Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Prostate Cancer

The Good, Bad and Ugly-My post surgery pathology report
It will be 3 weeks tomorrow since my March 3 surgery preformed by William Catalona out of Northwestern in Chicago. I was in the hospital for 2 days and one night at the Avenue Hotel across the street then flew back to Atlanta. No regrets on my decision, outcome or what is to be… The worse part was the gas pain on the…
Saw our DR yesterday and .....
Dencil and I went to his regular dr yesterday because he wanted to and he has been his dr for 25 yrs...he is also a infectous disease specialist....He told us right up front that he would go for the surgery if it was him and that he would use our urologist as the surgeon...He said that he is an excellent surgeon (I do…
2 Months Post Da Vinci
Wow. It has been 2 months since surgery and I ah happy to report as Sgt. O'Rourke used to say "F-Troop back to normal sir." Well as normal as I was before.....which depending on who you talk to, may not be all that normal. Sorry, I digress. Things are going well. I spent this past weekend doing yard work, which by itself…
Making a Treatment Decision
My father is 62 years old. We just found out two weeks ago that he has prostate cancer. I will give you a brief history of his problems. He had a PSA test about 2 years ago, His PSA level at the time was around 5. He never followed up with a specialist. In November of last year, he could not urinate & his body was swollen.…
Wikipedia
I've been surprised at the quality and depth of *most* of the Wikipedia pages I've seen on medical subjects. Especially useful are the drug pages. If you are about to start treatment with any drug that you aren't familiar with, I highly recommend typing the drug name into the Wikipedia search box. I have found important…
Surprise! Surprise! Surprise!
Surprise! Surprise! Surprise! Never been sick a day in my life except for the common cold. My Dr. monitors my cholesterol, blood pressure and because I said that my maternal grandfather had prostrate cancer treatment at 81 he decided to have a PSA test done. Good thing; probably would have been inoperable at 50! The day…
Advanced Prostate Cancer Question
Hello, My father has had a prostectomy, the PSA still slightly elevated within 6 weeks. Then radiation, and PSA around 2. It has gone from 2 - 4., then 4.- 7. within each 6 weeks thereafter. With a 7.1 PSA now, it is evidently a very agressive cancer. At this time, there are no symptoms, but according to what we've…
Does your cancer survivors network name have a special meaning?
I saw this on another board and thought it was a nice, light topic. I'll jump in. When we married, I considered keeping my maiden name. Finally I dropped my middle name, used my maiden name for my middle name, and added 'his name'. I used to tease hubbie that I became "Mrs His Name" and that I was no longer 'me'. Of…
New here...so scared.
Hi everyone! I am new to this site, and honestly can't wait to get accquainted and be apart of it. I am so scared and didn't know where else to turn. My dad is 64 years old and was diagnosed with an aggressive Stage 4 Prostate Cancer back in December 2009. After his biopsy and bloodwork, he had a rating of 8 and PSA of 77.…
oral after laparoscopic rp
hi i seen questions for intercoarse with leaking urine what about having oral my girlfriend was wondering on that is there any issues.i'am 2 1/2 weeks post op not much action going on yet she wants to try but i'm sorta worried.doing my kegals and my pad usage is only when i go out.thanks for sharing your info.
Missouri Folks look for best Care
Just wanted to let everyone know that we are from Central Missouri (close to Columbia) and if anyone knows of great dr's or treatment centers or have heard good things about any , well please let us know....we also border Illinois and kansas. I am also curious to hear from anyone who has had the Turp sugery and then found…
GET TESTED
women talk your men into getting tested. prostate cancer is a slow growing cancer. By the time my husband was diagnosed he was 51 and his PSA was 6400. No I did not make a mistake with the zero's. By this time it has metastasized to his bones. He lasted 3 years. During this period we had some really good times and of…
Provenge News
http://www.zerocancer.org/site/News2?page=NewsArticle&id=11424 Updated Survival Data on Provenge for Treatment of Hormone Refractory Prostate Cancer Presented "These data confirm the survival advantage of Provenge over placebo for men with hormone-refractory prostate cancer. It is anticipated that these findings will…
My Dad...can anyone help me? Side effects of Casodex and Lupron
I am very new to this site. My dad was diagnosed with advanced prostate cancer about 1 1/2 years ago which has already metastatized to multiple bones in his body. My dad is around 70ish. Nonetheless, the pain doesn't lessen at all due to the age factor. Me, my mom and my husband's heart are extremely heavy due to this…
Visit with Dr. Mike Koch
He is the director of the department of Urology, Indiana University Medical School and Hospital in Indianapolis. His CV is 30 pages long, most of his research is in prostate cancer. The visit with him was quite interesting. He said that in his opinion, the top two options for Jesse were 1)DaVinci surgery and 2)active…
age/treatment/results/doctor info
It's been 2 months since my last post as I have tried to forget thinking about the situation. I would like to hear from people close to my age( 46) and hear about their decision on treatment and /or their results from treatment. I was just diagnosed in January and I am in the beginning stages of prostate cancer. I am from…
hifu trials in US
HI!!! I called today to check on the HIFU trials in the US....is anyone participating??? or know anyone in the trials?? Thanks, Ralphie
Newbie's Wife - just diagnosed 3 days ago
My husband was diagnosed Friday after a biopsy on 2/9. His gleeson is a 3+3 or 6. Prostate size is 27mm (not enlarged). Only 1 of 12 samples positive, one other one is suspicious. PSA was as high as 4.3, it came down to 3.8 recently. I was shocked his biopsy came back positive. Our urologist is doing HIFU in mexico, or can…
I'm New Hubby just been diagnosed /looking for best treatment
Yeah here we are... We so need a Real People Board that we can find real life information and experiences from .... thats why I'm here...Hubby is not so internet excited ...but he is a master at playing Free Cell!! Hubby has had a high psa forever...2 negative biopsy's then started having urinary problems...and…
Option #2 visit - the Radiation Oncologist
We felt like people shopping for treatment today. The radiation oncologist made radiation sound like a walk in the park, NO side effects per him (incontinence or impotence, which I find hard to believe), and the best thing since sliced bread. I asked him point blank what he would do if he had this stage and was this age,…
PC- Hitting Back... A little fun?
If you have not seen the video from Movember, take a look: http://www.youtube.com/watch?v=He_Ie5Mi6xA You are looking for the video "We Know Where you Live Prostate Cancer" In the early days of diagnoises this video was a good outlet for me. I hope the link works. I just tried it and it works for me. If you are not familar…
Relay for Life
Tonight I attended a meeting for the American Cancer Society RELAY FOR LIFE. Apparently events are sponsored in many geographic areas.....A few of the towns near me will have events during the summer.......I attended last year, it was pretty nice. If you are interested in participating contact the American Cancer Society,…
Low Cost For ED
My doc has me on Cialis, but my ins. won't make the pay out at $80 for three pills. All I have is some samples that I am breaking into 1/4's and take every other day. I am post Di-Vinci on 01/26. Any suggestions?
HELLO- Sorry for the long post, just got the news.
Hi! Had an escalating PSA starting middle part of last year. From 2.8 to 4.34 last month. 2 biopsies, 24 core samples later, still zero cancerous cells but lots of high grade PIN. J. Hopkin recommended a third one. My urologist did a "saturated" biopsy, 30 samples! Got the news yesterday-hence my user name. 3 of the cores…
Input on Declining PSA needed
Hello All, My surgeon has me scheduled for the robotic surgery in early May. He decided I should get another PSA test . Interestingly, my PSA at time of diagnosis ( Dec 09) was 5.02 (one core out of 12 being positive.. less than 5% volume and a gleason 6 ) now it is 4.120. I am taking Rapaflo. Any input on this change and…
Shane
You have mail...I forwarded my order with all info for the company I'm getting my generic Viagra from in India.
Cath came out today...12 days since surgery
9am appointment to get the old ball and chain removed today and my post surgery pathology report....On the way to the doctor’s office his nurse calls me and tells to call the Doc because the entire office building (a building connected to St Joe Hospital) has been without power since the weekend!!! I So I called the doc on…
PSA Never Below 1.9 After RP, Now Rapidly Rising
I'd like to explain my situation to the group and ask for your thoughts as to where I might go from here. I was diagnosed in May of 2007 at 48. My only indication was a PSA of 8.0 caught at my company's health fair. I opted for a da Vinci radical prostatectomy. Negative bone scans, PSA right before surgery: 10, Gleason: 7,…
Three Days Dry
Hi all 3 days in a row Dry yahoo will try no pads for my 3 days of work ,i think my firm fitting underdaks is the key .I found loose fitting underpants made me very uneasy and when walking I didn,t have the same confidence or control . I only say this as it may help others who feel uncertain when out in public . Dry every…
Pittsburgh, PA survivors
I've been reading the different posting but most seem to be from other states. Are there any survivors in the pgh area that could give some advise on their decisions/experience. Can't seem to find support groups that meet on Saturdays...

Prostate Cancer

Discussion List

Discussion Boards