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to mikew42
hello. i was wondering of course when you are feeling better if you can tell me about the procedrure you had and done. did you have to meet certain qualifications and such. where did you have it done at. plesase let me know all you can. i pray for a qucik recovery for you. take care nettie
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Update on Bob ! Trouble dealing with anger!!
Good Evening Everyone!!!! Well, Things here aren't going any better!!! We have been trying to get into the experimental phase of drugs testing for treatments for Bob with no luck! First they say that he qualifies and then after going through all the paperwork and testing they come back and say sorry this isn't for you. Why…
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What comes next
I was diagnosed 2 years ago with stage IV colorectal cancer. I had 8" of colon removed and 3 nodes. Followed by 6 mo. of chemo. Next it appeared in liver and I had a resection. Next it appeared in lungs so I've started chemo (oxaliplatin,xeloda and avastin). I understand that this will not cure me but may prolong my life.…
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Good Vibes and Prayers Requested Please!!!
Well folks, tomorrow Bert goes in for his CT/PET and blood tests. First set done since stopping chemo July 2004 and since last array of tests done end of July 2004. I sure will appreciate your positive thoughts and prayers that all goes well. We won't have results until we see the onc next week and there's nothing I'd like…
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Remember me in your prayers
Hi all, I see the new urologist on Nov. 3rd and my chemo doctor on Nov 4th(to see if I need to take more chemo)and then I have the series of tests on Nov 10th(CT Scan of head, carotid artery ultrasound and Echocardigram of heart) to see why I am still feeling dizzy. My family doctor is trying to get me an appt with a…
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My Mom has Colon Cancer - info
first, I would like to thank Monika, Lisa P., Sue, Steve, Jen, Julie and Judy (grandma047) for all of their encouraging words! All of your messages really made my week. Has anyone tried herbal suppliments? or seen a natualpath? My mom has only a few more treatments of chemo and the doctor's are about to give up on her.…
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stage iv colon cancer
Hi everyone, My dad (aged 63) has been diagnosed with a stage iv colon cancer last July 20, 2004. Initially he has been complaining of stomach fullness since May. But he chose to ignore it. Thus, it's been a big shock to me and my family when he was diagnosed with cancer. All my life, he has been a very strong man who…
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You gotta laugh...
Been a lot of talk lately on this site of teh benefits of a good laugh to help us cope with all this and I for one agree. So thought I'd start a topic dedicated to people describing some of the more amusing experiences they have had throughout this process and sharing a laugh with others. We could all do with a bit of…
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KrisS has passed away
I am sorry to tell you that one of your members, KrisS, died on October 6, 2004. I am her sister. She wrote in a letter that I found after her death to: "Please write a note on the CSN support site thanking everyone for the support they provided to me and that I was disabled for a short length of time due to metastasis to…
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Waiting
Hi all, I read Kris sisters post before I left for my follow up scans this a.m. in tears. Kris was so kind and well informed, and despite her own setbacks and the relentlessness of her own disease, she was always reaching out to others. I will miss her. Now I begin the wait for the results of my scans and bloodwork, as I…
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Thank you for your prayers
I had my surgery Wednesday and home Friday fastest surgery ever according to doctor it was localize waiting for lab work I have a nice bad slice. Had a epi dural but couldn't tolerate the back pains so they removed it the next day. taking my pain meds. So sorry about Kriss, Prayers do work. Will keep everyone updated.…
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Prayers needed please
Hello everyone, My Dad had his 1st CT Scan yesterday since he has started treatment. He will be receiving his first PET scan on Thursday. The last scans he had were prior to the start of any chemotherapy and showed 2 spots on the liver that were not seen at the time of surgery in June. I am praying for some good news to…
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Lance Bracelets on the way
Hi everyone!!!! I mailed a bunch off recently and have a few more to send but you should expect them any day now...those of you outside the US, I have no idea how long it will take. I mailed them all priority mail.... Susana and Brenda, your will be mailed shortly!!!! My children's ones are still on back order but I still…
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Hello all!
Hi everyone, How are yall doing? I hope this message finds you in good spirits! I'm going in for my thoracotomy today. Let the opioid-festivities begin! Going in with a few tumors, hopefully I'll be coming out with none. NED! NED! NED! I can't wait to put those scoundrels in the bucket where they belong. I asked my surgeon…
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Lisa Rose
Hiya sweetie---I have been trying for weeks to contact you--just got your prv.You are obviously experiencing the same trouble according to your message. The only trouble is nothing I try to send to you gets there. All emails get returned. We are fine here. My email addy has not changed. I thought yours may have since you…
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CAT Scan
I just had my annual CT Scan and got the results. They did a complete chest, abdominal and pelvis scan. The results showed that I have scarring in my right lung (no evidence of mets)and what appears to be a granuloma on my speen. But no evidence of mets. It seems kind of bittersweet news - good news no mets, but what the…
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Can someone please help?
My sister-in-law is in ICU with double pneumonia, a blood infection and very low platelets. She has stage IV colorectal cancer with mets to lymph nodes and spine. She is on a repirator now and is totally sedated. Has anyone been through this? We are so worried about her. Can someone help? She has been through so much, I…
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My brother John
Hi Again...I need your feedback. I'll try to be as brief as possible. I'm with my brother at the hospital who has recurring colon cancer. Just found out he has a massive tumor that is cancerous, on 2 lymph nodes and is in the wall of the stomach. His bowel is completely blocked. Nothing going into his colosomy bag. They…
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I need Your Prayers Please
Hello to everyone. Tomorrow is finally my big day. I will have my Liver Resection. My cancer came back 3 years later from my Colon Cancer. Its been a long hard wait since dx in late August-early September. I have placed it in God's Hands. 3rd time around. Breast Cancer 1999 Colon Cancer 2001 now a mets. to the liver.…
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littlejulie's engagement.....
Hi Everyone, I know we come here everyday to support each other with colon cancer. However good friendships are made here also...That's why I want to share with you all that littlejulie got engaged October 15. So together with all the Semi-Colons, I would like to " Congratulate " Julie & Steve on there engagement. May the…
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sleeping too much?
Hello everyone Now that i am with my mom, i see much more of her symptoms... there is one thing she started doing a lot- sleeping. She sleeps all the time. It scares me ... is that normal.? DOes it mean anything? she is not on chemo yet but should be soon. she is eating so-so. she gets tired very fast... yesterday she…
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doctor's appt
Hi all, I went to my family doctor today. It was a new doctor that I hadn't seen before and the medical intern with her is going to be an oncologist, so they were very interested in helping me. I have a referral for a second opinion with a urologist, but it's not until Nov. 3rd. I guess that's not too bad. I'll just have…
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low potassium levels...
Hi everyone, I not too concerned about this but I thought I would mention it b/c it can be beneficial to everyone. My mother was going to start her 4th cycle of chemo pills (5fu) but it's going to be postponed one week b/c her potassium are too low. Her blood levels are ok though. Her dose will be reduced as well. Instead…
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I'm BACK!!
Hi All!!! Surgery is done--- glad that is over. Now on with the recovery. I had the whole ball of wax... APR, vaginectomy and hysterectomy. Drs say I am doing "fantastic" and am "Ahead of the game". Physically I am doing well. Emotionally I am on a rollercoaster. Can't tell if it is the whole journey or the fact that I am…
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Genetic testing
have recently agreed to being tested for HNPCC (hereditary nonpolyposis colon cancer) and attenuated FAP (familial adenomatous polyposis) after seeing the clinical geneticist. The reason they are keen to offer this is my young age of onset (31) and the fact my parents died young so they can't be certain of whether they…
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One step forward, two back
Hi all, I feel like all I do is whine. So here goes again!!!! If you're sick of hearing me, just ignore this post. I won't mind. I would understand. Anyhow, this weekend was horrible. I've been having dizzy spells since surgery. They're getting worse and yesterday I had a splitting headache. My head hasn't felt right in a…
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Doctor very positive today
Hi all, My surgeon's office called yesterday and asked if I wanted to get this port out, and I said, "oh, yes!!!!' I went today at 10am. It hurt like h#$%#*&, but it's out. I bled quite a bit, which concerned them at first. He said it's because of the blood thinners. He also said I will get to go off them in December and…
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Update on Trip to Fox Chase!!!!
Hello Everyone!! Well, I'm sorry that I didn't post right away I was waiting for more info before I let you guys know what was up. Well, when we went to Fox Chase in Phila. it wasn't what we were expecting. It is a beautiful place but we weren't impressed. We waited 1 1/2 hours to see the Dr. which didn't help Bob's…
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Emily- Need your regiment!
Emily if you get a chance can you send me you regiment that Sponge Bob mentioned. I want Bob to keep fighting and I need you help to do that! If possible can you email me with the info. : bsrules@earthlink.net Thank You!!!! Sue
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just wanted to say hi...
i haven't posted in awhile. my mom just finished her 3rd cycle of chemo pills which means 3 cycles to go. she's exhausted! she's been sleeping for 2 days! i know she'll bounce back though. her week off chemo is ironically always her worst. i may not post but i read every day. im a little down today but realizing that 'me &…