Covid Vaccine

dtat67
dtat67 Member Posts: 32 Member
in Lymphoma (Hodgkin and Non-Hodgkin) #1

Probably a dumb question but has anyone had issues with the Covid Vaccine after having NHL and treatment. My DLBCL was in my right sinus which left a pretty large sinus void where tumor was and hope it doesn't cause me issues. I'm scheduled for my first shot this afternoon.

Peace

Comments

  • dtat67
    dtat67 Member Posts: 32 Member
    edited January 2021 #2
    Well, I got the first shot

    Well, I got the first shot today and so far all is well. Hopefully that will be the case going forward. 

  • po18guy
    po18guy Member Posts: 1,508 Member
    #3
    My understanding is...

    That if you did not have a reaxction to it by now, you probebly will not have. It is not 100% effective (no medicine or vaccine is), so whether or not boosters will be needed is something to be answered in the future. 

  • Max Former Hodgkins Stage 3
    Max Former Hodgkins Stage 3 Member Posts: 3,819 Member
    #4
    Vaccine

    dt,

    My view is that getting any vaccine is better than not.   The COVID vaccine is rated at 90% or higher effectiveness, which is much higher than most annual flu shots, and well above the FDA requirement for effectiveness.    Not only all vaccines, but even all medicines of any sort, potentially have side-effects,  just not very common ones.

    I cannot get the shot because I am 64 currently, and SC is requiring lay citizens to be 70 or older to schedule at the moment.  \

    Covid used to be a disease; now, it is an industry 

     

    don

  • Rocquie
    Rocquie Member Posts: 869 Member
    edited January 2021 #5
    Max Former Hodgkins Stage 3 said:

    Vaccine

    dt,

    My view is that getting any vaccine is better than not.   The COVID vaccine is rated at 90% or higher effectiveness, which is much higher than most annual flu shots, and well above the FDA requirement for effectiveness.    Not only all vaccines, but even all medicines of any sort, potentially have side-effects,  just not very common ones.

    I cannot get the shot because I am 64 currently, and SC is requiring lay citizens to be 70 or older to schedule at the moment.  \

    Covid used to be a disease; now, it is an industry 

     

    don

    Waiting

    A couple of weeks ago, I was able to sign up on a waiting list for the covid vaccine. This morning, I found out I am number 10,900 on this list.

    Good luck to us all,

    Rocquie

     

  • dtat67
    dtat67 Member Posts: 32 Member
    edited March 2021 #6
    Thought I would update on this issue

    I received my 2nd Covid vaccine (Moderna) on 2/25. I was scheduled for a followup CT scan (STN) for my 2 year checkup on 3/19 with a followup on 3/25 to discuss the results. This would have been 3 weeks since the last shot. I got a call from my Oncologist office to tell me that they would like me to postpone the CT scan appointment for another 2 weeks because there have been instances of swollen lymph nodes cause by the vaccine. It seems that the swelling is not to the point that you can feel it but enough to be "false positive" on the CT scan.

    I'm thankful that my caregivers are proactive enough to suggest this change.

    Peace

  • ShadyGuy
    ShadyGuy Member Posts: 923 Member
    edited March 2021 #7
    Evarista said:

    Routine Screening Mammograms too

    This swelling of regional nodes has been reported extensively, particularly after the 2nd shot.  My breast center (NCI-designated canter center) is now rescheduling routine screening mammograms to at least 6 weeks post 2nd vaccine.

    Hi Evarista

    Is that true for all four vaccines? I had both Pfizer shots with no noticeable effects. However my sisters in law (2 of them) and one brother in law all got quite ill after the second Pfizer shot. I received the second shot March 6 and have a cancer checkup on April 9. Hopefully no swollen glands from the shots to complicate things.

  • twowheels
    twowheels Member Posts: 31 Member
    #8
    Evarista said:

    Routine Screening Mammograms too

    This swelling of regional nodes has been reported extensively, particularly after the 2nd shot.  My breast center (NCI-designated canter center) is now rescheduling routine screening mammograms to at least 6 weeks post 2nd vaccine.

    Me (sample size of one) experienced Lymphadema at ground-zero

    Dbl vaxed w/Moderna in left delt but if I had to do again, I'd receive the shots in my thigh.  (I chose left axilla to satisfy an itch explained below).
    Within 8hrs of shot, remaining nodes in left axilla (where I was biopsied) eventually enlarged to size of chick peas and became sensitive (painful to the touch).
    Took almost two weeks after 1st dose and same timeline after 2nd dose for nodes to return to their unique post-trtmnt size.

    Background/Depth: Original lumps that first gave me suspicion of Lymphoma were in this left axilla. (hence "ground zero")
    They were stone-like (and the size of half-domed golfball) by time I was biopsied.

    The two ("grossly enlarged" per the radiologist) nodes left after surgical biopsy remained stone-like thru the 5th cycle before they began to shrink and soften to consistency of firm green peas (and how they remain to this day).
    ***All other bumps, lumps (I had a LOT of them) melted away/vanished before my 3rd cycle (of 6)***
    Interim Pet (after 2nd cycle) and final PET (3mths after trtmnt) indicated no SUV activity.


    When I asked if these specific axilla nodes continue to "function" to fight infection, I recall a muddled answer (My thought, if they work great, if not, let's remove them with radiation).
    I think I got my answer  - they function (selecting the left delt to recv vax was just for that reason... to see if those nodes function - though warily cognizant of poking the bear)


  • Evarista
    Evarista Member Posts: 336 Member
    #9
    ShadyGuy said:

    Hi Evarista

    Is that true for all four vaccines? I had both Pfizer shots with no noticeable effects. However my sisters in law (2 of them) and one brother in law all got quite ill after the second Pfizer shot. I received the second shot March 6 and have a cancer checkup on April 9. Hopefully no swollen glands from the shots to complicate things.

    Clarification

    Not sure, Shady, but at least the two RNA vaccines.  However, I should have said "Routine screening mammograms" in my post above and I have corrected it to reflect that.  Here's a good (IMO) summary from MD Anderson:  https://www.mdanderson.org/cancerwise/7-things-to-know-about-the-covid-19-vaccine-mammograms-and-other-diagnostic-imaging-tests.h00-159459267.html

    This is not the same as suggesting that everyone reschedule everything.  Circumstances will vary and following the advice of your own medical team is probably the way to approach this.  

  • Evarista
    Evarista Member Posts: 336 Member
    #10
    dtat67 said:

    Thought I would update on this issue

    I received my 2nd Covid vaccine (Moderna) on 2/25. I was scheduled for a followup CT scan (STN) for my 2 year checkup on 3/19 with a followup on 3/25 to discuss the results. This would have been 3 weeks since the last shot. I got a call from my Oncologist office to tell me that they would like me to postpone the CT scan appointment for another 2 weeks because there have been instances of swollen lymph nodes cause by the vaccine. It seems that the swelling is not to the point that you can feel it but enough to be "false positive" on the CT scan.

    I'm thankful that my caregivers are proactive enough to suggest this change.

    Peace

    Routine Screening Mammograms too

    This swelling of regional nodes has been reported extensively, particularly after the 2nd shot.  My breast center (NCI-designated canter center) is now rescheduling routine screening mammograms to at least 6 weeks post 2nd vaccine.

  • ShadyGuy
    ShadyGuy Member Posts: 923 Member
    #11
    Evarista said:

    Clarification

    Not sure, Shady, but at least the two RNA vaccines.  However, I should have said "Routine screening mammograms" in my post above and I have corrected it to reflect that.  Here's a good (IMO) summary from MD Anderson:  https://www.mdanderson.org/cancerwise/7-things-to-know-about-the-covid-19-vaccine-mammograms-and-other-diagnostic-imaging-tests.h00-159459267.html

    This is not the same as suggesting that everyone reschedule everything.  Circumstances will vary and following the advice of your own medical team is probably the way to approach this.  

    Thank you

    Good! I am so busy I do not wish to reschedule. Just finished an overnight trip to Duke. I want to stay away from doctors and hospitals for a while.

  • Max Former Hodgkins Stage 3
    Max Former Hodgkins Stage 3 Member Posts: 3,819 Member
    #12
    Pfizer

    I got my first Covid vaccine yesterday, the Pfizer version. Secheduled for dose II in about three weeks.   It was quick and easy, and zero side-effects thus far.

    I have had serious Lymhadenopathy for at least six months now, due to an autoimmune condition known as P.T.G.C., so I WILL continue to have widespread enlarged nodes.  It will be interesting if anything much happens or changes, short term.

    While my charts have been marked "Autoimmune Compromised" for many years, I have not had the flu in ten or more years, virtually never get even mild colds, and never got COVID, despite working full-time in public throughout the shutdown.  I am thankful, of course.   But the sky is not falling.

  • PBL
    PBL Member Posts: 369 Member
    #13
    Definitely not spectacular...

    I had my first Pfizer shot one week ago today. Standard-issue slightly sore arm for not even 24 hours. I did develop a little rash in elbow fold the next day - but that may be coincidental.

    This morning was my standard follow-up abdominal and pelvic ultrasound. Not one even mildly enlarged lymph node in sight, apparently!

    I wonder whether my weakened immune system has reacted at all to that shot... I will raise the question with my hematologist at our next follow-up appointment in three weeks. May be interesting to check whether I have actually developed any antibodies. I would like to know whether I am protected at some point.

  • lindary
    lindary Member Posts: 711 Member
    edited April 2021 #14
    COVID vaccine

    My husband & I just got our second shot of the Pfizer vaccine. Arm a little sore, just like after the first shot. The only other thing was about 3 hours after the shot I was feeling bloated for a while. I'll see how the night goes.

  • dtat67
    dtat67 Member Posts: 32 Member
    #15
    Had my 2 year CT scan

    I had my two year CT scan last week and the Dr. was kind enough to "publish" the results online prior to my appointment next week. It looks like I am NED. Thankfully I have recovered from my initial treatment, Chemo (RCHOP) and Radiation, without another recurrence.  Nor sure what the future holds but I am thankful. Now going forward I hope my Bladder cancer cystosocopy comes back cool. 

    Like I tell my nephew - I'm 70 yo and I'm doing pretty good considering I have been diagnosed with two kinds of Cancer and am still doing well. I can only hope this is the case going forward but predicting the future is impossible. I am thankful for each and every day.

    Peace and Love,

    Dave

  • lindary
    lindary Member Posts: 711 Member
    #16
    lindary said:

    COVID vaccine

    My husband & I just got our second shot of the Pfizer vaccine. Arm a little sore, just like after the first shot. The only other thing was about 3 hours after the shot I was feeling bloated for a while. I'll see how the night goes.

    added note

    Second day wasn't too bad. I was achy and tired but not so much I couldn't do anything. I just limited what I did. Seems to be standard reaction for older women.  Intersting was that our youngest got her shots in Feb. She said she stayed in bed for about a day & half with the aches and tiredness.  

  • GGc0ok
    GGc0ok Member Posts: 54 Member
    edited April 2021 #17
    dtat67 said:

    Had my 2 year CT scan

    I had my two year CT scan last week and the Dr. was kind enough to "publish" the results online prior to my appointment next week. It looks like I am NED. Thankfully I have recovered from my initial treatment, Chemo (RCHOP) and Radiation, without another recurrence.  Nor sure what the future holds but I am thankful. Now going forward I hope my Bladder cancer cystosocopy comes back cool. 

    Like I tell my nephew - I'm 70 yo and I'm doing pretty good considering I have been diagnosed with two kinds of Cancer and am still doing well. I can only hope this is the case going forward but predicting the future is impossible. I am thankful for each and every day.

    Peace and Love,

    Dave

    Good News

    Good News, Congratulations!  That's wonderful news, your right thankful for each and every day. I go back in May for another 3 month checkup. I've got CLL/SLL its wait and monitor. I'm feeling good most days actually. I'm care giver for my hubby and I do get tired and stressed. But VA is going to help with Homecare for him which in turn will help me. 
    Again that's the best news ever NED

    Be well GG 

  • Max Former Hodgkins Stage 3
    Max Former Hodgkins Stage 3 Member Posts: 3,819 Member
    #18
    dtat67 said:

    Had my 2 year CT scan

    I had my two year CT scan last week and the Dr. was kind enough to "publish" the results online prior to my appointment next week. It looks like I am NED. Thankfully I have recovered from my initial treatment, Chemo (RCHOP) and Radiation, without another recurrence.  Nor sure what the future holds but I am thankful. Now going forward I hope my Bladder cancer cystosocopy comes back cool. 

    Like I tell my nephew - I'm 70 yo and I'm doing pretty good considering I have been diagnosed with two kinds of Cancer and am still doing well. I can only hope this is the case going forward but predicting the future is impossible. I am thankful for each and every day.

    Peace and Love,

    Dave

    High five

    Wonderful news, Dave.   Your results, and your attitudes, are the best

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