The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Getting a plan

katenorwood
katenorwood CSN Member Posts: 1,912
in Head and Neck Cancer #1
Hey guys,
I go back in again this thursday for a PET and MRI with contrast. I am so impressed with my team of doctors and that they actually are so upbeat and willing to attack this demon lurking in my body. I have a tumor board...working together for me. Some may say, yeah why didn't you have this in the beginning ? Can't answer that. Hate the 3 hr drive, but use to live in the cities so nothing new with the bumper to bumper traffic...and the fun road work. They are taking their time with everything...and can answer all of my questions, with understanding of my dx. I feel confident for the first time in 10 months that there will be a resolution to this ! Hoping a great day for all of you ! Katie
Like Care

Comments

  • luvofmylif
    luvofmylif CSN Member Posts: 344
    #2
    That is so encouraging. I
    That is so encouraging. I know what you mean about the Tumor Board. We have that where we are being treated. Nice feeling to know that all of the doctors on your treatment team develop a plan that is individualized to you and your case.

    Good luck to you. I pray for everyone on this site. You are all so kind and strong.

    Joan
    Like Care
  • ditto1
    ditto1 CSN Member Posts: 660
    #3
    Lets hope gas prices come down
    for you Katie with the commutes ahead of you, LOL. I agree on these Tumor Boards, it is nice when we have everyone one the same page. You will be in Diane and my prayers.
    Like Care
  • hwt
    hwt CSN Member Posts: 2,328 Member
    #4
    ditto1 said:

    Lets hope gas prices come down
    for you Katie with the commutes ahead of you, LOL. I agree on these Tumor Boards, it is nice when we have everyone one the same page. You will be in Diane and my prayers.

    Good news
    Happy to hear that you have a team you are confident of...that's very important
    Like Care
  • D Lewis
    D Lewis CSN Member Posts: 1,581 Member
    #5
    Go Team!
    So glad to hear you have a plan and a team you can trust. Sounds like you have everything you need. You GO girl!

    Deb
    Like Care
  • longtermsurvivor
    longtermsurvivor CSN Member Posts: 1,842 Member
    #6
    we are over the road people too.....
    Our drive is six hours each way. I have about 35000 miles in travel so far on my health care. Another trip later this week. Looking at a better gas mileage car right now....
    Like Care
  • phrannie51
    phrannie51 CSN Member Posts: 4,716
    #7
    Oh yes Katie....resolution will be a relief.....
    being in limbo for 10 months would have made me crazy!! There is something comforting about having a "team"....that they talk to each other, and the left hand knows what the right hand is doing. I'm so glad you have confidence in them...that is so darned important.

    They'll get ya fixed up, girlie....and we'll be here to root you on...

    p
    Like Care
  • Pam M
    Pam M CSN Member Posts: 2,196
    #8
    Confidence
    Glad you've got it. Hope you don't have to wait long for results, and "next step" planning. Having someone listen to, and answer your questions is wonderful.
    Like Care
  • Tim6003
    Tim6003 CSN Member Posts: 1,514 Member
    #9
    Pam M said:

    Confidence
    Glad you've got it. Hope you don't have to wait long for results, and "next step" planning. Having someone listen to, and answer your questions is wonderful.

    I am still in awe of your attitude for all you have been
    through...keeping you in prayer. Drive safely :) ....

    Best,


    Tim
    Like Care
  • Skiffin16
    Skiffin16 CSN Member Posts: 8,305 Member
    #10
    Coming Your Way...
    Thoughts and prayers for success....

    John
    Like Care
  • katenorwood
    katenorwood CSN Member Posts: 1,912
    #11
    Back on meds.....
    Hey everyone,
    Darn alergies once again have kicked my butt. Had to cancel scans because of the head and chest symptoms going on. I called in and told them what was going on and they told me that they would rather have me healthy (no snot and inflamtion going on) because this would show up hot spots where they need to look. So now schedualed for Nov 1st. Thanks for all your support and kind words. You guys all rock ! Katie
    Like Care
  • CivilMatt
    CivilMatt CSN Member Posts: 4,725 Member
    #12
    full of best wishes for you
    Hey Katie,

    After 10 months you deserve some resolution, with contrast (just kidding). 3-hour drive one way, you make sure you get plenty of rest or carry a six-pack of 5-Hour Energy (again just kidding).

    Seriously, treat the allergies, calm the nerves and have the best scans possible.

    Best always,

    Matt
    Like Care

Discussion Boards