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Good idea to be in a clinical study?
I post on the ovarian cancer site, but a friend of mine (in his mid 70s) thinks I know a lot about ALL cancer, and of course I don't. He had his prostate removed 14 years ago. 7 years ago his PSA started rising, but somehow this was never flagged. (We live in Scotland, and the NHS isn't always on top of these things.) This…
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fatique after radiation
I am continuing to have fatique 14 months after finishing 45 radiation treatments for prostate cancer. My radiation doctor had not helped at all..says I may have to live with it from now on. Any suggestions?
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Side effects from xgeva and firmagon
Hello all, I was wondering if anyone has taken xgeva in combination w/firmagon. My dad has advanced pca with extensive bone mets. He had 1 shot of lupron in march then was switched to firmagon to avoid the tumor flare from Lupron. He had his second shot of firmagon and second xgeva shot 13 days ago, he had severe nausea…
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Any experience with Intermittent HT?
My husband is seriously exploring the IHT for his recurrent PCa. I've found some good material on line but am interested in hearing from anyone who has experience with this protocol. Many thanks and a wonderful holiday to you. Renee
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Merry Christmas
Hello fellow survivors wishing you all a Merry Christmas. Keep the good fight going and thank you all for your support.
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prostate and MS
I have been diagnosed with Intermediate PC w/ score of 7. I have all of the options open to me to be healed. I have MS and this makes it complicated for the doctors because they do not have experience with MS patients. I want nerve sparring procedure. Either surgery od radiation. I have been married for 35 years. We have…
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bump, bump
My PSA rose to 4.2 this month, six months ago in June,11 it was 3.6.....before that it was steady at at 2.5 for at least the last 5 years. My free PSA was 14 this time and 18 in June. I've had 3 biopsies, the last two were negative(the last one in June, 11). In 3/09 when I was diagnosed it was 2/12 cores, less than 5…
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Is the AUS 800 for me? Please help me decide.
AUS 800 for me? Please help me make up my mind. I am a 20 year prostate cancer survivor. I am 85 years old. My Gleeson score is 7 (3+4). Over the years, I have undergone radical prostatectomy, radiation, and hormone therapy. Today my PSA is undetectable. I have experienced very little discomfort or pain because of the…
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PC Treatment Options - HIFU or Robotic Prostatectomy
I am 60 and was diagnosed with PC in mid November. At the time of the biopsy my PSA was 6.5 and had been above 6 since July. The urologist suggested taking another PSA in September and a final one in late October to see if PSA levels remained high. The July PSA is 6.7 and the September PSA is 7.4 and the October PSA is…
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Cyberknife After RP and SRT
Forum Friends! Just wanted to sign in with details of our decisions in the PC journey. My husband has started Casodex/Lupron TIP and after scans and more scans, we have decided to go forward with Cyberknife to target the one known tumor/lesion on the sacral vertebra. We are both pretty excited about this, hoping that it…
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Prostate Cancer Pony Express
I signed up to ride in the Pony Express this year. Going to be a part of a chain that will ride motorcycles through every state from Mar - Sept with the end of the ride carrying the names of prostate cancer victims and survivors for presentation to Congress in support of additional support for prostate cancer research and…
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Latest PSA results
this is my 6 month post IMRT psa result. 1.4 It has been checked every two months. starting at: 5.1 to 2.6 to 1.7 and now at 1.4. this time it slowed down a bit but i am hoping that it will still drop in future checks. going back in 3 months for another check. wishing every one in the Cancer Survivors Network a merry…
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New Proton Option Being Offered
My brother is 3 yrs behind me in age and he his finishing proton therapy in chicago area. His treatment center told him they and Loma Linda Hospital are now offering a trial proton treatment for low stage prostate cancer. You get the same dosage of radiation but its all delivered in 5 treatments instead of 45. Strictly…
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Post Brachytherapy Blues
Had the procedure on 12/9/11. Everything has been fine until the last couple of days. In the last couple of days I have had very sore testicles and flu like body aches and pain. Anyone experience this? Thanks, John
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1st PSA after RP
Had my first post RP PSA done Wednesday (5 weeks after surgery)and got results today. A VERY HAPPY .006 YEEEE HAAAAAAAAAAAAAA. Primary objective of ridding the beast out of my body appears to be successful on first pass. Very happy so far. No issues with incontinence and the sleeping giant appears to be awaking more often.…
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Thanks to all here...
Hello all, Had seed implants on 12-9-11 and all is well so far. Minimal issues. I'm looking forward to the first PSA test. Thanks to all that post here. I learned quite a bit from the posters on this site and your input helped me greatly making the final treatment decision. Merry Christmas and a Happy New Year (cancer free…
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Cyberknife perineal placement: excruciatingly painful.
I had 4 fiducials placed today through the perineal. It only took about 3 minutes for the actual placement. On a scale of 1-10 it was a 10. To make this a positive , helpful post I would suggest you take whatever arm injected pain killer you are offered. I was accompanied by someone to drive me home and so I was eligible…
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availability of Zytiga
I am new to this disscusion board however, for those of you that beleive that Zytiga is only available for those who failed chemo treatments you are misinformed..acording to most insurance plans three criteria must be met that is 1. FDA approved 2. nonexperimetal 3. prescibed by attending physician...you may have to go…
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Newly Diagnosed
Hi All, I've been reading since last night and find all of your input very informative. Thanks. I was just diagnosed this past week, and My wife and I are just trying to digest things and begin talking about a path forward. As a result of my GP finding a bump, I had a needle biopsy with the following results: 7 of 14 cores…
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Is This Normal - PSA test not done until 3 months after radiation
It has been quite a while since I posted on this site but had a question regarding my husband's PSA tests. Just a little background: My husband (82 years old) is going through his radiation treatments (44) and is half way through with no side effects so far. I just found out today that they are not going to check his PSA…
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2 year checkup results
I went in to the doc for my 2 yr post davinci surgical checkup. Doc says things are fine.......... one thing concerned me, two previous (6 months and 12 month) PSA values were < 0.06 Mondays PSA reading was 0.1 ........... Doc indicates that they are one and the same, and that its "zero". I have used the same lab every…
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Newly Diagnosed
Hi All, I've been reading since last night and find all of your input very informative. Thanks. I was just diagnosed this past week, and My wife and I are just trying to digest things and begin talking about a path forward. As a result of my GP finding a bump, I had a needle biopsy with the following results: Right base,…
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post IMRT treatment
always good to post good news. originally had r/p in Sept. 2003 and had recurrence. i am 4 months post imrt treatment and got my second psa test result back yesterday. another significant drop in psa. now down from 2.6 to 1.7. just before treatment it was 5.1. next test will be in December. so far it looks like they hit…
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Newly Diagnosed
Hi All, I've been reading since last night and find all of your input very informative. Thanks. I was just diagnosed this past week, and My wife and I are just trying to digest things and begin talking about a path forward. As a result of my GP finding a bump, I had a needle biopsy with the following results: Right base,…
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Choosing Cyberkife, awaiting insurance OK
After PSA scores of 6.2 and 8.1 in July and August, I went for the biopsy. It showed four out 12 samples positive with the highest percentage of 20% and the other 3 at 5-8%. Urologist sounded like he was leaning towards IMRT for 45 days. After a lot of reading, it seemed like the cyberknife procedure consisting of 5 days…
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NIH Panel Endorses Active Monitoring/Delay of Tx for Low Risk PCa
http://www.cancer.gov/newscenter/pressreleases/2011/ProstateSurveillanceStateScience PANEL ENDORSES ACTIVE MONITORING AND DELAY OF TREATMENT FOR LOW-RISK PROSTATE CANCER, URGES FURTHER RESEARCH TO CLARIFY MANAGEMENT STRATEGIES: The National Cancer Institute at the National Institutes of Health (NIH) Press Release: An…
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psa stays at higher level
Had Gleason 8 stage 4 131psa in October 2000 had prostectomy in December 2000. Been off and on hormone shots since then. Always reduced psa to lowest level. Had hot flashes etc. Read an article out of Canada in 2001 about finesteride to lessen flashes. Worked well for me. Latest psa I September 2011 was 6.8. Had shot and…
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I got a lower PSA
It is with joy that I inform my fellow survivors of the last PSA test which come as 0.02 ng/ml (testosterone at 32). This is lower than the previous value of 0.03 in Aug 2011 (T=33). I am now at the one-year mark since the start of hormonal treatment with a successful mono blockade of Eligard 6-month shot. This autumn my…
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Hormone therapy & Blood Clots
I just read an article about a study of 154,000 men with PC. Those who had hormone therapy had double the rate of blood clots in the veins, arteries or lungs as those who did not have the hormone therapy. Any thoughts on this?
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Everything is positive because it''s negative?
Okay, dad got his bone scan and the other scan results back today and both were negative, so he is a happy camper, and I am too. I could hear him in the background as my stepmom talked to me, with the "whoohoo!' going on. :) I know the feeling..At least twice. Now they are saying they want to do radiation and hormone…