-
Changing treatments
Just got back from the oncologist office. The doc wasn't in, but I spoke to the nurse. I'll be going back into the hospital to speak with the doc tomorrow afternoon. My hubby and I decided to go off the oxy/leuk/5FU treatment. It was a tough decision and I hope the right one. Please keep me in your prayers on that one.…
-
Cooking Liver (Ugh!)
Anybody have any tasty-(NOT) recipes for cooking liver? I'm trying to build my blood back, but can't even look at that stuff, let alone cook it.. Bud
-
Finally a Name with a Face!
Hi All, I finally got a web page written. I just received the pathology report from my follow up colonoscopy done last week. Cancer Free!!! My gastroenterologist doesn't want to see me for five years. I think that is a little long, but I will discuss it with my oncologist when I see him on Wednesday. When my colonoscopy…
-
Update on Hubby
Hi all. Well Scott came home Friday. He is on antibiotics and is taking meds for his neuropathy. Thanks for all your support. Of course, since he was feeling ok, he invited "the guys" over and started drinking last night. I was/am so angry with him!!! He says "he just wants to be one of the guys" when he feels ok. I am so…
-
To LisaT On Dr. H. J. Lenz-USC
Lisa, I would love to e-mail you directly but don't know your e-mail address so I sure hope you read and get this. Congrats on your appointment with Dr. Lenz!!!!! Now remember, he's hyper but I think you will find him just as charming, caring, and "brilliant" as Bert and I have. I assume you are flying here to meet with…
-
Vioxx / cox-2 inhibitors
Hello all! I was just wondering whether anyone besides myself had been put on Vioxx to prevent recurrences (or in hopes of preventing them). My tumor tissue was sent to the U of Oregon a while back and was determined to be cox-2 dependant. So I was put on Celebrex which caused me to feel like I had the flu all of the time.…
-
for Lisa Rose
Hiya Lisa--been trying to contact you. Wondering how you are and also if you have settled ok in your new home. For some reason my mail to you is not getting thru. Can you mail me back asap Lisa. luv n huggs, kanga n Jen
-
Thank you all
Just wanted to thank everyone for their thoughts, comments and prayers. I spoke to the oncologist yesterday and walked away feeling even better about my decision. She didn't even try and talk me into sticking it out. Not a word. We discussed statistics, survival rate comparisons, and my particular case. I'll be starting…
-
need prayers
hello to all.i hope this doesn't turn out to be too long but i could use some prayers.i just got out of the hospital after being there six days for a bowel obstruction.the surgeon i was dealing with said that he felt it was because of scar tissue at the resection site or a twist in the intestine and that the only way to…
-
Liver ablations
Had colon mets to liver. Could not resect due to location, so had 5 ablations done on April 23rd of this year. Took little over 2 months to recoup fully. From the middle of August until a week ago I was feeling just great. Then POW I had extreme abdominal pain. Ended up in emergency room and after several test and some…
-
live strong braclet
hi guys, where can i get a lance armstrong bracelet. please advise. thanks, fedester
-
Hubby
Hi all, hope this message finds everyone in good spirits. I'm not having a good day today. Scott is in the hospital. He had a fever of 103 yesterday morn and onc nurse said to bring him right in. Well they hooked him up to antibiotics and he started shaking uncontrollably. He said he was so cold and his back, neck and legs…
-
ANYONE SEEN/HEARD FROM VINCENT?
You know, it occurred to me the other day that Vincent - our Irish friend - hasn't been around in forever. He dropped out of sight and I sent him a note asking if he was OK and he said a friend of his had passed, but I haven't seen him here in a while... are you lurking Vincent? Drop us a note!
-
Don't worry
Hi all, hope you're well. I have bled all day today. Since 7am this morning in fact and it's now almost 1030pm and I'm still bleeding. Urologists office still insists it's just because of urinary tract infection. I'm getting really frustrated. Then on top of that, I have diarehea really bad. I am so exhausted from all…
-
isurvived
well it wasnt all that bad and it wasnt all that good. my first chemo appt that is. the area aound the port was so swollen the nurse had to really mash and poke me..she did deaden the area..but it still hurt. i only cried for a mere 20 min.. i cant beleive it took so long to get the iv started.. i went home with a pump to…
-
MRI/PET SCan question
I was diagnosed with Satge 4 in February of this year with a met to the liver (2 cm at that time). Started chemo in late March. An MRI in early May showed a 50% reduction in met size. MRI in July showed no change. PET scan late August showed no metabolic uptake and Onc. says I'm in remission. However I had another MRI last…
-
METS TO OVARIES
I HAVE QUESTION FOR ALL YOU SEMI-COLONS. IS ANYONE FAMILIAR W/METS ONLY TO THE OVARIES? I BELIEVE THIS IS PRETTY RARE AND I'M INTERESTED IN HEARING ANYBODY'S INPUT ON THEIR EXPERIENCE THANKS ALL
-
stage 3 survivors, I need inspiration
Hi guys, hope all are doing wonderfully well. My dad was diagnosed with stage 3 colon ca this past July. He is currently, thank our good God, NED and is undergoing chemo. He will start round 2 tomorrow and 10 more rounds to go. I, along with my family, have good and bad days and for some reason, I am having a really really…
-
O.K. Semi-colon's, I need your help
I am having a hell of a time with this oxy/5FU/Leuc treatment. I have only had 3 treatments with my 4th coming up on Monday. Except for the nausea, I have gotten every side effect you can get ( and a couple the nurses haven't heard of ). They stay with me longer and get worse with each treatment. I am seriously thinking…
-
1stchemotoday
hey thanks for all the replies you guys made me feel better. I got the port in this past friday..hurt likehell this weekend. and still cant imagine them pokin it with a needle today..but i am bringing lots of tissues cause i am a big BABY.. i have chemo for 11-2 tpday for three hours.. bringing a trashy novel to…
-
Post Op Doc Appointment
My husband finished his post op chemo (Xeloda) two weeks ago. Dx w/rectal cancer Oct. 03, surgery to remove tumor Feb. 04. Transanal Excision surgery (removal of tumor only)... Anyway, he saw his surgeon today and he said everything felt good and that he wants to do a colonoscopy in the next two weeks and again every 6…
-
I'm back!!!!!!!!!!
I'm back from Amish Country!!! Spent a ton of money. LOL. Spent as much on my husband as I did myself. hehehehehe. I am really tired, but it's a good tired. I shopped from 9am until 8am last night. Can you imagine that?????? My cathether bled each day, even today after I came home. It bleeds for about an hour and then…
-
A ? for female semi colons
Hi, I'm not much of a poster but I do read posts alot. I am on a modified FOLFOX treatment where I get avastin, oxal, luecovorin and 5FU. I have gone through 5 treatments already with some good results with minimal side effects. My CEA level has gone from 115 to 22 and the latest blood test says that my liver is…
-
new to posting
Hi to all. I've not posted before but do read the forum. I was diagnosed Dec. 31st (what a great way to spend New Year's Eve) with Stage 3C and what a surprise. I have been an oncology nurse manager for 25 years and oncology ceritfied since '87. As a nursing professional always figured I was invincible so was a shock. Good…
-
To LisaT Regarding Dr. Lenz
Hi Lisa. Yes, Dr. Heinz-Josef Lenz is at USC and we are damn glad to have him. He came highly recommended from a colon cancer patient that I met in another support group who swears that she would not be hear today if it wasn't for this man...that's how much she trusts him. Now that's not to say that Dr. Lenz works…
-
Why doesn't something go his way!
Hey all, Wish I had better news. They opened Bobby up this past Wednesday for the pelvic exenteration surgery and closed him back up. They were not able to remove the tumor as it had grown through the Jpouch and attached to the butt bone! Needless to say we (the 12 present family members and myself) were devestated!!!!…
-
HEY THANKS!!!!
Hey my gang of semi-colons!! Thanks for all the birthday wishes and toasts and such. We had an exceptionally beautiful Fall day here in the North Woods of Minnesota. After a breakfast of whole grain organic BLUEBERRY pancakes we headed off for a hike and exploration of our new "neighborhood". We hiked part of the Superior…
-
lindamarie53
Hi, Linda - Hope everything went well (or as well as could be expected) today. just want you to know you were in my thoughts and prayers. OK - time to focus on getting well now. Drop a note when you can. Vent when you want. Feel good about yourself ALWAYS. Strength & peace - SpongeBob
-
Live Strong
Not sure I should be promoting another site, but here goes.. The Lance Armstrong Foundation-(www.laf.org) is selling Live Strong bracelets. In case you don't know Lance is a cancer survivor-(testicular w/ mets) and 6 (?) time winner of the Tour De France-he is my hero..Bud
-
Very Sad
I just got off the phone with my best-friend who let me know that my inspiration has died. I met Sophie when I was initially diagnosed. She had had metastatic breast cancer for 2 and 1/2 years at the time. She was only 33 years old and had been diagnosed when she was 7 months pregnant. She died yesterday. Thank god it was…