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Anyone been on tarceva, gemzar or navelbine?
Just wondering if anyone here has had these chemos and what were your side effects and how did you do on them? Thanks, Carlee
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tobegolden
hi, i'm from the h&n forum but tobegolden also comes there. we haven't heard from him in months and i was wondering if he's been on here. i'm just wondering how he is doing. i'd appreciate any info u may have. thx n advance. dj
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Rib Bone Moving After Thoracotomy?
Hi all. I am here from the breast cancer boards. I had a thoractomy on the left side to remove a hypersensitivity pneumonitis mass that was the size of a plum in the lower left lung. I had a thoracotomy with a lung resection on 7/31/13/ Since I got home from the hospital, I have been feeling a "flapping" feeling when I…
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Pain and binding in side after lung removed
I had my lung removed 11-11-2010 due to carcinoid cancer. Now I have pain in my right side that feels like someone twisting my insides. I have to lay down and rub it out before I can even stand up. My doctor did an MRI and didn't find anything wrong. He has me taking Flexarill to help the muscle relax. Has anyone…
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osteopoikilasis
I orginally was told that I had stage 4 lung cancer, a c.t. scan showed that the cancer had spread to my spine, ribs, and all my bones. I have recently founmd out that I do not have stage 4 but rather stage 3. What they thought was cancer in mybones, etc. was a rare genetic dease called "osteopoikilasis". It show up on…
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Two HSP90 Cancer Trials Fall Short of Goal
Robert A. Nagourney, M.D. Two related clinical trials were reported in the last several months describing the use of heat shock protein 90 (HSP90) inhibitors in lung cancer. Both trials fell short of their pre-specified endpoints casting a pall upon these drugs. However, the study of HSP90 inhibitors should not be…
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Still fighting...
Here we are 28 months from diagnosis with 8 months of those without treatment. My husband is down to 141 pounds from a starting weight of 217. He is now taking 80 mg of Oxycontin twice a day with 5 mg oxycontin every four hours in between and some times still has considerable pain. He is getting more short of breath - even…
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Bloody Noses and leg cramps
My husband has stage 4 non-small cell lung cancer. He has been on Tarceva for 6 months. While on the Tarceva he has developed numerous leg cramps. We has been eating a banana a day and has been drinking alot of water since the Tarceva causes you to lose moisture from your system. Does anyone know what to do for leg cramps?…
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Is it Possible to Take a 1 Week Break from Tarceva?
Hello, My 88 year old mother has esophageal cancer and, since she can no longer tolerate chemo, she has been taking Tarceva for almost 3 and a half months. The latest PET/CT Scan of September 25, 2013 showed that the tumor in the esophagus had slightly increased in size. However, the cancer in the lymph nodes in the…
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ALIMTA treatment ????
Just wondering if anyone else is receiving ALIMTA on a 21 day cycle? I am a 60 year one male EX SMOKER that was diagnosed in May 05, with NSC stage 4 lung cancer with a 6cm mass in the left lower and a 3cm mass in the liver. I had 10 radiation treatments to start with, then Chemo. The Chemo cycle was one session of…
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rigosertib
Hi , have a friend who is starting trial using this drug. I have never heard of it , does anyone know anyone currently taking and if results are any good?
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5-yr. survival
I know people will scold me for reading about survival stats but I have been asking for specifics re: my own l.c. prognosis for 9 months and gotten no solid info so today I finally found research results from Medline articles that clearly show that patients with multiple mediastinal cancerous lymph nodes don't survive 5…
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Stage IV squamous cell lung cancer
My mom, 51 years old, was recently diagnosed with stage four squamous cell lung cancer. I'm desperately clinging onto hope, but haven't found any survivors for this type of lung cancer. Are there any survivors out there and which treatments did you undergo?
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Lung Cancer Alliance Phone Buddy Support
I found this group and have received a packet to help me understand lung cancer and was offered a phone buddy if I wanted one. I thought I would pass along this information to anyone interested. Look at their web site. It was very informative.
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Clinical trial for metastasis (mets) called Rigosertib
Hey, I just started this clinical trial I was dx with mets to the lungs about a year ago. I was wondering if anyone here knows anyone who has taken this drug in previous clinical trials the drug / chemo is called Rigosertib. Rigosertib works by blocking cell division in cancer cells and causing them to die it is being used…
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Looking for answers!
Hi. I happened upon this website by chance. After reading some of the postings I decided to join. I have so many questions that my head is spinning and I do not know where to turn! Please help if you can! (Thank you in advance!) I was diagnosed with uterine cancer on January 23rd, 2012. I had a radical hysterectomy on…
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Young wife recently passed away
My wife, 31 y/o, with Stage IV NSCLC adenocarcinoma ALK+ passed away recently. Crizotinib/Xalkori stopped working after 9 months. She was at home under hospice care after the docs stopped all treatments. She fought for 20 months and wanted to live so bad for our 3 kids, however it was just too much during the last couple…
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I need hope...
My father has been fighting lung cancer for almost 2 years now. He was diagnosed when pain in his back turned out to be lung cancer that had spread. Tarceva produced no results, and he underwent chemo. He recently got scan results back that have just taken my breath away. Every scan up to the most recent showed reduction…
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Disappointed
In this web site, I don't understand what happened, I noticed what once used to be a very supportive site, with a lot of traffic has dwindled down to a scase few. This was the first support cancer forum I joined when I was dx. back in 09, posted quite a few posts here, only to recieve one or two responses, and sometimes…
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WHAT ARE YOUR THOUGHTS
I have NSCLC, I recently had my usual ct-scan my lungs checked out clear which I was happy about but it also picked up a 1.0cm nodule in my left breast, which scared me to death, I Immediately thought It's back, and in my breast now, my Dr. ordered a mammagram and while waiting for the results I posted my concern on a…
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Question - Insight wanted
Hi everyone, My had a small (2.2cm ) tumor removed from his kidney back in March. It was cancer and he had his 1st PET scan a few weeks back. They saw what might be a lesion on same kidney but also thickening of the pleural lining of his lung/lungs. My question for you all is... Is this sometimes how lung cancer presents?…
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MOM HAS STAGE 4 LUNG CANCER MATASTICIZED TO BRAIN
Hi, I am new on here. We were just dealt with this blow about 2 months ago. Tumor on her brain was removed but did not "originate" there. Mom has already gone thru one round of chemo, 3 days chemo and shot on 4th day. She's very weak and tired all the time. My dilemma, she has no will. She refuses to eat if she's not…
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not diagnosed yet biopsy tommorrow
not sure if i should even be posting here but i am really scared. i had been coughing up blood for a couple days and finally went to the emergency room. i was given an mri which said i have a upper lobe lung mass. the dr said it was a hollow mass and i was referred to onocologist for a biopsy. im just so scared i dont know…
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Question from Poland - non small cell cancer 3B
Dear All, I decided to register at the CSN as I'm desperately looking for the most effective treatment for my mum. Last week she was diagnosed with the non small cell cancer and since then our battle began. The doctors said it is the 3b stage and my mum should quickly start the treatment. The point is we are not sure if…
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2 more surgeries post lobectomy
My Mom is in surgery right now (9/21/13). She had her lower left lung removed with stage 1 cancer on 9/9/13. Stage 1, that's the good news. But now things are going down hill and I have no one to turn to for answers. So, then there was too much fluid in lungs so they did a bronchoscopy to clear that. Now the drainage in…
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Another update for Dapsterd!
Well family...the 4th brain surgery (mets fom lung )was not real bad..the 3rd one "i joked that the neorosurgeon took more off of the brain than he should have!". I still cant' talk or write well. may not ever---picture a stroke. i wish everyone so well!... im well.....cat scan of primary lung and lymphs showed NED! so im…
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Neurontin/Gabapentin Left lower lobe removed
I was diagnosed with adenocarcinoma ( 1 x 1.5 cm node) in my left lower lobe on Jan 31,2013. On Feb. 26th I had the lower lobe removed. The pain was bad the first month or two after the surgery then quieted down a little with the incicsion site and my left breast supersensitive in places and numb in others. I heard about…
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Does anybody know suppliment work for cancer?
Hi, My father who lives oversea has been diagnosed stage four lung cancer a few weeks ago. The cancer already spread to his spine,liver and brain(a few milimeter) and we were told he has 6 months to live. I went back to my country this summer and I knew he was complaining about back pain. I regret so bad why I didn't pay…
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2nd opinions
I have been diagnosed with Stage IV NSCL and they have been giving me tests for two weeks after biopsy and diagnosis. Today they called and they said there are more spots they didn't notice under my arm pit and I need another biopsy. I am confused, they have had these tests for two weeks and now when I am about to start…
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Johnnyz
Squamous Cell Carcinoma was found on my uper right lobe they removed the lobe 8/11/13, in three weeks I do 4 sessions ,1 every 3 weeks of chemo, pet scan just before lobe removal showed no cancer except in the lobe, so they say the chemo is an extra precaution, not sure I belive any of the doctors, some depression and fear…