostate Cancer Awareness Month
President Bush has declared that September is Prostate Cancer Awareness Month. Why hasn't the American Cancer Society acknowledged this in their most recent edition of the Cancer Survivors Network? I want to make a guess, in October they will let us know that October is Breast Cancer Awareness Month. I am glad they will do…
Recent PSA Examine
Just had my 1 1/2 year PSA examine and it was undetectable (Surgery was in December, 2008). I'm sure you all know the stress when taking this test. Thank God is was fine. I can rest for the next 6 months.
My experience at Loma Linda
I was treated with proton beam therapy at Loma Linda University Medical Center in Loma Linda, CA. The patient support was tremendous, both in the treatment room and outside the treatment room. While each case is different, it appears that a common journey to asub-1.0 PSA takes around two years. My experience appears to be…
3 mo post Robotic-PSA
Good news. 3 months post robotic surgery PSA is undetectable. Incontinence no problem though coffee seems to act as diuretic. Some ED since I had PNI on right nerve, but that function is slowly returning. Thanks for all the support from this group. Frank I was delighted to hear of your good score at 1.5 years. Richard
HIFU
has anyone tried the high intensity frequency ultrasound procedure? is there any new information re. this? I understand trials are starting in the U.S. and it has been done in europe and canada.

Prostate Cancer

Discussion List

Discussion Boards