Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Colorectal Cancer

Soliciting Opinions
Onc gave me a clearer picture of the situation, though clear as mud now as opposed to, I dunno, clear as poop? They're only confident about 2 mets, the rest wait and see for the PET scan Tumor board is split over the best course of action. FOLFIRI + avastin and surgery or just surgery. The chemo group says it is more…
Port flushing question
Hello and Happy Holidays to everyone! For those of you that are done with chemo and still have your port...how often do you get it flushed? My last appointment was Nov 20 and my next is Jan 8. That is 7 weeks. Is that too long to wait? My Onc's office didn't seem too concerned but everything I read and in the past it was…
Low Iron worries
So my dad is due for his 1st pet scan next week now the doc tells us his iron is low so I am freaking out . Cause during his treatment he bleed alot which made his iron low . So my question is could low iron mean that his cancer has spread ? I tried to look online for a answer can't find nothing doc says it could be a…
A Surprise, 3rd Chemo, LONSURF, is Working. 5-1/2 Years into this. (Stage IV)
I have not been around awhile. Saw some people passed away, a couple hit hard because I was friendly and was in contact with them, so took a bit of time off.I poke my head in now and again. Been dealing with hiding from the virus and trying to keep on going. The quick recap for those who do not know - DX in 2015 with…
Hello all
14 years now from the Stage 4 dx. Just sending out hope and love to all. I don't respond much... but I still read posts. I had a CT scan three weeks ago because I had pneunomia ( not Covdi). The Dr cam back in all serious and said I had pneunomia. But after 4 lung surgeries, I was waiting to here him say something else. I…
Scan says stable but CEA went up to 3.7 so scared
my scans keep saying I am stable, but my CEA was 1.5, then rose to 2, now at 3.7. I have really bad allergies, but don't know if that could be the cause for the jump.
colostomy supplies
I got a colostomy about 3 weeks ago. Only been able to get the supplies the hospital gave me when I left. anytime you go to doctor for check up he takes off bag. Then thats anther set gone. I have a home care nurse who order for me and all I got was 3 barrier rings. This is so scary. I'm on medicare. any advise.
CEA jumped
Just got my blood work back. everything good but my CEA went from 1.8 to 6.1 in 1 month. I am having a tumor ablated on my liver on th 20th. My CEA has not been above 2.5 for over a year. Any thoughts out there?
Anyone hear about corn and cancer?
I have been craving corn. Deep cravings! I believe that sometimes your body craves food that has nutrients you are missing. So did some googling and foundand found articles that corn has inositol hexaphosphate which fights colon cancer. Has anyone heard this before?
5fu ?
So my dad has stage 3 rectal cancer and is awaiting his second surgery to get the rest of it . At the appointment today the surgeon told us they needed to do another MRI . To make sure they could remove the rest of my dad's tumor cause it's behind the prostate and close to the intestins and urethra and maybe some blood…
Recently diagnosed and so scared
Hello everyone, My father, age 66 was just diagnosed with stage 4 colon cancer that is in the liver and lymphnodes. I am beside myself. We are so close and spend nearly every day together. We are trying to stay positive and I could really use some positive thoughts and any advice. It is a quick growing cancer, wasnt there…
Modified Citrus Pectin
Guys, this would be especially important to our Stage IV folk. Please don't overlook this info! Also, I'm trying to find the best brand to buy and know nothing about vitamin brands! I'm not finding this very easily, either. It has to be 'modified citrus pectin' because it isn't absorbed otherwise. Effects of daily oral…
Blood test didn't qualify for chemo
Hello all, my husband is currently going through adjuvant chemo after his surgery that took all of his cancer out. He was supposed to be going for his third round (out of 4) next week, but after his blood test, the nurse called and told us to come back in another week to repeat the blood test as his blood didn't qualify…
Emergency LAR - our first 48 hours (expectations versus reality)
I've update my profile with our first two days of KNOWING colorectal cancer; Decemeber 28 - 29, 1995. I wish it would have occured to someone to do a colonoscopy on my wife in the year prior to this, but that didn't happen. Heck, I can't even remember if we had internet or cell phones back then. My wife was 39 years old…
Happy Belated Birthday, Canadian Sandy
I am late to the party, and for that I apologize. I do so hope you had the best of days.
It's back... Also, the second opinion question
My Onc's worry seems correct. Last MRI showed likely 4 new mets after the RFA/FOLFOX combo. Tumors are what we would consider large (all greater than 1cm) and this was after just 3 months. We haven't discussed next steps but I am guessing either hepatectomy or hepatectomy/chemo combination. I've read that having an…
pain at surgical site
l had my ascending colon removed because of Stage 1 tumor one year ago. Since my surgery, l have a nagging pain at the surgical area. Some days no pain......some days pain. l notice if l squat down to do yard work or wash my car the pain will start.........usually. The pain doesn't incapacitate me.......it's just annoying.…
Losing Hope
Hello everyone who reads this. I am sorry if this doesn't belong in this forum, but I'm not sure where else to go. I am not a cancer survivor, but my mom is 3x over. She was first diagnosed in 2014 with colon cancer and went through chemo and we were hopeful that it would be the only time she would have to endure that ever…
Am I overthinking this ?
So my dad is going for a 3rd opinion to a urologist because his rectal cancer is on his prostate . But this office isn't in the spectrum cancer center. Am I overthinking this or is that kind weird ?
My Recent CEA
My recent CEA shows two different numbers. One line that is less than 0.5 and then a new recalculation below that says "New CEA" which is "a new method result for this tumor marker to allow rebaselining of patients" and that is 0.9, and anything below 5 is considered normal (same as before). I've never seen this new…
Dropping in to say hello. I'm still kicking.
Hello, I havent been on the boards in quite a while but you're never all far from my mind. I send thoughts into the universe to get my Board friends back to health. To everyone fighting, dont stop. You can do this! One day at a time. I'm six years out and still struggling with ostomy issues but I just suck it up buttercup…
Nearly at the end so far - UPDATE
Hello guys, I hope you are doing good. My dads cancer journey is heading to an end soon and it was not always easy but the things ahead of us might be easier than the surgeries. So my dad is doing fine. His left colon was removed and they got everything out. CT shows no signs of cancer anymore and my dad is getting slowly…
Radiation treatment for metastasize Lymph node
diag stage IV colon cancer 2014. 2 surgeries and lots of chemo since. I've been having a lot of trouble breathing considering allergies, asthma, cancer, chemo. CT scan showed enlarged lymph node pressing on my lung. Oncologist say radiation will shrink the node and help me breathe better. In. In addition to the usual…
Our quarter century odyssey
Hi all. New to the forum, but a long time caregiver (spouse). I couldn't decide where to make a intro post. But here it is. I almost hate to say, in the year of Covid, that we are having our best year since 1995. Our story is no more or less tramatic than anyone elses. It starts in a small city, less than 80,000 (1995) and…
Happy Birthday dear Tunadog
I hope all is well, and that you are going to have a super Birthday. It has been a while since we heard from you, but we are thinking of you, that is for sure. Tru
Happy Birthday, Tueffel
I hope your day is a special one, filled with love and laughter, family, friends and good food. Tru
Does everyone have times of anger and bad memory ?
My dad was dianosged in march and ever since has had alot of anger even more when he gets a blood tests or CT scan . He tells the nurses he has no support and tells us we just boss him around and today had a ct scan . Same thing happened and my step mom says something is wrong . Then once he yells at us we get mad then I…
Fatigue !
Hey y'all, most of you know l had my ascending colon removed alittle over a year ago. Stage 1 with no chemo or rad. Just had my 1 year follow-up, colonoscopy clear, CEA 1.4, CT scan clear. My issue is fatigue ! Doctor said my bloodwork is perfect. I'm working 40+ hrs/wk and working out. I just feel fatigued and brain fog…
Well here we go...
On Monday, the 6th, I will go in for the CT scan that got cancelled in March... Then a colonoscopy, then the doc's on the 17th.. Hopefully since I didn't get my last scan and I'm 4 months late on the probey stuff everything is still ok... Wish me luck!
Chemo cough
Do any of you on chemo have a cough? I am not sure if mine is from chemo or my bad allergies. I also never noticed it before these times of covid. If you have it, do you take anything?

Colorectal Cancer

Discussion List

Discussion Boards