The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

News from my Dr appt Monday

MandaJarvis11
MandaJarvis11 CSN Member Posts: 37

Hey everyone! So my Doctor ended up finding another lump in my lymph nodes on the right side of my neck! :(

So now he chose to go the next step up and get me an MRI, I had a CT scan on the 15 of Feb but it didn't come out the best because I am allergic to the dye in the contrast they give you. So I wasn't able to use that. So I am praying that my MRI tomorrow will give me some answers. If he does not choose to give me a biopsy, I am going to go to a specialist 30 minutes out of town that specializes in head/necks and try and "demand" one. I just want the peace of mind at this point. 5 months is way to long dealing with this and I am getting fed up! And I whole heartedly believe that this is not an infection, if it is it has been going on 5 months with multiple antibiotics fighting it and still is there? I don't know.... I am kind of nervous for the MRI though! I am not a fan of confind spaces. I barely got through the CT scan. This is 5 x worse! Haha...but my boyfriend is going to make a playlist and have them play it through the headphones for me! I appreciate all the lovely thoughts/prayers/opinions you all have been giving me. So had my boyfriend! It's nice getting real stories and ideas from people who have generally went through the same thing! I will keep you posted on the results I am not sure when they will be back!

xo-Manda

Comments

  • Machir
    Machir CSN Member Posts: 32
    Scan

    Hi Manda.  Sorry to hear that you have been this long in finding out what you are dealing with.  I pray you'll get good news.  If you are worried about the confined space of the MRI your doctor can give you a perscription for a single tranquilizer.  I did my first PET scan without because of some misguided macho belief that taking a tranquilizer was giving in.  I got cured of that and have used them when I felt the need.  A CT is quick and fairly open...no need.  For MRI and PET scans I have sometimes asked for one.  I realize it's short notice for the idea.  You can do it without.  The music will help.  I hope all goes well.  God bless  Mac

  • jimwins
    jimwins CSN Member Posts: 2,107 Member
    Machir said:

    Scan

    Hi Manda.  Sorry to hear that you have been this long in finding out what you are dealing with.  I pray you'll get good news.  If you are worried about the confined space of the MRI your doctor can give you a perscription for a single tranquilizer.  I did my first PET scan without because of some misguided macho belief that taking a tranquilizer was giving in.  I got cured of that and have used them when I felt the need.  A CT is quick and fairly open...no need.  For MRI and PET scans I have sometimes asked for one.  I realize it's short notice for the idea.  You can do it without.  The music will help.  I hope all goes well.  God bless  Mac

    Welcome Mac

    Hi Mac.  Just wanted to welcome you to the site - great supportive folks here.

    Manda, hopefully you'll get some answers soon and I'm keeping my fingers, toes and eyes crossed for you :).  Please keep us posted and hang in there!

    Hugs to you both,

    Jim

     

  • Machir
    Machir CSN Member Posts: 32
    jimwins said:

    Welcome Mac

    Hi Mac.  Just wanted to welcome you to the site - great supportive folks here.

    Manda, hopefully you'll get some answers soon and I'm keeping my fingers, toes and eyes crossed for you :).  Please keep us posted and hang in there!

    Hugs to you both,

    Jim

     

    Thanks

    Jim, thanks for the welcome.  I can see that you have made an effort to support a lot of people here.  I'm impressed and you should be proud.  

  • cathyp
    cathyp CSN Member Posts: 379 Member
    Machir said:

    Thanks

    Jim, thanks for the welcome.  I can see that you have made an effort to support a lot of people here.  I'm impressed and you should be proud.  

    Good Luck with your MRI!  I

    Good Luck with your MRI!  I have had many and what helps me is to keep my eyes closed, no peaking!  I haven't had any problems with this method and have avoided meds.

    All the best,

    Cathy

  • anliperez915
    anliperez915 CSN Member Posts: 770
    cathyp said:

    Good Luck with your MRI!  I

    Good Luck with your MRI!  I have had many and what helps me is to keep my eyes closed, no peaking!  I haven't had any problems with this method and have avoided meds.

    All the best,

    Cathy

    Lol Cathy

    Lol Cathy, 

    I do the same thing, close my eyes (difinetly) no peaking! (((Hugs)))

    Sincerely,

    Liz

  • Cole74
    Cole74 CSN Member Posts: 23
    Hi Manda

    Hi Manda,

     

    I am so sorry you are going through this. I agree 5 months is way to long, waiting for answers.  I hope that all goes well with your MRI, please do keep us informed and I will be thinking of you and praying for you. Take care.!

     

    Nicole

    HD 1987

    Follicular carcinoma of thyroid 1999

    Currently waiting for DX 

  • jimwins
    jimwins CSN Member Posts: 2,107 Member

    Lol Cathy

    Lol Cathy, 

    I do the same thing, close my eyes (difinetly) no peaking! (((Hugs)))

    Sincerely,

    Liz

    Love the butterflies (mariposas)

    Hey Liz - love the mariposas but I loved the ten toes smiling too ;). I don't close my eyes during the scans which is unusal I suppose.  I don't like feeling confined and generally don't like small spaces.  I have been tempted to stick out my tongue and make faces at the video camera inside the machine but I don't want to give the technicians grief. I sometimes ask if I can get some salt and lime to go with the tequila like warm feeling from the dye.  

    Hugs everybody.