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The bag
Im looking for people interested in email or maybe even phone correspondence who have gone through the surgery and have the colostomy bag, my cousin is actually the one with cancer and he has put off the surgery for to long and I thought maybe if I could link him with some whod had the surgery and could let him know that…
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Expectations after bowel re-section
It has been almost 2 years since I had a good sized Sarcoma removed from my small intestine taking with it 6 or so inches near the ileum. I was fortunate that the tumor was very low grade and showed not evidence of metastic disease, so there was no follow up or chemo treatments suggested. The surgery was unremarkable and…
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Nettie
Sorry I missed you Nettie--bin AWOL again for a coupla days workin. Sorry you are facing surgery again sweetie. Hey--yu know Jen and kanga are keeping you in our prayers---be strong gal--we are here for yu!!! luv n huggs kanga n Jen
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Waiting for news
Hi Guys, My dad had a CT scan yesterday to hopefully give us all an idea of how his body is reacting to his chemo. I think the results will come on Friday, but I am just so worried that its going to be something I dont want to hear. I guess that dad has been having more better days then bad ones (which is great) but…
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Here we go a travelling...
Hello all: We have received the "okay" from Duke Univ Hosp that Hubby's tumor while "quite large appears removable". He will undergo a pelvic exenteration next Wed. He'll be in ICU for a couple of days but hopefully out by Saturday, his 48th birthday. The hospital stay itself should be around 7 - 10 days. We are both very…
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update on Ben ... isnt good news
I havent posted alot lately cause Ben and me both have been going threw some pretty ruff times. Ben with his surgery in May but him not being able to seem to heal and me with my 2 spine surgeries in aug.. so its really been crazy here. Ben returned to hopkins today to see Dr Singh that was the plastic surgeon during his 13…
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Oh Canada!
Hey GO Canada! World Cup Hockey! Was that exciting or what? just wanted to celebrate with my Canadian neighbors in their hockey glory. (what can I say...I live in Minnesota where hockey is a religion and my son was baptised in it haha) peace, emily who is married to a Canadian born in the States (spittin distance from the…
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Colostomy Advice Needed
Hello, My dad has a colostomy as a result of his surgery in June. His attitude in general is very good but he is becoming very frustrated with the colostomy. The bags are not sticking well enough, particularly at night. He is having problems with them becoming loose or popping off when he rolls over, resulting in a bit of…
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Stacy...Are you the blond or the brunette?
In the latest edition of the online newsletter, there is a piece written by you with a picture. Very good article and so nice to see your everpositive smiling face!!!! Lisa
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Lab results
Finally got lab results from the vocal cord surgery..benign, yes, benign..about time there is some good news. Now all I have to do is benign the rest of these buggars - CT in 6 & 12 wks post IMRT-(Aug) to see what they can see.. Bud
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Update!! Bob is HOME!!!!
Hello Everyone!!!! I want to Thank all of you again!!!! I brought Bob home about 7:00pm last night. He headed right for the couch and his favorite show - "COPS". He was his old self again, yelling at the TV. It was music to my ears!!!! He was his old self today. Outside working on getting the bugs out of the Scout so we…
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THANKS FOR THE WELCOME
My friend Spongebob said many nice things about all of you. I feel honored to be a part of such an august group! I'll be sure to keep you all posted on my particular cancer case. Surgery's next Thursday, so you know I am growing more nervous by the hour. Thanks for all your support and prayers! Sea detail
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kangas "heart"
Hiya guys--YIPPPPEEEEEE!!!!! ALL CLEAR GUYS! Heart specialist tild me to go away n never come back today!. Phew, what a relief! We were so worried and if not for all your prayers and love things may have been different. My spec. was worried that chemo and the fact that dad died of heart failure, heart problems were likely.…
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Conjestion
Has anyone experienced an allergy-like chest conjestion after chemo? Since going off the chemo, I've developed a late-in-the-day onset conjestion, for which I have been taking Clariton..any similar experiences out there? Bud
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New Names?
Sounds like Kangathong and Speedobob have re-named themselves..anybody have suggestions for re-naming these two? Bud
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Hi everyone!
Although I haven't posted in a while I wanted to let everyone know that I've been reading the posts, that you are all in my thoughts and that I'm sending positive energy your way. Just to update you, I'm back on xeloda after surgery for rectal cancer June 28. I'm cancer free, back in graduate school and starting a full…
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Brother cancer free?
Thanks again to all of you who continue to give me great advice and feedback. Nearly a year ago, my brother was diagnosed stage III. I spoke to both his surgeon and his primary care doctor. They told me (and him) that he had cancer imbedded in his pelvic wall that was non operable and even with chemo and radiation he was…
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Kanga and Spongebob
Kanga and Jen, your hug has been delivered. Em had a great big smile for you. Thanks so much. Sponge, I'll give you and everyone else the date when the pool is finished. Bring the drinks and I'll supply the sunscreen. BTW, I don't think my hubby would appreciate a baywatch hunk. How about you just show up in one of those…
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hers's my dad clinical trial - need info
well the nurse just called me to let me know that my dad (who is/was stage 3, 5 post lymph nodes) as of next week (tuesday) will start for the first 3 months a combinationo f 5fu/leu/oxi and then for the last 3 months a combo of 5fu/leu/ironotecan (sp???). Has anyone been on any of these combinations before???? thanks…
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Update on Bob!! - Your prayers worked!!!!
Hello Everyone!!! Thank You for all the wonderful prayers!!! They must of been really good as he is doing much better!!!!! After I posted last night I went back to the hospital as I jsut couldn't leave him. He came out of the shock about 1:00am this morning. They have moved him out of ICU!!! If his blood pressure stays…
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What is....
I have read this time and time again.... please clarify.... what is "NED"? I am slow, believe it or not, I had to ask what "LOL" meant!!!! How sad is that??!!!???! MJ
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INTRODUCING Sea_detail
Semi-Colons - I would like for you all to give a big welcome to my personal friend Sea_detail. He and I worked together for a few years during the time that I was going through diagnosis, surgery and chemo. Now he has officially joined our ranks as a semi-colon. I have told him a lot about you all and what a great group…
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cancer and peace of mind
hi guys, i posted just last week about my dad who has stage 3 colon cancer. He was operated on July 30th in which they removed 2 feet of his right colon along with 35 lymph nodes, 5 of which were positive. He just had his first CT scan last week and thank our God he is NED. Monday he will have his port put in and Tuesday…
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blood work
hi everyone, my mom is on her 2nd treatment of chemo post op and she just got her blood results from yesterdays appointment. The doctor said she can continue chemo but her white cell count seems to be a little low. Is that normal? If I'm not mistaken I think chemo attacks the white blood cells so thats why it would be low.…
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THANKS
For fear of my recent post dissapearing off tha screen and not sure if yu would read it I reply here. SERENITY PRAYER--FOR YOU ALL! God grant me the serenity to accept, The things I cannot change, The courage to change the things I can----- And the wisdom to know the difference. I cannot thank you all in person, I cannot…
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Liver News about my Mass
Hi Gang, just as I suspected Iam now the owner of Liver Cancer to add to my list of Breast Cancer 1999 Colon Cancer 2001. The mass is about 5cm localized according to to Pet Scan I had last Friday. Scheduled for biopsy tomorrow. Doctor wants to do Surgery Monday if possible. I am just taking it in stride. Keep those…
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anyone get...
hand numbness or slight cramping in the hand and/or forearm while on Oxcyplatin? I had my treatment yesterday and this seem to occurthe day after. Happened on my last treatment, too. It has nothing to do with the cold thing. It just seems weak and a bit cramped. It goes away, it is just annoying. Thanks for any input. Barb
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Nutritionist - Dr. Keith Block
Hi, Has anyone seen Dr. Keith Block in Evanston Illinois ? My Dad saw a licensed nutritionist (who was an oncology nurse for 20 years) this past Tuesday. She was wonderful. She is tailoring a diet for my father to follow which is designed to create the best possible environment for his own body to fight the cancer. She has…
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here's some good news for my daughter
Hi all. My middle daughter, Em just had a wish granted. She has multiple handicaps due to a DPT vaccination reaction when she was 9 months old. There is an organization called the Marty Lyons Foundation. It is much like the Make a Wish Foundation. Well, her wish was to get a pool. The water therapy that she receives in the…
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One week and counting....
The decision has been made and I am valiantly trying to deal with all the emotions. I am going in for APR and vaginectomy on 9/14. Scared.... very scared. It is sooo difficult to just put my care (faith) completely in the hands of other people. I am scared about the recovery. I am scared I haven't asked all the correct…