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PCa Awareness Month, Conference & Events Sept. 2010
September is Prostate Cancer Awareness Month. For anyone interested, US TOO has a September calendar of events posted on their site: http://www.ustoo.org/Event_Calendar.asp One September event is the annual PCa Conference put on by the Prostate Cancer Research Institute (PCRI), which also has a good educational website.…
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Allergic to suture material?
Hubby's procedure was 4/27. One of the 5 DaVinci incisions has about a pea-shaped area that won't heal. He has been to doc twice. First time they had him use silver nitrate sticks to 'seal' it and it just kept enlarging the hole. He returned today and they said it is probably just a reaction to the suture material and will…
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Radiation lag time
Yesterday, I finished my 5th and final Cyberknife treatment. Does anyone know if and for how long radiation will continue to destroy the PCa cells?........Thanks...Jimmy/Cleveland
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Cath Out - Path In
Just back from the uro and he seemed very happy. Got rid of the cath and he gave me path report which I was anxious to see. Reading the report I am very happy and dont think it could have been any better. Other than my sore back and rectum all is fine. Post Op Path: Gleason 3+3=6 Tumor involves left lobe only Tumor…
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INTERMITTENT HORMONAL THERAPY
I am taking this info from the current issue of the BOB newsletter from and for that brotherhood of graduates from proton treatment at Loma Linda U medical center. If you read this posting you will see a link to a web site that discusses the treatment between the breakdown of hormonal therapy and the beginning of chemo. It…
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The Safeway Foundation is matching 2x your donation for prostate cancer research ..
Back in july they gave $11M to Prostate Cancer now they are collecting another $1M for research...Please support our joint cause and my friends at Safeway Stores http://www.pcf.org/site/c.leJRIROrEpH/b.5822013/k.C005/Donate.htm
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Sleep erection
13 month post surgery & 6 months post radiation I had my 1st sleep erection (woke me up) that is a normal part of the male biology. It is encouragement that the nerves are waking up. Atrophy has reduced the size as the pump was seldom used & pills gave undesirable side effects, but I now have hope for better things. So…
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"cured" prostate cancer and now secondary bone cancer - what do we have to expect?
Hello, my father is 80 years old and had 6 years ago prostate cancer. He was operated and had no issues for the last 5 years. About a year ago during the routine checks the medical team observed a fast increase of his PSA values. After further exams he was diagnosed with secondary bone cancer. He started a chemo which he…
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5 days Post Op
Day 5 post op and everything is going ok. I did make a call to the uro to ask a question. During bowle movements I have an overwhelming urge to pee along side the cath. I want to know if it ok to let it go or if I need to pinch it off. It would feel so good to let it pour out but I dont know yet. There has been a slight…
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Strange things happening down there
I am post robotic radical prosatectomy from May 04, 2009. So far, despite taking nightly low dose Cialis or Levitra, I have not begun to develop any penile erections, let alone any that would be functional for intercourse. However, over the past couple of weeks I have noted that on occasion, I will get a strange sensation…
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I just received bad news, my father's PSA keeps risen,
My father is 80 years of age with prostate cancer. It has spread to his bones and PSA continues rising. He PSA as of today is 222.2. He is on hormone therapy, Zometa and on casadex, he refuses chemotherapy and is on the list to get Provenge. He is waiting for Provenge, but insurance doesn't approve payment. The Zometa is…
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One Week Post Op Visit - Cath Out !! (YEA !!)
I had my one week follow-up appointment today to remove the catheter and go over the pathology report. Removing the cath was not anywhere as difficult as I had feared. Actually, removing the adhesive patch from my leg that the tube clipped to, was the worse part. Lab results was very good. All clear margins with no…
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Kicked out of the Club
Well Just got the news from the Doctor's office and I am no longer a member of the 0 club. My PSA came back at .1 at the 10 month mark following my Surgery. I have a follow up appointment with the Doctor on June 25th to discuss. I knew this would be a possibility since I did have a positive margin on my Path report. Had…
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Ignorance, Hormone Therapy And PC Related Stuff
I have a good friend who I have been sharing a bit about my personal battle with PC and related side effects. He knew I was on the hormone shot but had no idea that men on the shot have no sex life. I told him sometimes the side effects of radiation and surgery also produce a sexless life. I would not be surprised if he…
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Vitamin B6 Tied to Better Prostate Cancer Survival
http://www.pcf.org/site/c.leJRIROrEpH/b.5800893/k.BDBA/Vitamin_B6_Tied_to_Better_Prostate_Cancer_Survival.htm Study shows links between survival and the vitamin as part of a balanced diet By Amy Norton Tuesday, Sept. 22 (Reuters Health) - Men with earlier-stage prostate cancer may have better survival odds if they get a…
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Docs Shying Away From Drug That May Prevent Prostate Cancer
http://www.pcf.org/site/c.leJRIROrEpH/b.6183437/k.CC53/Docs_Shying_Away_From_Drug_That_May_Prevent_Prostate_Cancer.htm Erroneous fear that finasteride spurs more aggressive tumors has left some physicians wary, research shows By Steven Reinberg Thursday, Aug. 12 (HealthDay News) -- Even though a major study found that the…
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Prostate cancer Pathology Report
Could someone explain my pathology report i received today im worried. Clinical History Prostatectomy . Left and Right apical tissue . Histopathology. Macroscopic Description Specimen container labelled ‘ prostate ‘ . Please note, tissue was collected for tissue banking from the right mid zone and the left mid zone on…
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Statins and ED
I'm still pre-treatment for my PCa, but just discovered that Simvastatin and other cholesterol reducing medications have the side effect of also reducing testosterone production and causing ED. Found this out because I take Simvastatin (generic for Zocor and one of many statin drugs) and, after we doubled the dose I was…
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I Upset the Wife Today
I"m sorry I said it, but I did. I said, if my PSA starts to go back up, I don't want any more hormone shots. I'm done with them. I should not have said it. It was insensitive to her feelings and fears about this PC thingie. I resolve to be more careful about how I speak of my treatment to her in the future. And perhaps…
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COLOPLAST VIRTUE SLING / Continuous pain and suffering one year later.
It has now been one year and two weeks since a Coloplast Virtue sling was implanted in my body without my consent. I had consented to simple and well proven AdVance or AdVance type sling, not a 4-armed contraption (Virtue Quadratic Sling) undergoing clinical trials. I feel like I am a victim of “bait and switch”. The…
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Waiting For Surgery
I am new here and find this site very interesting. I was diagnosed in April and went to my second opinion on 6/11. I just got a call from the scheduler and my surgery is scheduled for 8/11. All of this waiting is driving me crazy but reading the posts on this site have given me a very good idea of what I can expect during…
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One Year Update
It has been one year (Aug 09) since I had my surgery and wanted to give an update for those interested on this site. Just to briefly reflect backwards . I am 54 yrs old; Dr Patel at Florida hospital performed my surgery and it was a very good experience; excellent staff, hospital, recovery. My Gleason was 3+4=7, very small…
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Bone Mets
Hubby had an early morning call from the hospital yesterday, his latest bone scan showed mets to the spine.They wanted him to come up for radiation treatment right away as it was close to the spinal cord.He was a few hours for the set up and treatment and he was back again for more treatment this morning.He will be…
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EBRT and seed side effects 10 yrs later
2nd time in 10 yrs suffering from burning when urinating. affecting rectum and penis. last time took 2 yrs to go away. drs say it is radiation burn from external beam radiation and seed implementation for prostate cancer in june 2001. any suggestions for some relief.
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sometimes...maybe
Hi all I am now cancer free,so far, but my life has changed radically in other ways.Some days i wish I never had a PSA test and just lived blissfully with no ED or the rest. Feeling sorry for myself but I dont think Im alone with these thoughs. Prayers to all and beat cancer and the after effects Nick age 53
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Recommendations for VEDs
I am wondering if anyone would have any thoughts they would care to share on their experiences with VEDs. I am 50 yrs old. Diagnosed with Prostate CA in April 2010. Da Vinci prostatectomy June 8, 2010. Everything was within the margins. I am almost totally dry so am very happy about that. Now I am concentrating on the ED.…
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Latest Monthly newsletter From LLU proton Center
Really good stuff in this month's newsletter: http://www.protonbob.com/newsltr.asp Enjoy!!
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Question on Gleason scores
Does the Gleason remain the same? Like if you do not treat the PC will the gleason 6, progress and become a 7 then an 8...? Also we have seriously tried the no red meat, no dairy , low fat eat healthy diet hopeing to see a lower psa to show for it but our psa was exactly the same 4 weeks later. I did see that having a…
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Incontinence--------the continuing Saga--New Doctor
All, After my last encounter of having my record or surgery basically lost. My new Doctor will be giving me a Botox Injection on Oct 11. Not so sure what the other Doctor gave me. I was told it was Botox, but there's no record to be found. And no change--so maybe it was Saline solution---we may never know. Lion1
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Biopsy
I was curious about something. A contributor mentioned that he was "too drugged up" during the biopsy to remember anything. The people I talked to prior to my biopsy reported they were either "knocked out" or were given Valium or some other mind-numbing drug. At Johns Hopkins I took it like a man(joke). No sedation, no…