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Another tool to fight The Beast
I will be starting treatment with CyberKnife in a few weeks. During my reseatch on PCa, I was fortunate enough to find this video by Dr. Dean Ornish giving a speech at M.D. Andersen that I feel would benifit anyone that wants to beat this disease. Its quite lengthy (1 hr & 12 minutes) but I found it so worthwhile that I…
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Urethral irritation/penis pain 3 weeks out of robotic surgery..please advise
Was recovering well till a few days ago...the post catheter pain/bleeding had gone away. 2-3 days ago felt like a cut in the urethra on top half of penis. There is intermittent bleeding, burning sensation after urination, constant ache in top of penis and stabbing pain during the day. The doc said to wait it out to see if…
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anyone else had a white plastic clip come out of penis?
friday, about 1 1/2 years after my da vinci procedure, i had a blockage in my urinary tract--for about 3 hours. while using a restroom at Target, a small plactic clip, about 3/4 of an inch long, 1/4 inch wide, came out of my penis. at the Doc's office yesterday- he ran a scope up my tract and said there is one more clip…
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State of the art Biopsy
Today I had another Biopsy....I will meet with the doc next week for the results. This biopsy is the state of art, and can more readily find tumors, not random as most convenional biopsies....this machine is three dimensional and one can go back to the exact spot in the future. Basically an MRI that I took last month as…
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TAXOTERE, TO DO OR NOT TO DO
My husband is 72 and up to a couple of months ago was living a normal life in spite of having prostate cancer which was diagnosed in 1997. We chose primary external beam radiation which was given that year. His PSA stayed at normal levels until 2001 when Lupron was then used intermittently. Quarterly Lupron injections were…
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I Can't Believe my Good luck
I just ralized this and told my wife, "You know those things that cause prostate cancer? Well, I don't have to worry about them any more!!" Sleep on that and be happy! No need to tell you what Mrs. Trew said. Sometimes reality slips from her grasp.
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surgery on june 23rd and now 4 days from getting cath out
i should have posted sooner so hopefully what i have to say will help someone. i have not got on any boards on since my surgery i guess because i was depressed, i should not be, i have a great dr. and a wonderful family. anyway my surgery was 6 and a half hours, i had a ruotured appendex in feb, so it took longer due to…
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Procedure Complete
I finished the last of my CyberKnife treatments today, met with the doctor, and went back to work (as I have done after each of my treatments). The only side effect I have noted was more frequent urination than normal in the last 24 hourse but I've been drinking a lot of water so that may be part of it. I had five…
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Understanding the 24 Types of Prostate Cancer
http://www.pcf.org/site/c.leJRIROrEpH/b.6113915/k.EA7D/Understanding_the_24_Types_of_Prostate_Cancer.htm?msource=se10npwsj&auid=6558792 On Tuesday, June 29, 2010, the Wall Street Journal wrote a comprehensive piece on the discovery of the 24 different types of prostate cancer. The Prostate Cancer Foundation heavily funded…
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Wet wet wet
Had very wet night last night. Enough to leak out of pad. Been reading posts on how others have been doing with this and how it varies for each person. Am only 5days with cath out but not seeing any improvement. Plus still have a little swelling in the groin. Hope I am not losing faith too early. Has not been too bad…
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Cialis
Hubby is liking cialis for the post-op ED. Where have those of you who are on Cialis been obtaining the drug? Thanks for your replies. If you could also list prices and where you obtained.
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L-arginine
has any one taken L-arginine in combination with ED pills? My ED specialist wants me to take 2 tables of 500mg twice a day. Pleas let me know your experience. Victor
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Continuing Problems with Coloplast Virtrue Sling
July 14th will make one year since I was implanted with a Coloplast Virtue male sling. It was a bait and switch situation. The urologist described the tried and proven Advance sling by American Medical Systems in great detail to me, and then implanted a Virtue sling by Coloplast, which I knew absolutely nothing about.…
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New diagnosis
My husband has recently been diagnosed with prostate cancer. We are still in the process. After a rising PSA since 2007 of about 1-2 pts per year (Feb 2010 8.2)..three biopsies....and a negative pelvic/prostate of the MRI (March 10) , in March 2010 we got a positive 1 core on the third biospy at 3+3=6 in March of 2010. All…
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Looking for Kaiser N Calif Recommendation for Surgeon for DaVinci at Walnut Creek
Looking for a Bay Area urologist in Kaiser for Da Vinci RP. My urologist has done the procedure about 25 times, and he's probably good but I'm a little nervous about the lack of experience. I've read Patrick Walsh's Guide To Surviving Prostate Cancer and he recommends at least 100 surgeries. Anybody have a recommendation…
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Interesting site:
I hope others will find the info on this site to be helpfull, as I did. http://www.zerocancer.org/index.html?cvridirect=true
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ED improving!
Dear all, Yesterday the 100th day after my surgery and I am glad to report I have had my first useable erection with 10 mg of Cialis and of course, I made the best use if it. Two days ago, I went to see the urologist who injected me with Trimix. As I said in another post, I had mild pain during the two hours that the…
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June 16th PSA results are in and I am still a member to the ZERO Club!
Second PSA test 16 weeks out from surgery came back …A big fat ZERO…. I will enjoy the gift of zero for the next 90day before my next test….Thanks for your prayers and support in my journey…Yes Randy this means I have no excuse not to climb Half Dome this summer but right now I will be kicking back at the beach till the…
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CyberKnife -- In Treatment
I completed my first (of five) CyberKnife sessions today. The following describes the procedure. Preparatory protocol involves a low fiber diet, an overnight laxitive and Gas-X, and a Fleet enema in the morning prior to the appointment. The object is to remove as much gas and material from the colon and bladder as possible…
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ED Does Viagra work or any other stuff Honest question
Hi I am 3 months post surgery and feeling good my wife wants me to try Viagra or calais or whatever. getting some good feeling back in mans land but not enough to do the deed yet, getting close . Has any one had good response to any tablets etc appreciate any answers.So far I havnt heard of many good results thanks Shane 59
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Degarelix vs Lupron
Anyone have any info on Degarelix (approved by FDA 12/8/09. It is supposed to be a stronger drug than Lupron with less side effects. Notes from the web: Results showed that degarelix is as effective as leuprolide in reducing and sustaining castrate levels of testosterone.(1),(2) Suppression of testosterone to castrate…
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Diet After RP!!
Hello to all, I'm curious if anyone here can tell me how your diet has changed post surgery, I'm still not sure what I can or can't eat. I realize I need to stay away from red meats, dairy and fatty substances ie: transfats, saturated fats.....but I'm not sure what is good or not good to eat...Are peanuts ok, what about…
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Happy Father's Day
I wanted to wish all of the men here who have children in their lives a great Father's Day. I am so thankful to be able to share time with my kids today and they are as well. I wish you all the very best.
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Radiation side effects and when
Just started radiation therapy (IMRT) post da Vinci surgery (5 down, 33 to go). I know the side effects vary and may or may not (usually may) happen. What I have heard is that most do not have effects until the 20-38 day range. Is this true? And when did you first experience effects, and what are the most common? My guess…
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Lupron & Casodex Not Working
Found out that the Lupron & Casodex therapy not working. The Lupron only worked for 2 months. Started chemo with Taxotere this past Friday. Does anyone have any info for this treatment. Sincerely appreciate any experiences or info available.
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Recovery
13 days post op davinci. Physical wounds healing ok. Still leaking a bit. My question to you guys is how did you deal with the mental and emotional aspect? I am trying to get things back as close to normal as I can but still having a tough time. Support group meeting helped some. Any advice? Suggestions, how you cope.…
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Anaconda no more!!
Hey Fellas, I'm back, 6 weeks post surgery, incontinence getting better 1 pad a day depending on how much I drink. 1st post-op psa is (0.1)(THANK THE LORD)!!! so I'm great in that category. My issue now friends is that of the now little guy just isn't alive anymore. No morning erections or night for that matter. Honestly…
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tried the thin pads {ladys use} yes you can laugh now
Oh boy how embarressing wearing ladies panty liners, who gives a rats they work well and at least half the price,word of warning make sure you get the sticky tabs down on your jocks as wait for it heres a laugh , they can play havick with the short and curleys. yes now I have said it I will wait for the comments to role in…
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another reason to think twice prior to surgery--Peyronie's disease
I read this new report from the prostate cancer info link, doesn't surprise me, and believe me it is the worst possible disease, it's an autoimmune disease where the body attacks the penis. This report says the risk after RP increases by double or three fold. Peyronie’s disease (PD) is a clinical condition characterized by…
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4 year Anniversary--No Cancer----No Dryness.
All, My Surgery was June 6, 2006. Tomorrow is my 4 yr Anniversary. Time really Flies. Lion1