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good dr. on long island
Just been told the bad news. PSA 3.3, Gleason 7, 3 positive hits out of 12 on biopsy (4+3, 3+4, 3+4). Seeing my urologist 10/24 for his options and opinions. Cat scans (pelvic and abdominal) and bone scan ok. leaning towards robotic laproscopy if I can find a GOOD Dr. in my insurance plan. I am in Nassau county on long…
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advanced metastatic disease - what am I missing?
Hi All, My fiance has metastatic prostate cancer that is all throughout his hips, spine, and spots on his brain too. He was diagnosed with this condition on New Year's Eve. We are now under the care of a medical oncologist at Dana Farber Cancer Institute. His treatment is Casodex and Lupron. He now plays a bit by my rules.…
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Enlarged prostate
My dads prostate is enlarged. He has very difficult to control his urine movement and frequecy is quite often- more than normal. Prostate is enlarged and measures 5.5 x3.7 x 4.2 cms (volume 46cc). There is evidence of hupertrophy of central zone,identing and displacing the bladder base. Prostatic calcifications are noted.…
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PSA of 5700
My husband was diagnosed with prostate cancer the end of May. Initial count was 5700 (not a typo). He only went to the doctors because he had back pain for several weeks and the doctor did the PSA and a few other tests. The prostate cancer is in his bones. On his first visit to the urologist the doctor immediately started…
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PSA After RP
I know the definition of a recurrence of prosate cancer using a rising PSA(biochemical failure) after RP is the subject of much debate but what have your urologists etc used as a definition of recurrence folowing a radical prostatectomy?
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penile implant
I am ready to use the device and I do not know how to use it. I can't see my Dr for 3 weeks. Anybody have one?
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pain and more tests
I thought my homorne therapy (Lupron) and the addition of lupromide would work. Apparently not. I have to have another total body bone scan 10-23, to see what spread is doing. Also the hormone (Lupron) therapy isn't working all that well. Doc put me back on flutamide but I I still could not lose the bladder catheter that…
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I was healthy and felt good but I got Prostate Cancer
I was healthy and felt good but I got Prostate Cancer After my wife got cancer about 6 years ago, I was told by my Urologist that I have prostate cancer. He gave me numerous literature to investigate and understand the options and risks. My friends got me some prostate cancer survivors and they all gave distressing news as…
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wow all new to me
Well a few months ago my husband went for his yearly physical and to his surprise the dr did a DRE and a PSA. Well at that time we a week later found out his PSA was 4.09 so the Dr said he wanted to do another PSA because sometimes a DRE can raise the PSA. So he had another blood test and his PSA was 4.53. So the Dr…
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Survivor - Robotic Laproscopic
Just a short message for now. I did keep a journal, or should I say I do keep as it is unfinished at this point. I was diagnosed in Novemeber 2007 with Prostate Gleason score 3+3 and a PSA of 6.4. Immediate impact ? why me why me why me. I could not work for 2 days. But then I said " okay , time to beat this crap". My main…
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Surgeon - Input/Experiences?
Input & recommendations are appreciated. We have read all the great reviews about Dr. Tewari at Cornell. We have spoke with them and while we are willing to travel, we are unsure of the insurance coverage - it may be a factor. We are also VERY interested in people's experience with Dr. Patel, who also claims to have done…
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Cialis/Viagra post RP as "lifesyle" drug - who's advocating to change this
Many of us taking Cialis/Viagra/Levitra after radical prostatectomy have been prescribed these drugs as part of the therapy necessary to restore sexual function after surgery. The course of treatment calls for 10mg (half a pill) every other day - that works out to 15 pills per month. Yet most prescription insurance plans…
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September is Prostate Cancer Awareness Month
President Bush has declared that September is Prostate Cancer Awareness Month. Why hasn't the American Cancer Society acknowledged this in their most recent edition of the Cancer Survivors Network? I want to make a guess, in October they will let us know that October is Breast Cancer Awareness Month. I am glad they will do…
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Recent PSA Examine
Just had my 1 1/2 year PSA examine and it was undetectable (Surgery was in December, 2008). I'm sure you all know the stress when taking this test. Thank God is was fine. I can rest for the next 6 months.
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My experience at Loma Linda
I was treated with proton beam therapy at Loma Linda University Medical Center in Loma Linda, CA. The patient support was tremendous, both in the treatment room and outside the treatment room. While each case is different, it appears that a common journey to asub-1.0 PSA takes around two years. My experience appears to be…
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3 mo post Robotic-PSA
Good news. 3 months post robotic surgery PSA is undetectable. Incontinence no problem though coffee seems to act as diuretic. Some ED since I had PNI on right nerve, but that function is slowly returning. Thanks for all the support from this group. Frank I was delighted to hear of your good score at 1.5 years. Richard
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HIFU
has anyone tried the high intensity frequency ultrasound procedure? is there any new information re. this? I understand trials are starting in the U.S. and it has been done in europe and canada.
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Speaks Maecdonian needs help
My friend of 25 years has prostate cancer. He speaks Macedonian and English with a heavy accent. I would like to find someone who could help him understand what is happening to him. Someone he could speak to who has experienced what he is going through and offer some support. His friend Freda
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turmors pressing on the nerves on the c7 disc
Hi: My husband now has tumors that are pressing on the nerves that run off of the C7 disc. Dr. has tried radiation which he thought would work. there was only a short notice of improvement. He can hardly use his hands and he has noticed the last couple of days that he is now also losing strength in his upper arms. He is on…
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LAUNCH OF MILITARY CANCER SURVIVORS' DISCUSSION
After a little cajolling, I have convinced the CSN that there is a need for a discussion for military cancer survivors. The purpose of this discussion is to give military folks a safe place to go and ask questions about treatment, administrative issues, performance evaluations, etc. that are unique to military cancer…
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Night production of urine
Went to PCP in late 06 because of frequent night trips to toilet. Started Lupron Depot 3 month shots after May 07 biopsy. Two months beam radiation treatment Sept/Oct 07. Still have about 2.5 times urine production during naps & night time with respect to day time. Have two more years of Lupron Depot shots. Any one else…
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looking for a Dr. in Albany, NY
I have be diagnosed with prostate cancer. I am looking for information on Drs. at either Albany Med. or St. Peters. I have met with Dr. Ronald Kaufman with the group at Albany Med., does any one have personal experience with him or other Drs doing robotic prostatectomy?
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Need Opinion Please... PC New
I am 65,psa is normal,one out of 12 biopsy bad.GleASON score 3x3..but from what I hear of options. I dont know what to do..I DONT want to become incontinent..with all the options.....it seems no matter what, it doesnt sound to good to me. I am leaning towards a look and watch thing. Please send me your own opinion and how…
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PSA UP AGAIN
HAD RAD SURGERY IN 05 PSA AFTER 0.04 IN O7 PSA WENT TO 8.5 TOOK CASADEX AND LUPRON AND 39 RADIATION TREATMENS FINISHED IN FEB 08 MARCH 08 PSA WENT TO 0.07 WENT LAST WEEK PSA BACK UP AGAIN TO .74TOLD IT COULD BE BOUNCE FROM RADIATION PRESENTLY ON NOTHING SINCE LUPRON IN JAN 08 AND FINISHED RAADIATION IN MID FEB 08 HAVE TO…
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Agressive recurrence
I am 55 and had the surgery to remove prostate in 2001. Gleaseon was 7 and T2 score. Up until last year I had a psa of 0. My wife and I moved from Oregon to FLorida to get more sunshine and since we were both cancer survivors we did it sooner than later. During a routine blood workup for my Type II diabetes, I noticed that…
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husband's biopsy benign...still problems
My husband had his biopsy in April and thankfully the results were benign. Since that time he has had two bouts of prostatitis.....urgency, incontinence, frequency, etc. Both times the urologist put him on antibiotics. They were helpful for a short time, then the symptoms started again. Do you think he should get a second…
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Trying to decide on course of action
I, like many previous postings to this site have just been diagnosed with PC. Right now it looks like we caught it early with a PSA of 4.5 and a Gleason score of 6 on one positive core sample out of twelve. I am basically an active otherwise healthy 55 yr old with no other symptoms and like with so many other victims of…
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taxotere
my husband is about to start a course of chemo and i was wondering about the side effects
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any imrt thoughts?
I am deciding on a treatment. I am psa 2.1, t2b, and 3+4. We have the latest multibeam, modulated intensity radiation machine here and the dr. says it can be my primary treatment. It promises low side effects (much lower than old external beam)and easier treatment than surgery. Any thoughts?
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penile implants
Anyone with 'experience' with one of these devices? Maleable vs pump? I would surely like to hear from you. bandonpaul