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EBRT and seed side effects 10 yrs later
2nd time in 10 yrs suffering from burning when urinating. affecting rectum and penis. last time took 2 yrs to go away. drs say it is radiation burn from external beam radiation and seed implementation for prostate cancer in june 2001. any suggestions for some relief.
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sometimes...maybe
Hi all I am now cancer free,so far, but my life has changed radically in other ways.Some days i wish I never had a PSA test and just lived blissfully with no ED or the rest. Feeling sorry for myself but I dont think Im alone with these thoughs. Prayers to all and beat cancer and the after effects Nick age 53
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Recommendations for VEDs
I am wondering if anyone would have any thoughts they would care to share on their experiences with VEDs. I am 50 yrs old. Diagnosed with Prostate CA in April 2010. Da Vinci prostatectomy June 8, 2010. Everything was within the margins. I am almost totally dry so am very happy about that. Now I am concentrating on the ED.…
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Latest Monthly newsletter From LLU proton Center
Really good stuff in this month's newsletter: http://www.protonbob.com/newsltr.asp Enjoy!!
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Question on Gleason scores
Does the Gleason remain the same? Like if you do not treat the PC will the gleason 6, progress and become a 7 then an 8...? Also we have seriously tried the no red meat, no dairy , low fat eat healthy diet hopeing to see a lower psa to show for it but our psa was exactly the same 4 weeks later. I did see that having a…
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Incontinence--------the continuing Saga--New Doctor
All, After my last encounter of having my record or surgery basically lost. My new Doctor will be giving me a Botox Injection on Oct 11. Not so sure what the other Doctor gave me. I was told it was Botox, but there's no record to be found. And no change--so maybe it was Saline solution---we may never know. Lion1
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Biopsy
I was curious about something. A contributor mentioned that he was "too drugged up" during the biopsy to remember anything. The people I talked to prior to my biopsy reported they were either "knocked out" or were given Valium or some other mind-numbing drug. At Johns Hopkins I took it like a man(joke). No sedation, no…
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To wait or act?
Like many I have been reading comments on this forum for months, learning much about dealing with pca. I finally decided to "jump in" and join the discussions. Here is my background - sorry if I included too much or too little: Age: 67 Biopsy June 2007. PSA=6.0. 2 of 10 cores contained adenocarcinoma; 1 with 30%…
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Post-Prostate Erection Article
http://news.cnet.com/8301-27083_3-20012833-247.html?tag=cnetRiver
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What is Real Care? Who is the right Doctor? Where's my record of Surgery?
After talking to my wife tonight something hit me like a ton of bricks. It bothered me more than ever before. I am speaking of the care I have received or the lack of it. As I head to my third Doctor tomorrow in Jacksonville Florida, I am hoping that not only I get the care I deserve but the attention I deserve as an…
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Post CyberKnife Procedure -- 30-Day Checkup
I had my 30-day post treatment follow-up with my medical team on Friday following 5 radiation treatments that ended on July 1. So far, everything is excellent. No urinary issues. No bowel or rectal irratitation. No ED issues. There is a slight reduction in the amount of ejaculate but that is considered normal. No pain. No…
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0 CLUB EXTENSION
SIX MONTHS POST DAVINCI AND 2 MONTHS POST ADJUVANT RADIATION, MY DOC CALLED AND SAID MY PSA WAS STILL UNDETECTABLE!!!! VERY GOOD NEWS INDEED. SOMEONE MUST BE WATCHING OVER ME BUT I THINK ALL THE POSITIVE SUPPORT AND FEEDBACK FROM ALL WHO POST HERE ALSO PLAYS A PART. THANKS !!! AND IF GETTING A 3 MONTH EXTENSION IN THE ZERO…
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Brachytherapy After-Effects
10 days after Brachytherapy (25 May 10), I started to have a near complete blockage fourtunately eased after some 20 minutes. Increased HARNAL to twice daily, plus anti-inflamatory medication (Brufen, Celebrex). My side-effects eased but in week 5 I'm still feeling urgency (8-12x daily) and can releive only 50-100cc a…
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HIFU (High Intensity Focused Ultrasound)
Anyone heard of High Intensity Focused Ultrasound? Uses sound waves to destroy cancer tissue without prostrate removal.
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Successful prostatectomy on transplant recipient with negative margins - radiation?
I'm 58 and had a kidney transplant 5 years ago that is still working well. Early this year, I was diagnosed with Gleason 9 prostate cancer. One doctor told me I had to quit my drugs, reject my kidney, and go on dialysis so my body's full immune system could fight the cancer. Another one disagreed completely. I did a lot of…
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77 year old wants surgery
Dad received diagnosis of Gleason 7, Stage II Prostate Cancer and is set to see a urologist in another city to discuss treatment options. The biopsies were positive "throughout" the prostate. The wait is very difficult and he's reading up on this. Would really like to have the surgery, but wondering if most surgeons truly…
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Elevated PSA
My husband just received the results of his recent PSA test. It is elevated again. 18 months ago it was elevated to <0.3 then a year ago it was .3 and then 6 months it was just under .3 and now it is 0.64. He had a bone scan last week and is scheduled for a Prostacint this week. The initial visit to get the injection is…
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Safeway Prostate Cancer Campaign Nets $11.6 Million for Research
Thank you to my friends at Safeway... Safeway Prostate Cancer Campaign Nets $11.6 Million for Research Company's June Tradition Credited with Saving Lives PLEASANTON, Calif., Jul 21, 2010 (BUSINESS WIRE) -- Safeway Inc. concluded its annual prostate cancer campaign and continued to transform how the public treats and views…
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cath out
i wanted to ask anybody about when they take the cath out, when i had the camera up the old junk it felt like a 35mm camera going in and worse coming out. what i want to know is how bad is it coming out. the cath line is bigger than the camera line. it is just such a bad feeling i can,t explain it, like they are pulling…
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The value of PSA and a second opinion
Early this year I noticed my doctor hadn't given me a PSA test in 3 years. Being a transplant patient, I am supposed to get them yearly, so I told him to do one. It came back 21. Biopsy came back a Gleason 9 even though nothing was detectable in a DRE. I got several opinions. 3 of the most highly rated robotic surgeons in…
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Second Guessing
These types of reports always make me pause and wonder whether the early treatment actions that so many of us have taken--either RP, proton, radiation, HIFU, or some other therapy--were all unnecessary. All cancers aren't equal but sometimes we tend to view them that way. Good news is that all this treatment of low risk…
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I am still in the Zero Club
Dear PCa friends, I just got the result of my PSA, the second after the surgery. I got my surgery on March 15, 2010. I am glad to report that I am still a member of the Zero club. I thank God for His Grace. Victor
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Hello and Update from Sonny
My Fellow PCa Brothers and Sisters, It has been far too long since I have been here, and for that I apologize. There hasn't been much to update or report and Lynn and I have been traveling quite a bit in the new RV. In fact we just got back from a 4 week trip. Lynn really enjoyed the traveling by RV and it kept her away…
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Stairs After Surgery
I am a couple week until surgery on 8/11/10 and I was wondering if I will be able to climb stairs when I get home from surgery or will there be any restrictions regarding the stairs. My favorite recliner is in the mancave and I am thinking it might be a comfortable place to be for a couple of days after surgery. I guess if…
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To IMRT or not IMRT
My Brothers, While I have just joined this site and am grateful to have found it, I am no stranger to prostate cancer. I would sincerely appreciate any input regarding my situation, but first, my history. PSA of 4.1 led to RP six years ago at age 57; T1C; Gleason 3+3=6; seminal vesicles, vasa, apex, and base all free of…
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Update
Been 4 years now since divinci. Rarely use pads unless doing something like golf. Still impotent but not much of a concern anymore. It really isn't necessary for live just fun and I can still have fun other ways like golf, fly fishing etc. My psa is less than .1, according to the docs. that's normal because labs don't want…
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Stress Relief Riding Motorcycle
I know this seems a bit trivial but leisure activities are great stress relievers, mine happens to be my motorcycle. Well that and sex but I can’t make that ride yet either! Do any of you ride (a bike) and if so how long after surgery did you get back on your bike? I’m just past one month post surgery so still early for…
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Infected incision ports//any advise?
2 of my incision ports are infected. One got infected 10 days ago and with washing with hydrogen peroxide and antibiotic ointment is getting better but is still sore and not healed. The one for drainage got infected today and has pus spots around and painful. Any advise? The medical system is geared around this becoming an…
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Just scheduled my surgery
Tuesday, 9/14. Now the countdown begins...
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Prostate Cancer
I had radiation for prostate cancer two years ago. It seems to have been successful, I get shots of Lupron every three months and have two more shots to go. However, it has left me with a urination problem. I go about every hour and a half 24-7. My doctor has had me on all of the current meds and nothing works. I wanted to…