The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

Permanent nephrostomy tubes due to radiation damage

Sberry68
Sberry68 CSN Member Posts: 1
in Long-Term Effects of Treatment #1

New to this site.  I am desperate for answers!!!!! According to the doctors patients like me don't exist and basically have been doing my own medical care (awareness) since.  My damage started two months after treatment had an emergency colostomy then two months later my bladder startEd to pass huge blood clots so they went in and sprayed something which damaged my bladder and ended up with bilateral nephrostomy tubes of course I was told this was all temporary and now two years later is obviously permanent.  My major problem is my nephrostomy tubes constant infections and pain from the infections.  Does anyone out there have this issue ?? my other question is after treatment what type of Doctor is best to take care of us ? It is obviously way too much for my Primary . Any suggestions would be great. 

Like Care

Discussion Boards