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I'm new here
Hi. I just joined the CSN today. I am a 37 year old caregiver to my mother who has been living with stage IIIC ovarian cancer for over 6 years now. Mom moved in with us right BEFORE her initial diagnosis which, in retrospect, was a blessing b/c she has been in our care since the beginning. Over the years, she has had 6…
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Results after surgery
Good Morn..all, I had the second look surgery along with hysterectomy on 4/22 I am slowly healing from the abdominal incision.Although it was questionable as to the need for further surgery i decided to follow my Dr's expertise as to the normal standard of care.Fortunately it was a good call in retrospect.After removing…
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Ritalin???for chronic fatigue/quality of life
Hi- My internist wants me to try taking a small daily dose of ritalin to help combat the severe fatigue and pain. I'm currently on neurontin, clonazepam, and trazadone. She said it is being used to help with the chemo toll and lingering fatigue. ACS did have some current research re: this issue and that was helpful. Just…
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Relationship problems and cancer
I am having problems with my marriage as I go through chemo for PPC. I feel like I have to tiptoe around him so as not to upset him. I am halfway through my treatment and my husband does not know how to support me. He was utterly devasted when I got diagnosed and it was me who tried to comfort him. It was me that said to…
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Need help deceiphering terms! : /
The message from my doctor said I have a large complex lesion on my right ovary. He also said there was some fluid above the right ovary. I'm supposed to call him Monday morning to discuss the next step. Can any of you ladies help me with what this is or means? I also found out that I have three enlarged nodes in my neck.…
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Att Bonnie
Bonnie would you mine if i get your e address mine is snookie43@cox.net
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Libby's 2nd Opinion
Ladies, This may be too long, sorry. Okay, my husband and I went for my 2nd opinion last Thursday to THE JAMES - Ohio State is a Comprehensive Cancer Center designated by the National Cancer Institute. I saw Dr. Larry Copeland who is the Chair, Department of Obstetrics and Gynecology, Professor of Obstetrics and Gynecology…
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got a wonderful suprise
My niece Connie and her chldren came from Tucson yesterday and decorated my yard with posters and things for Mother's day, they all sang Happy Aunts day to you Wish i knew how to upload pic here would show you all. Happy Mother's Day to all
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Prayers for My Mom
Hi Everyone, I just returned from NY..came back a little early...needed a break...My sister has taken over. Mom's 3 month check up is Thursday. They are taking her blood and CT scan. Then she meets next week with her doctor to go over the results. Mom is terrified. I can't blame her. She looks great. She is up and around…
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LeesaG Where are you?
Good Morning, Leesa how are you doing? How many chemo treatments do you have left? I saw Dr. Rosenshein in April and he graduated me to every 6 monthes with him. That was a big step. He is a tough old bird. I still have not asked him why he sent everybody else flowers after surgery, but me. Love You, Paula
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We Are Missing Our Senior Ladies
Good Morning, We are missing our 3 senior ladies very much on this discussion board. That would be Saundra, BonnieR, and LPack. I know 2 of you are recovering from surgery. Hope you get well fast. I am having trouble fielding all of these posts. You 3 ladies answered everyone's post. I need help. We need you back. I hope…
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Post chemo living
Hiya everyone Just thought I would ask a few questions about living after chemo. My chemo finished March 26th and I am slowly getting my strength back. 1. I am conscious of having put weight on and can no longer fit into my pre-cancer clothes. I have tried to lose weight but it is not happening. Is this normal in your…
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Answers that I don't seem to get from my Drs.Can anyone advice?
I was just diagnosed with OC Stage 3 March 30,2010. Had complete hsterecmy,they placed a mediport abdonminal. My first week of Taxol and Carboplatin, was horriffic.The port leaks and I have what they call diabetic veins, so my left arm is all bruised. I am wondering if there is someone who is going through or gone through…
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CA 125 holding steady
Had my labs drawn yesterday and my CA125 is still a 6. That's two months in a row, both drawn after I had completed my first round chemo treatments (6 infusions of Carbo/Taxol). Six may be my nadir. I am NED and doing a year of (monthly) Taxol maintenance. Carlene
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'Vegetative Growth'? What the heck is that?
Anyone know what that means? Got a report back from a pelvic ultrasound and never saw that term before. Of course I will ask my oncologist just wondered if anyone had heard of it before. I think it's on the cyst they found but apparently it hadn't shown up in the previous scan. Vegetative? What, am I growing broccoli in…
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No News is Good News... I Hope!
I have never been one to worry. I'm the laid back problem solver. I went to my GP last Thursday for my annual health check-up. As I was getting up to leave, he mentioned I looked tired and asked if everything was ok. I told him I think life's daily dealings have caught up to me and I have been having a few issues but…
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Why is it difficult for lab to grade my OV stage 1A Cancer
Lab say it a problem to grade my stage 1A OV cancer so now we have to be cautious and say its a grade 3 and do chemo
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Tamoxifen for biochemical-recurrent ovarian cancer
new research that came out this month: "Tamoxifen may be a reasonable treatment alternative for patients with biochemical-recurrent ovarian cancer," concluded Dr. Jean Hurteau and his coinvestigators from the Gynecologic Oncology Group (GOG). But he cautioned that the findings need to be validated in other randomized…
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losing my mom & fighting the same disease she has.
i lost my mom is december of 2008, to ovarian cancer. i was diagnosed a few years after her, at 16 and we were never very close but now having lost her, i find myself in a struggle sometimes to find anyone who truly understands. i have an amazing support system, but there is only so much a person can support if they don't…
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Avastin
Hi, I've been diagnosed with ovarian cancer 2 years ago - and at this point I seem to be doing ok. After taking several types of chemo (changed due to allergic reaction) - I am now on Avastin. Has anyone taken Avastin for more that 3 months? My CA125 had gone down to 23 and now it has gone up to 39. My doctor said not to…
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What did your gut tell you???
Just curious if any of you ladies had a "gut feeling" after your tvus before you got the results. I normally have tests done and feel positive that the tests will show everything is fine. I can't shake this feeling that I'm not going to get the news I'm hoping for this time. Had a CT scan on my neck Monday for a (rock…
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chat is back up
Hi all, A new CSN chat was launched this afternoon. Hope you will check it out. Best, Greta Your CSN staff
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Geting nervous again!
Hi to all, I have been reading all of the posts almost everyday and eventhough I don't respond often, I still am delighted to have a place to go that is so open and honest about what we are going through. I just wanted to say that I have bloodwork again in about 10 days and I am getting so nervous about it I can't sleep. I…
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NOCC
The National Ovarian Cancer Coalition is a non-profit group that promotes awareness and supports research for Ovarian Cancer. They have local chapters throughout the US and most sponsor an OC walk/run annually. They also post information on clinical trials, legislation, etc that focuses on OC. My doctor asked me to sign up…
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Surgery Hernia
Just wondering if anyone has gotten a a hernia after surgery? I had surgery in July 2009 and finished my chemo in December 2009. Today I went to the DR. for a bump right on the side of my scar. He told me that it is very common after surgery to get this type of hernia and that it would have to be removed if it gets any…
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more bad news so depressed
Got blood drawn today, doctor just called, all bloods levels has fallen yet again, was suppose to get chemo this week, now i have to go 4 days in a row and get neupagen shots yet again , this will be my third set of themn, this time i have to get 4 in a row instead of 3. it has now been 10 weeks since i have had chemo, my…
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information at pubmed
I read about a website called pubmed. there you can read abstracts of studies. my sister is in a study with avastin and i find it helpful to look at pubmed. best wishes to all
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Facebook
Hi ladies, hope your all doing good! If anyone is on facebook and would like to be my friend, please send me a message/link to you FB page and I will add you so we can keep in touch outside the ovc board. :) Have a good day.
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Getting Your Strength Back
Hello Ladies, I was just wondering how long it takes to get your strength back after chemo. It has been almost 1 year since surgery, June 2009, and 6 monthes since my last chemo treatment. I have been walking twice a day, but I get very tired. I am wondering if I will ever be has strong as I was before. The real test will…
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How's Saundra?
Hi All, Haven't heard from Suandra in awhile..anyone know how she's recovering?