-
Home from surgery
Hi everyone. I am stage 4 rectal cancer with mets to my liver.. I went into hospital Tuesday for my laproscopic low enterial recection and arrived home today around noon. I am so happy to have this part over with and hope I will have no complications as everything went great. I feel great and will now heal and get worknig…
-
Liver mets
Hi all, Yesterday we got results of my husbands ct scan which shows no change to his previous scan 12 weeks ago. He is stage 4 with liver mets and after 6 treatments of Folfox6 and avastin he responded well with 30% reduction in size of tumours but after 5 more treatments the tumours have remained the same size so the…
-
HELP!! Skin breakdown/infection from iliostomy
I posted something for my friend Mark last week asking how long one can leave on an iliostomy bag. He's really been having grief with this from the beginning but since he discovered benzoid, he left his last back on for 16 days. Not having access to the nurse (she's an idiot anyway), apparently leaving it on for this long…
-
Catalina Foundation: for women with rectal cancer
Hi. I also wanted to let you guys know that some relatives of mine have begun a foundation called the Catalina Foundation: for young mothers with rectal cancer. The hope is to expand to serve all with colon and rectal cancer. and to partner with other organizations and do fund raisers and provide education and awareness. I…
-
thanks
thanks to everyone who responded to my "good news"..this site has been my extended family for over 5 years-I have much to be thankful for; not the least being CSN
-
Ever wait so long for a CT scan?
My friend Mark had his rectal surgery on Feb. 2nd. They have finally scheduled a follow up CT scan for him for March 28th! That will be over two months when they finally get the results. They had one scheduled already (with much prodding from me) and cancelled it at the last minute due to an emergency. I personally think…
-
Good News
for those newbies who don't know my history; I'm crc with mets-(12 plus) to lungs, 5+ years since original dx and surgery. I've been on Avastin/Erbitux monotherapy for about a month. saw the ONC yestrday, and CEA has come down from 18 to 6! Although inconclusive w/o scans to confirm reduction/growth of tumors,this is good…
-
Stage IV's please respond...
WOW... where do I begin here... Well hi everyone! My name is, Mary, and my mom was diagnosed with stage IV colon cancer at the end Jan. 06 with met to her liver and lungs. I plan on being there for her every step of the way; and am trying to keep a positive outlook in all of this... it's really hard you guys! Plan on…
-
Good Scans!
Hi Everyone, I haven't posted in a while. I've had a lot going on at home and have been really down. Originally diagnosed March 2004 with rectal cancer, a large tumor, but no other involvement. I did 5-1/2 weeks of radiation and chemo(xeloda), then surgery resulting in a permanent colostomy and 6 more months of…
-
I got accepted to be a 2007 colondar model!
Hi everyone I applied for the colondar and got accepted. Anyone else here doing this??? We shoot in June. This is so exciting. 24 folks selected from all walks of life so I will get to know them well over that weekend. Molly from the Colon Club seems so ultra cool. Any of you know her? Claudia
-
Avastin
I had a colon recection after finding out that My polyp contained cancer, They said I am at a stage 2-a and now they want me to do Chemo along with Avastin as a clinical trial. Has anyone participated in this trial or would anyone have information about this trial either good or bad ?
-
Avastin for Stage III cancer
Hi all, I have a question for those who had stage III disease (lymph node involvement). Did you receive Avastin? I received Avastin for 4 rounds in beginning of my treatment because they thought I was stage IV(liver mets). I had liver resection which showed a beinign tumor in lmy liver which means i was likey never Stage…
-
More great news!
Hello everyone, I had my CAT Scan results today, completely clear!!!! Dr still worried a bit as my CEA is still climbing, but I had another blood test today and will have one a month and go back to him in three monts time. I am so pleased as the no one grandchild is due in 2 weeks and I will be able to go down for the…
-
Foo Bird
Subject: The Foo Bird Message: I LOVE bad jokes..thanks Sponge & Kanga. Here's my contribution: This eccentric rich scientist spent most of hs time studying rare birds. One day he receives a call advising that a particularly rare bird, the Foo Bird, had been sighted in Africa. He immediately rented a jet and set off in…
-
redtoenail.org
this is a cancer site (Blog) by Dr. Phil Berman-(Lung Cancer Survivor)the name derives from his plan to paint one toenail for each year he is a cancer survivor.A portion of his statemet follows: "Once there are enough of us, we become a powerful force in cancer care. Think about it. Every body that profits from our illness…
-
Friend's day Stage III Colon Cancer
My friend's dad just diagnosed with Stage III Colon Cancer. He's 80, the MD trying to say chemo may not help, not giving much hope. I suggested 2nd opinion might be in order. Told her not to give up. Tell him not to, either. She had so much pain in her voice. I cried. It's been a year since my diagnosis. I though I was…
-
EGFR
There has been mention recently in posts about EGFR; here's a link for those who have not heard of this research; http://www.egfr-info.com/ cheers kanga
-
Possible Clinical Trial at NIH/NCI
Hi all - This week I have been talking to docs / nurses involved in a clinical trial at NCI. The trial involves radio frequency ablation of liver mets but with a twist. They inject you with doxorubicin (standard chemo drug used for breast and other cancers). The drug molecules, however, are "micro-encapsulated" with…
-
quick ER trip
Hi again. well, sorry I was MIA. I was feeling a little crummy on Friday afternoon, got progressively worse Sat. Then Sat night I began throwing up anything - and I hadn't eaten all day. All the pain pills (narcotics) stuffed me up. I hadn't pooped since Tues morning and I ate a normal diet on Thurs and Friday. I stopped…
-
A LITTLE HUMOR
I went into my oncologist's office for my first rectal exam following chemo. His new nurse took me to an examining room and told me to get undressed and have a seat until the doctor could see me. She said that he would only be a few minutes. After putting on the gown that she gave me I sat down. While waiting I observed…
-
Thanks and Question
Thanks to everyone for all the kind words on Tuesday (from my earlier post regarding my moms clean scan results). SpongeBob was correct when he said that now the period of "worrying about every little tummy ache begins !" Needless to say, my mom is getting tired of watching us freak out everytime she sneezes. One another…
-
Facing Our Fears
Hi all, I have my colonoscopy scheduled for this Friday and I just wanted to share some of my thoughts with people who understand. For those of you who are not familiar, I am a 43 year old and seven year survivor of stage 3 rectal cancer. I endured almost a full year of preoperative treatment, surgery and chemotherapy to…
-
Folfox - Finished 8 of 12 - Its getting tougher !
My father finished his 8th Folfox treatment of 12 about 2 weeks. With the 8th treatment things have really gotten tough. It seems as though he has barely recovered and is due for #9 (assuming his counts are ok). He did really well with 1 thru 7, just some fatigue and loss of appetite for approx. 5 days after. With…
-
just diagnosed stage III rectal
Had my operation on 4th January. Clear margins - 2 out of 17 lymph node involvement stage III. Started Flofox on 28th February. I have been having trouble with diarrhea since the operation and take immodium. Is taking Immodium EVERY DAY the only way that I can control the diarrhea. Once I take the immodium lie down for an…
-
CT & Bone Scans back.....What next?
My dh's ct & bone scans came back and we were very confused. The CT scans of the chest, abdomen & pelvis were mixed results....liver lesions have shrunk (which was excellent news), but......there is always a but....the lymph nodes have all increased as have the lung lesions (1 so much so that they were unable to make a…
-
great news to share
Hello All, I thought I would pass on some wonderful news - my mom (originally diagnosed Jan 2003, Stage III) received a clean bill of health at her 6 month checkup today.. All her Scans came back NED ! As most of you know, waiting for the routine follow up results is a tortuous experience, at best. It is such a relief. (we…
-
re: For Stacy
Stacy, I posted something under your post regarding the iliostomy topic below. Thanks! Kathryn
-
what is too long for iliostomy bag?
My friend went from not being able to keep a bag on or from leaking for more than two days to having the latest one on for two weeks. Since he is going to a county hospital and there is only one iliostomy nurse for the entire hospital and she is only there on Mondays (basically her advice initially was worthless and he was…
-
dad's second chemo treatment
Hi Everyone, My dad is 75 years old and was dx colorectal cancer stage IV, he tolerated the first chemo for 6 months really well without much side effects. He finished chemo in 8/05 and was clear on CT/PET scan. In 10/05, he started to have lots of back pain and other unknown pains and the oncologist ordered PET/CT due to…
-
discoloration of the hands
My hands and nails are getting darker and I use lotion and vitamin E everyday. My feet are so dry after I put lotion on them that I have to wear closed toe shoes. My tongue is getting darker. I have 4 more treatments of the CPT-11 and Avastin. All my hair came out in a week. This is my 3rd go around with chemo. I took 5-FU…