The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.
Non-Hodgkins T-Cell Lymphoblastic Lymphoma
Hi all,
I was diagnosed with Stage III pediatric T-Cell Lymphoblastic Lymphoma almost two years ago. I finish Maintenance in May. I went through induction, cosolidation, interim maintenance, delayed intensification, and now am in maintenance. Through induction, consolidation, and interim maintenance, I continued on the ALL protocol. During delayed intensification, I was diagnosed with avascular necrosis. My oncologists decided to stop my steroids. I underwent surgery for the AVN, but since it didn't show complete healing, I didn't get back on the steroids. I worry daily about relapse since I don't have steroids all through maintenance. Does anyone know of any studies or information about prognosis for people in my situation? I know there are always pros and cons to everything, but I worry about the risks associated with this.
Thanks!
Comments
-
Anything T-Cell is truly rare
A couple of resources, but T-Cell malignancies are so rare that we seem to be individual cases more than a population. Were you considered for transplant? As to any existing data, you might make contact at the:
T Cell Leukemia Lymphoma Foundation, as the founder is a research hematologist at Fred Hutchinson.
-
-
No relapse, no problem
Here is a link to a couple of presentations by two of the acknowleged experts in T-Cell Leukemias and Lymphomas. In the second, I believe that Dr. Pro specifically addresses T-ALL. As to steroids, you are most lieky better off without them. Yes, they do have a certain chemotherapeutic effect, but they suppress your immune system, making a relapse more likely. As always, it is a double-edged sword.
-
-
Discussion Boards
- All Discussion Boards
- 6 Cancer Survivors Network Information
- 6 Welcome to CSN
- 122.5K Cancer specific
- 2.8K Anal Cancer
- 456 Bladder Cancer
- 312 Bone Cancers
- 1.7K Brain Cancer
- 28.6K Breast Cancer
- 408 Childhood Cancers
- 27.9K Colorectal Cancer
- 4.6K Esophageal Cancer
- 1.2K Gynecological Cancers (other than ovarian and uterine)
- 13.1K Head and Neck Cancer
- 6.4K Kidney Cancer
- 681 Leukemia
- 803 Liver Cancer
- 4.2K Lung Cancer
- 5.1K Lymphoma (Hodgkin and Non-Hodgkin)
- 242 Multiple Myeloma
- 7.2K Ovarian Cancer
- 69 Pancreatic Cancer
- 493 Peritoneal Cancer
- 5.6K Prostate Cancer
- 1.2K Rare and Other Cancers
- 544 Sarcoma
- 743 Skin Cancer
- 659 Stomach Cancer
- 192 Testicular Cancer
- 1.5K Thyroid Cancer
- 5.9K Uterine/Endometrial Cancer
- 6.4K Lifestyle Discussion Boards