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New here...so scared.
Hi everyone! I am new to this site, and honestly can't wait to get accquainted and be apart of it. I am so scared and didn't know where else to turn. My dad is 64 years old and was diagnosed with an aggressive Stage 4 Prostate Cancer back in December 2009. After his biopsy and bloodwork, he had a rating of 8 and PSA of 77.…
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oral after laparoscopic rp
hi i seen questions for intercoarse with leaking urine what about having oral my girlfriend was wondering on that is there any issues.i'am 2 1/2 weeks post op not much action going on yet she wants to try but i'm sorta worried.doing my kegals and my pad usage is only when i go out.thanks for sharing your info.
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Missouri Folks look for best Care
Just wanted to let everyone know that we are from Central Missouri (close to Columbia) and if anyone knows of great dr's or treatment centers or have heard good things about any , well please let us know....we also border Illinois and kansas. I am also curious to hear from anyone who has had the Turp sugery and then found…
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GET TESTED
women talk your men into getting tested. prostate cancer is a slow growing cancer. By the time my husband was diagnosed he was 51 and his PSA was 6400. No I did not make a mistake with the zero's. By this time it has metastasized to his bones. He lasted 3 years. During this period we had some really good times and of…
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Provenge News
http://www.zerocancer.org/site/News2?page=NewsArticle&id=11424 Updated Survival Data on Provenge for Treatment of Hormone Refractory Prostate Cancer Presented "These data confirm the survival advantage of Provenge over placebo for men with hormone-refractory prostate cancer. It is anticipated that these findings will…
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My Dad...can anyone help me? Side effects of Casodex and Lupron
I am very new to this site. My dad was diagnosed with advanced prostate cancer about 1 1/2 years ago which has already metastatized to multiple bones in his body. My dad is around 70ish. Nonetheless, the pain doesn't lessen at all due to the age factor. Me, my mom and my husband's heart are extremely heavy due to this…
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Visit with Dr. Mike Koch
He is the director of the department of Urology, Indiana University Medical School and Hospital in Indianapolis. His CV is 30 pages long, most of his research is in prostate cancer. The visit with him was quite interesting. He said that in his opinion, the top two options for Jesse were 1)DaVinci surgery and 2)active…
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age/treatment/results/doctor info
It's been 2 months since my last post as I have tried to forget thinking about the situation. I would like to hear from people close to my age( 46) and hear about their decision on treatment and /or their results from treatment. I was just diagnosed in January and I am in the beginning stages of prostate cancer. I am from…
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hifu trials in US
HI!!! I called today to check on the HIFU trials in the US....is anyone participating??? or know anyone in the trials?? Thanks, Ralphie
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Newbie's Wife - just diagnosed 3 days ago
My husband was diagnosed Friday after a biopsy on 2/9. His gleeson is a 3+3 or 6. Prostate size is 27mm (not enlarged). Only 1 of 12 samples positive, one other one is suspicious. PSA was as high as 4.3, it came down to 3.8 recently. I was shocked his biopsy came back positive. Our urologist is doing HIFU in mexico, or can…
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I'm New Hubby just been diagnosed /looking for best treatment
Yeah here we are... We so need a Real People Board that we can find real life information and experiences from .... thats why I'm here...Hubby is not so internet excited ...but he is a master at playing Free Cell!! Hubby has had a high psa forever...2 negative biopsy's then started having urinary problems...and…
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Option #2 visit - the Radiation Oncologist
We felt like people shopping for treatment today. The radiation oncologist made radiation sound like a walk in the park, NO side effects per him (incontinence or impotence, which I find hard to believe), and the best thing since sliced bread. I asked him point blank what he would do if he had this stage and was this age,…
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PC- Hitting Back... A little fun?
If you have not seen the video from Movember, take a look: http://www.youtube.com/watch?v=He_Ie5Mi6xA You are looking for the video "We Know Where you Live Prostate Cancer" In the early days of diagnoises this video was a good outlet for me. I hope the link works. I just tried it and it works for me. If you are not familar…
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Relay for Life
Tonight I attended a meeting for the American Cancer Society RELAY FOR LIFE. Apparently events are sponsored in many geographic areas.....A few of the towns near me will have events during the summer.......I attended last year, it was pretty nice. If you are interested in participating contact the American Cancer Society,…
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Low Cost For ED
My doc has me on Cialis, but my ins. won't make the pay out at $80 for three pills. All I have is some samples that I am breaking into 1/4's and take every other day. I am post Di-Vinci on 01/26. Any suggestions?
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HELLO- Sorry for the long post, just got the news.
Hi! Had an escalating PSA starting middle part of last year. From 2.8 to 4.34 last month. 2 biopsies, 24 core samples later, still zero cancerous cells but lots of high grade PIN. J. Hopkin recommended a third one. My urologist did a "saturated" biopsy, 30 samples! Got the news yesterday-hence my user name. 3 of the cores…
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Input on Declining PSA needed
Hello All, My surgeon has me scheduled for the robotic surgery in early May. He decided I should get another PSA test . Interestingly, my PSA at time of diagnosis ( Dec 09) was 5.02 (one core out of 12 being positive.. less than 5% volume and a gleason 6 ) now it is 4.120. I am taking Rapaflo. Any input on this change and…
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Shane
You have mail...I forwarded my order with all info for the company I'm getting my generic Viagra from in India.
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Cath came out today...12 days since surgery
9am appointment to get the old ball and chain removed today and my post surgery pathology report....On the way to the doctor’s office his nurse calls me and tells to call the Doc because the entire office building (a building connected to St Joe Hospital) has been without power since the weekend!!! I So I called the doc on…
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PSA Never Below 1.9 After RP, Now Rapidly Rising
I'd like to explain my situation to the group and ask for your thoughts as to where I might go from here. I was diagnosed in May of 2007 at 48. My only indication was a PSA of 8.0 caught at my company's health fair. I opted for a da Vinci radical prostatectomy. Negative bone scans, PSA right before surgery: 10, Gleason: 7,…
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Three Days Dry
Hi all 3 days in a row Dry yahoo will try no pads for my 3 days of work ,i think my firm fitting underdaks is the key .I found loose fitting underpants made me very uneasy and when walking I didn,t have the same confidence or control . I only say this as it may help others who feel uncertain when out in public . Dry every…
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Pittsburgh, PA survivors
I've been reading the different posting but most seem to be from other states. Are there any survivors in the pgh area that could give some advise on their decisions/experience. Can't seem to find support groups that meet on Saturdays...
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One Positive to Eligard/Hot Flashes- Finally!
I just figured out the one blessing connected to being on Eligard and having hot flashes and here it is: No colds! I figure it out today and it works like this. A hot flash feels like a mid grade fever- about 100- 101 degrees when it first hits about 15- 20 times a day. If I do pick up any cold germs, about the time they…
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Backslide
I was planning on losing the 1/day pad in the next few days then got a glorious Texas cold. Texas colds are difficult to shake since this time of year it can be 75 one day and 25 the next. Anyway, with the coughing, sneezing, antihistamines and cough suppressants I am back to 3-4 pads a day. Does anyone know if…
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Book and message for Randy
I've been trying to find a thread where several 0f you have mentioned a great book on prostate cancer...but can't seem to find it. Help please? And, Randy in Indy, your email address you gave me is bouncing. Thanks everybody!
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Winding down for Surgery
Surgery is Wednesday and I am flying up Monday to Chicago and just want to say thanks to all of my supports and well wishers during my journey so far with PC and the changes I have gone though as all of us…My journey so far has been a blessing in many aspects… I have a lot of personal thing to do now until I fly out of…
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The Return of PCa: When?
I know a man who had his prostate out at a very prestigious hospital with a good surgeon back in 1998. This man is now in his mid- upper 70s. His PSA is rising and he knows the cancer has returned. He is not interested in any treatment at this time- he is going to let the stuff run its course. But the point is this. At the…
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Possibly Laid off with UnitedHealth Ins. any suggestions for pending surgery date
Hey Everyone, As usual when it rains it pours, I may possibly be getting laid off from my employer, I have UnitedHealth Ins. I was wondering other than Cobra is there any other assistance for someone unemployed on Cobra about to have Robotic Da Vinci. I live in Florida. Any assistance would be greatly appreciated....I'm…
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I love it when a plan comes together
I had my daVinci in Pittsburgh on Friday, 2/26/10. Surgery went well and I was in my room by 13:00 (I think.) I had an extra wait because I requested a private room. Nurses in recovery and on the floor were excellent. First night went well. Good meds - morphine and percocet. Unfortunately, I took some bad advice on…
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I’m back from Surgery and The Windy City..
Had my RRP modified surgery performed by Dr. William Catalona up in Chicago on Wednesday, March 3 and flew back home to Atlanta Saturday, March 6. I was in surgery a little more than 4 hours, loss a tad more than a liter of blood (no transfusion)… Had morphine for about 12 hours then switched to 325mg of Tylenol x2 every…