Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Colorectal Cancer

Symptoms
Good evening, Happy Sunday! I was wondering what were some of the symptoms experienced to lead to a colorectal cancer dx? Myself I am in remission with endometrial cancer, and confirmed with Lynch Syndrome PMS2 mutation. I stressed to my gyno/oncologist at my last follow up that I am very tired, no energy, and I have…
MRI and mutations - Update
So hello guys, A month back my dad had a little jaundice. They didnt find anything on the USG, so last week a MRI was scheduled. Today they think that there is a hemangioma in his liver. A benign tumor. They will check it further on Friday after the chemotherapy number 6. He will have 2 more as far as I know. His mutations…
New Here - major anxiety non-stop for my wife
In August 2019, my wife (39 yrs old at the time) was diagnosed with colon cancer. 1 tumour, stage 3. Surgery removed it, cancer found in 3 of 27 lymphnodes. Not terrible, but not perfect. She began chemo - did 4 cyces out of 8 and they discovered metastic lesions on her liver. 2 tiny ones. Cancer then re-staged at 4a. She…
Update on my sweet husband
I haven't posted much since Richard's APR in march 2019. He has adjusted amazingly to the colostomy. Richard has clean scan until January 2020. Then a spot on the liver was found. He had a liver resection in February 2020. he had a clean scans in May then in aug another spot was found in the liver in the portacaval lymph…
In need of support
Hello, My mom was diagnosed with stage 3 colorectal cancer back in March. She went through approximately 5 months of chemotherapy treatment with infusions and pills every three weeks. She then completed 6 weeks of chemo pills and radiation treatments 5 days per week. Through the duration of her treatment, she has been…
Update from Penn State vivit
Just letting you know that the Penn State trip was good as far as the liver resection goes however the chest CT showed some small lung nodules so resection on hold for now and I am back on chemo for a bit. I will re-visit Penn State in January to repeat scans. I am fine about all of this because many of the comments made…
Stage 4 colorectal I need some positive survivor stories right now
So I went to MSK for a second opinion today. The dr told me she would recommend the same treatment my dr recommended. she told me that after liver biopsy that it's in my liver and my rectum and lymph nodes. And there are nodules in my lungs. Also I have ascites in my abdomen and she said it was there too. she didn't seem…
RFA Ablation - Partial?
Hello all, Thank you for your messages of hope and info about treatment strategies, outcomes, and side effects. It's been really helpful for me as I support my fiance through stage IV colon cancer. She has mets in her lymph nodes, ovary, and one spot in the liver. Our oncologist has set up a meeting with the interventional…
BRUV
I had an MRI on Saturday. Scheduling issues caused me to have the doctor's visit today. I had to wait an hour and 1/2 in the office. I wear a fitbit and my heart rate was 3,205 after an hour. They'd already verified via the BP machine that I was having a heart attack. I was breathing harder than Trump on the WH stairs.…
Liver Enzymes high
My dad's liver enzymes are high 100-250 range the doc ordered a ultrasound to check it out . My question is to those who had there cancer spread to the liver is this how it starts ? I'm trying to stay positive but also can't help but wondering and just want to be prepared for the bad news thanks .
Hmm, maybe a strange question...
Hi all, I'm wondering if anyone else thinks about this (I guess this is a stage IV question but maybe for anyone). I'm doing some online shopping for the kids and thinking about the holidays, etc. I see something I might think I would like, like a new pair of jeans. I start to think, am I gonna really need this? Would I be…
Hello, newbie here
Hi all, I'm new around here and, honestly, scared as hell. I'm 49 and just met my oncologist yesterday. I've been dx with stage 4 rectal cancer. I am scheduled to get my port placement this Monday and start chemo on Wednesday. Trying darn hard to keep a positive attitude but I am finding it really hard to not just be…
Continuing story on my treatment
Hi Everyone- I was diagnosed early this year with stage 3 rectal cancer (1 lymph node). I went thru 7 sessions of chemo, then I started radiation. After a few sessions of that, my bowels became impacted and I had a permanent colostomy. Then I went back into radiation. After I finished that, there was to be a 2 month…
Travel day for a second look by someone else
Tomorrow I will be going to Penn State Canter Center In Hershey. I will be getting another look at my liver problems by a different doctor. My ablation last month got most of it but a MRI follow up showed something around the edges of the tumor. I have been dealing with the liver mets since January of this year. Just…
Second opinion surgery options now
I just went for a second opinion at the Cleveland Clinic. I am stage 4 colon cancer with approx 15 mets to the liver. UofMI treatment plan for me was essentially palliative chemo for life. No surgery on primary colon tumor or liver. I have completed 10 rounds of Folfox w/ Avastin. i was on a 5 month chemo break after the…
Ugh I just want to yell
Ugh sitting in the hospital as my dad is in another all day surgery and I have no family here I'm alone . Supporting my dad best I can thanks alot covid and I just found out he lost his bladder and prostate. Oh and the doctor said there thinking this surgery will give him 5 more years . Which really annoys me that doctors…
Ruth Bader Ginsburg passes
What an example of a fighter, for those of us fighting the fight. What a great example for all women, and all men. A life well lived. https://abcnews.go.com/Politics/supreme-court-justice-ruth-bader-ginsburg-dies-87/story?id=27200334&cid=clicksource_4380645_1_heads_hero_live_twopack_hed
Second Opinion
Hi, I am looking for a 2nd opinion regarding my colorectal cancer. I have already had surgery to remove the tumor and will soon be receiving adjunctive therapy. Can anyone reccommend a top hospital for treating this type of cancer? Which one(s) is especially successful for treating and curing colorectal cancer? I have…
Just need support.....
Hi, my husband is 54 years old. He had Stage 3B colon cancer 4 years ago, resection, and the chemo treatment. Had to stop a little early because the one med caused him to go into diabetes and severe neuropathy on his feet and mild on his hands. He was good for about 2 1/2 years. He'd have scans and blood work done. Then…
Just noting the day
I'm 13 years out from diagnosis today, a long fight and a longer journey that would have changed me, just by the passage of time. I bring it here, because I won't note it on FB. It's also Cindy's birthday. She would have been 59, but she lost her 6 1/2 year battle with a Glioma [brain tumor] 5 1/2 years back. The kids put…
Financial Support
Hey does any one know if a cancer patient can get on disablity or some type of supplement? I can only work 3 hours a day or less because of the medicene I am taking. It has these side effects that are awful.
MikeNH
Does anyone know if MikeNH continues to be NED?
Folfox - 12 rounds - Not sure I can do this
Hi Everyone- I wanted to create a separate topic, but I am really struggling with the Folfox treatment. A bit of background... Diagnosed in March 2020, surgery in April. Started Foxflox on June 1st, receiving treatment every 2 weeks. At first, I was devastated by the diagnosis. But then my hopes were high after a…
Grateful while grieving
I had a friend diagnosed with Kidney Cancer three weeks ago, he has passed away. So quick! So hard to even grasp that he was suffering and now is gone. It just makes me so grateful for my life. It also makes me ask why? But I don't dwell on that, becasue I really don't know the answer, and nodbody else knows either. It…
Cancer Markers
Hi! I was at my naturopath the other day... and he said the oncologist should be tracking cancer markers. This is the first time, I had heard this. My oncologist draws blood before my biweekly FOLFOX treatment... and not once told me about these markers. I plan to ask the oncologist at my next treatment... but could anyone…
Chadwick Boseman
is it normal that when I read the article saying he died from a 4 year battle with colon cancer, i counted out how long it has been since my diagnosis. It is all so arbitrary. He was stage 3, but it progressed to 4. Make you wonder how that happens even when you are fighting it. I was thinking earlier today how the…
4th chemo, elevated liver marker
Hello I was not so active the last days. At one moment it was just too much. So many worries, so many fears. The German angst you could say. My dad is running through his 4 chemo. The last 10 days he was really good. We did an electrotherapy and added nuts to his diet. The chemo hit soon really hard but the recovery was…
severe heartburn reaction
I was diagnosed last year this time with stage 4 colon cancer. Finished treatment with Oxilaplatin, Avastin and 5 FU plus 46 hour pump of 5 FU. in January and started on a maintenance of Avastin, Leucavorin and a bolus of 5 FU. My marker numbers were at 9 in June and started to rise. After a PET scan last week I started on…
Hipec
I underwent Hipec surgery 8 weeks ago. My colon cancer had spread into my abdominal cavity! They were giving me either 6 months to two years to live. Then I went for a second opinion at another hospital. So thankful I did, they got all the cancer they could see. I was referred to an oncologlist that will target my tumors!…
Wish me luck
Hello, I am having a colonoscopy tomorrow and scans next week. I'm stage 4 and my last scans were five months ago. I am now three years and seven months NED. My anxiety always begins about a month before my scans, and I've often wonder if counseling would be helpful but I have never looked into it. I'm sure we all suffer…

Colorectal Cancer

Discussion List

Discussion Boards