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Any wives/significant others out there wanna chat?
I have been reading LOTS and I guess this disease is frustrating for me since I am a nurse. In most disease states, even most diagnoses of cancer, it appears the treatment is pretty clear cut. With this one though, it is such a hard decision. My husband (age 51, Gleason of 3+3)is happy with his choice (DaVinci surgery), I…
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Timing for surgery after diagnosis
Everybody is so helpful here! I read Dr. Walsh's book and it was so facinating, I read it in like 2 days (and it's a big book). I know that for me, surgery is my best and only option. I am 51 and have a long way to go in this world... I am now contemplating the other choices over which I have control - my Dr., the Open vs,…
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Testing anxiety
I received my one year PSA today (non-detect). I was very pleased ... however, waiting for the results was tough; indeed, the week before the blood draw found me worrying a lot. I hadn't experienced this with my previous (post-surgery) PSA testing. Does "testing" anxiety get worse the further you are out from treatment?
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Novalis Tx
Does anyone have any first hand knowledgeof the Novalis Tx radiation technique which is supposed to be able to deliver brachy-like dosages without implants. Supposedly similar to Cyberknife but does not need fudicial implants and touts itself to be "next generation." Just wondering if anyone has used this procedure of…
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When did you start ED therapy?
I am sure there are several threads out there but help a brother out…. I am 15 days out from surgery with an appointment to see my urologist on Friday (tomorrow). I have decided to start with ED drugs (and my doc said he would have given me these the day he removed my cath at my home and recommended 20mg Cialis 3x week)…
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DaVinci Surgeons in Southern Calif?
Have read a lot about good, experienced DaVinci Surgeons on the East coast. Any input on good surgeons in Southern California? Has anyone had experience with Dr. Timothy Wilson or his colleagues at City of Hope or Dr. Kane or Parsons at UC San Diego?
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Awesome book
I'm reading "Prostate Cancer Survivors Speak Their Minds". By Arthur L. Burnett II, MD and Norman S. Morris. IT is a neat book because each chapter is written by a prostate cancer patient, from Arnold Palmer, Ken Griffey Sr, and others from all walks of life. Some chose surgery, some radiation, some other things like…
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Penile Implant
I received my Inplant almost 2 years ago and although it's better then having total E.D. I find that I don't have the Libido I once had and my pumped up erection lacks the Girth I once had. Eveything seems smaller all the way around. I guess the biggest problem is the lack of the Libido. Is it all in my head or does anyone…
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Opinion # ? (I lost count!)
Well, let's see... We've seen his original urologist (Brooks Jackson). We saw second opinion urologist (Bradley Bell). We saw the radiation oncologist. We saw the director of urology at IU (Michal Koch). Then we saw Dr. Scott in Greenwood, Indiana. Hubby has chosen Drs. Scott and Hollensbe, primarily based on the fact that…
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Any workout programs/recommendations for after Surgery?
I walked about 3.5 miles today (4 separate walks totally 2 hours…not setting any speed records) and I prefer to lie down to sitting (doc said it was better for me to lie or stand instead of sitting the first few weeks if I could) I have some exercise programs but was curious what other used on this site for regaining their…
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Open Surgery verses Robotic
I read the "Surgery" thread and it seemed as though more men had continent problems with the open surgery...or maybe it was my imagination I dont think Most of the men said what kind of surgery they had though on that thread though... Does anyone know where I can find statistics to compare results on both types? And has…
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2nd day post surgery
Today is my second day since my robotic surgery. I am 52 years old. With a PSA of 4.1, I referred for a biopsy. 4 of 12 were positive with a Gleason of 3+3. After checking out ALL of my options, I decided on the DaVinci procedure. I wanted the best surgeon out there and finally decided on Dr. Patel from the Global Robotic…
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Cathether was remoded yesterday.
I had my cathether removed yesterday a week after the surgery. Like some of you I was ready to experience the worse pain of my life but I did not really felt anything. I was abe to hold my urine and had a manly stream. I took two glasses of water and three hours later, I have to rush in the bathroom to release myself. I…
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Does anyone actually do the old style open surgery?
i mean I know there is the laproscoptic surgery..now Isnt that what all prostate surgerys are now? Do I have to make sure that our dr is doing the laproscoptic type and not the old style? He said he would do the nerve sparing~~ and does anyone know how effective the nerve sparing is if it is only done on one side???…
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post treatment test by Veridex, LLC?
Anyone familar with this post treatment test by Veridex, LLC? They are an organization providing physicians with vitro diagnostic oncology products. Veridex's products may significantly benefit patients through earlier disease detection and may enable personalized strategies to help improve patient management and outcomes.…
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bladder neck contracture
I just found out that I have scar tissue at the neck of my bladder. This is the apparent cause of my continued minor incontinence. Has anyone else had this problem and what kind of treatment was recommended. My uro says that to surgically treat could cause my problem to become worse. Of course if the stricture gets larger…
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Vaccine Would Target Prostate Cancer Cells
I am goingto look into this a bit more but apparently a number of reseach facilites are working on this...The below is about what University College Cork (Ireland)released back in February this year... The vaccine uses DNA to stimulate the immune system, which enables the vaccine to target cancer cells while ignoring…
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My uplifiting Story/message to Ponder..."How am I personally Doing on this?"
I get messages from my company weekly like this: A son and his father were walking in the mountains. Suddenly, his son falls, hurts himself and screams: "AAAhhhhhhhhhhh!!!" To his surprise, he hears the voice repeating, somewhere in the mountain: "AAAhhhhhhhhhhh!!!" Curious, he yells: "Who are you?" He receives the answer:…
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Surgery
I just had my surgery on Monday 3/15 (birthday of my son who turned 20) with Dr. Samadi. I could have changed the date but my son told me that it was the best birthday gift he could receive(the life of his father, I almost cried). The surgery went well and I was released from the hospital the next day. I still have to get…
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PSA Re-occurence
Diagnosed with a PSA that rose from 4.0 to 5.8 between Nov. '03 and Jan. '04 I had biopsy performed that revealed cancer present. Underwent RP in March 2004 revealing it had escaped capsule but did not spread (Gleason 3+4). Urologist who performed the PR wanted me to have additional treatment and I underwent 37 sessions of…
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Chemo for Advanced Prostate Cancer
Since my diagnosis in 2002, I've had all FDA-approved treatments as well as all more popularly used off-label treatments. My clinic had to resort to chemo salvage therapy after I started reflecting a refractory response to Casodex/Lupron toward the end of 2007 when my PSA started abruptly rising. I recently demonstrated a…
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New Poster; Advice Appreciated
My H was diagnosed on 1-21-10. PSA 4.7 Gleason 3+4=7 T1c All 12 core samples were positive and on the left, all 80-100% with one sample showing perineural invasion. We thought we had done a good job on our research...until I started reading the posts here and now I wonder if we have done enough to ensure we have all the…
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The Good, Bad and Ugly-My post surgery pathology report
It will be 3 weeks tomorrow since my March 3 surgery preformed by William Catalona out of Northwestern in Chicago. I was in the hospital for 2 days and one night at the Avenue Hotel across the street then flew back to Atlanta. No regrets on my decision, outcome or what is to be… The worse part was the gas pain on the…
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Saw our DR yesterday and .....
Dencil and I went to his regular dr yesterday because he wanted to and he has been his dr for 25 yrs...he is also a infectous disease specialist....He told us right up front that he would go for the surgery if it was him and that he would use our urologist as the surgeon...He said that he is an excellent surgeon (I do…
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2 Months Post Da Vinci
Wow. It has been 2 months since surgery and I ah happy to report as Sgt. O'Rourke used to say "F-Troop back to normal sir." Well as normal as I was before.....which depending on who you talk to, may not be all that normal. Sorry, I digress. Things are going well. I spent this past weekend doing yard work, which by itself…
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Making a Treatment Decision
My father is 62 years old. We just found out two weeks ago that he has prostate cancer. I will give you a brief history of his problems. He had a PSA test about 2 years ago, His PSA level at the time was around 5. He never followed up with a specialist. In November of last year, he could not urinate & his body was swollen.…
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Wikipedia
I've been surprised at the quality and depth of *most* of the Wikipedia pages I've seen on medical subjects. Especially useful are the drug pages. If you are about to start treatment with any drug that you aren't familiar with, I highly recommend typing the drug name into the Wikipedia search box. I have found important…
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Surprise! Surprise! Surprise!
Surprise! Surprise! Surprise! Never been sick a day in my life except for the common cold. My Dr. monitors my cholesterol, blood pressure and because I said that my maternal grandfather had prostrate cancer treatment at 81 he decided to have a PSA test done. Good thing; probably would have been inoperable at 50! The day…
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Advanced Prostate Cancer Question
Hello, My father has had a prostectomy, the PSA still slightly elevated within 6 weeks. Then radiation, and PSA around 2. It has gone from 2 - 4., then 4.- 7. within each 6 weeks thereafter. With a 7.1 PSA now, it is evidently a very agressive cancer. At this time, there are no symptoms, but according to what we've…
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Does your cancer survivors network name have a special meaning?
I saw this on another board and thought it was a nice, light topic. I'll jump in. When we married, I considered keeping my maiden name. Finally I dropped my middle name, used my maiden name for my middle name, and added 'his name'. I used to tease hubbie that I became "Mrs His Name" and that I was no longer 'me'. Of…