Rollcall
Forum Name, Type of Cancer, Year, and Home State
I will start.
HAWVET,Nasopharyngeal, 1998, Hawaii
Mahalo (Thank you)
HAWVET
Comments
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Victor Brown
Tonsil into base of tongue 4cm with a huge lemonsized lymphnode 9cm
I did 6 weeks of once a week chemo Erbitux Carboplatin Taxol then two week rest
Now i am in my second week of Radiation for 7 weeks with Cisplatin chemo daily on weeks 1.4.and 7 plus i get double radiation on fridays.
Then a 4 week rest then surgery is the plan.
I live in Costa Rica but am now in Rhode Island getting treated at same hospital i was born in 53 years ago. My email is vb53@cox.net i love to talk on phone with anybody who has experience at this email me your phone number and a time to call Thank you0 -
JKINOBAY, HPV16 positive SCC lymph nodes left neck misdiagnosed as Bronchial Cleft Cyst(surgery 5-07), MD Anderson said HPV16 points to tonsil area, tonsillectomy/adenoidectomy 7-07, left tonsil serious SCC, all else clear. Had 35 IMRT w/ weekly Cisplatin 9-07 & 10-07, last PET cancer free 4-08, next PET 10-08.
Surgery and treatment in Tucson, Az. but I live and work in Mexico.
Feeling better all the time. Be well..........JK0 -
lolojldunn (Jim)
Stage 4 Tonsilar
Last treatment 8/16/2007
Montana0 -
Slickwilly. Difuse Large B-Cell Lymphoma. 2003. Michigan. Mass with Octopus tenticles romoved from the right side of my face. Cancer from the Sinus cavity to the right jaw bone. 6 Chop+Rituxin treatments and 25 Radiation treatments. No more right facial nerve. 1/2 of my saliva glands, taste buds and sinus left. A minor meningioma brain tumor and it was Arthritis and spinal stenosis that finally put me on disability. Gotta hate those side effects. Keep fighting0
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Roll Callwboaz said:wboaz, Squamous cell cancer
wboaz, Squamous cell cancer of the left tonsil, January 2006, Oregon
Squamous Cell Carcinoma Stage 4
Dx Sept 1999
7200 RADS over 46 treatments
10 rounds of weekly chemo simultaneous with the Rads
Cut from ear to ear May 1, 2000 that removed base of tongue
But I licked it.
Florida0 -
Thank you for all who haveSASH said:Roll Call
Squamous Cell Carcinoma Stage 4
Dx Sept 1999
7200 RADS over 46 treatments
10 rounds of weekly chemo simultaneous with the Rads
Cut from ear to ear May 1, 2000 that removed base of tongue
But I licked it.
Florida
Thank you for all who have responded. For those of you still in need of treatment, I wish you well and will keep you in my prayers.
There is a total of 17 of us who have responded. I will keep a roster and will have another roll call in January 2009. My hope is that we will all be present 100 percent and we do not lose a soul due to this disease.
Here is the list:
NAME STATE
Bughunter Tennessee
Christmas California
Garyr New Mexico
Geezer Florida
Hawvet Hawaii
Jkinobay Arizona
Ljoy Texas/Minnesota
Lolojldunn Montana
Lorileona Wisconsin
Marywiz15 Colorado
Slickwilly Michigan
Sash Florida
Sassyque Pennsylvania
TereB Texas
Train-nut Oklahoma
Victor 53 Rhode Island
Wboaz Oregon
If your name is not listed, it can still be added.
Mahalo and Aloha0
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