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Answers that I don't seem to get from my Drs.Can anyone advice?
I was just diagnosed with OC Stage 3 March 30,2010. Had complete hsterecmy,they placed a mediport abdonminal. My first week of Taxol and Carboplatin, was horriffic.The port leaks and I have what they call diabetic veins, so my left arm is all bruised. I am wondering if there is someone who is going through or gone through…
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CA 125 holding steady
Had my labs drawn yesterday and my CA125 is still a 6. That's two months in a row, both drawn after I had completed my first round chemo treatments (6 infusions of Carbo/Taxol). Six may be my nadir. I am NED and doing a year of (monthly) Taxol maintenance. Carlene
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'Vegetative Growth'? What the heck is that?
Anyone know what that means? Got a report back from a pelvic ultrasound and never saw that term before. Of course I will ask my oncologist just wondered if anyone had heard of it before. I think it's on the cyst they found but apparently it hadn't shown up in the previous scan. Vegetative? What, am I growing broccoli in…
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No News is Good News... I Hope!
I have never been one to worry. I'm the laid back problem solver. I went to my GP last Thursday for my annual health check-up. As I was getting up to leave, he mentioned I looked tired and asked if everything was ok. I told him I think life's daily dealings have caught up to me and I have been having a few issues but…
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Why is it difficult for lab to grade my OV stage 1A Cancer
Lab say it a problem to grade my stage 1A OV cancer so now we have to be cautious and say its a grade 3 and do chemo
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Tamoxifen for biochemical-recurrent ovarian cancer
new research that came out this month: "Tamoxifen may be a reasonable treatment alternative for patients with biochemical-recurrent ovarian cancer," concluded Dr. Jean Hurteau and his coinvestigators from the Gynecologic Oncology Group (GOG). But he cautioned that the findings need to be validated in other randomized…
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losing my mom & fighting the same disease she has.
i lost my mom is december of 2008, to ovarian cancer. i was diagnosed a few years after her, at 16 and we were never very close but now having lost her, i find myself in a struggle sometimes to find anyone who truly understands. i have an amazing support system, but there is only so much a person can support if they don't…
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Avastin
Hi, I've been diagnosed with ovarian cancer 2 years ago - and at this point I seem to be doing ok. After taking several types of chemo (changed due to allergic reaction) - I am now on Avastin. Has anyone taken Avastin for more that 3 months? My CA125 had gone down to 23 and now it has gone up to 39. My doctor said not to…
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What did your gut tell you???
Just curious if any of you ladies had a "gut feeling" after your tvus before you got the results. I normally have tests done and feel positive that the tests will show everything is fine. I can't shake this feeling that I'm not going to get the news I'm hoping for this time. Had a CT scan on my neck Monday for a (rock…
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chat is back up
Hi all, A new CSN chat was launched this afternoon. Hope you will check it out. Best, Greta Your CSN staff
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Geting nervous again!
Hi to all, I have been reading all of the posts almost everyday and eventhough I don't respond often, I still am delighted to have a place to go that is so open and honest about what we are going through. I just wanted to say that I have bloodwork again in about 10 days and I am getting so nervous about it I can't sleep. I…
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NOCC
The National Ovarian Cancer Coalition is a non-profit group that promotes awareness and supports research for Ovarian Cancer. They have local chapters throughout the US and most sponsor an OC walk/run annually. They also post information on clinical trials, legislation, etc that focuses on OC. My doctor asked me to sign up…
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Surgery Hernia
Just wondering if anyone has gotten a a hernia after surgery? I had surgery in July 2009 and finished my chemo in December 2009. Today I went to the DR. for a bump right on the side of my scar. He told me that it is very common after surgery to get this type of hernia and that it would have to be removed if it gets any…
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more bad news so depressed
Got blood drawn today, doctor just called, all bloods levels has fallen yet again, was suppose to get chemo this week, now i have to go 4 days in a row and get neupagen shots yet again , this will be my third set of themn, this time i have to get 4 in a row instead of 3. it has now been 10 weeks since i have had chemo, my…
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information at pubmed
I read about a website called pubmed. there you can read abstracts of studies. my sister is in a study with avastin and i find it helpful to look at pubmed. best wishes to all
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Facebook
Hi ladies, hope your all doing good! If anyone is on facebook and would like to be my friend, please send me a message/link to you FB page and I will add you so we can keep in touch outside the ovc board. :) Have a good day.
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Getting Your Strength Back
Hello Ladies, I was just wondering how long it takes to get your strength back after chemo. It has been almost 1 year since surgery, June 2009, and 6 monthes since my last chemo treatment. I have been walking twice a day, but I get very tired. I am wondering if I will ever be has strong as I was before. The real test will…
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How's Saundra?
Hi All, Haven't heard from Suandra in awhile..anyone know how she's recovering?
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curry, anyone?
This posted today on ovariancancer.org http://www.ovariancancer.org/2010/04/30/curry-spice-aids-cancer-treatment/ can't hurt to try but I don't know any recipies. Curry spice 'aids cancer treatment' (UKPA) – 1 day ago A curry spice ingredient can make ovarian cancer more responsive to treatment, scientists have shown.…
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Stress on caregivers
Ladies, I need your help... I am at my wits end. My mom is a mess. She had exploratory surgery in December - docs said the cancer was too extensive to operate, wanted her to do chemo first then the hysterectomy. She had 4 of her 6 chemos - CA125 went fronm 1200 at her first surgery down to 25 after the third chemo (not…
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Doxil info please
I will be starting Doxil soon and I would like to hear from ladies who have been on it. What side effects did you experience? Did your hair thin at all? My main concern is the hand & foot problems. I just recently started knitting and I'm afraid I'll have to give it up for a while. Thanks ladies! Blessings to each of you…
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Understanding CA125 levels & Other Info
http://www.wcn.org/downloads/CA125levels.pdf This is a link to a brochure produced by the Gynecologic Cancer Foundation. I thought it was very helpful in terms of understanding exactly how CA125 levels can be interpreted. This is the link I followed to get there: http://www.wcn.org/materials/edu_ovarian.html (Woman's…
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Home from the Hospital....
Hi, everyone, I ended up in the hospital last Monday afternoon... got home last night. I couldn't poop; and it was EXTREMELY painful! I couldn't even stand up straight. They tried suppositories & GoLytelly, each 3 or 4 times. Finally on day 5 they used a water enema (gross, huh?), and it worked. (I never thought in my life…
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Help Me
I am so depressed, 9 weeks today since I had chemo. So depressed. My husband is being grouchy, I wanted to go stay with my sister for a few days I had told her I wanted to make her my power of attorney and change it from him, he siad if I try to do that he will take me to court and prove me imcompitent. I am so stressed…
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ca125
Well, my level jumped from 19 to 32 in 3 weeks. I haven't spoke with the doctor yet so I don't know what the plan is.
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Clinic Visit Updates
God's morning to all! Thought I should stop by and update you all on my clinic visits yesterday was... labs are low .. everything from immune system to platelets. My gyn/onc said if they keep dropping or don't start coming up he'll refer me to a hemotologist, going to recheck them next week, and then appt made to see him…
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Doctors are smiling
I got the best news I could of received.....NO CANCER! The Gyne/Onc walked into the waiting room with the biggest smile on his face (according to my husband) and said "I have good for you". My Gyne of over 30 years came to my room later the next day and said "I thought I would never be having this conversation with you, I…
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Ladies who are currently fighting a recurrence...
I'm wondering if you are having symptoms. I've been relatively symptom free since my confirmed recurrence in Dec. '09. For the past week or so I've been having lots of gastrointestional symptoms. Nothing too bad...diarreha, stomach just not feeling good and increased gas. I can help but wonder is the cancer or is it the…
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Good News
Saw dr yesterday, blood has finally came up, get chemo next week, instead of going every 3 weeks will go once a week for 6 weeks, smaller does. He said they reaction i had with my blood does not happen very often and the smaller does should make it not happen agan. He also siad he is 95 percent positive if he were to give…
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Libby
How are you? I saw your recent post. Wondering what is happening with your treatment. Nancy