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Welcome to New Folks
We have a couple of new folks who have posted on other threads but wanted to make sure everyone had the chance to welcome them. AnneCan caught them both and gave them her welcome. Annad723 JoyceSteele Welcome to you both. We always say we are sorry for the circumstances which bring you here, but we are glad to have you as…
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Met with the surgeons and the surgery date is..
well, I don't have a surgery date as of yet. They found another tumor (been there the whole time, just that it's been missed apparently) in lymph node I think they said, and it's next to the kidney. So, now that I have my colon surgeon and liver surgeon, a urologist surgeon is now being added to the mix. I also now have to…
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2nd Opinion from the Duke Tumor Board is in...
Not really what I wanted to hear. But we don't always get that luxury. They recommend against surgery, and did not recommend other options either. The nodes are too close to my spine. They also said that they don't know if there is a benefit of removal of the nodes in my particular situation. He did speak with another…
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HIPEC Surgery on Monday
Hello everyone, You know, with so many people having so many problems out here tonight, I feel selfish in asking, but could you all please send thoughts and prayers up north to Boston this weekend? I don't remember if I posted this or not, but my Rick is having HIPEC surgery at Tufts in Boston on Monday morning, and all…
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bad weekend
well this weekend is chemo weekend now my son fights with everyone on chemo weekends and i dont know why today i had a cpr class so my mother inlaw came to help me with jorge and when i got home my son was in tears telling he hates his dad i keep trying to keep everyone together but now im starting to feel sick and im get…
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my scan results
Hello, I had my PET/CT scan yesterday and got my results today at an appointment with my oncologist. Results... CT portion of the scan showed that all nodules in liver and lungs are stable- all except for one nodule in my lungs & that one more than doubled in size from 0.6 cm to 1.4 cm. The PET portion of the scan showed…
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Folfox and mouth sores?
Hello all, quick question that I am hoping you might be able to help with. I did my first of 6 rounds of Folfox last Mon/Tues and tolerated it quite well. However, beginning this past weekend, I got a couple of sores in my mouth. The worst of which is on the tip of my tongue. I have been using Biotene a couple of times a…
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IDLEHUNTER
Just so you all dont worry about Ms. Jennie (IDLEHUNTER), I am here to let you know she is going to be very busy taking care of her family and her Brother Chuck. As you all know he was in a horrible situation that left him pretty banged up. Good news is he is alive, got insurance, and is being treated well! Jennie asked me…
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How are you Pepe?
I know you were having your 1st radiation treatment today; how are you doing?
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New MIT Article on Tumor-recurrance
Hi all, For those out there who might be interested in the latest scientific news on tumor recurrence, you can check out the following MIT research news article.(I apologize if the link doesn't work, it's an internal news report to the MIT staff. So I posted it here just in case...) -- Cynthia…
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Brother Hurt
I know this is not a cancer related issue but you guys are my family and I need to share this. Some of you know my brother Chuck... he attended Colonpalooza with me. When we returned from Texas his live in girlfriend (Nicole) had left him. She was not so happy about him going. It just so happens she is his next door…
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My stoma is on a different page
I have another question. I'm sorry if this one is too personal, gross,or yucky. I'll try to not get quite there. Here goes.......does anyone have or had a temporary loop iliostomy? I have one and it confuses me. I know I should not worry about it, because it's going to be reversed, and soon. But I like things to work the…
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XELIRI regimen questions
Hi all - Yesterday I had my first round of irinotecan and avastin. Today I start xeloda, 4 pills 2x a day for seven days. Off for a week, then back in for another round. Most folks seems to do two weeks and off one, so I'm wodnering if anyone is doing one on, one off? I did one round of oxy, avastin and xeloda in January…
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FYI:Oxaliplatin and Irinotecan (tho not together):
Researchers have recently reported that the severe diarrhea that often results from Irinotecan and may result in a lowering of its dosage or stopping its use, might be mitigated by 4 out of 10,000 compounds they screened (with explanation of how diarrhea is caused…
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Friday Riddle Answer
Congrats to Goodwitch for the correct answer!!!!!!!!!!!!!!!!!!!!!!!!!!!! RIDDLE: I might be a dragon, I might be a saint, Maybe I'm friendly, And maybe I ain't, If you take all my letters, And shuffle them round, "Woman Hitler" Is what can be found What am I? ANSWER: Mother-in-law
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Bowel Obstruction Again
Damn these bowel obstructions really aren't fun. I started feeling bad after dinner Thursday, an hour or so later the excrutiating pain set in. Was up and down all night and skipped work on Friday. Slept as much as I could and started to pass gas and stool into bag about 11 a.m. Went to see doc yesterday and was sent to…
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Michael Douglas & Suzanne Somers
Hello my semi colon family, Very interesting article on Michael Douglas, according to this as those of us who took the chemo route I have brain damage, kidney damage, heart damage the list goes on. http://www.NaturalNews.com/030274_Suzanne_Somers_Michael_Douglas.html This guy isn't selling the alternative route very well…
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continued mouth issues
22 months since chemo ended, quickly approaching the 2 year mark! yeahhhh NED for 2 years 5 months Have an oncologist visit coming up in Dec, I am not on anything other than vitamin D and calicum For reference- I had ungodly mouth issues on chemo- was hospitalized for a week at one point because mouth was swollen shut. I…
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I was shocked to learn....
That there are persons that feel that long-term survivors should not share their life experiences with others.... because then they are (wait for it....) GLOATING!!!!!! What??????????????? I don't know about you all, but I CELEBRATE each and every piece of news that my family here share that show that their lives are…
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Premature Grandsons
Hi everyone. This last week has been very hard. It did not involve cancer, scans or tests. My twin grandsons were born very prematurely at 27 weeks. The events leading up to their birth are hard to think about and so I will not include them here, but the little guys and their mom and dad are doing as well as can be…
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holiday time = good food time
I love to cook and try new recipes.. I made a pretzel crust, raspberry cream cheese type dessert! Its the only thing I can get chris to eat now..lol I love this time of year :) Loves Mel
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Phase II Clinical Trial at Vandy
For stage IVs who might be looking for a clinical trial and have already been on an irinotecan-based first-line chemotherapy regimen (ie FOLFIRI, FOLFIRI + bevacizumab AKA Avastin). http://oncore.mc.vanderbilt.edu/sip/SIPControlServlet also here: http://clinicaltrials.gov/ct2/show/NCT01111604 They are recruiting all over…
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Stoma bag install trick
Hey fellow baggers. I learned a trick that has helped me a lot when installing a new bag. I use the Coloplast one piece bag. After I draw the cut line to make the stoma hole, I close the end of the bag up. Then I simply blow air into the bag at the starter hole. With the air in the bag it makes it easier to make the hole…
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University of Michigan Cancer Center
I am curious if anyone is being treated here and what they think of this cancer center, particular doctors, etc ... Thank you in advance for comments.
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CAREGIVERS and THEIR LOVED ONES – A Song for You Today:)
I was driving into radiation treatment today and the song, “Look at Us”, sung by Vince Gill began to play. It made me do some deep thinking as I was chewing up the miles to the hospital. I found that the words to this song can apply to any of our relationships that we have with our loved ones – from spouse to spouse –…
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Pepe
Congratulations on your soccer team winning. We saw it on the sports channel. Hope it made you feel better :) Linda and Ellie
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Tomorrow is a big day---UPDATE disappointing
Well it's here. Tomorrow I go to San Diego to consult with Dr. Lowy at UCSD. He will be the tie breaker--surgery then chemo (what I want) or chemo then possibly surgery (what the surgeon wants). This is my second recurrence, my first after HIPEC just over a year ago. Seems like it's still in the abdominal cavity but each…
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Pain continuing 6 months after surgery
I had my the right side of my colon removed and part of the transverse colon removed in march 2010. I still have pain on my right side, and what is really strange is that it is worse when I am laying down and roll over but fine when I am standing up. I haven't figured up how to sleep standing up, co this is ruining my…
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Daylight Saving Time
Just a reminder for those of you who change their clocks that tonight is the night. Yipee we get an extra hour of sleep. Kim
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Yearly scans update:
"The results of your recent mammography are negative for cancer. The finding are benign" 5 YEARS!!!!! I am dancing and dancing!!! Hugs, Kathi