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Stge4 lung with mets to skull , neck, collar bone and pelvic
To 12 treatments of carboplatin , and alimta skunk primary, stable on bone mets , got sick ion nov . Too a break dec thru Debussy. Started tarceva in march, now dealing with side affects bad nausea , diahrea, rash getting better, lot of trouble with eating. No appetite.any one have these problems. Not eating and nausea my…
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It's growing. :(
Went for the results of the most recent ct. A portion of the tumor has started to grow. Certainly not encouraging news. From here, we test for the ALK mutation, and if positive, start crizotinib. If not, then it's pemetrexid. To say this was like a kick in the stomach is an understatment. My wife has been doing so well.…
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2nd lobectomy UPDATE
The 4-5 hour surgery that instead went 7 hours is now over and is a success! The surgeon removed the LLL, which turns out was not touching the aorta. However the tumor was creeping up into the airway and they were able to cut that part out and get to negative margins and stitch the ends back together. Also had to remove…
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2nd Lobectomy Friday the 25th
My husband is having his LLL removed on Friday. He had the RUL removed on Jan. 24th. We are ready, well, as ready as you can be when you know what's coming:-), thanks to all of the great advice and support we got from everybody on this board last time. The tumor is touching the aorta so this surgery is a little more dicey,…
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Anyone ever had an ablation?
My husband is scheduled to have an ablation on July 8 and I'm sort of wondering if any one has had it, what it was like. He's already had 3 surgeries, 6 chemo sessions and we're waiting on this. It was this or radiation and the "Tumor Board" at Sloan had 15 doctors agree that was the best way to go (15 doctors agreeing is…
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Thinking of you Stayingcalm!!!
Deb, just wanted to let you know that I, and many others, are thinking of you today. Sending prayers, positive thoughs, best wishes, mojo and whatever else it takes to see you through your surgery and recovery. You are the strongest woman I know and I'm sure you will come through all of this and be stronger than ever. We…
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Bronchoalveolar carcinoma - mucinous adenocarcinoma with BAC
Two weeks ago my wife was diagnosed with mucinous adenocarcinoma with BAC features. As the biopsy surgery wounds failed to heal and air kept leaking surgery was done Friday after MRI of the brain, CT scans of all other, and the bone scan were negative. The BAC appeared to be confined to the left lower lobe. Prior to the…
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tested negative negative on mutation test, could some one explain?
My Mom tested neg. on mutation test so they said she's not a canidate for the drug Tarceva. Does this mean she's not a canidate for any trial drugs at all? Could you explain this better to me please...
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Survival? Praying for my dad. Is it possible?
My Daddy was diagnosed with limited stage sclc. He just finished is first round of chemotherapy and will begin radiation after his second round. He has a tumor in his left lung and it seems we are very lucky that it hasn't spread. I am staying strong for my family but I have to admit I do have my "I want my Daddy!"…
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Chat Room
Didn't know where to post this, but is anyone else having trouble getting into the chat room??? For some reason, I can't get in. Darn, felt like talking this morning at 4:30 am when I couldn't sleep. Please let me know! Carole
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My mom has stage 4 lung cancer and no insurance any suggestions.
My mom has stage 4 lung cancer and no health insurance. She was turned down by our Government insurance Tenn Care here in the state of TN. Does anyone locally or not locally have any advice or information to help me out. Thanks and God Bless! Christy
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Hospice care and beyond
The time has come after a 2 year battle to think of comfort and spirituality. My husband is brave and he fought all the way, but injecting chemo into his spinal fluid with not much of a prognosis has left us with welcoming hospice care. life is so strange and I am so sad, but I know I have helped him through this battle.…
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stereostatic radiation
What is this?
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My Dad was just recently Diagnosed with NSCLC
My dad was diagnosed with NSCLC Adencocarcinoma said it is metastic. The tumor is in his left long and has moved to the right lung. they are doing a bone scan this week to see if it has spread to the bone. he is not able for sugery cause he is also in the 3rd stage of COPD. They said he is in stage 4 of his cancer. my…
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Rip Mommy- Your little girl misses you!
my mom passed away 2 weeks ago from breast cancer. i am 18 years old so yea im still young. i miss her very much, she was my best friend. i feel very lost without her. but i kno that i have to stay strong and be the woman she wanted me to be. but it is still hard. i am planning to do the cancer run in NY in october because…
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Bronchoalveolar cell carcinoma
Have just been diagnosed with bronchoalveolar cell carcinoma. Don't know too much about it right now, except it doesn't sound very nice. I have had a bout with breast cancer [2006], had non-hodgkins lymphoma twice [1989 and 2006], squamos cell cancer [2007], and now this. I will see a surgeon in a couple weeks and…
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Finished Taxol, Carboplatin and Avastin! NOW WHAT!?!?
Hi. Gary, husband, finished his treatment with those 3 drugs and 35 radiopathy treatments. Dr Moy, our oncologist surgeon did not like the idea of surgery. He said that it was an extremely difficult surgery to recover from and that it's possible that the cancer has spread anyway. But he's had pet scans that show that he…
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El Camino Hospital in Mountain View, CA
I heard about this the other day and because my sister-in-law is battling lung cancer I thought I would share this with you. This hospital appears to be on the leading edge relative to cancer treatment and has a video presentation you can view in their website: http://elcaminoinnovates.org I hope this is of some value to…
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Just Lost Mom-please help
I posted a comment a few moments ago...Is it Possible? If someone would please help. I lost my mother (62) to Lung Cancer on Jan. 13, 2011. At the same time I am dealing with my husband (42 years old) with breast cancer mets to all bones. If you would take the time to respond, it would help. Thank you.
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No Clinical Trials available to me? HELP
SCLC Clinical Trials - Does anyone know of any Clinical Trials going on right now in the US for Stage IV Small Cell Lung Cancer with Mets to the brain. I'll go anywhere anytime whatever it takes. My oncologist have gone through 180 trials and we thought I would be able to go to MD Anderson in Texas but there waiting on my…
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excessive drenching sweating several times a day
my husband was diagnosed with sclc august 2011. undergone chemo and radiation. 2 tumors in right lung that shrunk a little and have remained stable for 3 months. except fluid took over 3/4 of that lung (pleural effussion) . Lung drained and catheter inserted, For the last three weeks has profuse sweating on torso at least…
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Is it Possible? Please help me.
Hi, I am new to the board. I pray that someone could help me. My husband has breast cancer with mets to all the bones. I know this is the Lung Cancer section. I am thinking you can help me. As a caregiver, I feel that I am in the dark. I am so afraid and confused. When my husband was diagnosed with Breast Cancer Mets to…
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new here! Should we continue treatment
Hello everyone! Im kinda new to everything here. And it makes it hard bc my grandma is now battling lung cancer. She was diagnosed may 1 2010. She did 6 weeks of radiation and chemo and that was a struggle considering she is 83 years old. She went into remission after tx and now 5 weeks ago the cancer has came back. She is…
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turn for the worse
I had to have my husband admitted to the hospital yesterday. As usual he is confounding the docs--his CT scan shows much improvement of the brain lesions, but his behavior indicates otherwise. He is lethargic, confused, disoriented, hearing things that arent there, etc. He had to be sedated last night. They did an MRI this…
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port & chemo in the am
I get my port tomorrow morning and then go directly to the dr office to get my 1st round of chemo. It hit me I am scared to get the chemo. Silly me started reading all of the side effects and have now convinced myself I am going to have an allergic reaction to the Taxotere or Cisplatin. I have multiple drug allergies and…
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scared to death
two weeks ago I was diagnosed with invasive moderately differentiated adenocarcinoma.I am in stage IIIb and scared to death that I will not be able to overcome this infirmity. I saw a surgeon last week who did not recommend surgery and referred me to an oncologist for radiation therapy. Anyone out there who survived stage…
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New here....Port or not
Hi everyone. I was diagnosed with Sateg 1B adenocarcinoma. It is possible I am 2B because there may have been a satelite tumor in my lobe but there is no way to get confirmation of whether it was part of the original tumor or not. I had a RLL on 1/26. I now have to get 4 rounds of chemo...Cisplatin and Taxotere. I am not…
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Looking for Guidance~
A really good friend of mine who's 66 yrs was a big smoker from age of 15 yrs until probably last year. Over the past 7 years has had 5-way bypass surgery (still smoked), a few breathing stints where placed in hospital and last year put on mobile oxygen. Finally quit smoking as this last scare got to her. Presently living…
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Found out stages now treatment has begun
I love my husbands doctors no matter what they are positive and sure of what they can do. This makes us feel like they can do anything and we will give it a good try. I asked what stage my husbands cancer was in and was told stage 3 possibly 4 on his lung cancer. We were told it can't be cured but they are going to try to…
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Pleural Effusion after lobectomy
Hi, I am 6 weeks post-op for a right lower lobectomy. I have Stage 1B adenocarcinoma, nodule just touching the elastic of pleura. I had a CT scan done late last week since I am starting chemo next week. CT scan showed moderate pleural effusion. I am scheduled for a CT guided thoracentesis on Thursday. Has anyone had a…