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Help with THROMBOCYTHEMIA
Hi im Susie, and my husband has Thrombocythemia, im just needing any and all information of this very rare blood disorder. From anyone who would please share there knowledge with me. Thanks so much.
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LAUNCH OF MILITARY CANCER SURVIVORS' DISCUSSION
After a little cajolling, I have convinced the CSN that there is a need for a discussion for military cancer survivors. The purpose of this discussion is to give military folks a safe place to go and ask questions about treatment, administrative issues, performance evaluations, etc. that are unique to military cancer…
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PERHAPS SOMEONE KNOWS
Hi My name is Martie Vermeulen. I am not a cancer survivor but the daugther of someone living with CML. My mom was diagnosed in Feb 2003. Two months later she received a stem cell transplant. The cancer or bad sells was reduced drastically. My mom was so brave and good throughout chemo. All was well until November 2003…
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mylotarg
Anyone had any experience with Mylotarg? My father starts it next week...after 4 rounds of chemo that did not induce remission.
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my research
Hello Everyone! I am doing my own amateur *research* on the types of medicines and chemotherapy people have had or are currently taking. If you wouldn't mind giving me the names and even the dosage, but I will settle for just names of meds, I would really appreciate it! Please dont worry about spelling :-) You can email me…
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any secondary sarcomas out there?
I'm worried about a stress fracture in my femur... pain won't go away and now its achin all the time. It's probably nuthin... I run marathons now with Team in Training... but heck, if you fit in my category (thirty something at diagnosis and now old ladies who had BMT when it was a new procedure) I would love to hear from…
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Long lasting ALL symptoms
Hi, I'm fairly new to this. But I was diagnosed with ALL when I turned 21. Was treated very aggressively and had very aggressive side effects. I am 29 years old now, but I still have some memory and fatigue problems which still warrant disability. Am I an odd ball, or is there someone else with chronic symptoms? I get the…
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Medicare
On 9/11 I was at the World Trade Center and remained there for two straight weeks breathing in the toxins that filled the air. 3 weeks later I was told I had AML. At the time of admission to Sloan Kettering Hosp I was told not to worry about anything because I had great insurance (NYPD Ret). Now I owe the hospital eighty…
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ALL with Philadelphia Chromosome
I am desperately seeking a survivor of ALL with Philadelphia Chromosome. Secondary would be an adult ALL survivor of a BMT. Please contact me at cunnever@aol.com. Thanks. "Chip"
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Where NOT to Get Treatment
St. Luke's Hospital, Milwaukee, Wisconsin I will respond to individual questions from those who are interested.
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37 y/o with ALL
Hi...I've just been diagnosed with ALL. I am looking for information on resources, Dr.s, treamtent centers, etc. Anyone who has gone through this. Please help.
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CAAT
Hi everyone! As a public service announcement I want to let you all know about the promising cancer treatment called Controlled Amino Acid Therapy (CAAT). I have been volunteering there for 3 years and have seen and heard of many patients responding. I have even answered the phone and spoken to oncologists requesting our…
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Are You Considering Treatment in Milwaukee, Wisconsin?
If you are, please read my message on page 2. Know where NOT to go.
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Tips for treatment
Hello Brethren Blood Cancer People, My name is Michael, and I am a survivor of ALL - acute lymphoblastic leukemia. I was diagnosed at 21 yrs. I am now 29 years old and have been in remission for almost 7 years. In fact, this June 6th will be my 8th anniversary of my diagnosis (this is one anniversary that is hard to…
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I am a new member!
Hello. My name is Michael and I am 29 years old. I am an ALL survivor and have been in remission for about 7 years. I was treated at UC San Francisco Cancer Center. I am trying to figure my way around this web site. A few years ago I designed a leukemia website so I could help others with this disease. If anyone is…
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need some advice
I'm 13 and have had ALL leukemia for the past 3 years. I'm having soooooooo much trouble with kids in school calling me "cancer b****" and "caytlin's cancer club" and all sorts of rude things. My mom says to ignore it but how can i when i am in school and people are constantly saying these things about me. even the poeple…
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Need totalk to BMT survivors
Hi! My name is Llanda and I am 28 years old, I was diagnosed with AML in december and ther is a possibility I will need a BMT, I'd really like to hear from people who have experienced a BMT to help me make a well informed decision, Thanks
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I need help!!
I am 18 years old and just hit the 5 year mark on remission. I had a bone marrow transplant bc of 411 chromosonal translocation. I want to know if by going through this can I get pregnant in any way. I know I have premature ovarian failure. What does this mean?
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my heath project
i need help on my health project it is on leukemia i need any information you have on it u can e-mail me at tiffann_1234@hotmail.com ok just tell me it is for my health project
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ALL survivor w/Osgood Schlatter
I was wondering if anyone knows of any research or other cases of childhood cancer survivors like myself who developed Osgood Schlatter disease due to chemotherapy. i was diagnosed when i was 3 with ALL Leukemia and announced cured at 14 but shortly after developed the raised bumps on my knees associated with the disorder.…
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In Their Honor
Good Evening! My name is Tammy Miller and I am raising money for the Leukemia and Lymphoma Society. One of the events I have planned is a fun run...The kick off of the run is a balloon release for those who have fought and/or are fighting these cancers. If you would like yourself or loved ones to be included in this…
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Insurance
does any one know of good health insurance that i could obtain in some way. im a leukemia survivor and my dad was layed off some time ago and now we have no health insurance. my moms tried to get a number of different insurances but i am always considered HIGH RISK so im declined, what can we do?
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Help eliminate cancer
I am looking for people in the Los Angeles area interested in supporting ACS in a Relay for Life event. I am a recent survivor looking for others to join me in the fight.
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Bone Marrow Recruitment Effort
Sutton Elementary 2780 Sutton Rd. Adrian, Michigan 49221 517-423-2367 Debra Langmeyer, Principal 2-16-03 Dear Cancer Survivor's Network I'm seeking information from anyone regarding possibly funding sources for costs for bone marrow tests. I'm organizing a drive next Sunday. I'm a cervical cancer survivor of 10 years. I…
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I need your advice
Hello everyone,My name is Eva.My mom was diagnoised with ALL and now she was taking treatment in Bulgaria.Because of the economical problems in my country we need to pay most of her treatment.That's why I'm looking for financial assistance.Does anyone know any helth organization which can help?Is it possible to apply for…
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Have had an A.L.L. relapse...
I was diagnosed with A.L.L. in December 1998 and went through a year of treatment. When I was 3 weeks from the end of "maintenance", it relapsed in the Central Nervous System. Because of "pneumonia"...I am a few months behind in my treatment; but, have a long way to go. Would like to hear from anyone who is or has gone…
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Post-treatment complications
Hi, my name is Netter and I live in Seattle, WA. I was diagnosed with AML, subtype M3 on 10/31/02. Since then I've gone through 4 rounds of chemotherapy, finishing up at the end up April. I was doing really well until 2 weeks ago when I developed blood clots in my neck, shoulders and chest. I ended up in the ICU and had…
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Post bonemarrow transplant for CML
It has been almost five years and I still require rest before and after an outting. I also can't talk about even flowers or the weather without crying.
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DRY EYE SYMP. AFTER BONE MARROW TRANSPLANT AND GVHD
DOES ANYONE HAVE GVHD? IT SO WHAT ARE YOUR SYMP. AND TX. GRANDMAHAT
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graft vs. host disease after bonemarrow transplant
The main synptom is severe dry eyes. I use 2 cases of over the counter eye drops a month. Is there anyone else bothered with these symptoms. I can't drive and I've had to give up my nursing liccense becase of loss of eye sight and constantly putting in the drops. I look like I have racoon eyes.