Question about bone paine

Mattymix
Mattymix Member Posts: 3
in Leukemia #1

I have been have odd pains in my shins and arms for 2 month. The pain is usually sharp and seem to just happen out of nowhere. Movement doesn't make it worse. Yesterday the pain was mainly in my left shin and today it's my right shin. Could anyone who has had bone pain please give me some input or describe their bone lain. My doctor doesn't seem concerned because my cbc with smear from last month came back normal.

 

Comments

  • mkiick
    mkiick Member Posts: 1
    #2
    Bone Pain

    Hi Mattymix, I was hospitalized for AML for 2 1/2 months in 2015. Since then I have bone pain in my knees and lower legs every night. I have had 3 extremely bad episodes since then that have lasted about 2 hours of extreme radiating pain from my knees down to my toes. The best thing I find to get through it is to literally walk it off or walk through the pain. I have Dilaudid that I take but it doesn't do too much for the sever episodes. For the nightly pain I take edible cannabis to get me through the night. You are not alone and this is something that disrupts your daily life. You are your best advocate and nobody knows your body better than you. Sometimes you have to be aggressive to get the doctors to realize that it might be normal to the situation but that it should have to be a normalcy to your everyday life.

  • Mattymix
    Mattymix Member Posts: 3
    #3
    mkiick said:

    Bone Pain

    Hi Mattymix, I was hospitalized for AML for 2 1/2 months in 2015. Since then I have bone pain in my knees and lower legs every night. I have had 3 extremely bad episodes since then that have lasted about 2 hours of extreme radiating pain from my knees down to my toes. The best thing I find to get through it is to literally walk it off or walk through the pain. I have Dilaudid that I take but it doesn't do too much for the sever episodes. For the nightly pain I take edible cannabis to get me through the night. You are not alone and this is something that disrupts your daily life. You are your best advocate and nobody knows your body better than you. Sometimes you have to be aggressive to get the doctors to realize that it might be normal to the situation but that it should have to be a normalcy to your everyday life.

    Thanks for responding. My

    Thanks for responding. My pain started in January and isn't near as severe as your. It doesn't last long and is very random. My last blood work in march came back normal, they even did a smear review. Just saw a hematologist last week and he is running some test. 

     

  • DISTURBEDSMR
    DISTURBEDSMR Member Posts: 1
    #4
    bone pain

    It's been two years since I was diagnosed and I have the leg pain and foot foot pain also random severe pains throughout my body my doctor says he isn't sure why when I first went in I had leg pain 

  • Mattymix
    Mattymix Member Posts: 3
    #5
    DISTURBEDSMR said:

    bone pain

    It's been two years since I was diagnosed and I have the leg pain and foot foot pain also random severe pains throughout my body my doctor says he isn't sure why when I first went in I had leg pain 

    Were your cbc test nirmal

    Were your cbc test nirmal

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