-
Folfiri stopped working
I've been on Folfiri since June 2018 and have had increases in my CEA. Just found out the tumors in my lungs are growing again. The doctor at my local clinic said that the average time on Folfiri before cancer progresses is only about 3 months so she thinks I did really well on it. However I believe that there were too…
-
Ketruda was approved
Does anyone know if this means unresectable with no mutations was included? Having studied a lot of math, the use use of "or" in this sentence means each of these types are treatable by keytruda. But, I do know, in general, math logic is not always used correctly in statements. But this is science so hoping! I mean, for…
-
Good News on Liver CT...But Hold On a Second
I posted my good news that my liver 'maybe mets' were gone for now. I was very happy. But wouldn't you know - my asthma doctor ordered a chest X-ray because of something he saw on that very same scan. And even though my liver looks fine, the radiologist said that my lung X-ray was "concerning for malignancy". I was sent to…
-
Enjoy Reading
I really enjoy reading the coments on here, It is very comforting to see the care and compassion that everyone here has for one another. We all have our own battles and we all have each other. I pray for all of you.
-
Sometimes its just hard to put on a brave face
My dad had surgery for rectal cancer stage 3 in december and they been watching if they missed any sense. Biopsy just came back and he still has some of the tumor left which is shocking to me and my family . Cause my dad has been doing really good he has gained 50 pounds and is still getting around great . Now they want to…
-
Not worried, BUT...
I get scan results Tuesday. I feel like the results will be stable or good. But that makes me worry because the last time I wasn't that worried about a scan, I had my recurrence. I feel like it is not possible to have a scan and not worry at this point.
-
fatique
l'm one year out from having stage 1 colon cancer. Had my ascending colon removed. Took 22 lymph nodes which proved to be all negative. Just had my 1 yr follow-up colonoscopy.....it was all clear. I get CT scanned in 3 wks and blood work. MY question..........l battle fatique since the surgery. Doesn't seem to be getting…
-
Happy Birthday Kim (Annabelle41415)
You are a treasure, here on the forum, and we are all so grateful for your continued sharing. You have touched so many lives. Have a wonderful day, and may you have many, many more to celebrate with those you love - and us. Tru
-
Problems post treatment
It's been a long time since I've been here. I'm at my wits end with doctors. In 2019 I was diagnosed with stage three rectal cancer. I first underwent a chemo/radiation combo where I took Xeloda twice a day during the week while getting radiation treatments Monday through Friday. This was followed by surgery that did not…
-
Hello, new to here but not new?
Hi everyone. My husband was first diagnosed in March 2014 at 41 yo, stage 4 when the found it. He's gone through radiation, all the chemo-Xeloda, 5FU, Folfox, Folfox-avastin, and some others I dont remember. He's had 4 major surgeries, ablation, resection, you name it. He's had it removed from his colon, liver, lungs,…
-
NewHere
Anyone heard from NewHere? It doesn't look like he's been on for awhile and I'm concerned.
-
Hi New Guy
HI, Brand new to the board, and cancer. Found out Friday that I have a mass in my sigmoid colon. Good news is CT scan confirmed that the cancer hasn't metastasized. Had a consult with a surgeon yesterday who apparently is one of the best in the city. She wants to do an MRI to confirm exact location. Surgery expected 2-5…
-
It is Danker's Birthday week
This week, our very own Danker, the most senior member of our forum, celebrates his Birthday. Let me start the party, with a HUGE wish for a very special week, and a womderful year ahead. Happy Birthday my wonderful friend.
-
Colon Cancer Stage 4
Colon Cancer Stage 4 Is there any recovery from it !!!!!!!!!! My Hematology/Oncology is telling me that I will never be cured or should I say go into remission the only thing that they can do for my cancer is to keep it stable. It started in the colon and moved to other organs Is this true
-
Taste and smell
I've heard of patients diminished or loss of smell or taste, but since I started VECTIBIX chemo my sense of smell and taste have become more intense. Especially sensitive to salty foods. Also, I feel like I have worse body odor, but I think I'm just smelling myself more because no one in my family has noticed. Has anyone…
-
Uncertainty
Finally had my annual scan and bloodwork that was postponed from March due to COVID-19. Was really hoping to report year 4 NED but, alas, that was not to be. They found a very small (3mm) nodule on my right lung and unfortunately I had an increase in my CEA to a 5.8. While my surgeon would not have been concerned with just…
-
Chemo break and colon resection
Hey guys, Hope wherever you are that you are doing well! My dad is now home from the liver surgery. It heals nicely but hell it was terrible even though the mets are out the liver surgery was not easy at all. Starting at 0 again and the recovery needs a while.... but we are positive I am writing because my dads last chemo…
-
WELCOME BACK CSN BOARD!!!
Missed you. This is the only thing I use ACS for really, the one time I called was not much help, and this is something important for people in terms of support.
-
Happy Six Years NED today.
Happy Me! Yeah, that about sums it up. Tru
-
Fever days after chemo
I'm on my 2nd round of Folfox. I get it every 2 weeks and wear a bag for 46 hours. Neuropathy has been bad this time around and I know it will only get worse. Usually my worst days are Thursday, Friday and Saturday since I get the bag off on Thursday. Today for some reason I felt off and took a nap. When I woke up I had a…
-
Finished w/ infusion chemo, moving on to radiation + xeloda
Hi Everyone- After 7 treatments with infusion chemo and a recent mri and ct scan, my oncologist said it was okay for me to move on to radiation and pill chemo. During that visit, I told him that my bowels had become incontinent in addition to the diarrhea I've had since starting infusion chemo. I could tell he was…
-
I thought They Closed This Joint....
The neon light was flickering in the window so I decided to climb over the yellow crime scene tape and make my way to the front door. Imagine my surprise when I wasn't thrown out -- don't tell me you folks are letting me back in here?. I may not come in these days but all of you are in my thoughts more than you know and…
-
Got Latest CT Results an Hour Ago on My Provider's App
My CEA had been rising a bit, nothing super high, but a steady rise. I was due for a CT, as I have liver lesions that MD Anderson can't decide are mets or something else. Colon cancer loves it some liver, so both surgeons consulted said cut them out, as I was likely mis-staged and I should have been a IV. I was about to…
-
High dose vitC
Paper on VitC and fasting. https://www.nature.com/articles/s41467-020-16243-3
-
How do i cope?
Just been diagnosed with colorectal cancer - but do not know the stage. I only know that 5 months ago i started getting stomach cramps every two weeks or so. I went to the doctors four times and they gave me a ultrasound which showed nothing. I was told over and over its IBS or Chrons and i thought the tests were good…
-
The liver mets are where they are supposed to be
Hello guys, I hope you are going strong and are during this virus spread safe. A lot happened and I wanted to give some updates on my dad, 56, with MS and colon cancer stage 4. My dad is since Tuesday in the hospital. On Wednesday was the first very important surgery against the cancer. But let me start about the CT. The…
-
Happy Birthday, Beaumont Dave - 23rd
I hope you have a great day, in spite of lockdown and all the craziness that comes with this year. You're a rock, here on the forum, and we appreciate you and your ever sensible advice, more than you will ever know. Happy Day, my friend. Tru
-
Living With Regret
Hi all, I posted a few weeks ago about my wonderful 64 year old father, who after a few months of vague symptoms (gas and weight loss) was diagnosed with colon cancer, with massive spread in the liver, both adrenal glands, lungs, bone, and brain. The tumor was in the sigmoid colon and was 8cm, so I am shocked he had no…
-
Thinking about Butt
Is there anyone on the forum who is in touch with Butt? I did send a personal message via CSN, but have not heard anything. I confess I am worried about her. Tru
-
to late
I had wrote under the heading (to many test) after being sent to the surgeon in may,he has sent me for test after test. still needed to go to a urogist for his test and had at least 2 more test for gyncolist. I have stage 4 colon cancer invading female parts with tumor there,plus tear between the two areas. I ask for a pet…