Aml leukemia

KrislyneHope
KrislyneHope Member Posts: 2
in Leukemia #1

i was dianoosed with aml leukemia with flt 3 mutation in septemer 2016.I was imediatly admitted to local hosptial for induction. chemo. I stayed in the hospital from september2016 to october2016.I am still in remission since late october2016. I have had 2 rounds of cosildation(november and decemeber2016) to prepare for a possible bone marrow transplant.I have to find out if the hospital will take me as a patient then find a match. My questions are :           when did you paint your nails/wear jewelry( i was told you have to wait a time period before painting nails)

Does it ever get easier/slow down?                How do you cope with it on a daily basis?             Did you ever feel "normal" again? (I had to quit college a semester before graduating)..... Any other helpful info will be gretaly appepricated

Comments

  • Amjo2020
    Amjo2020 Member Posts: 4
    edited July 2017 #2
    It does get better!

    I'm new to CSN and I saw that you posted this quite awhile ago but I thought i would respond to see how you are doing. I am an AML with a chromosome 7 deletion and bone marrow transplant survivor. I was diagnosed in 2013.

  • Sadtweety
    Sadtweety Member Posts: 3
    #3
    Bad disease

    30 days gone

     

  • sraab
    sraab Member Posts: 5
    edited July 2018 #4
    Amjo2020 said:

    It does get better!

    I'm new to CSN and I saw that you posted this quite awhile ago but I thought i would respond to see how you are doing. I am an AML with a chromosome 7 deletion and bone marrow transplant survivor. I was diagnosed in 2013.

    Need some answers

    That is great news!! My brother is AML monosomy 7 and inversion 3 and was just told there is nothing more they can do for him. Hes only 30 years old. Can you share your threatment method and hospital where you were treated?! We dont have much time. Thanks!

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