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Lung Cancer

the journey is over
My husband Frank, who had ext sclc, passed this morning at around 5:25am. He had been in home hospice since March and sleeping/resting round the clock for the past few days. His breathing had been steady all night. I suddenly woke up and heard silence. At the same time the aide got up and looked at him, then called my…
Busy busy
I know I havent posted in awhile but I have been busy. Upon taking care of my dad, I study for school in what little spare time i have and also try to go to a friends house once acouple weeks. My dad which has stage 4 nsclc, is doing well. He went to his oncologist today which I am awaiting for his return to hear what kind…
My good friend has Stage IV lung cancer - what do I say to her and how can I help
A close friend was diagnosed in September with Stage IV NSCLC with mets to back, pelvis and leg. She did well with her chemo and was briefly in remission. Yesterday, after 3 rounds of maintenance chemo her scans showed the primary tumor growing as well as progression in other tumors. She will have radiation to try to help…
What did the doctor tell you??
Diagnosed with squamous cell (non-small) in right lung. A bunch of tumors lymph node involvement. This is a met from a previous neck cancer though one doc says it is acting like primary lung cancer. Responding extremely well to chemo. I know what the docs tell me about prognosis and what I read on the internet. I know…
Resistance to Crizotinib?
My mother was on the trial drug for 5 months and is now off it because she had drastic progression. She was stable for 5 months. Then the most recent scan was like a 180. My mom has stage IV NSCLC. Please let me know if anyone has also developed resistance and what have your treatment options been. My mom's oncologist…
dumb quesiton
Ok, this may be a dumb question... but here it goes. My dad has been getting radiation treatments every day for 2 weeks, and two rounds of chemo so far... how long before there can be any noticable changes to the size of his tumor? I ask because his tumor is in his mediastinum and causing a lot of pain/discomfort. He is…
what is it like to have a lung removed?
HI I have small cell lung cancer and maybe they suspect another kind, they have chemoed, radiation and I still have a tiny growth that is cancerous, they have done cts and pet scans and it all comes up the same. Any way, I wanted to know how long it took to be able to get around after they take my right lung. If anyone can…
Carcinoid tumor/ lung removal
I can't find much info on this so I'm hoping someone can help. I recently had my lung removed due to a carcinoid tumor. I am dealing with some odd post surgical pain and spasming. Does anyone have any insight as to what I should be expecting at 6 weeks post surgery. How long can I expect to have a frozen shoulder? Is there…
Protecting Assets
Does anyone know anything about protecting your assests from high medical bills and high cost of treatments?
Holistic or homeopathic treatments
Hi everyone, I am new to this board and to the dx of lung cancer. Just had the breast cancer taken care of in Feb. and now I have another... NSCLC. I am relieved it is not mets but still shaken with the news. I have not gotten staged yet, mediastinoscopy next week will tell. I am a young 54. I was just wondering if anyone…
small cell back so soon devestated
hi everyone my husband has limited small cell lung cancer. he was diagnosed in august of last year and finished his treatments (cisplatin and etopiside and 33 rad treatments to chest)in november he had pci in january he went for a scan while he was sick and it showed an inflammed lymph node as well as pleuaral fluid they…
Stage 4 with mets to bone and adrenal
At age 63;I was diagnosed March 24th with Stage 4 nsclc with mets to right pelvic bone and right adrenal gland and chest nodes. I have a large 8cm tumor in my lower left lung. I need another needle biopsy as the earlier one was inconclusive of the subtype (both squamous and adenosarcoma, but not sure) and they want more…
Happy Birthday
Happy Birthday Medi, A surivor with a great sense of humor. Wishing you many, many more.... Stay well .... Dan
Mark hands are like ice lately
Hey all, Lately (past week) Marks hands have been like ice and he is paler (if there is such a word) before he just looked "grey". Anyone experience this with only radiation? Also he told me that his blood sugar has been very low today and he is feeling wierd. He suggested to me that maybe "his pancreas has started working…
HAS ANYONE HAD THIS AFTER SURGERY?
I just underwent a VATS surgery where a wedge section of my left lower lobe was removed. (will be 1 week post op on Wed.) My chest tube was removed 2 days after the surgery, I am home now, and have had to have my Dr. change the dressing almost on a daily basis, due to what I'm terming as excessive drainage. I am curious if…
FaceBook
I think about this every now and then - are there many people here who have FaceBook accounts? I see there is a page for CSN (which I only realized because of Joe's photo =) ), but it doesn't seem to get much use... I know sometimes people are leery of having employers or prospective employers hearing they have cancer.…
husband just diagnosed with small cell lung cancer. had partial lung removed 3 years ago
3 years ago my husband had lung cancer. It was the non aggressive kind and they got it all. He's had semi annual check ups since. On his last Ct scan they found a spot. Last week a bronscopy revealed a tumor in the lymph node. The path report today comfirmed small cell lung cancer. He is undergoing scans to look for any…
son 17 has primary synvovial sarcoma in lung. Anyone else out there? It is so rare, I don't have mu
My son has just been diagnosed with primary synovial sarcoma of his r. lung. he is just 17 years old!!! Is there anyone else out there that has the same diagnosis? It is sooo rare and I don't have anyone else I can speak with that has the same thing. HELP!!!!
Out of unit
Husband is out of unit. One chest tube out and one to go and the patches for the leaks seem to be working. After the fun we've had the last 17 days they aren't taking them out at the same time. He's eating and up walking three times a day. Hoping soon we can "walk" out of here. Trying not to think of it. Today is our 1st…
Woman's Day article
Check out the nicely written article in the May issue of Woman's Day magazine.The article is titled "The Stigma of Illness". Talks about AIDS,Lung Cancer and Mental Illness.The woman does a great job relaying the stigma I've felt when people ask What kind of cancer do you have? Lung ca definitely gets less compassion than…
Taxol/Carboplatin
Looking for information/insight on Taxol/Carboplatin chemo regime. My father will begin a 6-10 week (depending on how much he can tolerate) plan next week. He will also have concurrent radiation treatments everyday for 7 weeks. He was diagnosed with stage 3a NSCLC, with an extensive tumor in his mediastinum. Tumor believed…
I expected too much..
Since Mark came home from the hospital last Thursday he had 4 good days. He restarted radiation on Monday and now it is bringing him down, fatigue. Real bad. Today is a bad day. We see the oncologist tomorrow. He is going to try and ask Mark "again" about trying to do chemo. I don't think Mark has changed his mind about…
angelyn i have a question for you???
hi angelyn, you had responded to me about my husband with the reccurence of small cell lung cancer and you said there was a new chemotherapy for small cell that was showing good results do you know the name of it can you give me any info on it? they told my husband to go to dana faber in boston because they had some…
NSCLC spread to the aorta and all throughout middle of chest and back, not in brain
Hello all, First thanks for all the messages. I am a bit quick witted and have good comeback's for him. Like I said we have a great relationship. Doctors appt went sort of well yesterday. Mark, being 6 foot now weighs at 121 lbs. His blood pressure was a bit low (had to do twice). Heart rate normal, temp 96.3. They tried…
NOT Home Yet
We were so close to leaving, but the good ol hubby hadn't had the prerequisite BM and you know you aren't going anywhere if you don't leave the goods. Enema and suppository didn't work their magic. Chest/abdominal x-ray turn into CT scans which revealed a collapsed lung. Now poopie no longer the big deal. They put in a…
lung tumor radiated
Anybody had their lung tumor radiated?????? Did it help??
GOING HOME!
The surgeon said we can go home tommorrow! Almost let us go today, but hubby finishing up IV antibiotics. No leaks-all tubes have been removed-down to just EKG and one IV in his port for antibiotics. Pathology report was almost identical to the first surgery on his RUL=same type of cancer, 2 lymph nodes at base of tumor…
Help for my parents
Hello all, My family just found out my father has lung cancer. To say the lest, we are devastated. We don't know the stage yet... he just had surgery last Friday, and they were unable to remove the tumor. So we are still waiting for the final path results. I am looking for help, support for my dad and mom. I want so…
Air Leak UPDATE
The surgeon decided to operate to fix the air leak, but when they put him to sleep, did the bronchoscopy, no leaks! they don't know if inflating the lung during the intubation sealed the leaks or they just went away, but hurray! so they didn't have to do a thoracotomy and open him back up, BUT his blood pressure bottomed…
Dad is back home!
Well Dad came thru brain surgery fine. And for having surgery he is doing very well. He is going to start physical therapy this week and have speech therapy next week. He is walking with a walker but has been pretty good at letting us know if he has to go to the bathroom or needs something. I got about 5 hours sleep last…

Lung Cancer

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