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bone marrow transplant
hi my leukemia has reoccured and i am going to have a bone marrow transplant. Would love to hear from someone who has had one to give me an idea of what i now will be facing
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long term late effects
Hi, i was wondering if anyone else has had any problems with their teeth due to the amount of time that they were on prednisone? If so what kind of problems are u having or did u have?
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Sterile
29 year survivor of ALL. 48 years old. Had Testicles radiated 27 years ago when the ALL came back in my testicles. Take testosterone shots every other month (really need to every month). I am having problems with my sex life with wife. Is this a normal side-effect?
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Starting a family after the battle with AML
I have been married for 7 years. I have gone through fertility and nothing seem to work. We have been looking to adopt but we keep running into dead ends. I just want to see if there is anyone else going through this tuff battle too??? eldermj@missouri.edu
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I want to donate bone marrow
I want to help by donating my bone marrow. I would REALLY like to help a child. I am having trouble finding out where to donate. I saw something on tv about someone connecting to a child in need on the web. I would like very much to get on a list for a child. Does anyone know how I can do this? Thanks.
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varient hairy cell leukemia/lymphoma
april o6 we were told he had diabetes ,he had bloody nose a least once a month he had pain by his ribs and his body hair was falling out, he was taking glimepride know as ameryl 4 the diabetes he didnot have, he lost weight without trying and was taking naps alot,and he felt like he had to go to the bathroom and nothing…
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Guidance for "caregiver"
My boyfriend S was diagnosed last week with hairy cell leukemia and just finished his last day of chemotherapy Friday (8/15/08). Wondering if you can give any insight on what he might expect? He's having the bouts of feeling ick and he's got the occasional fever...anything you can offer me by way of how I should help him…
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5 years out of work??? Leukemia Question
To all kind people, My best friend that I known since high school has just informed me that he was diagnosed with leukemia. I am naturally shocked and I immediately promised to be there for him financially and emotionally. However he has 3 small children and was very worried that he won't be able to work for a very long…
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Greetings kind people
Hi everyone. I'm new here, I just wanted to let everyone know about a online resource I found which is trying to get 50,000 people into the national bone marrow registry. SheKnows.com is partnering with Save Giovanni's Friends to get 50,000 new people added to the national database. Please just go check out the video and…
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Lost my mom 10th June 2008
I dont know what to say but my mom was diagnosed with ALL in Jan and she lost her life in June .. I took care of her for a few years because of unrelated medical problems and devoted my time to caring for my mom and dad ( who is also disabled ) and im lost and mad and am hurting so baddly I just dont feel as if I can make…
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blogging treatment after 1st relaspe of AML
http://jamesbrown-mylife.blogspot.com Come and visit and share my journey back to health
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Potential AML Treatment Centers
My wife's oncologist has recommended that we go to M.D. Anderson, Duke or Emory for a follow-up consultation to discuss our long term options after going into initial remission from AML on 6/13/2008. Any comments or recommendations on these three.
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Chronic Myeloid Leukemia
My 45 year old brother was just diagnosed Friday week ago with chronic myloid leukemia in blast crisis. He suffered a cardiac arrest (his kidney was not functioning fully) last Wednesday and fortunately revived. He was placed in an induced coma, taken off medication for this coma on Friday and we are waiting for him to…
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varient hairy cell leukemia/lymphoma
april o6 we were told he had diabetes ,he had bloody nose a least once a month he had pain by his ribs and his body hair was falling out, he was taking glimepride know as ameryl 4 the diabetes he didnot have, he lost weight without trying and was taking naps alot,and was eating sweets that he didnot normally eat ,and he…
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My mom has MDS
Hello Everyone, My mom was just diagnosed with MDS after a marrow biopsy. According to the test results her IPSS Score puts her in the Intermediate 1 catagory for risk. She has an appointment with a specialist and will have her tests redone soon. Our family has been reading everything we can find and it looks like my…
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my personal email
Sorry, I did not include my email address in the first post. Here it is. james_sheets2001@yahoo.com Thanks, Freddie
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24 and dying,,,,why does it hurt?!
I just need a little support.
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MDS
Hi my stepfather has been diagnosed with MDS and my mum is wanting to know what to expect and what she shld watch out for to prevent him becoming to ill, too fast. thanks
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What Do I Do?
So, a few bloody noses and a few abnormal blood tests during normal doctors visits may be leukemia??!?!?!?! I am really freaking out. Any advice?
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Just Diagnosed
Hello, I am new here and I was just diagnosed with Leukemia. I am not sure which kind yet though the doctors are running more test to be sure of the severity. I have read a few of your stories and my thouhts and prayers are for you. I am really scarred. What was it like for you guys when yu first found out? Did you have to…
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please help..
We just found out that my grandmother has leukemia. What are the chances of a 76yr old woman surving cancer?
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Young but wise
When I was only around 5 years old my brother had passed away from Acute Lymphocytic Leukemia. Not a time I want to remember but can't get rid of. He always woke up happy as ever and didn't let the pain get him upset. I recently interviewed a little girl with the exact same leukemia. She is doing well and hopefully…
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Acute lymphocytic leukemia T Cell
Hello -- is there anyone else out there who has T Cell ALL? I was diagnosed with this in March. Thank you.
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Milk Thistle
Has anyone used milk thistle un conjuction with chemo?
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aml treatment and a respirator
My brother's 23 year old girlfriend was diagnosed with AML about 1 1/2 weeks ago. The diagnosis came completely out of the blue, and has shocked everyone involved. Jess is normally such a happy, bubbly talkative girl, and to see her going through all this is crazy. She has had her induction chemo, and in the process of all…
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myelodysplastic leukemia
My co=workers dad was diagnosed Monday and the Doctor told him not to worry about it. Does that seem right? Where can we find info, Dyana
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The Cure
Now that I have your attention: In this year of electing a president, all cancer survivors need to find the candidate who supports Cancer research-ie; stem cells, which could very well bring the cure to all cancer. The politics of cancer can kill you..of over 10,000 grants from the National Cancer Institute, only 500 even…
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Sprycel
Hi, I have been on Gleevec for 10 months but I can't take it any more do to some nasty side effects. Mainly it was causing high pressure in my spinal fluid which caused my optic nerves to swell. I would like to hear from anyone who is on Sprycel. I would also like to know how you are doing and any side effects, how long…
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Pro Lymphocytic w/ intestinal lymph nodes
My father is just finishing chemo for chronic B-cell Prolymphocytic leukemia. However, he cannot eat and is losing far too much weight. The dr. is now looking into enlarged lymph nodes in the intestine and stomach. Does anyone have information or experience with this? I searched the board and Google but found nothing…
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Starting chemo for CLL
I will be starting Mon am looking for feedback from people who have gone thue this or will soon start