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anyone get...
hand numbness or slight cramping in the hand and/or forearm while on Oxcyplatin? I had my treatment yesterday and this seem to occurthe day after. Happened on my last treatment, too. It has nothing to do with the cold thing. It just seems weak and a bit cramped. It goes away, it is just annoying. Thanks for any input. Barb
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Nutritionist - Dr. Keith Block
Hi, Has anyone seen Dr. Keith Block in Evanston Illinois ? My Dad saw a licensed nutritionist (who was an oncology nurse for 20 years) this past Tuesday. She was wonderful. She is tailoring a diet for my father to follow which is designed to create the best possible environment for his own body to fight the cancer. She has…
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here's some good news for my daughter
Hi all. My middle daughter, Em just had a wish granted. She has multiple handicaps due to a DPT vaccination reaction when she was 9 months old. There is an organization called the Marty Lyons Foundation. It is much like the Make a Wish Foundation. Well, her wish was to get a pool. The water therapy that she receives in the…
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One week and counting....
The decision has been made and I am valiantly trying to deal with all the emotions. I am going in for APR and vaginectomy on 9/14. Scared.... very scared. It is sooo difficult to just put my care (faith) completely in the hands of other people. I am scared about the recovery. I am scared I haven't asked all the correct…
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Bob is in the Hosp. BAD REACTION!!!!
Hello Everyone!!! I promised that I would let you know how Bob made out with his first treatment on the new drug Erbitux. I was hoping to give you guys good news but it isn't. Bob only received about 5 minutes into the treatment when all H--- broke loose!!!! To make a long story short as I don't want to ramble. Bob almost…
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Missed Chemo Treatments
Hi everyone! I have a question about Chemo treatments and I hope that you can help me. My mom is currently undergoing Folfox (4- I think) every other week for 4 months to treat stage III rectal cancer. She had surgery in May to remove the tumor and was found to have 9/16 positive nodes. Anyway, we had her treatment…
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going on treatment 28 then ct
hey all. tomorrow i will get a treatment and then get a ct scan to see what is going on. it is getting very tiring but the fight goes on. we r still fighting the lung lesion and i hope after all this treatment it is dead. i have come a long way since my surges in 03 where i had a total of 20 tumors. i will continue to keep…
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sorta bad news...need information
It has been a while since writing here. I have read almost daily but, our life was going great until yesterday's dr. visit. Hubby is stage IV and was doing fine on a low dose Xeloda. Then, within the past 2 months his CEA drifted up to 6.4. Originally, according to dr, CEA was 634?!?!?! anyway the Xeloda has obviously…
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Gotta love surgery
Hello Everyone! I'm glad to see everyone seems to be doing relatively well. Happy birthday SB! And hang in there Judy... I would really tell that skinny wench to kiss my stoma! You are a beautiful spirit - remember that! As for me, I'm alive and kickin'! I have to say that the thoracotomy was MUCH easier than the APR.…
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question about chemo
hello to everyone.i haven't posted in a little while so i thought i would ask a question.i've had two treatments of chemo (5fu,leukovorin,and oxiliaplatin) and so far so good except i've had some stomach pain that went up in to my chest.it only lasted for about 5 mins.but the pain was enough that had it continued, i was…
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YOU GUYS ARE TOO MUCH!!
Hey there everyone... I just popped on to send you a virtual post card from Cartagena, Colombia. We pulled in for a couple of days of R&R (talk about taking a vacation behind enemy lines!). We busted a boat carrying 5,000 lbs of pure coke last Sunday and that has kept me pretty busy. Street value was in the $100 million…
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avastin
Does anybody know if there's any way to receive Avastin in Canada? I know that we could look for a clinical trial but then you're not guaranteed to get Avastin, right?
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Mouth Sores
Hi everyone, I was wondering if anyone could recommend something for mouth sores associated with chemotherapy. My Dad had some discomfort after his first treatment 2 weeks ago. He had his second treatment yesterday and I was hoping to get something for him before he starts having discomfort again. Thanks So Much, Deneen
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Brother With Stage IV
f anyone remembers, I'm the hysterial/concerned sister who posted about 2 months ago when my 47-yr old brother, Dave, wasn't doing well. He's come a long way tho' docs thought he'd never make it after the last 32-day stay in the hospital. This beast is tough but Dave is TOUGHER!!! Between the power of prayer and positive…
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We're back!! Bob's spirits better!!!
Hello Everyone!!! Thank You for all the good advise!!!! We are working on those now as we speek!!! Bob wants to knw if it would hurt if he had a piece of meat every now and then. He doesn't mind eatting what he has to but he said, " I was a meat and potato's man and loves pasta." He asked me to ask you guys first before he…
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MOM'S DIARRHEA WON'T QUIT
Mom has Stage IV, with mets to liver, lungs, thyroid. Had a colon resection - came through it beautifully. Had port put in - first chemo two weeks ago. Handled it very well - no side effects. Had blood transfusion next day, suffered small stroke which affected her right side. Took her via ambulance to hospital. Now started…
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Surgeon or Onc
My husband is on his last week on xeloda post op. We have an appointment to see his surgeon in 3 weeks. I've noticed that most of you have follow up care with your onc instead of surgeon. Should we see both or just the surgeon for another CT and colonoscopy? My husband had rectal cancer, rad/chemo pre op, transanal…
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Happy Birthday Spongebob ! ! !
Hi Everyone, Just wanted to let you all know that Spongebob turns 41 on September 5th. Sponger, HAPPY BIRTHDAY TO YOU! HAPPY BIRTHDAY TO YOU! HAPPY BIRTHDAY DEAR SPONGEBOB... HAPPY BIRTHDAY TO YOU!!! CHEERS... Lisa PS, Just be glad that I'm not singing this.
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Doctor Appointment
I went to my surgeon on Thursday and he say's I'm doing really good. I told him that I have no energy and cry all the time. He said that is very normal considering the trauma my body has been through. That, plus all of you, have made me feel much better. My last blood work showed my potassium at 3.2, which he said is very…
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Just wanted to...
WISH EVERYONE A HAPPY LABOR DAY WEEKEND! Going off to a wedding this evening that I would rather not attend. I'd be happy sipping a cup of Starbucks ( no sugar thanks) sitting on my deck in this cool Northeastern weather we are having. Enjoy your weekend. Barb
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Ben will be starting chemo
Ben is slated to start chemo on Sept 20th.. that if he wounds heal intime.. still a issue here.I wasnt unable to go with him for his first appointment back when they discuss his treatment options.As I had just gotten home myself from neck surgery. so not sure yet what they are planning on using it will be interesting…
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kangatoo??howareya?
hey I havent seen a post from you in a while. puts on my glasses. are you doing okay? how is your health? yeah yeah i am nosey..one of my many virtues i am told.. that and being bossy. you were on my mind today so please let me know how you and your family are doing? i keep you and everyone here who posts in my…
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Hi Everyone
It has been a month since I have posted and I just wanted to say hi to everyone. I was just looking over some posts and it seems like most of you are doing okay! Hope things went well for you Kanga with the thallium thing. I had to do that as well a while back. I have been really busy at work, getting kids back in school…
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Support Group in Alabama
Fellow survivers here who live in or near Alabama, who would like to start a support group in North Alabama Please email me at krp@hiwaay.net My name is Kevin.
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surgery
5PM Friday-I'm home and feeling well. Was in and out of the hospital in a total of about 3 hours, minus a small growth on my vocal cords. Julie Andrews had the same surgery, and only lost an octave; maybe we'll be able to do a new duet and call it the lower sound of music.. So far only a sore throat, and I can talk without…
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folfox side effects
Thanks for the messages from my first post. I haven't started Immunopower yet--waiting to pass it by the onc. next week. I've had one treatment of Folfox--oxypalatin on Monday, then the 5FU bolus and 46 hour drip. I felt okay until Tuesday night--It felt like someone was gripping their hands around my neck and squeezing.…
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Alabama Support Group
Fellow survivers here who live in or near Alabama, who would like to start a support group in North Alabama Please email me at krp@hiwaay.net My name is Kevin.
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Dear Friends
I found this poem and thought of you all. I haven't been able to find the words to thank you for being there, but this kinda says it. Dear Friends There are no jewels more precious Than the friends God sent my way My heart overflows with happiness With the love they share each day. No matter if I'm sad or blue Or feeling…
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Bob's test results not good! Help!
Hello Everyone!! I promised you guys that I would let you know how Bob made out with his CT Scan. Well, we were hoping for good news but we got the wind taken out of our sails. The CT results showed that this new chemo regiment he was on is not working and that the cancer is growing. We were so hoping that after all the…
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Liver News about my Mass
Hi gang well I seen the Dr. today have to go for Pet Scan on friday to see if mass is just in one spot or broken up in other places. He told me that I will get Chemo( I NEVER NEVER thought I would be glad to hear that I can get Chemo) If it is localize I can that portion removed and chemo. If it is scatterd through out the…