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age/treatment/results/doctor info
It's been 2 months since my last post as I have tried to forget thinking about the situation. I would like to hear from people close to my age( 46) and hear about their decision on treatment and /or their results from treatment. I was just diagnosed in January and I am in the beginning stages of prostate cancer. I am from…
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hifu trials in US
HI!!! I called today to check on the HIFU trials in the US....is anyone participating??? or know anyone in the trials?? Thanks, Ralphie
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Newbie's Wife - just diagnosed 3 days ago
My husband was diagnosed Friday after a biopsy on 2/9. His gleeson is a 3+3 or 6. Prostate size is 27mm (not enlarged). Only 1 of 12 samples positive, one other one is suspicious. PSA was as high as 4.3, it came down to 3.8 recently. I was shocked his biopsy came back positive. Our urologist is doing HIFU in mexico, or can…
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I'm New Hubby just been diagnosed /looking for best treatment
Yeah here we are... We so need a Real People Board that we can find real life information and experiences from .... thats why I'm here...Hubby is not so internet excited ...but he is a master at playing Free Cell!! Hubby has had a high psa forever...2 negative biopsy's then started having urinary problems...and…
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Option #2 visit - the Radiation Oncologist
We felt like people shopping for treatment today. The radiation oncologist made radiation sound like a walk in the park, NO side effects per him (incontinence or impotence, which I find hard to believe), and the best thing since sliced bread. I asked him point blank what he would do if he had this stage and was this age,…
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PC- Hitting Back... A little fun?
If you have not seen the video from Movember, take a look: http://www.youtube.com/watch?v=He_Ie5Mi6xA You are looking for the video "We Know Where you Live Prostate Cancer" In the early days of diagnoises this video was a good outlet for me. I hope the link works. I just tried it and it works for me. If you are not familar…
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Relay for Life
Tonight I attended a meeting for the American Cancer Society RELAY FOR LIFE. Apparently events are sponsored in many geographic areas.....A few of the towns near me will have events during the summer.......I attended last year, it was pretty nice. If you are interested in participating contact the American Cancer Society,…
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Low Cost For ED
My doc has me on Cialis, but my ins. won't make the pay out at $80 for three pills. All I have is some samples that I am breaking into 1/4's and take every other day. I am post Di-Vinci on 01/26. Any suggestions?
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HELLO- Sorry for the long post, just got the news.
Hi! Had an escalating PSA starting middle part of last year. From 2.8 to 4.34 last month. 2 biopsies, 24 core samples later, still zero cancerous cells but lots of high grade PIN. J. Hopkin recommended a third one. My urologist did a "saturated" biopsy, 30 samples! Got the news yesterday-hence my user name. 3 of the cores…
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Input on Declining PSA needed
Hello All, My surgeon has me scheduled for the robotic surgery in early May. He decided I should get another PSA test . Interestingly, my PSA at time of diagnosis ( Dec 09) was 5.02 (one core out of 12 being positive.. less than 5% volume and a gleason 6 ) now it is 4.120. I am taking Rapaflo. Any input on this change and…
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Shane
You have mail...I forwarded my order with all info for the company I'm getting my generic Viagra from in India.
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Cath came out today...12 days since surgery
9am appointment to get the old ball and chain removed today and my post surgery pathology report....On the way to the doctor’s office his nurse calls me and tells to call the Doc because the entire office building (a building connected to St Joe Hospital) has been without power since the weekend!!! I So I called the doc on…
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PSA Never Below 1.9 After RP, Now Rapidly Rising
I'd like to explain my situation to the group and ask for your thoughts as to where I might go from here. I was diagnosed in May of 2007 at 48. My only indication was a PSA of 8.0 caught at my company's health fair. I opted for a da Vinci radical prostatectomy. Negative bone scans, PSA right before surgery: 10, Gleason: 7,…
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Three Days Dry
Hi all 3 days in a row Dry yahoo will try no pads for my 3 days of work ,i think my firm fitting underdaks is the key .I found loose fitting underpants made me very uneasy and when walking I didn,t have the same confidence or control . I only say this as it may help others who feel uncertain when out in public . Dry every…
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Pittsburgh, PA survivors
I've been reading the different posting but most seem to be from other states. Are there any survivors in the pgh area that could give some advise on their decisions/experience. Can't seem to find support groups that meet on Saturdays...
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One Positive to Eligard/Hot Flashes- Finally!
I just figured out the one blessing connected to being on Eligard and having hot flashes and here it is: No colds! I figure it out today and it works like this. A hot flash feels like a mid grade fever- about 100- 101 degrees when it first hits about 15- 20 times a day. If I do pick up any cold germs, about the time they…
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Backslide
I was planning on losing the 1/day pad in the next few days then got a glorious Texas cold. Texas colds are difficult to shake since this time of year it can be 75 one day and 25 the next. Anyway, with the coughing, sneezing, antihistamines and cough suppressants I am back to 3-4 pads a day. Does anyone know if…
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Book and message for Randy
I've been trying to find a thread where several 0f you have mentioned a great book on prostate cancer...but can't seem to find it. Help please? And, Randy in Indy, your email address you gave me is bouncing. Thanks everybody!
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Winding down for Surgery
Surgery is Wednesday and I am flying up Monday to Chicago and just want to say thanks to all of my supports and well wishers during my journey so far with PC and the changes I have gone though as all of us…My journey so far has been a blessing in many aspects… I have a lot of personal thing to do now until I fly out of…
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The Return of PCa: When?
I know a man who had his prostate out at a very prestigious hospital with a good surgeon back in 1998. This man is now in his mid- upper 70s. His PSA is rising and he knows the cancer has returned. He is not interested in any treatment at this time- he is going to let the stuff run its course. But the point is this. At the…
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Possibly Laid off with UnitedHealth Ins. any suggestions for pending surgery date
Hey Everyone, As usual when it rains it pours, I may possibly be getting laid off from my employer, I have UnitedHealth Ins. I was wondering other than Cobra is there any other assistance for someone unemployed on Cobra about to have Robotic Da Vinci. I live in Florida. Any assistance would be greatly appreciated....I'm…
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I love it when a plan comes together
I had my daVinci in Pittsburgh on Friday, 2/26/10. Surgery went well and I was in my room by 13:00 (I think.) I had an extra wait because I requested a private room. Nurses in recovery and on the floor were excellent. First night went well. Good meds - morphine and percocet. Unfortunately, I took some bad advice on…
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I’m back from Surgery and The Windy City..
Had my RRP modified surgery performed by Dr. William Catalona up in Chicago on Wednesday, March 3 and flew back home to Atlanta Saturday, March 6. I was in surgery a little more than 4 hours, loss a tad more than a liter of blood (no transfusion)… Had morphine for about 12 hours then switched to 325mg of Tylenol x2 every…
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Back from surgery mayo in scottsdale
I have been reading all the posts here for the past few months and would like to share my story and maybe help others who are trying to decide on a path to treatment. Feel free to contact me chorton581@gmail.com I am 51 years old. Around my 50th birthday my family dr suggested i get my prostate checked. She did a digital…
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Post Op Incisional Hernia Repair
I had an incisional hernia 7 months after Robotic Surgery. It was repaired....twice. Apparently such incisional hernias adjacent to the naval are not uncommon. Recommendation: If you have one: Repair it soon. I was told I could delay until the end of summer.. Mistake. Make sure that the repair is with permanent mesh. The…
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Clinical Gleason downgraded before Surgery
When I meet with Dr. Catalona in Chicago last Tuesday (March 2) for a Consultation (yes surgery was the next day) I was informed that the Pathologist from Northwestern had downgraded my clinical Gleason Grade to a 3+4 from a 4+3 which he told me he rarely sees when they review the biopsy slides… This downgrade is important…
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Support Group meeting tonight
The support group meeting was for DaVinci patients. All of the guys there had already had the procedure except 2, one was my husband, the other was having his this coming Friday. The men were in one room and the ladies in another so everybody could talk more freely. The guys actually had a DaVinci surgeon there. He trained…
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psa going down each visit from 5.5 one year ago now 2.5 gleason 3+3 =6 cancer found in 1 of 12 lob
Not sure what I should do next? I am 51 can someone give me some advice. Thanks Would you stay on watch and wait or be in a hurry to do something?
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Interesting read for people of faith
I don't know if any of you would be interested, but my husband got a lot of perspective from a piece written by two men with prostate cancer. Here is the link: http://www.desiringgod.org/ResourceLibrary/TasteAndSee/ByDate/2006/1776_Dont_Waste_Your_Cancer/ Its from the Desiring God website and called "Don't Waste Your…
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Post Op PSA
Hi All My dad was diagnosed with PC in April 2009. He was told he was a Gleason 6 (3+3), PSA 5.5 with 2 out of 12 biopsies positive. He had the diVinci Robotics in Nov 2009 and was told he was actually a Gleason 7 (3+4) and the cancer was more aggressive than they originally told him. It had moved into the seminal vesicle…