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Blood cancer
My grandpa was recently told he might have blood cancer. He has had many kinds of cancer on his face and it had spread to his neck and it moved to his lymph nodes. The doctor told him he got "most" of the infected ones out. He took 42 rounds of radiation after surgery. Now he has no use of his legs and has went to rehab to…
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APL
Hi,I'm 23 and I was diagnosed with APL in Sept 04. I had three rounds of chemo. and am now on Atra for 1 wk on and 1 wk off for one year. I am doing pretty well. I wondered what symptoms other patients have had from Atra? I know I have severe headaches, but my dose got cut in half, and now it seems okay. Although I have…
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For Laurabell, MiraT, and niavas
Hello guys and gals. I am also a leukemia survivor. I had a friend with AML-APL and he is doing well. I noticed you all had concerns over this form of leukemia, so I wanted give you the website address to my leukemia and lymphoma site I designed and periodically maintain. Here is the addy:…
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AML type M3
i was diagnosed with AML M3 in october of 2003. i am in remission now and am on a maintanance treatment of atra for 2 weeks out of every 3 months for 2 years. can any other survivors with this subtype of AML discuss your treatments and how they are going. thanks, you can e-mail me at rpowell56@comcast.net
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myeloid hyperplasia/red blood cell aplasia
Hi. I am new to this section. I was dx.with colon cancer in Aug.2003. Had many complications including blood clots,adhesions,pulmonary embolisms. My colon cancer was a Duke C and labeled as very aggressive. 8/20 lymph nodes positive. It was a huge mass. I finished chemo and radiation in June 2004. My oncologist started to…
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Looking for help...
My mother died from leukemia one year ago. Recently because of her death my financial situation has deteriorated, and i am now looking for any scholarhipsor funds available to help me pay for my college education. I am currently on Medicaid, and have recieved all the financial aid the government can give, but i still fall…
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Looking for help...
My mother died from leukemia one year ago. Recently because of her death my financial situation has deteriorated, and i am now looking for any scholarhipsor funds available to help me pay for my college education. I am currently on Medicaid, and have recieved all the financial aid the government can give, but i still fall…
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CML - Gleevec side effects
Has anyone solved the problem of periorbital edema? This is a huge problem for me.
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my uncle
My uncle has lukemia and no ins
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neurotoxicity
My dad was diagnosed with ALL in December 2003, he's 61. Part of his treatment was to have radiation and chemo to his brain which he did. Now he's in the hospital suffering from damage done to his brain from the treatment. He is fighting but we don't know what the outcome is going to be. I have not been able to find much…
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Portraying a leukemia patient
Hello everyone. I'm looking for feedback from those of you who are survivors or are currently fighting leukemia. I was just cast in the play Marvin's Room and my character has leukemia. If there is anything you could tell me that would help me bring truth to my character, it would be greatly appreciated. I admire you all…
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needing a BMT for CML
Hi to every one! I am new here,I was diagnose with CML in 2001, I was two months pregnant. I delivered a healthy baby boy on April 2, 2002. My cancer Dr. tried me on Gleevec and interferon both failed. I am now needing a BMT for my only chance of a cure. I'm having it done at shands at the university of florida. I have…
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Relapsed after BMT
Hi I am Nick and I am 19 years old. I was previously diagnosed with ALL when i was 4 years old, relapsed 10 years later at 14. Went on a Chemo protocol, relapsed right at the end of it and then had a Allo BMT. 3 1/2 years later I just learned i have relapsed again.
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Grumbling Leukemia
Just told yesterday I have this, I think its because my blood count varies each time I have blood test,anyone heard of this and can give info. In Australia and 75 age. Thanks jock
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Support Group in Alabama
Fellow survivers here who live in or near Alabama, who would like to start a support group in North Alabama Please email me at krp@hiwaay.net My name is Kevin.
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Need to understand the symtoms and affects of leukemia
I'd really appreciate some people's responses on this if that's alright. Well, In our school play i've been given one of the leads a 17yr old girl with leukemia named Joanna. There are parts where Joanna becomes very ill and collapses and I'd just like someone to tell me, if possible, what its like to have leukemia, how…
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What can nurses do to better help you?
I am an RN student and I would like to know what the nurses who care for you could do to better help you? I'm anxious to get your feedback! Please reply!
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Dallas Area Leukemia Survivors
I am looking for Dallas are survivors to come join my group in its fundraising efforts to fund Leukemia Research. If you would like to join a young energetic group, please post your e-mail and I will get you information on us.
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Young Survivors Board
There is a new board for young Cancer people,check it out.
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RE: Need info on BMT
Hello! My name is Armand, I am 23, and have been battleing ALL, for the past 2 and a half years. I went remission very fast and then found out after I had finished chemo, that it had relapsed. I have been told that a Bone Marrow Transplant is pretty much the only chance at life. I need someone to talk to. Please Help ASAP.…
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New to group
Hi everyone. This is my first time talking on line. Would like to here from anyone, who is going through treatments, and survivors. Im 28, almost 3 years post transplant. Cml survivor. I also posted on Niky's subject, but its about a month late. I tried the chat room. Cant keep up with everyone.
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Teaching my family to understand
My name is Cortney and this is the first time I have posted anything on this site or spoke out about my childhood leukemia with anyone. I need some where to turn with this problem I am having. I am a 22 woman that has been in remission from ALL for about 18 years. Recently I got married to a wondereful man that has always…
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Cancer in college
HI - I was just wondering if anyone else might be going through some of the same things I am, because I am feeling a little alone. I was diagnosed with AML while was I junior in collge. That was almost 2 years ago and with the grace of god, much help from friend and family, and a little luck, I am in remission. However, I…
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Hodgkns/ Lukemia
I was diagnosed with hodgkins in 1986, went thru 7 months of MOPP chemo, have been in remission since. I have now been told I have CLL, and require no treatment as of now, has anyone ever heard of this?
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Stem Cell Transplant Questions
Hi all! Ok, I admit; I don't have Leukemia. I'm from the Non-Hodgkins Lymphoma section. But. I came over here to wonder if any of you could possibly help me out. I'm facing an un-related stem cell transplant shortly, and upon release from the hospital, I have to live in the area for 3 months, and my mother is staying with…
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Help understanding husb. Disease
Hi my name is Susie, three years ago my soon to be husband was diagonosed with Thrombocythemia. He went through the bone marrow tests, and the scare of possibly having cancer in 5 years, that's what the Dr. said anyways! He went on the Chemo Pills the strongest dose, boy was that awful for him, although it seemed that he…
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Scared and full of questions....
Hello, This is all very new to my family. My mother who is 61 dx March 19, 2003 with AML. She finished the first round of chemo and did and bone marrow yesterday and are anxiously waiting for the results to see what our next steps are. She is having a rough time after the chemo, bad mouth sores and platelets are real low,…
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My sis has CML
Hi, my name is Maria and my sister was recently diagnosed with CML. She just started treatment this week by taking interferon. Can some one tell me the side affects from this drug or just past side affects they've had from chemo. I would appreciate it so much...thank-you!
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Cronic pain relief
I had my bone marrow transplant 21 years ago for AML and suffer from cronic structural pain as well as short term memory loss. I am taking 10 mlg of Methedose three times a day for my pain with some side effects. For my memory problems I don't have any medications. Any suggestions please feel free to email me. Also any 20…
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Gleevic users
What other options have you heard of after this drug has little or no effectiveness?