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HDIL2 worked for me!

aedney
aedney CSN Member Posts: 6
in Kidney Cancer #1
I just got the results of my first CT scan after undergoing HDIL2. The mass on my chest wall was reduced dramatically. My oncologist is not sure if the little bit left is cancer or scar tissue. I have another scan in 6 weeks which will probably tell which it is. My oncologist told me that in a very small amount of people the cancer may come back, but that for most people if you respond to this treatment your cancer usually stays gone.

So there are lots of stories about how this doesn't work, and it is really a pretty tough treatment, but it did work for me. If you are eligible for the treatment, it really is the only thing that can actually cure kidney cancer that has spread from the kidney that can't be cured with surgery, so it's definately worth a try.

I hope this helps someone,
Amy
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Comments

  • Anna Bery
    Anna Bery CSN Member Posts: 18
    #2
    I am happy it worked for
    I am happy it worked for you:) It did not for my mom:(
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  • rae_rae
    rae_rae CSN Member Posts: 300 Member
    #3
    Anna Bery said:

    I am happy it worked for
    I am happy it worked for you:) It did not for my mom:(

    Great news Amy - it's so
    Great news Amy - it's so good to hear positive results!

    Rae
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  • ejneary
    ejneary CSN Member Posts: 64
    #4
    That is fantastic
    Amy:

    I am very glad that this worked for you. I agree that the treatment is a tough one but.... If it works, it works.

    Can you please give a little more information? In particular, where was the treatment administered, how many rounds (One round equals one week in, one out, one week in again...). Is this the first scan after the first round? Any other things you found of interest?

    Thanks!!!

    John Neary
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  • aedney
    aedney CSN Member Posts: 6
    #5
    ejneary said:

    That is fantastic
    Amy:

    I am very glad that this worked for you. I agree that the treatment is a tough one but.... If it works, it works.

    Can you please give a little more information? In particular, where was the treatment administered, how many rounds (One round equals one week in, one out, one week in again...). Is this the first scan after the first round? Any other things you found of interest?

    Thanks!!!

    John Neary

    I had one round of treatment
    Administered at the University of Michigan Hospital in Ann Arbor Michigan. This was the first scan after the first round. My oncologist thought the mass on my chest wall was reduced by at least 90%. The mets in my lungs appear to be gone as well. He is not sure if what is left is actually cancer or scar tissue. I have another scan scheduled for the end of this month. He said usually if you respond to the treatment, it will continue to shrink the cancer, but for a very small amount of people it could come back, so we are praying that it continues to work for me.

    Sorry I'm just replying now, we were on vacation :)

    Amy
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