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CA 125 holding steady

Hissy_Fitz
Hissy_Fitz CSN Member Posts: 1,834 Member
edited March 2014 in Ovarian Cancer #1
Had my labs drawn yesterday and my CA125 is still a 6. That's two months in a row, both drawn after I had completed my first round chemo treatments (6 infusions of Carbo/Taxol).

Six may be my nadir.

I am NED and doing a year of (monthly) Taxol maintenance.

Carlene
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Comments

  • kayandok
    kayandok CSN Member Posts: 1,202 Member
    #2
    Love the number!!
    Yay!!!
    kathleen:)
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  • COOK1313
    COOK1313 CSN Member Posts: 28
    #3
    Congrats!!! I can remember
    Congrats!!! I can remember when my husband's granmother would get good news after that draw. She said it was better than Christmas morning when it was good news!
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  • Unknown
    Unknown
    #4
    COOK1313 said:

    Congrats!!! I can remember
    Congrats!!! I can remember when my husband's granmother would get good news after that draw. She said it was better than Christmas morning when it was good news!

    This comment has been removed by the Moderator
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  • BonnieR
    BonnieR CSN Member Posts: 1,526 Member
    #5
    Amazing
    Dear Carlene, that is amazing ~ congratulations. Hugs ♥ Prayers Bonnie
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  • Disneynutt
    Disneynutt CSN Member Posts: 134 Member
    #6
    How wonderful for you.
    How wonderful for you. That's just great.
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  • cancer survivor x 4
    cancer survivor x 4 CSN Member Posts: 177
    #7
    Wonderful
    Charlene,
    it is the most wondefrul feeling in the world. Another month with no problems. I will be NED 1 year in 35 days. Thank-You, Paula
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  • nancy591
    nancy591 CSN Member Posts: 1,027 Member
    #8
    Congrats
    GREAT news!!
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  • hockeygolf7
    hockeygolf7 CSN Member Posts: 52
    #9
    Congrats on the number. I
    Congrats on the number. I had mine drawn and eventhough it went up a bit still in the normal range. So I am blessed again. Here's to low numbers and great days.
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  • lindaprocopio
    lindaprocopio CSN Member Posts: 1,980 Member
    #10
    hockeygolf7 said:

    Congrats on the number. I
    Congrats on the number. I had mine drawn and eventhough it went up a bit still in the normal range. So I am blessed again. Here's to low numbers and great days.

    WONDERFUL!
    My oncologists don't believe in maintenance chemo, but it sure seems to be working for you!! I am so happy for you!! Celebrate!
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  • LPack
    LPack CSN Member Posts: 645
    #11
    GREAT!
    Wonderful news for you. Get on those dancing shoes!!

    Living for Eternity,
    Libby
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  • Tina Brown
    Tina Brown CSN Member Posts: 1,036 Member
    #12
    lindaprocopio said:

    WONDERFUL!
    My oncologists don't believe in maintenance chemo, but it sure seems to be working for you!! I am so happy for you!! Celebrate!

    Good news
    Hi Carlene what great news I am so pleased for you.

    Linda I just love your new proflie picture :)

    Tina xxx
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  • MK_4Dani
    MK_4Dani CSN Member Posts: 314 Member
    #13
    WOO HOO
    Keep on dancing Carlene!
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  • kathryn1
    kathryn1 CSN Member Posts: 88 Member
    #14
    CA-125
    That's wonderful!!!!!
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  • Hissy_Fitz
    Hissy_Fitz CSN Member Posts: 1,834 Member
    #15
    lindaprocopio said:

    WONDERFUL!
    My oncologists don't believe in maintenance chemo, but it sure seems to be working for you!! I am so happy for you!! Celebrate!

    Linda....great photo.
    Some
    Linda....great photo.

    Some doctors - not just yours - are not believers when it comes to maintenance chemo. They are all a bit different. My doctor does not do "second look" surgeries. He does not do nearly as many IP ports/treatments as he used to, though other doctors almost always prescribe it. I was very upset, and considered changing doctors, when he refused to give me IP chemo. I think there is a fine line between trusting one's physician and being your own advocate, and I think it's perfectly okay to seek out a doctor who utilizes a treatment plan you have confidence in. It is, after all, our lives we are talking about and I firmly believe we get the final say-so.

    My doctor does not recommend maintenance for everyone, and he leaves it totally up to the patient when he does. He told me straight up that there is no evidence it will prolong my life, but the trial was terminated early, even though it showed promise, so there isn't any evidence contraindicating it, either. He has had some success with it in his practice, he beleives.

    I have 10 more infusions to go, so only time will tell if it is working for me or not. And even if I stay NED, we'll never know....I might have kept the beast at bay even without the extra Taxol. It hasn't been hard on me (so far), and I didn't want to find myself doing the whole "what if" thing later, had I declined the maintenance and suffered a recurrence.

    Carlene
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