Metastasis to Lungs
Had a CT scan early Jan and it showed possible metastasis from oral cavity to Lungs. Death sentence or not?
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Many treatment options
... for matastasis to lungs. Husband in remission going on 2 years after matastasis to lungs and liver. Has done very well.
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Well FOMC
You put us in a spot on this forum with a one-sentence statement and question.
First I would say trust in God, trust in your medical team.
Then you are in the best hands you can be and {Never Ever Give Up}.
Some questions for you. What type of head and neck cancer did you have-tell us your story-tell us a bit about you and your cancer journey? What was it listed as, as far as your cancer location and symptoms and what stage was it when they found it and what were the circumstances that sent you for your original medical evaluation such as soreness, bump or growth or just not feeling well? Have you had treatment for the cancer of the oral cavity as you describe it and if so what was it? Did you have surgery, radiation, chemotherapy or some combination of all three or did you have some other kind of treatment? If so where were you treated at a cancer center, hospital or teaching hospital or another facility? What was the outcome of the treatment were you declared cancer free for a while and the lung problem turned up later or was the lung metastasis found in the process? As far as your question stands it looks like you are saying should I give up, I've already answered that so please give us more information and we will support you as best we can-God Bless-Take Care.
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Started as a small white bump
Started as a small white bump under my tongue around Aug 2017 (was a smoker so no biggie) then it continued to grow until I couldn't eat. Had a Biopsy done at the VA in Asheville, NC in Nov 2017 and it confirmed I had Cancer. Was referred to the Baptist Hospital Cancer Center in Winston Salem for treatment. Stage IV Floor of Mouth Cancer (hence the handle FOMC) was the diagnosis. Had my 15hr surgery on 12 Jan 2018, half of my tongue removed, 7 teeth pulled, wrist-to-mouth flap, and neck dissection.
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Sorry, felt like I was
Sorry, felt like I was rambling so I cut that last post short. Anyway, had 30, 20min Rad treatments afterwards and all scans were clear (1yr and some change cancer free!) up until the CT scan mentioned earlier. My surgeon said he was a little concerned that "something" showed up so, I have an appt with my Radiologist on the 27th of this month then a PET scan scheduled for Apr.
Got pretty scared when that "something" showed up in my lungs so, that's why my first post was very vague.
So blessed to have found this website and forum. Have already spent numerous hrs reading posts and responses and for the most part, all of my questions have been answered. Plan on sticking around for awhile so, thanks for allowing me to share.
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Why are they waiting untilFOMC said:Sorry, felt like I was
Sorry, felt like I was rambling so I cut that last post short. Anyway, had 30, 20min Rad treatments afterwards and all scans were clear (1yr and some change cancer free!) up until the CT scan mentioned earlier. My surgeon said he was a little concerned that "something" showed up so, I have an appt with my Radiologist on the 27th of this month then a PET scan scheduled for Apr.
Got pretty scared when that "something" showed up in my lungs so, that's why my first post was very vague.
So blessed to have found this website and forum. Have already spent numerous hrs reading posts and responses and for the most part, all of my questions have been answered. Plan on sticking around for awhile so, thanks for allowing me to share.
Why are they waiting until April to do PET scan. I'd it moved, that seems like s long time to wait to get results and a treatment plan started.
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I had SCC of in the neck inPclark21st said:Why are they waiting until
Why are they waiting until April to do PET scan. I'd it moved, that seems like s long time to wait to get results and a treatment plan started.
I had SCC of in the neck in 2016. My PET scans show nodules developing on my upper left lung. My oncologist waits 3 months between PET scans or CT scans (enhanced) to see if there is any growth to thest nodules. So far the nodules haven't grown so no worries. I suspect that you are waiting for April for you next PET scan to see if the nodules are still there or not. Scans are very clear nowadays so just about anything can show up on a scan. If you had a cold prior to a PET scan then there might be spots that show up on the scan but subsequet scans they won't be there. If your oncologist is concerned with these nodules then he/she will most likely order an enhanced CT scan. For now I wouldn't worry too much but do discuss this with your oncologist.
Steve
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FOMC Thanks For the update
And info on your condition and treatment. I agree it is a lot to talk about and seeing something on a scan can be very upsetting. I certainly hope they can define what is going on and come up with a plan of treatment if necessary. Many times it is a false positive or nothing to worry about. They say on here "It's not cancer till they say it is". You've been through a lot like the rest of us but Never give up. Glad you are sticking around and just to let you know many have commented this is the best support site they have found-God Bless-take Care
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Did he go through radiationcaregiver wife said:Many treatment options
... for matastasis to lungs. Husband in remission going on 2 years after matastasis to lungs and liver. Has done very well.
Did he go through radiation and chemo again when it spread to the lungs. Asking cuz wtw in that spot and I want to know what 2nd round is like for him
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metastisis treatmentPclark21st said:Did he go through radiation
Did he go through radiation and chemo again when it spread to the lungs. Asking cuz wtw in that spot and I want to know what 2nd round is like for him
Husband had radiation only for a tumor that ran from behind his ear and down the throat, wrapped around the larnyx. He was already retired and had a few years earlier had open heart surgery. He was not a condidate for chemo at that time. Tumor too large for any surgical option. They maxed out all the radiation he could have. Was in remission for 5 years. (Went to the doctor for an ear ache)
Oncologist gave him Taxol/Carbo once every three weeks "for as long as he can tolerate" for recurrence. Besides spots on lung and liver, he had an large open tumor on his jaw. After 18 months, doctor shocked us both by saying there was no evidence of disease. He had embolization of the carotid atery after many terrifying bleeding episodes. Doc said at that time, should the cancer show up again, he could go back on the Taxol/Carbo or Keytruda, etc.
Although the agressive original radiaton left him with a feeding tube to this day, he has done very well. It has not been easy. He has remained active until very recently.
Unfortunately, he now has developed unrelated kidney cancer. He is not a candidate for the surgery, total removal of a kidney, so we are in "wait and watch". This is actually a listed option for this type of cancer.
What I am trying to convey, is the options are many. Through what may seem hopeless, there is hope. And, with help, it is doable.
Crystal
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Thanks Crystsl. We justcaregiver wife said:metastisis treatment
Husband had radiation only for a tumor that ran from behind his ear and down the throat, wrapped around the larnyx. He was already retired and had a few years earlier had open heart surgery. He was not a condidate for chemo at that time. Tumor too large for any surgical option. They maxed out all the radiation he could have. Was in remission for 5 years. (Went to the doctor for an ear ache)
Oncologist gave him Taxol/Carbo once every three weeks "for as long as he can tolerate" for recurrence. Besides spots on lung and liver, he had an large open tumor on his jaw. After 18 months, doctor shocked us both by saying there was no evidence of disease. He had embolization of the carotid atery after many terrifying bleeding episodes. Doc said at that time, should the cancer show up again, he could go back on the Taxol/Carbo or Keytruda, etc.
Although the agressive original radiaton left him with a feeding tube to this day, he has done very well. It has not been easy. He has remained active until very recently.
Unfortunately, he now has developed unrelated kidney cancer. He is not a candidate for the surgery, total removal of a kidney, so we are in "wait and watch". This is actually a listed option for this type of cancer.
What I am trying to convey, is the options are many. Through what may seem hopeless, there is hope. And, with help, it is doable.
Crystal
Thanks Crystsl. We just learned we have a recurrence in the mediastinal, right behind breastbone. We're hoping that it is an extension of the tumor that went from right tonsil to top of chest...where this new mass formed. They're hoping that there were a couple of cells too small to be detected that formed this continuation of the first one. Surgery is not an o poo tion for us either. They have decided to try radiation and chemo again as it did so well with the tumor in the head and neck. Im just afraid how rad and chemo will be on his body the 2nd time.
Im sorry to hear of your husband and his struggles, and yours. Cancer may be in their body, but it affects us deeply. Hang tough. Hugs
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UPDATE ON METASTASIS
Had a follow up with my Rad Onc and she said she didn't see anything that caused concern. In fact, NED was her gift to me!!! 1yr 2months NED to be exact... Thanks to each and every one of you for your posts and replies, not only about your specific issues but also for others as well
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NEDFOMC said:UPDATE ON METASTASIS
Had a follow up with my Rad Onc and she said she didn't see anything that caused concern. In fact, NED was her gift to me!!! 1yr 2months NED to be exact... Thanks to each and every one of you for your posts and replies, not only about your specific issues but also for others as well
So very happy for you!
Crystal
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